Discouraged-looking for help!

[Charlie_2004]

Hi all!

Looking for some advice, I have not been formally diagnosed with fibromyalgia yet however, it has been suspected from my GP. I have tried Naproxen, dicyclomine sodium and now I’m on amitriptyline to help me manage my full body chronic pain and chronic fatigue which also seem to not be working my GP has run out of medication and my second appointment at my Rheumatologist at the local hospital is not in sight, it’s been over four months since I saw her and the hospital have no clue when I will be seen.

I am seeing a physiotherapist but she can’t really see anything wrong with me, and I believe she is now making things up to try and give me hope.

The lack of help from the hospital and the medication has left me pretty upset and disheartened. I was wondering if any of you had or are going through the same thing, and if going privately would help.

Any advice would be welcomed as my family and friends don’t understand and I don’t know were else to look xo

[Hidden]

Hi

Could you phone consultant's secretary and try and get her to bring it forward. Please take care of yourself Lynne

[Charlie_2004 in reply to Hidden]

Hi

I have tried that however they say they are fully booked and have no idea when the next free appointment will be, so unfortunately I think I’m out of options with the NHS. Thank you anyways and you too x

[Hidden in reply to Charlie_2004]

What about getting your Dr in the case, that worked for me with another condition I have. Take care Lynne

[Hidden]

Hi Charlie trust me I've been like this a year I called ambulances got panic attacks terrible chest rib bone pain hair fell out at first insomnia the lot ,my appointment is in March ,docs don't no much about fibromyalgia some do ,I take antidepressant for fibromyalgia and co codamol could u ask doc maybe for pregablin that works for some people it Diddnt me however it may for you ,I had to totally cutt out sugar because sugar flares me up I replaced it with honey in coffee on cereal etc ....your going to have to wait for Rhumatologist don't let doctor fob u of a physiotherapist can't really do anything but docs send us this route first to rule out other things I went once to see one never went back as what he told me I could have was no way what my body was telling me thought I had carpel tunnel !!!!!but the pain was wide spread not just in wrists 😂😂try cutting out sugar drink plenty of water because it's so important what we eat xxx stay strong xx

[bigalan]

Hi Charlie, Took me almost 3 years to get to the bottom of all the pain.

It was not until I saw a second Rheumatologist that I got a diagnoses of Fibro & Osteo.

Hang on in there as best as you can. John.

[0302]

Hi Charlie and all reading this pos , my mum has fibromyalgia; all the same symptoms as everyone on here , as a family we tried everything and were in despair at the pain my mum was in , she was on 2 amatripline , gabapentin 3,600mg per day and no more could be done she basically was told she would have to try and get on with it , we’ll let me tell you we found our miricale in the for of 1000 mg of cbd oil my mum hasn’t touched any meds for 4 wks is out in the car with my dad her hair is looking amazing diet has vastly improved honestly everything is amazing aniety she has her life back ,l hope this pot helps someone l have my mum back and she has a quality of life our family can not believe it xxx

[0302]

Hi Charlie that’s the dosage my mum takes completely legal you can buy it online she takes half pipete in morning half in evening : go and research cbd health also research your endocannibnoid system it’s an eye opener by the way my mum is 76 honestly it has changed her life , she is basically meds free xxx

[0302]

Also research cbd for fibromyalgia xx

[0302]

Also Charlie try and find a good holistic shop near we’re you live and chat to them about cbd oil don’t buy any if you decide to try it from Holland Barrett ect as it’s different product xx

[0302]

How dare you say that , l may not have explained it properly , you have your opinion and facts l have mine we will leave it at that

[Stevejj]

Ladies and gentleman you are both entitled to your opinions whether they are fact or not. Let’s not turn this forum into a argument zone as it’s a great place that helps loads of people. Play nice your both entitled to an opinion x

[Bmw640]

Hi Charlie

Good luck with getting help for your pain. I know fully body pain well so know what it’s like when you haven’t got the meds you need. Maybe you can ask your GP about Pregabalin, it works well for me too. But also ask about duloxetine, I’ve come across a few people who it works very well for. CBD wise Provocan do excellent ‘full spectrum oils’ & might well give you advise on cbd if you ask. There’s a lot of useful info on their website. In the meantime you could try ‘Curcumin’ the active part of turmeric known for its pain relieving properties. There are several different tablets out there you could look into. Plus there’s another herbal pain relieving tablet called ‘End Pain’ By ‘Fatigued to Fantastic’. A lot of these are made in the states but you can get hold of them from websites like ‘healthmonthly’ (uk) and Amazon. Hope you can find a way to relieve at least some of your pain. Forgot to say epsom salt baths are good too.

Take care

Bm