Would welcome your thoughts on my latest TSH and whether my sluggish, low energy, weight gain, constant bloated stomach, brain fog, bad short term memory and fungal rash on breasts-Is it all hypo symptoms or B12 deficiency masked by the taking of PPI Omaprazole for hiatus hernia and acid reflux. Is the PPI causing mis-absorption of vitamins and minerals?? All in all feel pretty rubbish at the moment, even my acid reflux is really bad during the night, but no doubt the sudden weight gain has caused this...
The weight gain is all on my stomach from under my breasts down- with a 8.5 months pregnant look on top of skinny legs. Some weight gain on back and my face has gone rounded!
Started with tinnitus about the same time as the hypo diagnosed- but still have it- did think it was better when I was on 75mcg but cant be sure, now on 50 due to my TSH dropping to 0.01.
Also had calf cramp nearly every morning for the last few weeks.
Have been on PPI, Beta blockers for migraines and astrovastatin that was 8.3 chl, now 4.2 with the statin.
Family history of HYPO -mum, aunt, sister. (P.S sister's GP says she would like her TSH at just below 1)
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My Folate was 9.7 in 2014 but now 4.5, but told "is within range so normal...."
Ashamed to say it- but have a hoarding problem, want to sort all the piles of stuff and papers but cant seem to get my head round it all...cant make the decision and don't want to throw things away unless they are rubbish..
Eventually diagnosed with Hypo over a year ago, and was on 25, then 50 then 75 Levo. Results of TSH were 0.01 so put me down to 50 Levo, which I have been on for the last 4-5 months.
Previously tested negative for coleic and TPO,
VitD "really low" -was 24 @ Mar 2019-)so on 6 weekly dose, now on monthly top up, then to buy my own- any recommendations?
Feeling so bad went to GP- did full bloods (he wouldn't do Vit D again and only TSH "as that is the only one that counts"
(Taking the advice from the forum my bloods were drawn at 9am, didn't take the levo till after the test and was only drank water and no food before it)
The results just in-The results say borderline- speak to GP-so will be speaking on Monday
Aim for TSH towards the bottom of the reference range for T4 replacement in primary hypothyroidism, targeting to around 1.0mU/L for symptomatic patients.
As the result clearly show.....you are under medicated and need 25mcg dose increase in levothyroxine
What brand of levothyroxine are you currently taking.
See GP for 25mcg dose increase.
Many people find Levothyroxine brands are not interchangeable.
Best to not be prescribed 75mcg tablet....but either 50mcg plus 25mcg or 50mcg and cut another 50mcg in half
Once you find a brand that suits you, best to make sure to only get that one at each prescription.
Watch out for brand change when dose is increased or at repeat prescription.
Many patients do NOT get on well with Teva brand of Levothyroxine. Though it is the only one for lactose intolerant patients.
No other medication or supplements at same as Levothyroxine, leave at least 2 hour gap. Some like calcium, magnesium, HRT, omeprazole or any PPI, vitamin D should be four hours away
(Time gap doesn't apply to Vitamin D mouth spray)
High B12 result can be misleading.
Presumably not been supplementing B12?
You can have functional B12 deficiency. Unable to utilise B12
Improving other B vitamins may help
Your folate is low
Supplementing a good quality daily vitamin B complex, one with folate in not folic acid may be beneficial.
B vitamins best taken in the morning after breakfast
Igennus Super B complex are nice small tablets. Often only need one tablet per day, not two. Certainly only start with one tablet per day after breakfast. Retesting levels in 6-8 weeks
Or Thorne Basic B or jarrow B-right are other options that contain folate, but both are large capsules
If you are taking vitamin B complex, or any supplements containing biotin, remember to stop these 7 days before any blood tests, as biotin can falsely affect test results
Thank you for your reply, will make sure they up the dose and get the separate 25mcg.
Will do a private VitD test but will mention my calcium level to the doctors. I actually thought my Vit D was low as noticed I was finding going up the stairs, especially the first step difficult and getting up from a chair or toilet seat.
Thought it was being in my late 50s last time but what a difference when I started on the prescribed vitd.
Currently on a monthly 25000 from GP,
The result after the booster result was 19 sep and was 60, the range being over 51. Note from testing lab does say over 50 for optimal bone health.
My folate in September was 5.4 and down to 4.5 in 4 months.
VitB12 always higher than range but told it is ok as kidneys and FBC are normal.
Haven’t been taking any VIt supplements, so will start taking one to see if it improves my energy. Often feel sleepy when eating.
My blood sugar test came back at 39 which is probably 1 point off being pre-diabetic.
Always strict about taking my Levo early with only water and an hour before eating and tea and coffee.
Will read up on low acid but sure I don’t have that.
Have found a splash of Bragg’s cider vinegar in sparkling water does flatten and soften my bloated stomach which is as tight as a drum skin and huge especially after eating
Frequently members on here find vitamin D mouth spray by Better You works more effectively as it avoids poor gut function (particularly relevant in your case)
Folate is low
My own experience was I always had above range B12 despite never supplementing.....until I started supplementing a good quality daily vitamin B complex that had folate in to improve low folate
Many of us have MTHFR gene variation....meaning we need folate, not folic acid
You’ve received a comprehensive reply from Slow Dragon so the only thing for me to add concerns PPI. This medication reduces stomach acid and some of your symptoms indicate a lack of it.
Thanks for your reply, unfortunately my acid must be high going by the symptoms.
Can even get acid indigestion if I haven’t eaten- will discuss with GP as currently very bad and having to supplement with Gavison tablets to deal with excess acid, and sleeping in a raised position to stop the horrid choking and reflux.
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