Search
Search
About
Log in
Join
Experiences with
Mixed connective tissue disease (MCTD)
Posts
Communities
332 public posts
Filter results
Just a quick question
Had my rhematology appointment a month ago my thuemy was happy that plaquenil seems to be working blood results back within normal limits rhuemy says ctd and fibro (lyrica for fibro) my question is anti rnp, dsdna, ana positive does this indicate sle or
mctd
?
Had my rhematology appointment a month ago my thuemy was happy that plaquenil seems to be working blood results back within normal limits rhuemy says ctd and fibro (lyrica for fibro) my question is anti rnp, dsdna, ana positive does this indicate sle or
mctd
?
Hopey
in
LUPUS UK
10 years ago
Totally flumaxed now!!!
I was diagnosed a couple of years ago with
mctd
, with lupus elements, oesteo and inflammatory arthritis, fibro, myofacial arthralgia, and Reynolds. I had rheumy a week ago and asked her if there was a definitive diagnosis...I was told it remained as originally diagnosed.
I was diagnosed a couple of years ago with
mctd
, with lupus elements, oesteo and inflammatory arthritis, fibro, myofacial arthralgia, and Reynolds. I had rheumy a week ago and asked her if there was a definitive diagnosis...I was told it remained as originally diagnosed.
lizzidrippin
in
LUPUS UK
10 years ago
Rib pain
10 years with
MCTD
. Does anyone get pain in the rib cage? I have had it over a month now and it feels bruised most of the time and occassionally I get cramps or something.
10 years with
MCTD
. Does anyone get pain in the rib cage? I have had it over a month now and it feels bruised most of the time and occassionally I get cramps or something.
claireie
in
LUPUS UK
10 years ago
Want to take advantage of all our features? Just log in!
Log in
or
Join
Too tired to work
I was diagnosed with FM when I was 32 and then at 40 with
MCTD
and RA. I now have Lupus also, Sleep apnoea (81 times per hr) and I think I have spinal stenosis, but the MRI didn't show anything.
I was diagnosed with FM when I was 32 and then at 40 with
MCTD
and RA. I now have Lupus also, Sleep apnoea (81 times per hr) and I think I have spinal stenosis, but the MRI didn't show anything.
claireie
in
Fibromyalgia Action UK
10 years ago
Coconut Oil and Doctor Newport
Coconut Oil and Doctor Newport 8/28/2014: An UPDATED Note from Dr. Mary & How Steve is doing now! It has been more than 6 years since Steve improved with coconut oil. He improved very significantly the first year and remained stable for 2 years. . He began having seizures in summer 2013 starting with
Coconut Oil and Doctor Newport 8/28/2014: An UPDATED Note from Dr. Mary & How Steve is doing now! It has been more than 6 years since Steve improved with coconut oil. He improved very significantly the first year and remained stable for 2 years. . He began having seizures in summer 2013 starting with
Hidden
in
Cure Parkinson's
10 years ago
Diagnoses of sorts
all come back negative apart from RNP and ana 2 years ago was speckled patten but has been coming back normal the last couple of times am now on plaquenil 200 mg a day to control mild sle flares confused as all the information on RNP says when found on its own with no other positives point more to
MCTD
all come back negative apart from RNP and ana 2 years ago was speckled patten but has been coming back normal the last couple of times am now on plaquenil 200 mg a day to control mild sle flares confused as all the information on RNP says when found on its own with no other positives point more to
MCTD
Hopey
in
LUPUS UK
10 years ago
MCT vs Coconut Oil
I recently purchased MCT oil, thinking it might be easier to take because it's more liquid in form. I noticed my tremors where worse, after having had good luck with coconut oil. So I looked up info on MCT vs Coconut oil, and found that the most important medium chain fatty acid, lauric acid, has been
I recently purchased MCT oil, thinking it might be easier to take because it's more liquid in form. I noticed my tremors where worse, after having had good luck with coconut oil. So I looked up info on MCT vs Coconut oil, and found that the most important medium chain fatty acid, lauric acid, has been
marion11005
in
Cure Parkinson's
10 years ago
The irony of it...
I have a diagnosis of
MCTD
with my symptoms leaning most obviously towards Limited Scleroderma. All Winter I have suffered the ill effects of cold, damp weather, persevering with my outdoors jogging nonetheless(just wore various layers of clothing and gloves).
I have a diagnosis of
MCTD
with my symptoms leaning most obviously towards Limited Scleroderma. All Winter I have suffered the ill effects of cold, damp weather, persevering with my outdoors jogging nonetheless(just wore various layers of clothing and gloves).
Hidden
in
LUPUS UK
10 years ago
Hi I am a first timer user of this site,I have RA with 28 yrs,sjogrens with 20yrs MCTD for 10 yrs.I am currently taking Mycophenolate with
no complaints My query is about tooth decay. I use high content fluoride toothpaste and biotene which helps but this yr lone I have had 19 fillings and am now thinking of getting all my teeth out and getting implant dentures. Has anybody had a similar experience? thanks
no complaints My query is about tooth decay. I use high content fluoride toothpaste and biotene which helps but this yr lone I have had 19 fillings and am now thinking of getting all my teeth out and getting implant dentures. Has anybody had a similar experience? thanks
aggieb
in
NRAS
10 years ago
Best Practice
The second thing the neurologist told me after the bad news, he advised me not to go to the internet to read about Parkinson's. I read about Parkinson's and also try different diet supplements e.g. Coconut oil, MCT oil, modified keto diet. I participate on this forum in my search to have the greatest
The second thing the neurologist told me after the bad news, he advised me not to go to the internet to read about Parkinson's. I read about Parkinson's and also try different diet supplements e.g. Coconut oil, MCT oil, modified keto diet. I participate on this forum in my search to have the greatest
Hidden
in
Cure Parkinson's
10 years ago
Is this the right site for MCTD? Does anybody else suffer from tenderness in their jaw?
I have Mixed connective tissue disease. Symptoms hard patches on fingers, arthritic joints, fatique.
I have Mixed connective tissue disease. Symptoms hard patches on fingers, arthritic joints, fatique.
vletchworth
in
Scleroderma & Raynaud's UK (SRUK)
10 years ago
Having a 'Why me?' day :-(
I was diagnosed a year ago with
MCTD
overlapping with SLE after having symptoms for a number of years that then all escalated and crashed together in the year before I was finally diagnosed with
MCTD
.
I was diagnosed a year ago with
MCTD
overlapping with SLE after having symptoms for a number of years that then all escalated and crashed together in the year before I was finally diagnosed with
MCTD
.
tcogb
in
LUPUS UK
10 years ago
Does anyone feel ill after having a filling repaired by the dentist?
I have
MCTD
that has affected my eyesight and I am now registered as severely sighted. I am taking low dose of Prednisolone and Brufen. Has anyone had this type of problem after dental work? I don't want to bother dentist or doctor unless really necessary.
I have
MCTD
that has affected my eyesight and I am now registered as severely sighted. I am taking low dose of Prednisolone and Brufen. Has anyone had this type of problem after dental work? I don't want to bother dentist or doctor unless really necessary.
mirabel
in
LUPUS UK
10 years ago
My fiance was diagnosed with mctd a several months back and now she is pooping out bright red watery blood with hardly any stool.please help
I called her Dr and she said with her diagnosis that she needed to be seen asap but my fiance is stubborn and I really need help with this I have to stay strong for her but she seems not to care so much and her illness has hit her fast n hard and she is only 27
I called her Dr and she said with her diagnosis that she needed to be seen asap but my fiance is stubborn and I really need help with this I have to stay strong for her but she seems not to care so much and her illness has hit her fast n hard and she is only 27
onelife09
in
Hughes Syndrome APS Forum
10 years ago
Does anyone else have lupus and hypermobility syndrome?
Hi all :) I have had a variety of autoimmune diseases over the last ten years (I was diagnosed with
MCTD
originally but after four years I was told this had progressed into lupus alone). I did however feel glad I had a solid diagnosis and generally I have been reasonable well for a while now.
Hi all :) I have had a variety of autoimmune diseases over the last ten years (I was diagnosed with
MCTD
originally but after four years I was told this had progressed into lupus alone). I did however feel glad I had a solid diagnosis and generally I have been reasonable well for a while now.
stephaniemae
in
LUPUS UK
10 years ago
Bloody Lupus!!!
I was diagnosed about 5 years ago with possible Lupus/
MCTD
after one positive ANA result and have never had another one since.
I was diagnosed about 5 years ago with possible Lupus/
MCTD
after one positive ANA result and have never had another one since.
Julia001
in
LUPUS UK
10 years ago
Anyone use an app to record and monitor their blood test results?
I don't trust my GP to spot any trends or to necessarily understand certain values and their significance or otherwise related to my
MCTD
and the medication I'm on.
I don't trust my GP to spot any trends or to necessarily understand certain values and their significance or otherwise related to my
MCTD
and the medication I'm on.
tcogb
in
LUPUS UK
10 years ago
I have this hand pain for over 12 years but just came to realize it is related to a condition -call MCTD Any advise?
Roza
in
LUPUS UK
10 years ago
Waiting on tests results
I find these groups very helpful and informative as I come across them doing research on the internet about LUPUS and
MCTD
. I started having chest pain around Veterans Day week last year (2013).
I find these groups very helpful and informative as I come across them doing research on the internet about LUPUS and
MCTD
. I started having chest pain around Veterans Day week last year (2013).
Blackbutterfly74
in
LUpus Patients Understanding and Support
10 years ago
Anyone else who has to ask for Mycophenolate & Hydroxy every month from GP instead of having it on repeat prescription?
I saw my GP yesterday to discuss various tests & treatments I have been having recently (I was diagnosed with
MCTD
with 'lupus like symptoms' according to consultant in April 2013) and to go over my medication. I am under the shared care of my local rheumatologist and The Royal Free n London.
I saw my GP yesterday to discuss various tests & treatments I have been having recently (I was diagnosed with
MCTD
with 'lupus like symptoms' according to consultant in April 2013) and to go over my medication. I am under the shared care of my local rheumatologist and The Royal Free n London.
tcogb
in
LUPUS UK
10 years ago
1
...
13
14
15
...
17
Next page
10
Filter results
Clear filters
Posted in
All communities
LUPUS UK
154 results
Scleroderma & Raynaud's UK (SRUK)
34 results
Cure Parkinson's
24 results
View top 10 communities
Sort by
Most Relevant
Newest