My name is Claire, I am not new to this site, but have not been on it for a few years.
I was diagnosed with FM when I was 32 and then at 40 with MCTD and RA. I now have Lupus also,
Sleep apnoea (81 times per hr) and I think I have spinal stenosis, but the MRI didn't show anything.
I can only walk short distances before having to sit down, and the pain gets so bad if I try to carry on walking. I have to take a camping chair everywhere, if I want to go out.
I am on hydroxychloroquin, methotrexate, humira and 15mg of steroids (30-40mg when I have a flare).
I run my own business with 6 employees and I do now get a lot of help from my daughter and my husband, but I find I am now really struggling to get anything done as I fall asleep or I'm too uncomfortable to sit in one place for long.
I started work at 16, but have a gap where I was earning under the tax bracket, so I probably have at least 5 years to go before I have paid enough stamp for a full pension.
Should I apply for PIP, how ill do I need to be? My mother was waiting for a hip op, and couldn't walk for 18months and even then they told her that she was entitled to the lower payment, although she did end up getting more.
I haven' looked into getting disability, but have a blue badge, which they sent straight away without having to see anyone. Is there a way of wording that sometimes you feel ok, but other times are dreadful.
Hope you can help, I don't want to give up work completely, but it is now such a struggle.