Hi there, not sure if I have actually posted on here although I do actually read alot of it. I was diagnosed about 5 years ago with possible Lupus/MCTD after one positive ANA result and have never had another one since. I do however have the butterfly rash and have, a few months ago, had to give up work (I generally temp so that I can manage the fatigue) and claim ESA as I am SO very tired, have searing pain in my joints and particularly muscles and today I am so very dizzy that I only really feel safe by reclining on the sofa.
I have an appointment later on this month with the rheumatologists and I am wondering if he will keep me signed off because I really dont feel like i can cope with work at the moment and I am worrying about it.
Oh, in case you are wondering if it is my meds that are causing this, I ave been taking the same stuff for nearly 5 years hydrichloroquine, amitryptyline, ramipril, amlopidine, thyroxine, tramadol for the pain and I also take 1000mg of evening primrose oil because I am a lady "of a certain age".
My partner of 20years is very supportive and is not bothered whether I work or not, but I am, does that make any sense? I tend to forget things and the names of things too. Any insights, advice gratefully received.