I have had a variety of autoimmune diseases over the last ten years (I was diagnosed with MCTD originally but after four years I was told this had progressed into lupus alone). I did however feel glad I had a solid diagnosis and generally I have been reasonable well for a while now. However on Friday I visited my new rheumatologist at Aintree Hospital and he told me I had hypermobility syndrome as well as lupus. I asked him how come I hadn't been told this before and he said 'perhaps no-one has ever spotted it' (!). I asked him if my chronic back pain was this or lupus and he said probably the hypermobility as it means I more than likely have the back of a 65 year old!! (I'm 43 btw......).
So what I really want to know is does anyone else have both of these illnesses? And is my back, shoulder and neck pain (plus horrific headaches) actually caused by hypermobility syndrome and not - as I assumed - symptoms of lupus? I'm a bit confused to be honest and wasn't given any advice as to what I can do next...
Any help would be brilliant!