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Experiences with
Mixed connective tissue disease (MCTD)
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Rundown woman syndrome?
My Rheumatologist with the combination of my symptoms and blood work decided on a diagnosis of
MCTD
and Fibro. He put me on plaquenil twice a day for 12 weeks. Having a diagnosis was so validating! After years of searching! Then we did blood work again.
My Rheumatologist with the combination of my symptoms and blood work decided on a diagnosis of
MCTD
and Fibro. He put me on plaquenil twice a day for 12 weeks. Having a diagnosis was so validating! After years of searching! Then we did blood work again.
Csteam12
in
World According to Lupus
9 years ago
Changing medication
Hi I was diagnosed with mild
MCTD
and lupus in august 24th 2014. I was on hydroxychloroquine but I was get fare up afree flare up. So I whe to see My tspecialist nurse so she can put me on a new medican call azathioprine. Has any one been on it and if so how does it make u feel..,?
Hi I was diagnosed with mild
MCTD
and lupus in august 24th 2014. I was on hydroxychloroquine but I was get fare up afree flare up. So I whe to see My tspecialist nurse so she can put me on a new medican call azathioprine. Has any one been on it and if so how does it make u feel..,?
Sugaandsweetz
in
LUPUS UK
9 years ago
Asking your opinion
I'm diagnosed with
MCTD
. Just starting the plaquenil and my symptoms haven't gotten any better. I thought for so long I was a hypochondriac and a freak of nature. I am security at a medium security correctional facility. The hours are long and the work is taxing.
I'm diagnosed with
MCTD
. Just starting the plaquenil and my symptoms haven't gotten any better. I thought for so long I was a hypochondriac and a freak of nature. I am security at a medium security correctional facility. The hours are long and the work is taxing.
Csteam12
in
LUpus Patients Understanding and Support
9 years ago
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BOOK REVIEW: The Coconut Oil and Low-Carb Solution for Alzheimer's, Parkinson's, and Other Diseases by Mary T. Newport (MD) (2015)
This book needed to be written. Fortunately it has been written by a gentle expert, who has the patience and integrity to distinguish fact from opinion by providing references to scientific publications to support every claim. Subtitled “A Step-by-Step Guide to Using Diet and a High-Energy Food to Protect
This book needed to be written. Fortunately it has been written by a gentle expert, who has the patience and integrity to distinguish fact from opinion by providing references to scientific publications to support every claim. Subtitled “A Step-by-Step Guide to Using Diet and a High-Energy Food to Protect
fwes
in
Cure Parkinson's
9 years ago
But you look so well
I have damaged lungs (Pulmonary Fibrosis) caused by the lupus or
MCTD
. The reason for this post is to say there is no reason to give up just because we have been diagnosed with a chronic disorder. If you have the energy always strive to look your best.
I have damaged lungs (Pulmonary Fibrosis) caused by the lupus or
MCTD
. The reason for this post is to say there is no reason to give up just because we have been diagnosed with a chronic disorder. If you have the energy always strive to look your best.
Maureenpearl
in
LUPUS UK
9 years ago
Making the Best of the “Bland” Diet
Written by Alexandra Rothwell, MPH, RD, CSO, CDN The bland diet is a loosely defined collection of diet restrictions that may be prescribed following gastrointestinal surgery or as management for gastric distress (e.g. nausea, vomiting, and/or diarrhea). When thinking about bland foods, I can’t stop
Written by Alexandra Rothwell, MPH, RD, CSO, CDN The bland diet is a loosely defined collection of diet restrictions that may be prescribed following gastrointestinal surgery or as management for gastric distress (e.g. nausea, vomiting, and/or diarrhea). When thinking about bland foods, I can’t stop
tydonald
in
Cook For Your Life
9 years ago
Need to understand my result I have an appointment June 30 but it is driving me crazy not knowing
Can anyone tell me what my test result mean: Procedure: Homogeneous Pattern LC Results 1:160 Pattern: Homogeneous (smooth) Histone Antigen Detected DNA(ds,ss) Suggested Disease Association High Titers - SLE Pattern: Speckled Antigen Detected Sm, RNP, SCL-70 Suggested Disease Association SLE,
MCTD
Can anyone tell me what my test result mean: Procedure: Homogeneous Pattern LC Results 1:160 Pattern: Homogeneous (smooth) Histone Antigen Detected DNA(ds,ss) Suggested Disease Association High Titers - SLE Pattern: Speckled Antigen Detected Sm, RNP, SCL-70 Suggested Disease Association SLE,
MCTD
Bamasoul
in
LUpus Patients Understanding and Support
9 years ago
MCTD/Lupus
Is there a Lupus group in Somerset/Devon area? I live near Taunton, thanks.
Is there a Lupus group in Somerset/Devon area? I live near Taunton, thanks.
Hidden
in
LUPUS UK
9 years ago
Update on hospital appointment
Do you think any of this could be linked to UCTD /
MCTD
? Any comments on the blood results and synovitis? always glad of your advice. BB
Do you think any of this could be linked to UCTD /
MCTD
? Any comments on the blood results and synovitis? always glad of your advice. BB
bestbuddy
in
LUPUS UK
9 years ago
MCTD and all that goes with it!
Hi, after being diagnosed for
MCTD
with Lupus Myositis, Raynaud's and I don't know how many more on top. I broke my neck as a 14 year old and last year had a Cervical Disc Prolapse due to the old accident, so ended up having a discectomy last Sept on c6/7.
Hi, after being diagnosed for
MCTD
with Lupus Myositis, Raynaud's and I don't know how many more on top. I broke my neck as a 14 year old and last year had a Cervical Disc Prolapse due to the old accident, so ended up having a discectomy last Sept on c6/7.
Hidden
in
LUPUS UK
9 years ago
Ghrelin for treating PD
I do not know how one would obtain it, but Ghrelin seems to be pretty powerful in treating PD. Here's an article: http://www.ncbi.nlm.nih.gov/pmc/articles/PMC2845822/ Prolonged fasting, lighter meals, green tea extract, marijuana, and coconut oil all increase it. It works when taken orally. The MCT's
I do not know how one would obtain it, but Ghrelin seems to be pretty powerful in treating PD. Here's an article: http://www.ncbi.nlm.nih.gov/pmc/articles/PMC2845822/ Prolonged fasting, lighter meals, green tea extract, marijuana, and coconut oil all increase it. It works when taken orally. The MCT's
zawy
in
Cure Parkinson's
9 years ago
Ulcerated left eye
I still diagnosed with
MCTD
(sle) with lung damage and will be having Rituximab treatment sometime in June. I'm so excited at the moment and I'm off on a cruise on Monday to the canary Islands. Take care everyone, praying you all have a peaceful and pain free weekend. Love and hugs xx
I still diagnosed with
MCTD
(sle) with lung damage and will be having Rituximab treatment sometime in June. I'm so excited at the moment and I'm off on a cruise on Monday to the canary Islands. Take care everyone, praying you all have a peaceful and pain free weekend. Love and hugs xx
Maureenpearl
in
LUPUS UK
9 years ago
Swollen lymph nodes
I have
MCTD
for 20 years now and have had swollen lymph nodes many times which has been put down to just part of the condition. Now my daughter has for last 2weeks a swelling in supracaviclar area and is goin for an urgent ultrasound on Tuesday (worried +++) .
I have
MCTD
for 20 years now and have had swollen lymph nodes many times which has been put down to just part of the condition. Now my daughter has for last 2weeks a swelling in supracaviclar area and is goin for an urgent ultrasound on Tuesday (worried +++) .
Bronagh2015
in
LUPUS UK
9 years ago
Dermatomyositis
I am awaiting my blood test results and skin biopsy to find out if I have
MCTD
and just wondered if there is anyone with similar symptoms? I also have Raynaud's phenomenon.
I am awaiting my blood test results and skin biopsy to find out if I have
MCTD
and just wondered if there is anyone with similar symptoms? I also have Raynaud's phenomenon.
caram78
in
Scleroderma & Raynaud's UK (SRUK)
9 years ago
Is there any evidence for the bullet-proof coffee craze?
It's made from filter coffee, two tablespoons of grass-fed butter and two tablespoons of medium-chain triglycerides (MCT) oil, all blended together as a breakfast meal replacement (if you're doing the all-out bullet-proof diet). It's claimed that it helps with energy, focus, and weight-loss. Here's the
It's made from filter coffee, two tablespoons of grass-fed butter and two tablespoons of medium-chain triglycerides (MCT) oil, all blended together as a breakfast meal replacement (if you're doing the all-out bullet-proof diet). It's claimed that it helps with energy, focus, and weight-loss. Here's the
Joel
in
Healthy Evidence
9 years ago
Raspberry Ketone
Is this good to take with RA,
MCTD
and Lupus ? I am so full of aches and pains now-more than usual- can it be these capsules or would I be having these extra symptoms anyway ? Can anyone help here ?
Is this good to take with RA,
MCTD
and Lupus ? I am so full of aches and pains now-more than usual- can it be these capsules or would I be having these extra symptoms anyway ? Can anyone help here ?
Taweet
in
LUPUS UK
10 years ago
Tooth pain
Dentist has given me the all clear on healthy gums and teeth so it much be something else, I am just hoping it isn't
MCTD
or lupus related! Xxxxx
Dentist has given me the all clear on healthy gums and teeth so it much be something else, I am just hoping it isn't
MCTD
or lupus related! Xxxxx
Sianied
in
LUPUS UK
10 years ago
Newly diagnosed & seeking guidance
I have had Mixed Connective Tissue Disease (
MCTD
) with primary symptoms of Relapsing Polychondritis and Lupus for more than 10 years and have had symptoms of hughes for at least a few years which went undiagnosed due to history of migraines, back problems, and
MCTD
.
I have had Mixed Connective Tissue Disease (
MCTD
) with primary symptoms of Relapsing Polychondritis and Lupus for more than 10 years and have had symptoms of hughes for at least a few years which went undiagnosed due to history of migraines, back problems, and
MCTD
.
Godstrong
in
Hughes Syndrome APS Forum
10 years ago
Coconut Oil Recipes
I think it might be fun to gather everyone's ideas for making coconut oil an attractive part of the diet into one post. My hope is that this is a Recipe Post and not a place for strutting your stuff, , or debating about Angels on the head of a pin. Lighten Up; Have Fun! 0. Butter Substitute. At the
I think it might be fun to gather everyone's ideas for making coconut oil an attractive part of the diet into one post. My hope is that this is a Recipe Post and not a place for strutting your stuff, , or debating about Angels on the head of a pin. Lighten Up; Have Fun! 0. Butter Substitute. At the
fwes
in
Cure Parkinson's
10 years ago
MCTD & NSIP
Hello. My names Jyoti I'm 25 years old and have recently been diagnosed with mixed NSIP. And I don't know were it starts and ends I'm due to start treatment of Cyclophosphamide and steroids soon. And in all honesty I'm clueless and a little frightened. Anybody else with the same or similar disease because
Hello. My names Jyoti I'm 25 years old and have recently been diagnosed with mixed NSIP. And I don't know were it starts and ends I'm due to start treatment of Cyclophosphamide and steroids soon. And in all honesty I'm clueless and a little frightened. Anybody else with the same or similar disease because
JyotiSmith
in
Lung Conditions Community Forum
10 years ago
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