Is this the right site for MCTD? Does anybody else suffer from tenderness in their jaw?

[vletchworth]

I have Mixed connective tissue disease. Symptoms hard patches on fingers, arthritic joints, fatique.

[Lady-Florence]

I, too, have a diagnosis of MCTD, plus Fibromyalgia. So many of the conditions have aspects in common so this site can be right for you, both to read and to support others. Just beware of thinking you may get every side effect that others have! Good luck and good health! Are you recently diagnosed? I had a whole range of possible diagnoses before they said MCTD as a term to cover a multitude of things, some more severe than others. I have had an autoimmune condition since my mid-teens, it is thought, and had dreadful chilblains and 'dead' fingers long before that. Now in my early 60's I can testify that life can be fulfilling in spite of it all ...

[vletchworth in reply to Lady-Florence]

Thank you for your reply. I am in my early 60s too. I was diagnosed about four years ago when they were searching why I was so tired and could barely stand. After a period of being stable on drugs have now started all sorts of 'odd' symptoms. - am ignoring them until they force their attention on me! - It's easy to think that common ailments are something more. Tiredness and arthritic joints are main issues as I am a carer for my husband (dialysis patient)and work.

[Shadows-walker]

Hi to have tenderness in my jaw ,I have been told I have raynaulds sjorgrens ,fibro and chronic fatique , I might add it's just the right side of my face waiting on a lip biopsy and eye specialt at moment also told I have connective tissue but hasn't used the word mixed I don't think .also found lupus antibiodys but says I don't have lupus ? I have decided to stop worrying at moment as there is nothing I can do just trust the doctors look after me, the more stressed I get the worse I feel .I have stopped chatting to some of my friends as they look at me ,and I feel they don't think there is anything wrong with me and that does Wined me hope you feel better Chris

[Helen58]

Hi. Yes to all of the above, my jaw was very sore carrying into my ears and cheekbones. I was told that this was linked to Sjorgens along with my Scleroderma. I am n meds which have reduced the pain unless it is very cold or I talk too much

Helen

[vletchworth in reply to Helen58]

Thank you for replying. My jaw bone on the right hand side seems to slip in and out of alignment and I end up talking very strangely! There are so many odd symptoms that appear that you can end up getting very neurotic!