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Mixed connective tissue disease (MCTD)
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Possible connective tissue disorder - need some help in ordering the right blood test please
I have asked Blue Horizon to give me details about what antibodies they screen for in the ANA test and the one I was looking for in particular was the U1-RNP antibody present in
MCTD
. They test for: nRNP,Sm,Ro,La,Jo1 and Scl70 which are all part of the RNP/Extractable Nuclear Antibody profile.
I have asked Blue Horizon to give me details about what antibodies they screen for in the ANA test and the one I was looking for in particular was the U1-RNP antibody present in
MCTD
. They test for: nRNP,Sm,Ro,La,Jo1 and Scl70 which are all part of the RNP/Extractable Nuclear Antibody profile.
Hidden
in
Hughes Syndrome APS Forum
11 years ago
Well exit the methotrexate and enter the leflunomide.
Bit of a mixed bag at my appointment as my previous diagnosis was uctd/
mctd
of lupus /myositis. Last time I was informed that it was more lupus and today the rheumy does not want to put a diagnosis on it due to it mainly only affecting two systems.....the joints and muscles.
Bit of a mixed bag at my appointment as my previous diagnosis was uctd/
mctd
of lupus /myositis. Last time I was informed that it was more lupus and today the rheumy does not want to put a diagnosis on it due to it mainly only affecting two systems.....the joints and muscles.
mstr
in
LUPUS UK
11 years ago
MCTD
Hi everyone, I have just joined this site and I have already found reading the posts really helpful
Hi everyone, I have just joined this site and I have already found reading the posts really helpful
Sianied
in
LUPUS UK
11 years ago
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MCTD Fatigue
Anyway I am a 30 year old woman and was diagnosed with
MCTD
3 years ago and have been on hydroxychloriquine ever since, which seems to do the trick! However my flare ups are becoming more frequent recently, all the usual symptoms, aches, pains, fever etc.
Anyway I am a 30 year old woman and was diagnosed with
MCTD
3 years ago and have been on hydroxychloriquine ever since, which seems to do the trick! However my flare ups are becoming more frequent recently, all the usual symptoms, aches, pains, fever etc.
Sianied
in
LUPUS UK
11 years ago
I had a flare following the flu jab this year. Has this happened to anyone else?
I was diagnosed with
MCTD
20 years ago but am not currently on any medication.
I was diagnosed with
MCTD
20 years ago but am not currently on any medication.
Maglupus
in
LUPUS UK
11 years ago
Throat problems & vocal nodes
Hi everyone, has anyone had recurring tonsillitis since having lupus/
mctd
? The last year has been terrible I have had 8 bouts of tonsillitis ( and 8 lots of antibiotics) I also noticed that my voice was getting really husky, I was referred to an ENT specialist who said I had vocal nodes?!
Hi everyone, has anyone had recurring tonsillitis since having lupus/
mctd
? The last year has been terrible I have had 8 bouts of tonsillitis ( and 8 lots of antibiotics) I also noticed that my voice was getting really husky, I was referred to an ENT specialist who said I had vocal nodes?!
Sianied
in
LUPUS UK
11 years ago
Coconut Oil, Lauric acid, and Cholesterol
There had been several posts in the past few months discussing benefits of large doses of coconut oil for relieving portions of PD symptoms. One of the issues that has come up from time to time is the question of the impact of taking a large dose of the saturated fat in coconut oil on one's overall health
There had been several posts in the past few months discussing benefits of large doses of coconut oil for relieving portions of PD symptoms. One of the issues that has come up from time to time is the question of the impact of taking a large dose of the saturated fat in coconut oil on one's overall health
fwes
in
Cure Parkinson's
11 years ago
Bariatric surgery and Scleroderm/MCTD
I am being referred to have Bariatric Surgery. Has anyone with Scleroderma had this surgery, and if so were there any difficulties that you had related to the Scleroderma. I have Mixed Connective Tissue Disease and all the meds that we take. I have been told that your body will not absorb vitamins
I am being referred to have Bariatric Surgery. Has anyone with Scleroderma had this surgery, and if so were there any difficulties that you had related to the Scleroderma. I have Mixed Connective Tissue Disease and all the meds that we take. I have been told that your body will not absorb vitamins
uknlv
in
Scleroderma & Raynaud's UK (SRUK)
11 years ago
Does anyone else have a sibling, or close family member, also effected by auto-immune disease?
She has now, on seperate occasions, been diagnosed & then undiagnosed with
MCTD
& then hodgkins lymphoma. Can you imagine how it feels to be told you have cancer, & then 5 weeks later to be told "oh we got it wrong, so go away & get on with your life." When in fact you are feeling terribly ill.
She has now, on seperate occasions, been diagnosed & then undiagnosed with
MCTD
& then hodgkins lymphoma. Can you imagine how it feels to be told you have cancer, & then 5 weeks later to be told "oh we got it wrong, so go away & get on with your life." When in fact you are feeling terribly ill.
roobarb
in
LUPUS UK
11 years ago
Has anyone had enlarged red blood cells and/or vitamin B12 deficiency?
Had a routine blood test to establish baseline bloods prior to starting on Mycophenolate (I have a recent diagnosis of SLE overlapping with
MCTD
) and my GP called to say I had enlarged red blood cells which could be down to any number of factors (including lab error) but on next weekly blood test she
Had a routine blood test to establish baseline bloods prior to starting on Mycophenolate (I have a recent diagnosis of SLE overlapping with
MCTD
) and my GP called to say I had enlarged red blood cells which could be down to any number of factors (including lab error) but on next weekly blood test she
tcogb
in
LUPUS UK
11 years ago
Has anybody experienced side effects of hydroxychloroquine? Rashes in particular
I was diagnosed with overlapping connective tissue disease about a month ago now (SLE, Sjogrens &
MCTD
) and was prescribed hydroxychloroquine and prednisolone. I'm usually fine with medication, have never got any side effects from anything before and am not allergic to anything that I know of.
I was diagnosed with overlapping connective tissue disease about a month ago now (SLE, Sjogrens &
MCTD
) and was prescribed hydroxychloroquine and prednisolone. I'm usually fine with medication, have never got any side effects from anything before and am not allergic to anything that I know of.
gem1403
in
LUPUS UK
11 years ago
discoid eczema
Good morning everone, I have
mctd
/pulmonary fibrosis/bronchiectasis does any one else suffer with discoid eczema? If so how do you deal with it?
Good morning everone, I have
mctd
/pulmonary fibrosis/bronchiectasis does any one else suffer with discoid eczema? If so how do you deal with it?
chubb
in
Lung Conditions Community Forum
11 years ago
Do we ever really accept ?
I have sjogrens,
MCTD
,and fibro . I thought I had accepted being different to what I used to be, and manage to be positive most of the time. I also have a strong faith which gives me strength.
I have sjogrens,
MCTD
,and fibro . I thought I had accepted being different to what I used to be, and manage to be positive most of the time. I also have a strong faith which gives me strength.
larissa
in
Fibromyalgia Action UK
11 years ago
Could it be Erythromelalgia in my knees?
Every morning I wake up with horribly stiff knees and elbows as well as all the usual symptoms of
MCTD
with Scleroderma and baking feet and hands thanks to Erythromelalgia. I now sleep with a wet cool cloth on my feet and can't stand the duvet anywhere near me really.
Every morning I wake up with horribly stiff knees and elbows as well as all the usual symptoms of
MCTD
with Scleroderma and baking feet and hands thanks to Erythromelalgia. I now sleep with a wet cool cloth on my feet and can't stand the duvet anywhere near me really.
AMDP
in
Scleroderma & Raynaud's UK (SRUK)
11 years ago
Has anybody tried Loratadine for Erythromelalgia or MCTD?
I heard about it from another chat room and have found it helpful.
I heard about it from another chat room and have found it helpful.
AMDP
in
Scleroderma & Raynaud's UK (SRUK)
11 years ago
Is MCTD covered by the Equaity Act?
Does anybody know if
MCTD
is also covered in the equality act? I'm wondering if this could now alter the way my employers deal with me.
Does anybody know if
MCTD
is also covered in the equality act? I'm wondering if this could now alter the way my employers deal with me.
Petey
in
LUPUS UK
11 years ago
DIETARY GUIDELINES for higher doses of COCONUT OIL
This post is a response to questions which have been raised in response to my earlier posts: Jun 14, 2013 ... Coconut oil has improved my life & July 13, 2013 ... Coconut Oil for Parkinson's - "non-clinical" trial. This report must be abbreviated. A more detailed discussion is available at http://
This post is a response to questions which have been raised in response to my earlier posts: Jun 14, 2013 ... Coconut oil has improved my life & July 13, 2013 ... Coconut Oil for Parkinson's - "non-clinical" trial. This report must be abbreviated. A more detailed discussion is available at http://
fwes
in
Cure Parkinson's
11 years ago
Still waiting!
I had an MRI this week as I am also under the Nuerologist, I have confirmed Raynards and
MCTD
. Lupus test was negative but I have have positive P anca. Looking at possible MS as its in the family.
I had an MRI this week as I am also under the Nuerologist, I have confirmed Raynards and
MCTD
. Lupus test was negative but I have have positive P anca. Looking at possible MS as its in the family.
Gymbabe
in
LUPUS UK
11 years ago
Adverse reaction to Hydroxychloroquine
Got a diagnosis of SLE overlapping with
MCTD
2 months ago. Was feeling loads better after an initial 25mg of Pred tapering to 5mg over about a month and about 3 weeks ago I started on 200mg of Hydroxycholorquine (the generic one) increasing to 400mg after 7 days.
Got a diagnosis of SLE overlapping with
MCTD
2 months ago. Was feeling loads better after an initial 25mg of Pred tapering to 5mg over about a month and about 3 weeks ago I started on 200mg of Hydroxycholorquine (the generic one) increasing to 400mg after 7 days.
tcogb
in
LUPUS UK
11 years ago
Be warned please take note
Anyone been contacted by email, saying i have seen your post on
MCTD
(or any other illness) & i think we have a lot in common, I did & started a conversation with a person who I thought had the same problems with their health as I do, Over several emails after adding the person I soon had doubts as to
Anyone been contacted by email, saying i have seen your post on
MCTD
(or any other illness) & i think we have a lot in common, I did & started a conversation with a person who I thought had the same problems with their health as I do, Over several emails after adding the person I soon had doubts as to
Jeanette_Ish
in
Scleroderma & Raynaud's UK (SRUK)
11 years ago
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