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Mantle cell lymphoma (MCL)
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Autologous stem cell transplantation
Hi all i wish you are doing well with your treatment,I'm interested in information about relapsed &transformed follicular lymphoma treated with r.chop Now going to do autologous bone marrow. Stem cells transplant. Thanks
Hi all i wish you are doing well with your treatment,I'm interested in information about relapsed &transformed follicular lymphoma treated with r.chop Now going to do autologous bone marrow. Stem cells transplant. Thanks
Bhlool
in
Lymphoma Canada
8 years ago
Can Hashis flare up ?
I thought I was doing well (always dangerous) I have the usual long back story of misdiagnosis of CFS then was lucky to see Dr Skinner got on the right path and have used both private and NHs Endos to get the treatment I need for my Hashimotos. I take nature thyroid 3 and a quarter grains spread
I thought I was doing well (always dangerous) I have the usual long back story of misdiagnosis of CFS then was lucky to see Dr Skinner got on the right path and have used both private and NHs Endos to get the treatment I need for my Hashimotos. I take nature thyroid 3 and a quarter grains spread
spacestar
in
Thyroid UK
8 years ago
Stem cell transplant
I have been reading a lot about this and seems this is the cure for our dieses I am currently trying to get this done has anyone had it done or can tell me more about it thanks. If anybody wants more info then please do message me and will forward the forums and websites I have been looking into. They
I have been reading a lot about this and seems this is the cure for our dieses I am currently trying to get this done has anyone had it done or can tell me more about it thanks. If anybody wants more info then please do message me and will forward the forums and websites I have been looking into. They
Tmunney999
in
Scleroderma & Raynaud's UK (SRUK)
8 years ago
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Parietal cell test
Hi everyone, I'm new here and had a couple questions. A little history.. I had the parietal cell antibody test done (3 times) and each time my test has come back abnormal with a reading of 113.5 or higher. My intrinsic factor was negative about a year ago and hasn't been tested since. My B12 levels have
Hi everyone, I'm new here and had a couple questions. A little history.. I had the parietal cell antibody test done (3 times) and each time my test has come back abnormal with a reading of 113.5 or higher. My intrinsic factor was negative about a year ago and hasn't been tested since. My B12 levels have
yogamom1
in
Pernicious Anaemia Society
8 years ago
CNS Lymphoma awareness
I'm new here. Would be interested in connecting with those who,also have secondary CNS lymphoma I am in remission from DLBC NHL but was unaware that it could cross the blood brain barrier into central nervous system. My bio tells the somewhat scary story. Jennifer
I'm new here. Would be interested in connecting with those who,also have secondary CNS lymphoma I am in remission from DLBC NHL but was unaware that it could cross the blood brain barrier into central nervous system. My bio tells the somewhat scary story. Jennifer
Jennchap1
in
Non Hodgkin's Lymphoma Friends
8 years ago
Woohoo husband home
Surprise of the week, my husband who has just undergone a stem cell transplant at Kings came home earlier than anticipated yesterday his transplant is doing very well and having him home is a real boost😃I have done 3 of 6 chemos now and was struggling with the travelling to see him. CT scan booked for
Surprise of the week, my husband who has just undergone a stem cell transplant at Kings came home earlier than anticipated yesterday his transplant is doing very well and having him home is a real boost😃I have done 3 of 6 chemos now and was struggling with the travelling to see him. CT scan booked for
knoxie
in
My Ovacome
8 years ago
Vaginitis and SLE
Hi my friends I do have some problems in my vagina but now I have sever pain and imflammation in my vagina and when I urient I feel remain some urien in my uletra I went to GP he said it doesn't about urinary system it's refer trichomonas vaginitis and take me Metronidazole but I don't know if this pill
Hi my friends I do have some problems in my vagina but now I have sever pain and imflammation in my vagina and when I urient I feel remain some urien in my uletra I went to GP he said it doesn't about urinary system it's refer trichomonas vaginitis and take me Metronidazole but I don't know if this pill
asma1364
in
LUPUS UK
8 years ago
Adding additional chemo
I am being treated for CLL for the second time after being in remission for 9 years...which is a blessing. I am currently taking oral Imbruvica... My most recent bone marrow biopsy showed little change after 3 months. If there is still no change in November, my Oncologist will add either .bendamustine
I am being treated for CLL for the second time after being in remission for 9 years...which is a blessing. I am currently taking oral Imbruvica... My most recent bone marrow biopsy showed little change after 3 months. If there is still no change in November, my Oncologist will add either .bendamustine
lyn26041
in
CLL Support
8 years ago
New Bloods
Hello New Bloods, My thyroid has Improved while being on NDT of which I have been on for about 2 month, but my T3 is borderline, Iron Low even thought I have been supplementing Iron with Solgar Gentle Iron and spatone one of each a day, so going to double up on them, Folate low. Could you tell me which
Hello New Bloods, My thyroid has Improved while being on NDT of which I have been on for about 2 month, but my T3 is borderline, Iron Low even thought I have been supplementing Iron with Solgar Gentle Iron and spatone one of each a day, so going to double up on them, Folate low. Could you tell me which
tracybet
in
Thyroid UK
8 years ago
4 weeks post FCR
Hi All, been a tough last 10days, 2 hospital visits with one of them an overnight stay. Temperature has been spiking at 39 and still continues to do so. Doctors are pretty convinced its a virus as the blood results and cultures don't show an infection, and that it will eventually clear. In with the Prof
Hi All, been a tough last 10days, 2 hospital visits with one of them an overnight stay. Temperature has been spiking at 39 and still continues to do so. Doctors are pretty convinced its a virus as the blood results and cultures don't show an infection, and that it will eventually clear. In with the Prof
jackhammer
in
CLL Support
8 years ago
Pins and needles after b12
hi there, so I was recently diagnosed as being deficient in b12. I do not test positive for intrinsic factor but for parietal cell antibody. I had a number of neurological symptoms that came on at once a few months ago-the main symptom being a burning scalp, then on/off dizziness and an on/off feeling
hi there, so I was recently diagnosed as being deficient in b12. I do not test positive for intrinsic factor but for parietal cell antibody. I had a number of neurological symptoms that came on at once a few months ago-the main symptom being a burning scalp, then on/off dizziness and an on/off feeling
kel226
in
Pernicious Anaemia Society
8 years ago
Share your experience with stem cell transplant (bone marrow transplantation)
Please share to let others know what to expect or better inform their decision making with their doctor hey....
Please share to let others know what to expect or better inform their decision making with their doctor hey....
SimoneHU
HealthUnlocked
in
Myeloma Warriors
8 years ago
Professor Dasgupta on video
Hello everyone! At the PMRGCAuk AGM held in June, Professor Bhaskar Dasgupta, whose name many of you will be familiar with (he is President of our charity and a leading expert on PMR and GCA), spoke about why 2016 is a landmark year for Polymyalgia Rheumatica and Giant Cell Arteritis. Here is a link
Hello everyone! At the PMRGCAuk AGM held in June, Professor Bhaskar Dasgupta, whose name many of you will be familiar with (he is President of our charity and a leading expert on PMR and GCA), spoke about why 2016 is a landmark year for Polymyalgia Rheumatica and Giant Cell Arteritis. Here is a link
Polywotsit
PMRGCAuk team member
in
PMRGCAuk
8 years ago
stem cell transplant
Good morning, has anyone tried stem cell transplant. I have applied and been accepted. I have stiffness, cant walk most of the time. I am so looking forward to being able to walk, less meds etc. Please respond if you have had this procedure. The neurologist I was going to told me several times' There
Good morning, has anyone tried stem cell transplant. I have applied and been accepted. I have stiffness, cant walk most of the time. I am so looking forward to being able to walk, less meds etc. Please respond if you have had this procedure. The neurologist I was going to told me several times' There
Kathleen
in
Cure Parkinson's
8 years ago
Can Maintenance Trastuzumab be taken during Radiotherapy?
My wife is going under chemotherapy after mastectomy of her left breast (On 26/12/2015). Cancer was T2N2G2, ER/PR negative & HER2 positive. 3 weekly ECx4 & weekly Taxol + Trastuzumab has been completed. Now doctor advice for 25 days Radiotherapy & 3 weekly maintenance Trastuzumab for next 9 months.
My wife is going under chemotherapy after mastectomy of her left breast (On 26/12/2015). Cancer was T2N2G2, ER/PR negative & HER2 positive. 3 weekly ECx4 & weekly Taxol + Trastuzumab has been completed. Now doctor advice for 25 days Radiotherapy & 3 weekly maintenance Trastuzumab for next 9 months.
shashishekhar
in
Breast Cancer India
8 years ago
Confused about Lymphoma
I was in a car accident coming up to 3 months ago, a few days later I woke up and my vision was blurry. I went to the opticians and then the hospital who told me my eyes were absolutely fine but my vision was drastically deteriating due to abnormalities in the brain. There was no sign of trauma so the
I was in a car accident coming up to 3 months ago, a few days later I woke up and my vision was blurry. I went to the opticians and then the hospital who told me my eyes were absolutely fine but my vision was drastically deteriating due to abnormalities in the brain. There was no sign of trauma so the
HANNAHEWEBB
in
LSN
8 years ago
Lymphoma
I was in a car accident coming up to 3 months ago, a few days later I woke up and my vision was blurry. I went to the opticians and then the hospital who told me my eyes were absolutely fine but my vision was drastically deteriating due to abnormalities in the brain. There was no sign of trauma so the
I was in a car accident coming up to 3 months ago, a few days later I woke up and my vision was blurry. I went to the opticians and then the hospital who told me my eyes were absolutely fine but my vision was drastically deteriating due to abnormalities in the brain. There was no sign of trauma so the
HANNAHEWEBB
in
CLL Support
8 years ago
MPN Voice Patients’ Forum – Inverness
Friday 28th October 2016, 10 am - 2 pm, registration from 9.30 am
Eden Court Theatre, Bishops Road, Inverness, IV3 5SA
The forum will be held in The MacLean Room
Programme
The programme is yet to be finalized, but will include talks from haematologists, specialist nurses
Friday 28th October 2016, 10 am - 2 pm, registration from 9.30 am
Eden Court Theatre, Bishops Road, Inverness, IV3 5SA
The forum will be held in The MacLean Room
Programme
The programme is yet to be finalized, but will include talks from haematologists, specialist nurses
Mazcd
MPNVoice
in
MPN Voice
8 years ago
POSITIVE Gastric Parietal Cell AB/ Low Methylmalonic acid and Homocysteine.
My rheumatologist looked at my b12 levels last year along with some other tests and diagnosed me with PA. My family doctor disagrees because my b12 was at 319 and he says that is within normal ranges. I do test positive for the gastric parietal cell antibody 35.1 but he said my Methylmalonic acid
My rheumatologist looked at my b12 levels last year along with some other tests and diagnosed me with PA. My family doctor disagrees because my b12 was at 319 and he says that is within normal ranges. I do test positive for the gastric parietal cell antibody 35.1 but he said my Methylmalonic acid
Tigerlilly81
in
Pernicious Anaemia Society
8 years ago
Share Your Thoughts on Clinical Trials- Take Our Survey
Patient Power’s Andrew Schorr will be speaking again before another major audience – this time in Boston on July 21st to heads of research at pharmaceutical companies and government officials. They know clinical trial participation is very low and they want to hear from patients on how they can help
Patient Power’s Andrew Schorr will be speaking again before another major audience – this time in Boston on July 21st to heads of research at pharmaceutical companies and government officials. They know clinical trial participation is very low and they want to hear from patients on how they can help
tclementi
in
CLL Support
8 years ago
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