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Mantle cell lymphoma (MCL)
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Interactive Tool for Managing BTK Inhibitor−Associated AEs in Hematologic Malignancies: A Global Perspective
Chronic lymphocytic leukemia (CLL)/small lymphocytic
lymphoma
(SLL)
Mantle
cell
lymphoma
(MCL) Marginal zone lymphoma (MZL) Waldenström macroglobulinemia (WM) Has your patient already begun treatment with a BTK inhibitor?
Chronic lymphocytic leukemia (CLL)/small lymphocytic
lymphoma
(SLL)
Mantle
cell
lymphoma
(MCL) Marginal zone lymphoma (MZL) Waldenström macroglobulinemia (WM) Has your patient already begun treatment with a BTK inhibitor?
lankisterguy
Volunteer
in
CLL Support
8 months ago
Constant Light-Headedness and Dizziness.
I’ve been taking 560mg/daily Imbruvica since 2016 for
mantle
cell
lymphoma
. Through 2021 there were no side effects to speak of. Beginning mid-2022 I’ve experienced varying degrees of light-headedness all the time. Less frequently, at it’s worst it’s a feeling of dizziness.
I’ve been taking 560mg/daily Imbruvica since 2016 for
mantle
cell
lymphoma
. Through 2021 there were no side effects to speak of. Beginning mid-2022 I’ve experienced varying degrees of light-headedness all the time. Less frequently, at it’s worst it’s a feeling of dizziness.
LarryK
in
CLL Support
10 months ago
Foundation One heme blood test results
High TCL1A expression has been reported in a range of B-
cell
diseases, including CLL, DLBCL,
mantle
cell
lymphoma
, follicular lymphoma, splenic marginal zone lymphoma, and primary cutaneous B cell lymphoma. As I mentioned, the CBC only indicates a high platelet count.
High TCL1A expression has been reported in a range of B-
cell
diseases, including CLL, DLBCL,
mantle
cell
lymphoma
, follicular lymphoma, splenic marginal zone lymphoma, and primary cutaneous B cell lymphoma. As I mentioned, the CBC only indicates a high platelet count.
Cusube1967
in
CLL Support
1 year ago
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Is it the time for initial treatment?
As I previously stated, my wife was diagnosed with CLL in 2020. Her markers are 13q deletion, 12 trisomy, and TP53, with IGHV muted. She is still in W&W form. So far, I've learned via reading literature and numerous posts about lymphocyte doubling time, lactate dehydrogenase, and lymph nodes. Her lymphocyte
As I previously stated, my wife was diagnosed with CLL in 2020. Her markers are 13q deletion, 12 trisomy, and TP53, with IGHV muted. She is still in W&W form. So far, I've learned via reading literature and numerous posts about lymphocyte doubling time, lactate dehydrogenase, and lymph nodes. Her lymphocyte
Sagarcanada
in
CLL Support
10 days ago
Bendamustine
Hi Male from 1946. Diagnosed for CLL in 1995. 2013 : Leukeran + Rituximab In 2021 I received only 1 cycle of Bendamustine (90) + Rituximab. No further cycles because of hemolyse. 2024 Now possibly Venetoclax + ? Appointment with oncologist next friday. Not much of a help. Best regards,
Hi Male from 1946. Diagnosed for CLL in 1995. 2013 : Leukeran + Rituximab In 2021 I received only 1 cycle of Bendamustine (90) + Rituximab. No further cycles because of hemolyse. 2024 Now possibly Venetoclax + ? Appointment with oncologist next friday. Not much of a help. Best regards,
dickcll
in
CLL Support
15 days ago
Wendy
My husband was diagnosed in 2010 at the age of 40. 2013 he had FCR. 11 years later, he is in week 5 of venteclax, Rituximab to follow next month. Swollen lymph nodes have disappeared.
My husband was diagnosed in 2010 at the age of 40. 2013 he had FCR. 11 years later, he is in week 5 of venteclax, Rituximab to follow next month. Swollen lymph nodes have disappeared.
Fluxthecat10
in
CLL Support
18 days ago
Cll to Hodgkins lymphoma
My husband had Cll 11 years and started treatment in Oct, 2023 with Calquence. It was working, but not as effectively as desired. They then added Venclexta in Dec. He still wasn’t getting better, so after a pet scan and lymph biopsy, it was determined he now also has Hodgkin’s lymphoma. Apparently,
My husband had Cll 11 years and started treatment in Oct, 2023 with Calquence. It was working, but not as effectively as desired. They then added Venclexta in Dec. He still wasn’t getting better, so after a pet scan and lymph biopsy, it was determined he now also has Hodgkin’s lymphoma. Apparently,
Junebug20
in
CLL Support
25 days ago
need your help to learn about Clonal Hematopoiesis.
Greetings.Diagnosis with CLL/ Lymphoma in 2013, Was on Watchful Wait for almost 10 years, then started treatment with BTKI/Brukinsa for 9 months and had to stop the treatment due to the side effects, 3 months ago. Had a monthly blood tests in last 3 month while on Watchful Wait. By reviewing all the
Greetings.Diagnosis with CLL/ Lymphoma in 2013, Was on Watchful Wait for almost 10 years, then started treatment with BTKI/Brukinsa for 9 months and had to stop the treatment due to the side effects, 3 months ago. Had a monthly blood tests in last 3 month while on Watchful Wait. By reviewing all the
sunsetssr
in
CLL Support
1 month ago
Recently started Acalabrutinib
Hi everyone, My father has recently started Acalabrutinib 5 days ago. He was diagnosed with CLL in 2007 and has received FCR (twice) and Benda-Ritux once. His CLL only went into partial remission on benda-ritux and has come back after one year since his last cycle of BR. I am worried regarding the
Hi everyone, My father has recently started Acalabrutinib 5 days ago. He was diagnosed with CLL in 2007 and has received FCR (twice) and Benda-Ritux once. His CLL only went into partial remission on benda-ritux and has come back after one year since his last cycle of BR. I am worried regarding the
Healthgiddy
in
CLL Support
1 month ago
Rise in WBC
Hello to all, My husband has CLL, he has also been treated for metastatic melanoma which from his latest CT scan is NED. He will receive his last immunotherapy infusion next week. We are beyond grateful. However his blood work taken yesterday showed and increase in his WBC from 14.5 last month to the
Hello to all, My husband has CLL, he has also been treated for metastatic melanoma which from his latest CT scan is NED. He will receive his last immunotherapy infusion next week. We are beyond grateful. However his blood work taken yesterday showed and increase in his WBC from 14.5 last month to the
313313
in
CLL Support
1 month ago
here we are again
my husbands blood work did not come back good after being great for over 5 years on Imbruvica. Oncologist ordered a Pet Scan since he has never had one. Just CT scans. And more comprehensive blood work. To say I’m a mess is an understatement. We thought imbruvica was the answer to our prayers for it
my husbands blood work did not come back good after being great for over 5 years on Imbruvica. Oncologist ordered a Pet Scan since he has never had one. Just CT scans. And more comprehensive blood work. To say I’m a mess is an understatement. We thought imbruvica was the answer to our prayers for it
CLLWife
in
CLL Support
1 month ago
Sclerosing Mesenteritis
hi folks this is my first time posting here, I have lupus SLE and recently been diagnosed with sclerosing Mesenteritis which is extremely rare - I have ended up in hospital 3 times In last 3 months - I have excruciating pain in my tummy with it, at first they thought it was my lupus but it’s not - I
hi folks this is my first time posting here, I have lupus SLE and recently been diagnosed with sclerosing Mesenteritis which is extremely rare - I have ended up in hospital 3 times In last 3 months - I have excruciating pain in my tummy with it, at first they thought it was my lupus but it’s not - I
svfarmer
in
Scleroderma & Raynaud's UK (SRUK)
1 month ago
'Wednesday Word"
Since my question yesterday was concerning 'brain fog', I thought my word for today should be [u][i]
encephalopathy
[/i][/u] - here are specifics about the word This is a blanket term referring to any brain dysfunction. It can commonly be called 'brain fog'. However, [u][i]
encephalopathy
Since my question yesterday was concerning 'brain fog', I thought my word for today should be [u][i]
encephalopathy
[/i][/u] - here are specifics about the word This is a blanket term referring to any brain dysfunction. It can commonly be called 'brain fog'. However, [u][i]
encephalopathy
DonnaBoll
Administrator
in
PBC Foundation
1 month ago
Activating lipid nanoparticles can streamline the production of CAR T-cells for cancer immunotherapy
A bio- engineering breakthrough is reported here https://phys.org/news/2024-03-method-car-cells-lipid-nanoparticles.html and the article includes a link to the open access research paper. Sorry, that's all folks. This is a phone and I'm on holiday. Italy shouldn't be this wet. Ciao.
A bio- engineering breakthrough is reported here https://phys.org/news/2024-03-method-car-cells-lipid-nanoparticles.html and the article includes a link to the open access research paper. Sorry, that's all folks. This is a phone and I'm on holiday. Italy shouldn't be this wet. Ciao.
bennevisplace
in
CLL Support
2 months ago
Palacelover
Hello HealthUnlocked family:Is anyone out there aware of the medication named Brukinsa, which contains the ingredient zanubrutinib; apparently it is a medication that can control the btk protein that is generated by the kind of Lymphoma that I have, which is WM. If anyone can give me any insights, such
Hello HealthUnlocked family:Is anyone out there aware of the medication named Brukinsa, which contains the ingredient zanubrutinib; apparently it is a medication that can control the btk protein that is generated by the kind of Lymphoma that I have, which is WM. If anyone can give me any insights, such
Palacelover
in
Non Hodgkin's Lymphoma Friends
2 months ago
Richter’s Anxiety
Good morning. I have a friend in his 50s with aggressive unmutated IGHV. I am in my early 50s and am Trisomy 12 unmutated and recently diagnosed. Both of us have been told that we are at increased risk for Richter’s. Figuring out what this means is tough. There are top researchers who say that 5 to
Good morning. I have a friend in his 50s with aggressive unmutated IGHV. I am in my early 50s and am Trisomy 12 unmutated and recently diagnosed. Both of us have been told that we are at increased risk for Richter’s. Figuring out what this means is tough. There are top researchers who say that 5 to
Hidden
in
CLL Support
2 months ago
first line treatment with bendamustin and rithoximab
I had 6 month first line treatment with bendamustin and rithoximab in 2022 september ended. .when i start my treatment my numbers was very high wbc 146 rbc was low in 2022 janeuary the numbers was wbc126 rbc 3.23 hgb 10.9 plt 135 LDh 920. because of high in ldh one of recent doctor said may be
I had 6 month first line treatment with bendamustin and rithoximab in 2022 september ended. .when i start my treatment my numbers was very high wbc 146 rbc was low in 2022 janeuary the numbers was wbc126 rbc 3.23 hgb 10.9 plt 135 LDh 920. because of high in ldh one of recent doctor said may be
09123836306
in
CLL Support
2 months ago
Palacelover
Diagnosed in July 2022 after a PET Scan and a bone marrow biopsy. Placed on a watch and wait regime. Have been experiencing many colds and chest infections over the last three months. I am now waiting on a decision from the consultant regarding a treatment regime.
Diagnosed in July 2022 after a PET Scan and a bone marrow biopsy. Placed on a watch and wait regime. Have been experiencing many colds and chest infections over the last three months. I am now waiting on a decision from the consultant regarding a treatment regime.
Palacelover
in
Non Hodgkin's Lymphoma Friends
2 months ago
One result from bone marrow aspiration:
Update: After 9 months on MSK trial 20-044, I am uMRD in blood, CT Scans show all nodes are shrunk and my Dr. is "very very please." The first report from yesterday's BMB is below. "Few B cells seen," is this something to be concerned about? The report was just posted and my Dr. is on vacation next week
Update: After 9 months on MSK trial 20-044, I am uMRD in blood, CT Scans show all nodes are shrunk and my Dr. is "very very please." The first report from yesterday's BMB is below. "Few B cells seen," is this something to be concerned about? The report was just posted and my Dr. is on vacation next week
SurfSurf
in
CLL Support
2 months ago
insurance issue
hi guys, My mother was diagnosed with her2+ve braa we ya cancer stage 4. doctor recommended the below medications : Paclitaxel + cyclophosphamide + phesgo+ zolodronic acid . I have corporate insurance in new India insurance with mediassist. These people are not approving phesgo which is targeted
hi guys, My mother was diagnosed with her2+ve braa we ya cancer stage 4. doctor recommended the below medications : Paclitaxel + cyclophosphamide + phesgo+ zolodronic acid . I have corporate insurance in new India insurance with mediassist. These people are not approving phesgo which is targeted
Srikalakm
in
Breast Cancer India
3 months ago
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