I'm new here. Would be interested in connecting with those who,also have secondary CNS lymphoma I am in remission from DLBC NHL but was unaware that it could cross the blood brain barrier into central nervous system. My bio tells the somewhat scary story. Jennifer
CNS Lymphoma awareness: I'm new here... - Non Hodgkin's Lym...
CNS Lymphoma awareness
![Jennchap1 profile image](https://images.hu-production.be/avatars/58bf5ad10b6fa9e8a44d36bf86b471d7_small@2x_100x100.jpg)
![Jennchap1 profile image](https://images.hu-production.be/avatars/58bf5ad10b6fa9e8a44d36bf86b471d7_small@2x_100x100.jpg)
Hi, I have NHL and belong to a facebook group for NHL. Some members have had the same issue as you and could consider joining to connect with them. Helen
I posted this on the Lymphoma Club site but didn't hear from anyone:/. Jennifer
Hi. Im jane. I was diagnosed with mantle cell lymphoma 5 years ago. It's a scary diagnosis. How did you do with chemo? I was lucky and had few side effects. I hope you stay in touch. Its good to have contact with people who have had a similar experience. Best wishes.
Hi Jane:). I did fairly well wih my 6 rounds of R-EPOCH last summer and was in remission with clear Pet scans through this March. Then I began experiencing neurological symptoms. I was diagnosed finally with lymphoma of the CNS and have just finished round 7 of 8 of Ritixin and Methotrexate. After that , stem cell transplant
![krayburn profile image](https://images.hu-production.be/avatars/e0c8ef6c0081a260678e30c53668599c_small@2x_100x100.jpg)
Glad you could join our new community Jennifer!
Hi - my mother is currently going though a very similar sounding situation. Having been in remission for 8 years we are in the same situation. She initially was misdiagnosed twice once as having had a TIA the 2nd as a Stroke.
I do wish you well with your recovery