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Mantle cell lymphoma (MCL)
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MRD negative
After 6 rounds of FCR (2 rounds of 5 x days F&C, and 4 rounds with just 3 days of taking the tablets) we got the results of my husband's bone marrow biopsy yesterday. It was the best possible news - he is MRD negative ( minimal residual disease) ie complete remission. It was tough, but obviously worth
After 6 rounds of FCR (2 rounds of 5 x days F&C, and 4 rounds with just 3 days of taking the tablets) we got the results of my husband's bone marrow biopsy yesterday. It was the best possible news - he is MRD negative ( minimal residual disease) ie complete remission. It was tough, but obviously worth
Fowey2009
in
CLL Support
9 years ago
Imaging provides clearer picture of Hematopoietic Stem Cells (HSCs) and the B Cell surface
The billions of blood cells we produce every day come from just a few active Hematopoietic Stem Cells in our bone marrow. Understanding more about how these hard working cells function is critical, not only to improving the treatment of blood conditions and blood cancers, such as CLL, but many medical
The billions of blood cells we produce every day come from just a few active Hematopoietic Stem Cells in our bone marrow. Understanding more about how these hard working cells function is critical, not only to improving the treatment of blood conditions and blood cancers, such as CLL, but many medical
AussieNeil
Partner
in
CLL Support
9 years ago
is this the correct viles ?
could anyone set my mind at rest before i complete my order, are these the right viles of b12 i need to self inject? sorry to keep asking but i want to get it right, Vitamin B12 METHYLCOBALAMIN 20mg: Sterile Diluent 5ml: Ideal for Self-Administration via Injection/Sublingual Dropper/Nasal Spray: Each
could anyone set my mind at rest before i complete my order, are these the right viles of b12 i need to self inject? sorry to keep asking but i want to get it right, Vitamin B12 METHYLCOBALAMIN 20mg: Sterile Diluent 5ml: Ideal for Self-Administration via Injection/Sublingual Dropper/Nasal Spray: Each
catherinejordan
in
Pernicious Anaemia Society
9 years ago
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V-Kit Hardy-Zuckerman 4 Feline Sarcoma Viral Oncogene Homolog
My Son had his Kit Gene test back which may answer the family health and leukaemia coincidence. It shows that he has the kit gene which make a bone marrow transplant more likely now so they are now looking to see if his brother is a match ( 25% chance ) What we do not know is who of us has the gene
My Son had his Kit Gene test back which may answer the family health and leukaemia coincidence. It shows that he has the kit gene which make a bone marrow transplant more likely now so they are now looking to see if his brother is a match ( 25% chance ) What we do not know is who of us has the gene
Offcut
in
Lung Conditions Community Forum
9 years ago
Joe Parzych,
Am a relapsed CLL patient, residing in West suburban Chicago. First diagnosed in 2008, and receive care at Nithwestern Hospital in Chicago. Started participation of clinical trial March 2014, ABT-199 and Rituxan. In remission since December 2014. Feeling very good.
Am a relapsed CLL patient, residing in West suburban Chicago. First diagnosed in 2008, and receive care at Nithwestern Hospital in Chicago. Started participation of clinical trial March 2014, ABT-199 and Rituxan. In remission since December 2014. Feeling very good.
Parzych
in
CLL Support
9 years ago
Bone marrow transplant
Hi I have son who's 10 years old He has had thalasemia major where his body don't make blood and he has to have regular blood transfusions . We have blood every 4 weeks and has a check 2 days before having blood of how much hemo globian level it is to give blood. Over the 10 years he has had other
Hi I have son who's 10 years old He has had thalasemia major where his body don't make blood and he has to have regular blood transfusions . We have blood every 4 weeks and has a check 2 days before having blood of how much hemo globian level it is to give blood. Over the 10 years he has had other
Umar7860
in
My Ovacome
9 years ago
Newbie looking for help đ
Hi everyone I have had type 1 diabetes for 38 yrs now but unfortunately the combination of time and mismanagement in my youth have given me a variety of complications The most severe is renal failure and because of this I am facing transplant surgery I am pre dialysis and have been given options of kidney
Hi everyone I have had type 1 diabetes for 38 yrs now but unfortunately the combination of time and mismanagement in my youth have given me a variety of complications The most severe is renal failure and because of this I am facing transplant surgery I am pre dialysis and have been given options of kidney
Mark3365
in
Kidney Transplant Patient Support
9 years ago
Kidney or pancreas kidney - ??????????
Hi Ive just been made aware of this site (thankyou) I am a type 1 diabetic diagnosed 38 yrs ago. The combination of time and mismanagement in my youth has left me with a variety of problems. The most serious being renal impairment - I am not yet on dialysis but Im guessing its not to far away My mind
Hi Ive just been made aware of this site (thankyou) I am a type 1 diabetic diagnosed 38 yrs ago. The combination of time and mismanagement in my youth has left me with a variety of problems. The most serious being renal impairment - I am not yet on dialysis but Im guessing its not to far away My mind
Mark3365
in
Kidney Transplant Patient Support
9 years ago
Why we need to register and report the results of all clinical trials
schwit1 writes in Slashdot: [i]"The requirement that medical researchers register in detail the methods they intend to use in their clinical trials, both to record their data as well as document their outcomes, caused a significant drop in trials producing positive results. From Nature: http://www.nature.com
schwit1 writes in Slashdot: [i]"The requirement that medical researchers register in detail the methods they intend to use in their clinical trials, both to record their data as well as document their outcomes, caused a significant drop in trials producing positive results. From Nature: http://www.nature.com
AussieNeil
Partner
in
CLL Support
9 years ago
Guide to buying supplements in UK
Interesting programme on TV last week, BBC's 'Trust Me I'm a Doctor', that is relevant for anyone buying supplements in the UK. http://www.bbc.co.uk/programmes/articles/4hX30rMYkMv9YjMTH38MY6/do-herbal-supplements-contain-what-they-say-on-the-label I always thought that the UK supplement industry had
Interesting programme on TV last week, BBC's 'Trust Me I'm a Doctor', that is relevant for anyone buying supplements in the UK. http://www.bbc.co.uk/programmes/articles/4hX30rMYkMv9YjMTH38MY6/do-herbal-supplements-contain-what-they-say-on-the-label I always thought that the UK supplement industry had
badpiglet
in
PBC Foundation
9 years ago
The Anti-Inflammatory Diet
Check out this new article from Alexandra Rothwell, a registered dietitian. Inflammation is a popular âbuzz wordâ in the world of nutrition and cancer. Foods and nutrients are touted for their âanti-inflammatoryâ properties, and we happily associate this with good health - as we should. However,
Check out this new article from Alexandra Rothwell, a registered dietitian. Inflammation is a popular âbuzz wordâ in the world of nutrition and cancer. Foods and nutrients are touted for their âanti-inflammatoryâ properties, and we happily associate this with good health - as we should. However,
tydonald
in
Cook For Your Life
9 years ago
update on daughter
As you all know my daughter has had an on going illness that turned out to be Aplastic Anemia. She had some treatment back in April which was a cocktail of anti_biotic straight into her blood ( i believe) through an Henrick Feed, This they used for everything, Steroids etc. They were hoping this would
As you all know my daughter has had an on going illness that turned out to be Aplastic Anemia. She had some treatment back in April which was a cocktail of anti_biotic straight into her blood ( i believe) through an Henrick Feed, This they used for everything, Steroids etc. They were hoping this would
fastball
in
NRAS
9 years ago
LIKE A PHOENIX. . . . .
Hello Peops I have an update on my MF. . . . I'm sorry to say that after a year or so my Ruxo Golden Ticket Has left me on a very sticky wicket, My oversize spleen remains the same It simply hasn't played the game, The fibrosis is present within my bones And to be honest I fear these 'undertones'.
Hello Peops I have an update on my MF. . . . I'm sorry to say that after a year or so my Ruxo Golden Ticket Has left me on a very sticky wicket, My oversize spleen remains the same It simply hasn't played the game, The fibrosis is present within my bones And to be honest I fear these 'undertones'.
JediReject
in
MPN Voice
9 years ago
Checkpoint Inhibitors - the Programmed Death 1 and Ligand (PD-1/PD-L1) checkpoints and their promise for CLL/SLL
In the last few years, we've seen amazing advances in the approvals of safer, more effective non chemo treatments for CLL/SLL. That momentum doesn't look as if it will stop any time soon, which is a huge improvement on the situation of just a few years ago, when FCR was the only improved treatment to
In the last few years, we've seen amazing advances in the approvals of safer, more effective non chemo treatments for CLL/SLL. That momentum doesn't look as if it will stop any time soon, which is a huge improvement on the situation of just a few years ago, when FCR was the only improved treatment to
AussieNeil
Partner
in
CLL Support
9 years ago
Joining the anxiety of parents
It's good to read about people sharing useful info.I've been dealing with this problem for 7 years when.n my son who is 8 now was diagnosed with IT and has had 3 bone marrow tests so far.I ve been told the only cure is bone marrow transplant but I'm not sure how far that can be successful. I have to
It's good to read about people sharing useful info.I've been dealing with this problem for 7 years when.n my son who is 8 now was diagnosed with IT and has had 3 bone marrow tests so far.I ve been told the only cure is bone marrow transplant but I'm not sure how far that can be successful. I have to
S38abcd
in
ITP Support Association
9 years ago
Fatigue. Thyroid, Fibromyalgia and Anaemia
Hi everyone. I was found to be anaemic about 18 months ago, when a pre op blood test was done. I couldn't tolerate prescription iron, and started taking Spatone. Slowly my results went up to about 25, but have now dropped to 13. After reading various outcomes on this forum, I have changed to Solgar gentle
Hi everyone. I was found to be anaemic about 18 months ago, when a pre op blood test was done. I couldn't tolerate prescription iron, and started taking Spatone. Slowly my results went up to about 25, but have now dropped to 13. After reading various outcomes on this forum, I have changed to Solgar gentle
Chrissiep
in
Thyroid UK
9 years ago
Advice on how to increase ferritin please
My ferritin is bottom of the range, and I am very concerned. What form of iron supplementation works best? I have been taking Solgar 'gentle iron', ( with vit c) - although not regularly, but I have now had new blood results and realise I need to up the supplementation. Thank you
My ferritin is bottom of the range, and I am very concerned. What form of iron supplementation works best? I have been taking Solgar 'gentle iron', ( with vit c) - although not regularly, but I have now had new blood results and realise I need to up the supplementation. Thank you
MidnightBlue
in
Thyroid UK
9 years ago
In the beginning...
...There was smoking, and obesity and .... well you know the rest. A trip down AML lane led to a bone marrow transplant and all seemed well until COPD came along. So, if the one doesn't get you the other one will - only slower! I am late in years now. Started out as a journalist (sorry people) and then
...There was smoking, and obesity and .... well you know the rest. A trip down AML lane led to a bone marrow transplant and all seemed well until COPD came along. So, if the one doesn't get you the other one will - only slower! I am late in years now. Started out as a journalist (sorry people) and then
Timberman
in
Lung Conditions Community Forum
9 years ago
Transplant coming soon!
I have been fighting cll/stage 4 for seven years with little success. Have had all standard chemo and have been in two clinical trials (ibrutnib and ABT199). The ibrutnib worked great for about a year and a half. When it failed it was fast! Then I tried ABT199 which helped save my life, but was short
I have been fighting cll/stage 4 for seven years with little success. Have had all standard chemo and have been in two clinical trials (ibrutnib and ABT199). The ibrutnib worked great for about a year and a half. When it failed it was fast! Then I tried ABT199 which helped save my life, but was short
Hidden
in
CLL Support
9 years ago
Hopeful
Hey everyone, Today has been one of them achy hurting day's, so hubby went into town and brought me a massive tub of Epsom salts and magnesium citrate - never tried these before. So even though today sucks I'm feeling hopeful these will work/help? Plus side I'm enjoying a lazy day and had a not so pleasant
Hey everyone, Today has been one of them achy hurting day's, so hubby went into town and brought me a massive tub of Epsom salts and magnesium citrate - never tried these before. So even though today sucks I'm feeling hopeful these will work/help? Plus side I'm enjoying a lazy day and had a not so pleasant
Keeleybee
in
Fibromyalgia Action UK
9 years ago
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