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Mantle cell lymphoma (MCL)
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Symptoms, symptoms, symptoms
Not been around for a bit, trying to get my NDT up to a reasonable amount slowly. I'm taking 2 grains Thyroid S once a day, before food, away from supplements, etc. I'm also taking 5000 iu B12 sublingual, 25mg Solgar Gentle Iron, selenium, 0.5g D3. The problem is, I've had some really bad migraines
Not been around for a bit, trying to get my NDT up to a reasonable amount slowly. I'm taking 2 grains Thyroid S once a day, before food, away from supplements, etc. I'm also taking 5000 iu B12 sublingual, 25mg Solgar Gentle Iron, selenium, 0.5g D3. The problem is, I've had some really bad migraines
mistydog
in
Thyroid UK
9 years ago
Giant Cell Arteritis - Take part in Clinical Research
Have you been diagnosed with GCA? Are you happy to try a new treatment? Are you happy to be involved in a clinical study? Please follow this link for more details. http://www.vasculitis.org.uk/news/giant-cell-temporal-arteritis-clinical-study
Have you been diagnosed with GCA? Are you happy to try a new treatment? Are you happy to be involved in a clinical study? Please follow this link for more details. http://www.vasculitis.org.uk/news/giant-cell-temporal-arteritis-clinical-study
Suzym2u
Vasculitis UK
in
Vasculitis UK
9 years ago
experience CLL Ibrutinib Colitis
Hi Maybe there is a better route out of this? I am a man in the UK and was diagnosed with CLL aged 38 in 2007. I had six rounds of FCR and achieved MRD. In January 2011 ill with EBV for a year. June 2012 started FCR again. Five times. January 2013 0.0 neutrophils for eight days. May 2013 dexamethasone
Hi Maybe there is a better route out of this? I am a man in the UK and was diagnosed with CLL aged 38 in 2007. I had six rounds of FCR and achieved MRD. In January 2011 ill with EBV for a year. June 2012 started FCR again. Five times. January 2013 0.0 neutrophils for eight days. May 2013 dexamethasone
Corin850
in
CLL Support
9 years ago
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Stem Cell Transplant
I am 64 years old and was diagnosed with primary MF four years ago. I have recently been part of the Pacritinib drug trial but have had to discontinue taking the drug due to complications. My consultant has raised the possibility of stem cell transplant. I would be interested in know in anybody's
I am 64 years old and was diagnosed with primary MF four years ago. I have recently been part of the Pacritinib drug trial but have had to discontinue taking the drug due to complications. My consultant has raised the possibility of stem cell transplant. I would be interested in know in anybody's
john2cv6
in
MPN Voice
9 years ago
Child with sickle cell
I have a question my daughter is 4 and had sickle cell trait, about every two to three weeks she says that her stomach is hurting. She still eats and plays but all day long she says her stomach is hurting. Later on in the day she throws up everywhere. She does this about 3 times and then after that
I have a question my daughter is 4 and had sickle cell trait, about every two to three weeks she says that her stomach is hurting. She still eats and plays but all day long she says her stomach is hurting. Later on in the day she throws up everywhere. She does this about 3 times and then after that
gregndi
in
Sickle Cell Society
9 years ago
Assessing Response With Novel Agents in CLL - OncLive Peer Exchange
While this peer review may be over technical for many, it does provide an insight into how the new CLL drugs are challenging the established methods of assessing treatment effectiveness. Panelists:- Myron S. Czuczman, MD, Roswell Park; John C. Byrd, MD, Ohio State; Richard Furman, MD, Weill Cornell;
While this peer review may be over technical for many, it does provide an insight into how the new CLL drugs are challenging the established methods of assessing treatment effectiveness. Panelists:- Myron S. Czuczman, MD, Roswell Park; John C. Byrd, MD, Ohio State; Richard Furman, MD, Weill Cornell;
AussieNeil
Administrator
in
CLL Support
9 years ago
More evidence on how exercise shapes our destiny
Not CLL related, but more evidence that exercise shapes our bodies and our health. Analysis of baseline fitness data from a study of nearly 14,000 men compiled between 1971 and 2009, and lung, prostate, and colorectal cancer diagnoses and outcomes using Medicare data from 1999 to 2009, showed that improved
Not CLL related, but more evidence that exercise shapes our bodies and our health. Analysis of baseline fitness data from a study of nearly 14,000 men compiled between 1971 and 2009, and lung, prostate, and colorectal cancer diagnoses and outcomes using Medicare data from 1999 to 2009, showed that improved
AussieNeil
Administrator
in
CLL Support
9 years ago
Hematologic Cancer Drugs
Good reference for Leukemias, lymphomas, and other hematologic cancer drugs approved in U.S. http://www.cancertherapyadvisor.com/leukemias-lymphomas-and-other-hematologic-cancers/category/161/0/?DCMP=EMC-CTA_Front&CPN=&hmSubId=&hmEmail=CWrxJ9IilbU6mCkyfZ1MqElDzcJVA8s10&spMailingID=10839876&spUserID=
Good reference for Leukemias, lymphomas, and other hematologic cancer drugs approved in U.S. http://www.cancertherapyadvisor.com/leukemias-lymphomas-and-other-hematologic-cancers/category/161/0/?DCMP=EMC-CTA_Front&CPN=&hmSubId=&hmEmail=CWrxJ9IilbU6mCkyfZ1MqElDzcJVA8s10&spMailingID=10839876&spUserID=
shazie
in
CLL Support
9 years ago
Fitbit
I finished treatment for Hodgkins Lymphoma in 2012. I gained quite a bit of weight during treatment, largely from the steroids and being significantly less active. A few years out of treatment and I am still working to get back to my fitness levels from before diagnosis. I've recently invested in
I finished treatment for Hodgkins Lymphoma in 2012. I gained quite a bit of weight during treatment, largely from the steroids and being significantly less active. A few years out of treatment and I am still working to get back to my fitness levels from before diagnosis. I've recently invested in
arkleins
in
Lymphoma Canada
9 years ago
Do I need to eat organic foods? Entry from Alexandra Rothwell, MPH, RD, CSO, CDN
As an oncology nutritionist, I meet with people throughout the stages of treatment, recovery, and survivorship. The relationship between food and cancer is an ever-developing and popular field, and because of this, the people I meet with tend to have many questions. The following are a few of the most
As an oncology nutritionist, I meet with people throughout the stages of treatment, recovery, and survivorship. The relationship between food and cancer is an ever-developing and popular field, and because of this, the people I meet with tend to have many questions. The following are a few of the most
tydonald
in
Healthy Eating
9 years ago
How should I eat during chemotherapy? Entry from Alexandra Rothwell, MPH, RD, CSO, CDN
As an oncology nutritionist, I meet with people throughout the stages of treatment, recovery, and survivorship. The relationship between food and cancer is an ever-developing and popular field, and because of this, the people I meet with tend to have many questions. The following are a few of the most
As an oncology nutritionist, I meet with people throughout the stages of treatment, recovery, and survivorship. The relationship between food and cancer is an ever-developing and popular field, and because of this, the people I meet with tend to have many questions. The following are a few of the most
tydonald
in
Healthy Eating
9 years ago
Does Sugar Feed Cancer? Entry from Alexandra Rothwell, MPH, RD, CSO, CDN
As an oncology nutritionist, I meet with people throughout the stages of treatment, recovery, and survivorship. The relationship between food and cancer is an ever- developing and popular field, and because of this, the people I meet with tend to have many questions. The following are a few of the
As an oncology nutritionist, I meet with people throughout the stages of treatment, recovery, and survivorship. The relationship between food and cancer is an ever- developing and popular field, and because of this, the people I meet with tend to have many questions. The following are a few of the
tydonald
in
Healthy Eating
9 years ago
Anisina works with standard chemo to kill cancer cells 20 times faster
[i]"Novogen today has announced that one of its oncology pipeline drug candidates, Anisina (ATM-3507), has achieved a major milestone in its development, confirming the concept that comprehensive destruction of a cancer cell’s cytoskeleton can deliver a powerful anti-cancer effect. : Anisina was developed
[i]"Novogen today has announced that one of its oncology pipeline drug candidates, Anisina (ATM-3507), has achieved a major milestone in its development, confirming the concept that comprehensive destruction of a cancer cell’s cytoskeleton can deliver a powerful anti-cancer effect. : Anisina was developed
AussieNeil
Administrator
in
CLL Support
9 years ago
Diptheria Immunotoxin Effectively Targets B-Cell Malignancies - Phase 1 trial of DT2219
[i]"Dr. Vallera and colleagues enrolled 25 chemo-refractory patients with previously treated pre-B acute lymphoblastic leukemia, chronic lymphocytic leukemia, or non-Hodgkin lymphoma whose tumors expressed CD19 and/or CD22. Eight patients had previously undergone unsuccessful bone marrow transplantations
[i]"Dr. Vallera and colleagues enrolled 25 chemo-refractory patients with previously treated pre-B acute lymphoblastic leukemia, chronic lymphocytic leukemia, or non-Hodgkin lymphoma whose tumors expressed CD19 and/or CD22. Eight patients had previously undergone unsuccessful bone marrow transplantations
AussieNeil
Administrator
in
CLL Support
9 years ago
"In The Loop Leeds" - keeping you informed about research
In the Loop is a pilot project run by Dr Louise Sorensen from the University of Leeds Rheumatic and Musculoskeletal Medicine. The project aim is to explore how they can get better at communicating research to patients, the public and non specialists. Many People have a keen interest in the latest Polymyalgia
In the Loop is a pilot project run by Dr Louise Sorensen from the University of Leeds Rheumatic and Musculoskeletal Medicine. The project aim is to explore how they can get better at communicating research to patients, the public and non specialists. Many People have a keen interest in the latest Polymyalgia
Suzym2u
Vasculitis UK
in
Vasculitis UK
9 years ago
NCI Director Resigns
NCI Director Harold Varmus Resigns Author: Silas Inman Dr. Harold Varmus Harold Varmus, MD The Nobel Prize winning director of the National Cancer Institute (NCI), Harold Varmus, MD, has tendered his resignation in a letter to President Barack Obama, citing economic restraints as a leading cause for
NCI Director Harold Varmus Resigns Author: Silas Inman Dr. Harold Varmus Harold Varmus, MD The Nobel Prize winning director of the National Cancer Institute (NCI), Harold Varmus, MD, has tendered his resignation in a letter to President Barack Obama, citing economic restraints as a leading cause for
Justasheet1
in
CLL Support
9 years ago
Has anyone had eight months of treatment using Rituxan and Treanda (bendamustine)
Has anyone had eight months of treatment using Rituxan and Treanda (bendamustine) instead of the manufacture recommendation of six months? If yes, did you get longer remission time? History: CLL diagnosed in 2004. On W&W until October 2007. Treatment began using Leukkeran (chlorambucil) dexamethasone
Has anyone had eight months of treatment using Rituxan and Treanda (bendamustine) instead of the manufacture recommendation of six months? If yes, did you get longer remission time? History: CLL diagnosed in 2004. On W&W until October 2007. Treatment began using Leukkeran (chlorambucil) dexamethasone
Janetfld
in
CLL Support
9 years ago
just diagnosed from a blood test done in 2009
Hi im 58yrs old I was diagnosed at first with Non Hodgkins Lymphoma after a breast screening 10 days later I saw a Haematologist that said from a bood test in 2009 ( no follow up on by my doctors) and the biopsy I had take from nodes in my arm pits 5 weeks ago I have CLL . I was trying to get my head
Hi im 58yrs old I was diagnosed at first with Non Hodgkins Lymphoma after a breast screening 10 days later I saw a Haematologist that said from a bood test in 2009 ( no follow up on by my doctors) and the biopsy I had take from nodes in my arm pits 5 weeks ago I have CLL . I was trying to get my head
mush56
in
CLL Support
9 years ago
The Emperor of All Maladies - PBS documentary
LLS newsletter I received announced an upcoming documentary based on the renown primer on cancer. ******** Found a blurb and a PBS link with trailer: "Siemens proudly supports "Cancer: The Emperor of All Maladies,” a film based on The Emperor of All Maladies: A Biography of Cancer by Pulitzer Prize-winning
LLS newsletter I received announced an upcoming documentary based on the renown primer on cancer. ******** Found a blurb and a PBS link with trailer: "Siemens proudly supports "Cancer: The Emperor of All Maladies,” a film based on The Emperor of All Maladies: A Biography of Cancer by Pulitzer Prize-winning
gemit2000
in
CLL Support
9 years ago
Interesting research on antibodies
Was very interested by this research into how autoimmune disorders (AD) arise. My mother has rheumatoid arthritis and I have psoriasis and LS. This falls in line with the article I'm pasting from, 'When the immune system goes on the attack'. "Hal Scofield, Professor of Medicine at the University of Oklahoma's
Was very interested by this research into how autoimmune disorders (AD) arise. My mother has rheumatoid arthritis and I have psoriasis and LS. This falls in line with the article I'm pasting from, 'When the immune system goes on the attack'. "Hal Scofield, Professor of Medicine at the University of Oklahoma's
Shezian
in
Vasculitis UK
9 years ago
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