Search
Search
About
Log in
Join
Experiences with
Mantle cell lymphoma (MCL)
Posts
Communities
1,678 public posts
Filter results
MF transplant update - discharged from BMT unit and back home
Hi All, delighted to report that I am back home from my local BMT unit and will now be treated as an outpatient. Still along way to go. A bit of background... I was diagnosed with primary myelofibrosis, JAK2 V617F, normal cytogenetics, at age 35. Health declined this year and decided to go for an early
Hi All, delighted to report that I am back home from my local BMT unit and will now be treated as an outpatient. Still along way to go. A bit of background... I was diagnosed with primary myelofibrosis, JAK2 V617F, normal cytogenetics, at age 35. Health declined this year and decided to go for an early
Simon96
in
MPN Voice
6 years ago
Managing Chronic Lymphocytic Leukemia and Its Complications Part I Thursday, November 8, 2018
Dear Friends, CancerCare welcomes you to participate in our upcoming CancerCare Connect® Education Workshop Series, Life with Chronic Lymphocytic Leukemia (CLL), on Thursdays, November 8 and 29. These one-hour telephone and webcast workshops are a cost-free way to learn about cancer-related issues from
Dear Friends, CancerCare welcomes you to participate in our upcoming CancerCare Connect® Education Workshop Series, Life with Chronic Lymphocytic Leukemia (CLL), on Thursdays, November 8 and 29. These one-hour telephone and webcast workshops are a cost-free way to learn about cancer-related issues from
lankisterguy
Volunteer
in
CLL Support
6 years ago
Sickle-cell September: What is Sickle-cell?
What is Sickle-Cell Disease? Sickle cell disease (SCD) is an inherited condition that affects the red blood cells and various organs in the body. SCD affects the production of a protein called haemoglobin that carries oxygen throughout the body. Each person inherits two haemoglobin genes, one
What is Sickle-Cell Disease? Sickle cell disease (SCD) is an inherited condition that affects the red blood cells and various organs in the body. SCD affects the production of a protein called haemoglobin that carries oxygen throughout the body. Each person inherits two haemoglobin genes, one
Anzy
in
Sickle Cell Society
6 years ago
Want to take advantage of all our features? Just log in!
Log in
or
Join
CAR T-Cell Developments in Lymphoma Dr. Ian Flinn Highlights
We see trials now focusing on follicular
lymphoma
,
mantle
cell
lymphoma
, and other malignancies, like acute lymphoblastic leukemia. The issue for some of these other diseases might be, “Is it worth the risk of a CAR T-cell therapy versus another therapy?”
We see trials now focusing on follicular
lymphoma
,
mantle
cell
lymphoma
, and other malignancies, like acute lymphoblastic leukemia. The issue for some of these other diseases might be, “Is it worth the risk of a CAR T-cell therapy versus another therapy?”
lankisterguy
Volunteer
in
CLL Support
6 years ago
Do you know how sickle cell started?
I have read scientists believe that sickle cell started during slavery. This is why black/African Americans are born with the disease more than any other race. During slavery the owners of African people would withhold drinking water from the slaves as a form of hatred and of punishment. Without water
I have read scientists believe that sickle cell started during slavery. This is why black/African Americans are born with the disease more than any other race. During slavery the owners of African people would withhold drinking water from the slaves as a form of hatred and of punishment. Without water
Hidden
in
Sickle Cell Society
6 years ago
Sickle cell and menstruation
I know someone who is sickle cell anaemic, but her menstruation is not regular and when it does come it trickles and there's no use for a sanitary pad. The problem is she's worried that this means she isn't fertile since her menstruation isn't normal. But I read somewhere that the flow isn't much cos
I know someone who is sickle cell anaemic, but her menstruation is not regular and when it does come it trickles and there's no use for a sanitary pad. The problem is she's worried that this means she isn't fertile since her menstruation isn't normal. But I read somewhere that the flow isn't much cos
Tyrose
in
Sickle Cell Society
6 years ago
Ginger oil
I've heard that massaging with ginger oil is good for lymphoedema. It's quite expensive so before I buy has anyone tried it? And did it help? Thanks.
I've heard that massaging with ginger oil is good for lymphoedema. It's quite expensive so before I buy has anyone tried it? And did it help? Thanks.
holly-bush1
in
LSN
6 years ago
Could this be PMR or Steroid side effect ?
I have been on Pred for 4 years and am reducing from 7 to 6.75 mg again. I had a very strenuous and stressful day on Saturday, going to a funeral and driving home took nearly 2 hours. The longest journey I have done for 3 years is about 15/20 minutes. When I got home I was so tired I needed a rest
I have been on Pred for 4 years and am reducing from 7 to 6.75 mg again. I had a very strenuous and stressful day on Saturday, going to a funeral and driving home took nearly 2 hours. The longest journey I have done for 3 years is about 15/20 minutes. When I got home I was so tired I needed a rest
NursePeggy
in
PMRGCAuk
6 years ago
Has anyone heard of MALT B CELL LYMPHOMA
I was visiting with a friend that had almost 100% symptoms like I do and did that was diagnosed with MALT B cell lymphoma and treated for it.
I was visiting with a friend that had almost 100% symptoms like I do and did that was diagnosed with MALT B cell lymphoma and treated for it.
ozarkharper
in
CLL Support
6 years ago
Feeling really lost and scared.
My husband did have CLL but had Richters Transformation to Lymphoma. He has been having Rituximab with Gemcitabine and Oxaliplatin. However yesterday his Consultant said his platelets are too low (50) to have the 6th and final planned dose. She does not plan to do a scan for a few weeks, has no other
My husband did have CLL but had Richters Transformation to Lymphoma. He has been having Rituximab with Gemcitabine and Oxaliplatin. However yesterday his Consultant said his platelets are too low (50) to have the 6th and final planned dose. She does not plan to do a scan for a few weeks, has no other
krisskross
in
CLL Support
6 years ago
Hi,
My wife had ER,PR,Her2 positive and grade3 breast cancer.MRM done the lymph nodes are free of tumor.Now she had taken her 10 cycle weekly paclitaxel and vivitra only two cycle left. Vivitra to continue another 13 cycle for 21days. No Radiation treatment required. Need advice on trastuzumab as her Doctor
My wife had ER,PR,Her2 positive and grade3 breast cancer.MRM done the lymph nodes are free of tumor.Now she had taken her 10 cycle weekly paclitaxel and vivitra only two cycle left. Vivitra to continue another 13 cycle for 21days. No Radiation treatment required. Need advice on trastuzumab as her Doctor
sapamdinesh
in
Breast Cancer India
6 years ago
Bone Marrow Transplant telephone conference call TODAY September 19, 2018
September Lunch & Learn With The Link: Blood Cancers and the Role of Bone Marrow Transplantation http://www.lls.org/events/blood-cancers-and-the-role-of-bone-marrow-transplantation?src1=22346&src2= This free telephone support program will focus on the role of transplantation in blood cancers, in
September Lunch & Learn With The Link: Blood Cancers and the Role of Bone Marrow Transplantation http://www.lls.org/events/blood-cancers-and-the-role-of-bone-marrow-transplantation?src1=22346&src2= This free telephone support program will focus on the role of transplantation in blood cancers, in
lankisterguy
Volunteer
in
CLL Support
6 years ago
Any positive transplant stories 60+?
I've got a CLL buddy who has just been diagnosed with myelodysplastic syndrome, which is basically bone marrow failure. I'm not clear if this is transformation of her CLL or a secondary malignancy. Either way, she is facing a decision about undergoing an autologous bone marrow transplant. She is in
I've got a CLL buddy who has just been diagnosed with myelodysplastic syndrome, which is basically bone marrow failure. I'm not clear if this is transformation of her CLL or a secondary malignancy. Either way, she is facing a decision about undergoing an autologous bone marrow transplant. She is in
Eagle5327
in
CLL Support
6 years ago
Graves and PBC
has anyone with PBC had radioactive iodine for graves after their PBC diagnosis
has anyone with PBC had radioactive iodine for graves after their PBC diagnosis
dollydaydreams
in
PBC Foundation
6 years ago
Ginger oil
Hi all Just wondered if anyone has tried using ginger oil when massaging and if so do you see any benefits? I’ve just seen an advert for it and it’s advertised as good for lymphatic drainage. Thanks in advance 😄
Hi all Just wondered if anyone has tried using ginger oil when massaging and if so do you see any benefits? I’ve just seen an advert for it and it’s advertised as good for lymphatic drainage. Thanks in advance 😄
Angelil
in
LSN
6 years ago
Cannabis Oils - Best Ones for T-Cell Relapse?
I am wondering if anyone can help point me in the right direction, we are at a loss. My father in law has had a relapse of NHL - TCell 2 years after a bone marrow transplant. His level's aren't balancing out enough to move on with any salvage treatment so we have looked into cannabis oils but finding
I am wondering if anyone can help point me in the right direction, we are at a loss. My father in law has had a relapse of NHL - TCell 2 years after a bone marrow transplant. His level's aren't balancing out enough to move on with any salvage treatment so we have looked into cannabis oils but finding
NHL-TCell
in
Non Hodgkin's Lymphoma Friends
6 years ago
Three disorders at the same time?
Was told I have Mantel Cell Lymphoma, Marginal Zone Lymphoma, AND Atypical CLL, all at the same time. They missed it for two years. Numerous sinus infections was reason for testing, and now a few months of detailed testing, CT scans etc. Next week will know treatment if recommended to start. Was
Was told I have Mantel Cell Lymphoma, Marginal Zone Lymphoma, AND Atypical CLL, all at the same time. They missed it for two years. Numerous sinus infections was reason for testing, and now a few months of detailed testing, CT scans etc. Next week will know treatment if recommended to start. Was
lsutigers2018
in
CLL Support
6 years ago
What are B-symptoms?
A cross post from Shar0n (Volunteer on Non Hodgkins Lymphoma Friends) https://healthunlocked.com/non-hodgkins-friends/posts/138634747/what-are-b-symptoms?uid=4bbb5369-5fe0-4deb-9832-94389677b246&utm_source=notification&utm_medium=email&utm_campaign=email_individual What are B Symptoms? This is a good
A cross post from Shar0n (Volunteer on Non Hodgkins Lymphoma Friends) https://healthunlocked.com/non-hodgkins-friends/posts/138634747/what-are-b-symptoms?uid=4bbb5369-5fe0-4deb-9832-94389677b246&utm_source=notification&utm_medium=email&utm_campaign=email_individual What are B Symptoms? This is a good
lankisterguy
Volunteer
in
CLL Support
6 years ago
Health Check: should I take vitamin C or other supplements for my cold?
Study evidence for the effectiveness of Vitamin C, Zinc, Garlic, Probiotics, Echinacea and ....... Chicken Soup in reducing the incidence or recovery time for a cold is collated in this article by Clare Collins, Professor in Nutrition and Dietetics, University of Newcastle. Some interesting findings
Study evidence for the effectiveness of Vitamin C, Zinc, Garlic, Probiotics, Echinacea and ....... Chicken Soup in reducing the incidence or recovery time for a cold is collated in this article by Clare Collins, Professor in Nutrition and Dietetics, University of Newcastle. Some interesting findings
AussieNeil
Partner
in
CLL Support
6 years ago
Stories From SickleCellNews Online
My life as a hooligan with sickle cell anaemia http://bit.ly/2BEPwCv I live with sickle cell anaemia – I have no wish to pass on this disease to the next generation (Lakeia Baily PHD, Director, Sickle Cell Consortium) http://bit.ly/2N2CRdP Red Alert: 60 million Nigerians have sickle cell trait http
My life as a hooligan with sickle cell anaemia http://bit.ly/2BEPwCv I live with sickle cell anaemia – I have no wish to pass on this disease to the next generation (Lakeia Baily PHD, Director, Sickle Cell Consortium) http://bit.ly/2N2CRdP Red Alert: 60 million Nigerians have sickle cell trait http
sicklecellnews
in
Sickle Cell Society
6 years ago
1
...
39
40
41
...
84
Next page
10
20
30
40
50
60
70
80
Filter results
Clear filters
Posted in
All communities
CLL Support
554 results
PMRGCAuk
200 results
MPN Voice
130 results
View top 10 communities
Sort by
Most Relevant
Newest