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Mantle cell lymphoma (MCL)
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Molecular Improvement – Exercise, & Dietary Regime or Medication(?)
Morning/Gooday/Good Evening (?)... :-) To all my MPN cousins, wherever you might be located… Recently, I underwent my second BMB, in preparation for the consideration of undergoing an Allogenic Stem Cell Transplant (ASCT), as in February 2018 I learned that I also have the ASXL1 mutation as well as
Morning/Gooday/Good Evening (?)... :-) To all my MPN cousins, wherever you might be located… Recently, I underwent my second BMB, in preparation for the consideration of undergoing an Allogenic Stem Cell Transplant (ASCT), as in February 2018 I learned that I also have the ASXL1 mutation as well as
socrates_8
in
MPN Voice
6 years ago
Any ideas?
Hi. I have joined this community to seek some idea as to what to expect for my friend. He was diagnosed with ALL earlier this year. All very sudden. He went through chemo regimes and subsequent stem cell transplant two months ago. All bloods and recovery going well. Last bloods about a week ago - all
Hi. I have joined this community to seek some idea as to what to expect for my friend. He was diagnosed with ALL earlier this year. All very sudden. He went through chemo regimes and subsequent stem cell transplant two months ago. All bloods and recovery going well. Last bloods about a week ago - all
Marilyn1959
in
Leukaemia CARE
6 years ago
Bendeka, a fast infusion form of bendamustine, gets 7 year exclusivity in U.S.
Eagle Pharmaceuticals announced today that the U.S. FDA has granted seven years of orphan drug exclusivity (ODE) in the U.S., for Bendeka (bendamustine hydrochloride injection, or bendamustine HCI), a liquid, low-volume (50 mL) and short-time 10-minute infusion formulation of bendamustine hydrochloride
Eagle Pharmaceuticals announced today that the U.S. FDA has granted seven years of orphan drug exclusivity (ODE) in the U.S., for Bendeka (bendamustine hydrochloride injection, or bendamustine HCI), a liquid, low-volume (50 mL) and short-time 10-minute infusion formulation of bendamustine hydrochloride
Cllcanada
Top Poster CURE Hero
in
CLL Support
6 years ago
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"9 out of 10 doctors on our payroll, recommend this product!" ~ Big Pharma : (
Oh Goody!!! Bio-Thera Solutions, a global biotechnology company based in Guangzhou, China, recently announced that it has initiated a phase 1 clinical trial for BAT1806, a proposed tocilizumab (Actemra) biosimilar. Just what the world needs another Valsartan disaster! https://www.centerforbiosimilars.com
Oh Goody!!! Bio-Thera Solutions, a global biotechnology company based in Guangzhou, China, recently announced that it has initiated a phase 1 clinical trial for BAT1806, a proposed tocilizumab (Actemra) biosimilar. Just what the world needs another Valsartan disaster! https://www.centerforbiosimilars.com
Hidden
in
PMRGCAuk
6 years ago
Cll diagnosis for my dad
Hi my dad who is going to be 78 this November was told yesterday that he has cll stage 4 - so I believe that means it’s in his bone marrow ( he had a biopsy to confirm that) his lymph nodes are enlarged ( he also had a biopsy on one in his neck which confirmed non Hodgkin low grade lymphoma ) and the
Hi my dad who is going to be 78 this November was told yesterday that he has cll stage 4 - so I believe that means it’s in his bone marrow ( he had a biopsy to confirm that) his lymph nodes are enlarged ( he also had a biopsy on one in his neck which confirmed non Hodgkin low grade lymphoma ) and the
Suskime
in
CLL Support
6 years ago
IVF with donor eggs, previous stem cell transplant and early menopause
Hi ladies Im not sure if you will be able to give any advice but 14 years ago i had leukaemia and my treatment involved chemo and total body radiation for stem cell transplant. My periods stopped straight away and i went into early menopause at 20! I went to see a fertility clinic years ago as i was
Hi ladies Im not sure if you will be able to give any advice but 14 years ago i had leukaemia and my treatment involved chemo and total body radiation for stem cell transplant. My periods stopped straight away and i went into early menopause at 20! I went to see a fertility clinic years ago as i was
Caitlyn84
in
Fertility Network UK
6 years ago
Low Dose Naltrexone
Hello Everyone! I am new here and waiting on my diagnosis. I take low dose Naltrexone to help lower my thyroid antibodies and it is working! Has anyone ever heard of taking this to lower APS antibodies? Thanks so much!
Hello Everyone! I am new here and waiting on my diagnosis. I take low dose Naltrexone to help lower my thyroid antibodies and it is working! Has anyone ever heard of taking this to lower APS antibodies? Thanks so much!
Tickytot
in
Hughes Syndrome APS Forum
6 years ago
Sickle Cell News - July-September 2018 Edition
Major Stories: 1. Trailblazing Myth-Breaker: Police Sergeant Winston Mmagu lives with sickle cell anaemia – how, how does he cope?! 2. Canada Celebrates 1st official Sickle Cell Day. 3. Genetics Professor Cyril Otoikhian throws damper on World Sickle Cell Day celebrations in Nigeria. Universally
Major Stories: 1. Trailblazing Myth-Breaker: Police Sergeant Winston Mmagu lives with sickle cell anaemia – how, how does he cope?! 2. Canada Celebrates 1st official Sickle Cell Day. 3. Genetics Professor Cyril Otoikhian throws damper on World Sickle Cell Day celebrations in Nigeria. Universally
sicklecellnews
in
Sickle Cell Society
6 years ago
MPN RESEARCH FOUNDATION LAUNCHES STEM CELL TRANSPLANT TIMING TOOL FOR MPN PATIENTS WITH MF
A new tool to improve stem cell transplant outcomes was announced today by the MPN Research Foundation (MPNRF). The SCT Spectrum Transplant Timing tool (SSTT) was created to facilitate communication between myelofibrosis patients and their physicians. The SSTT is a portable on-line tool based on a
A new tool to improve stem cell transplant outcomes was announced today by the MPN Research Foundation (MPNRF). The SCT Spectrum Transplant Timing tool (SSTT) was created to facilitate communication between myelofibrosis patients and their physicians. The SSTT is a portable on-line tool based on a
Mazcd
MPNVoice
in
MPN Voice
6 years ago
GCA and clinical trials
I was just diagnosed Great cell Arteritise, I am currently on prednisone. I have an opportunity to joint a clinical trial group, that combines prednisone and Stelara. Has anyone had any experience with clinical trial using drug combinations?
I was just diagnosed Great cell Arteritise, I am currently on prednisone. I have an opportunity to joint a clinical trial group, that combines prednisone and Stelara. Has anyone had any experience with clinical trial using drug combinations?
golf26
in
PMRGCAuk
6 years ago
Getting there,!!
Almost 9 months since my stem cell transplant tho still breathless getting stronger and being more positive daily,!!
Almost 9 months since my stem cell transplant tho still breathless getting stronger and being more positive daily,!!
Topteam
in
Leukaemia CARE
6 years ago
Aml.
In 2014 I was diagnosed with aml was lucky enough to go into remission after two cycles of chemo but still needed bone marrow transplant which I had in the August 2014.after few set backs mainly with gvhd of the skin things are going well .
In 2014 I was diagnosed with aml was lucky enough to go into remission after two cycles of chemo but still needed bone marrow transplant which I had in the August 2014.after few set backs mainly with gvhd of the skin things are going well .
Islay55
in
Leukaemia CARE
6 years ago
GCA and people not understanding
I have just come back from a wonderful but tiring holiday in Cornwall. I am so much better now I am on Tocilizumab but still not my old self. This was the first time I have been taking it fortnightly, by injection. rather than weekly and I was told I was not to do too much. I had a long day visiting
I have just come back from a wonderful but tiring holiday in Cornwall. I am so much better now I am on Tocilizumab but still not my old self. This was the first time I have been taking it fortnightly, by injection. rather than weekly and I was told I was not to do too much. I had a long day visiting
christine2715
in
PMRGCAuk
6 years ago
Labs
These are my labs from today. Manual Diff: Ellictocytes 1+, Poikilocytes 1+. CBC with Diff: Eosinophil 23%, Eosinophil Absolute 1.2k/CMM, HGB 11.8, PLT 136. CCP Complete Chemical Profile: Anion Gap 3, Alkaline Phosphatase 120, SGOT (AST) 41, Chloride Serum 109. Last week my Ellictocytes was 1+, Eosinophil
These are my labs from today. Manual Diff: Ellictocytes 1+, Poikilocytes 1+. CBC with Diff: Eosinophil 23%, Eosinophil Absolute 1.2k/CMM, HGB 11.8, PLT 136. CCP Complete Chemical Profile: Anion Gap 3, Alkaline Phosphatase 120, SGOT (AST) 41, Chloride Serum 109. Last week my Ellictocytes was 1+, Eosinophil
Mamawof25
in
CLL Support
6 years ago
Sickle Cell trait pain
I am a 26 year old female. I was told that I carried the sickle cell trait and I’m anemic. I am in so much pain to where my body hurts. I take iron and B12 faithfully but I can’t get answers from anyone. I’m always exhausted and I have so much pain in my joints. My stomach hurts like hell. Is sickle
I am a 26 year old female. I was told that I carried the sickle cell trait and I’m anemic. I am in so much pain to where my body hurts. I take iron and B12 faithfully but I can’t get answers from anyone. I’m always exhausted and I have so much pain in my joints. My stomach hurts like hell. Is sickle
MrsReese
in
Sickle Cell Society
6 years ago
New here - advice needed please!
Hi, is a positive gastric parietal cell antibody test plus ongoing anaemia enough for a diagnosis of pernicious anaemia, even if serum B12 is in range?
Hi, is a positive gastric parietal cell antibody test plus ongoing anaemia enough for a diagnosis of pernicious anaemia, even if serum B12 is in range?
barton444
in
Pernicious Anaemia Society
6 years ago
Managing the Complications of Chronic Lymphocytic Leukemia (CLL) Online Program by The CancerCare Education Department (USA)
Cell
Lymphoma
(MCL) 6/29 ∙ Treatment Update for Adults Living with Acute Lymphocytic Leukemia (ALL) ________________________________________ Len
Cell
Lymphoma
(MCL) 6/29 ∙ Treatment Update for Adults Living with Acute Lymphocytic Leukemia (ALL) ________________________________________ Len
lankisterguy
Volunteer
in
CLL Support
6 years ago
Stem Cell Transplants
https://mpnforum.com/nicrev Hope this link works. Interesting interview about Stem Cell Transplant risk:reward and timing. I thought quite reassuring, especially since odds improving all the time. Five year survival rates are based on transplants pre 2013. The odds and risks should be even better by
https://mpnforum.com/nicrev Hope this link works. Interesting interview about Stem Cell Transplant risk:reward and timing. I thought quite reassuring, especially since odds improving all the time. Five year survival rates are based on transplants pre 2013. The odds and risks should be even better by
Paul123456
in
MPN Voice
6 years ago
Intrinsic Factor vs Parietal Cell Antibodies
If a person tested positive for the intrinsic factor antibody but negative to the parietal cell antibody, would that mean that the parietal cells in the stomach are not under attack, only the intrinsic factor that those cells produce? And would that mean that the stomach might be still producing acid
If a person tested positive for the intrinsic factor antibody but negative to the parietal cell antibody, would that mean that the parietal cells in the stomach are not under attack, only the intrinsic factor that those cells produce? And would that mean that the stomach might be still producing acid
topher2018
in
Pernicious Anaemia Society
6 years ago
WBC %
May be a silly question but had bloods today and was wondering about the WBC % I have 82% Lymphocytes (27.2) out of WBC 33.2 how high can this percentage be and what is the normal range? Also Basophils 0.3% Had a few minor infections recently which is why I am a little concerned. Thanks in advance
May be a silly question but had bloods today and was wondering about the WBC % I have 82% Lymphocytes (27.2) out of WBC 33.2 how high can this percentage be and what is the normal range? Also Basophils 0.3% Had a few minor infections recently which is why I am a little concerned. Thanks in advance
Hevs333
in
CLL Support
6 years ago
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