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Mantle cell lymphoma (MCL)
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Adrenal Treatments
Can anyone please tell me what treatments they got for Adrenal fatigue both prescription and more helpful non prescription.. I had taken Nutri Adrenal and it coincided with insomnia, I can't say I felt anymore energetic as I cone alive when it's time for bed!! Always have for a long time... However I'm
Can anyone please tell me what treatments they got for Adrenal fatigue both prescription and more helpful non prescription.. I had taken Nutri Adrenal and it coincided with insomnia, I can't say I felt anymore energetic as I cone alive when it's time for bed!! Always have for a long time... However I'm
scorpiojo
in
Thyroid UK
8 years ago
Not understanding
I'm 46yrs. Old. I just got a test done for Sickle Cells. The doctor's assistance called to tell me first that I tested positive for Sickle Cell, then called me back to tell I shouldn't worry it's just might be the trait. I've been in pain all my adult life. I have yellow eyes, have chronic pain daily
I'm 46yrs. Old. I just got a test done for Sickle Cells. The doctor's assistance called to tell me first that I tested positive for Sickle Cell, then called me back to tell I shouldn't worry it's just might be the trait. I've been in pain all my adult life. I have yellow eyes, have chronic pain daily
Maurethiahollins
in
Sickle Cell Society
8 years ago
NHS England refusing second Stem Cell Transplants
Hi everybody not many of you will know yet but NHS England at the being of July issued an edict proclaiming that they would Not routinely Pay for a Second Stem Cell Transplant for relapsed patients with Blood Disorders even when the Consulants think it viable and the best option This came after some
Hi everybody not many of you will know yet but NHS England at the being of July issued an edict proclaiming that they would Not routinely Pay for a Second Stem Cell Transplant for relapsed patients with Blood Disorders even when the Consulants think it viable and the best option This came after some
bronx77
in
CLL Support
8 years ago
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Giant Cell Arteritis and Mycophenolate
I am a 64 year old male who has suffered from GCA for 6 years. I did manage to get down to 3.5mgs of prednisilone a day although would have relapses. My new consultant was keen for me to have a scan to see how the inflammation was behaving however that then really set me back. I had to come off my drugs
I am a 64 year old male who has suffered from GCA for 6 years. I did manage to get down to 3.5mgs of prednisilone a day although would have relapses. My new consultant was keen for me to have a scan to see how the inflammation was behaving however that then really set me back. I had to come off my drugs
Stkeyna
in
PMRGCAuk
8 years ago
No surgery for me
Well after only a few days I have the results of my pet and Mri scans. Emergency apointme with oncologist Good news no cancer in upper body, bad news Mri shows mass on bladder plus mass on upper vagina and infiltration to blood vessels so no surgery possible oh bugger was counting on that so its back
Well after only a few days I have the results of my pet and Mri scans. Emergency apointme with oncologist Good news no cancer in upper body, bad news Mri shows mass on bladder plus mass on upper vagina and infiltration to blood vessels so no surgery possible oh bugger was counting on that so its back
knoxie
in
My Ovacome
8 years ago
self-treating hypothyroidism and Definitely Already had Rheumatoid Arthritis
I have had Rheumatoid Arthritis (diagnosed) I have been gluten-free and dairy-free as well as free of nightshade plants and peanuts as well as many other food stuffs that cause me serious reactions and/or allergic reactions, since 2003. This includes tomatoes and citrus. This is of necessity rather than
I have had Rheumatoid Arthritis (diagnosed) I have been gluten-free and dairy-free as well as free of nightshade plants and peanuts as well as many other food stuffs that cause me serious reactions and/or allergic reactions, since 2003. This includes tomatoes and citrus. This is of necessity rather than
SusanKay
in
Thyroid UK
8 years ago
tocilizumab for gpa?
hi all, my wife was diagnosed with gpa almost five years ago which seems to be rumbling on and has been refused funding for rituximab but has been told she can have tocilizumab. have any of you had treatment with this drug for small and medium vessel vasculitis and with what results as most of the
hi all, my wife was diagnosed with gpa almost five years ago which seems to be rumbling on and has been refused funding for rituximab but has been told she can have tocilizumab. have any of you had treatment with this drug for small and medium vessel vasculitis and with what results as most of the
roobub
in
Vasculitis UK
8 years ago
Sex, maggots, castration and politicians lead to this year's Golden Goose Award - for a technique that could prevent Zika's spread
[i]"Sometimes offbeat, quirky-sounding science is the best science, paving the way for discoveries years down the road which can revolutionize medicine, physics, biology, technology and how we view the world," said US Republican Representative Randy Hultgren from Illinois.[/i] [i]:[/i] About 80 years
[i]"Sometimes offbeat, quirky-sounding science is the best science, paving the way for discoveries years down the road which can revolutionize medicine, physics, biology, technology and how we view the world," said US Republican Representative Randy Hultgren from Illinois.[/i] [i]:[/i] About 80 years
AussieNeil
Partner
in
CLL Support
8 years ago
Something New
Well this is new to me. I know my lymphoma is active, but I just started having chills and jerking my shoulders, and now my calf muscles are aching. My voice is weak and the lymph nodes in my groin are aching. Is this normal?
Well this is new to me. I know my lymphoma is active, but I just started having chills and jerking my shoulders, and now my calf muscles are aching. My voice is weak and the lymph nodes in my groin are aching. Is this normal?
Shortcake2
in
CLL Support
8 years ago
My Myeloma
I'm new here but have been sending in reports via stuff.co.nz from there go to stuff nation and find me reviewing Elton John albums alongside my cancer treatment. An unrelated distraction. I am up to week 16. Hoping for a stem cell transplant in September, cheers to everyone. Bruce
I'm new here but have been sending in reports via stuff.co.nz from there go to stuff nation and find me reviewing Elton John albums alongside my cancer treatment. An unrelated distraction. I am up to week 16. Hoping for a stem cell transplant in September, cheers to everyone. Bruce
offthecush
in
Myeloma America Support
8 years ago
Ibrutinib/Imbruvica brings hope to stem cell transplant patients with chronic graft-versus-host-disease
[i]'FDA granted a fourth Breakthrough Therapy Designation (BTD) for ibrutinib (IMBRUVICA®) as a potential treatment of chronic graft-versus-host-disease (cGVHD) after failure of one or more lines of systemic therapy. The FDA also granted the therapy Orphan Drug Designation for the condition. cGVHD is
[i]'FDA granted a fourth Breakthrough Therapy Designation (BTD) for ibrutinib (IMBRUVICA®) as a potential treatment of chronic graft-versus-host-disease (cGVHD) after failure of one or more lines of systemic therapy. The FDA also granted the therapy Orphan Drug Designation for the condition. cGVHD is
AussieNeil
Partner
in
CLL Support
8 years ago
End of an Era (July 7, 2016)
Hi, Today, in another personal blog post on http://bkoffman.blogspot.com , I share the news of the official end of my allogeneic hematopoietic stem cell transplant story that started 8 years ago and ended with a rejected graft and a quick relapse. I am officially now and probably have been for years
Hi, Today, in another personal blog post on http://bkoffman.blogspot.com , I share the news of the official end of my allogeneic hematopoietic stem cell transplant story that started 8 years ago and ended with a rejected graft and a quick relapse. I am officially now and probably have been for years
bkoffman
CLL CURE Hero
in
CLL Support
8 years ago
Need a bit of cheering up
hi ladies feeling a bit of a wobble coming on. A potted history to date. 2011 diagnosed oc surgery then 6 rounds carbo taxol. Staged 1c grade 2 mucinous ardenocarcinoma. 2014 recurred pelvic wall same site surgery not all got out. No chemo refused radio therapy due to bowel complications during surgery
hi ladies feeling a bit of a wobble coming on. A potted history to date. 2011 diagnosed oc surgery then 6 rounds carbo taxol. Staged 1c grade 2 mucinous ardenocarcinoma. 2014 recurred pelvic wall same site surgery not all got out. No chemo refused radio therapy due to bowel complications during surgery
knoxie42
in
My Ovacome
8 years ago
Chemo done..scans tonight
I finished BR in May and the doctors at both OSU and Cleveland Clinic say I did "spectacular". My numbers are perfect. I'm having a full body scan today at Cleveland Clinic to see if there is anything still enlarged inside. The dr says that sometimes people can have great numbers but still have issues
I finished BR in May and the doctors at both OSU and Cleveland Clinic say I did "spectacular". My numbers are perfect. I'm having a full body scan today at Cleveland Clinic to see if there is anything still enlarged inside. The dr says that sometimes people can have great numbers but still have issues
momof12
in
CLL Support
8 years ago
What to do?
Hi all, I have a decision to make and would like your feedback. I read the posts regularly but don't post much. So, I was diagnosed with CLL last year 6/15 at age 65 (though I suspect it really started around 2009 when I had a slightly elevated absolute lymphocyte count and a swollen lymph node in
Hi all, I have a decision to make and would like your feedback. I read the posts regularly but don't post much. So, I was diagnosed with CLL last year 6/15 at age 65 (though I suspect it really started around 2009 when I had a slightly elevated absolute lymphocyte count and a swollen lymph node in
SandiC
in
CLL Support
8 years ago
Failed Bone Marrow Biopsy
Well it's just typical... after having an allergic reaction to contrast from the body scan, I then had a bone marrow biopsy on Tuesday. The doctors was fab, talked me through the whole thing...lots of tugging pulling etc... she then told me..after 20 mins.. that she was really struggling to get a
Well it's just typical... after having an allergic reaction to contrast from the body scan, I then had a bone marrow biopsy on Tuesday. The doctors was fab, talked me through the whole thing...lots of tugging pulling etc... she then told me..after 20 mins.. that she was really struggling to get a
Bethan49
in
CLL Support
8 years ago
CLL/SLL Patient Survey
If you have CLL or SLL and have been treated with venetoclax we need your help. Lymphoma Canada is preparing a submission for the panCanadian Oncology Drug Review (pCODR) for: —Venetoclax for the treatment of patients with chronic lymphocytic leukemia (CLL)/small lymphocytic lymphoma (SLL) who have
If you have CLL or SLL and have been treated with venetoclax we need your help. Lymphoma Canada is preparing a submission for the panCanadian Oncology Drug Review (pCODR) for: —Venetoclax for the treatment of patients with chronic lymphocytic leukemia (CLL)/small lymphocytic lymphoma (SLL) who have
LCAdmin
Lymphoma Canada
in
Lymphoma Canada
8 years ago
I’m new here ...just diagnosed with AMN
Hello! I am 38 years old woman from Latvia and it looks like I am the only one with AMN here. I was so glad I found this site!!! Here is my story. (sory for my english :)) Three months ago our son, our sweet 7 years old boy was diagnosed with ALD... and it was too late for stem cell transplantation.
Hello! I am 38 years old woman from Latvia and it looks like I am the only one with AMN here. I was so glad I found this site!!! Here is my story. (sory for my english :)) Three months ago our son, our sweet 7 years old boy was diagnosed with ALD... and it was too late for stem cell transplantation.
zane_a
in
AMN EASIER
8 years ago
Solgar Gentle iron what Vit c should I take please
Hi, I've not been taking any Vit c with the gentle iron... On the results above is the iron ok at 25mg one a day enough and what's the best Vit c please 😊 x
Hi, I've not been taking any Vit c with the gentle iron... On the results above is the iron ok at 25mg one a day enough and what's the best Vit c please 😊 x
scorpiojo
in
Pernicious Anaemia Society
8 years ago
Physical activity may lower risk of some cancers
[i]'Being physically active during leisure time may lower a person’s risk of certain cancers, according to a new study. A high level of physical activity was associated with a 20% lower risk of myeloid leukemia, a 17% lower risk of myeloma, a 9% lower risk of non-Hodgkin lymphoma, and a 7% lower risk
[i]'Being physically active during leisure time may lower a person’s risk of certain cancers, according to a new study. A high level of physical activity was associated with a 20% lower risk of myeloid leukemia, a 17% lower risk of myeloma, a 9% lower risk of non-Hodgkin lymphoma, and a 7% lower risk
AussieNeil
Partner
in
CLL Support
8 years ago
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