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Mantle cell lymphoma (MCL)
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Watch and Wait - LGFL
I was diagnosed in July of 2015 with Low Grade Follicular Lymphoma. I had one node which was surgically removed. I am stage 1 Grade 1. I am in watch and wait. I wish there was some treatment that could cure this since I am in a low level but my oncologists says there is not. Although I am fine it
I was diagnosed in July of 2015 with Low Grade Follicular Lymphoma. I had one node which was surgically removed. I am stage 1 Grade 1. I am in watch and wait. I wish there was some treatment that could cure this since I am in a low level but my oncologists says there is not. Although I am fine it
Josie2rulrs
in
Non Hodgkin's Lymphoma Friends
8 years ago
Advice on S.C.D and S.C.T
Hello my name is Cazzera, and I have not replied for a while, as I am doing so much much research to educate for Sickle Cell Disease which I suffer form myself. I would just like to advice the post about having sickle cell trait and suffered fro years. Although I am not medically trained I would advice
Hello my name is Cazzera, and I have not replied for a while, as I am doing so much much research to educate for Sickle Cell Disease which I suffer form myself. I would just like to advice the post about having sickle cell trait and suffered fro years. Although I am not medically trained I would advice
cazzera
in
Sickle Cell Society
8 years ago
The Sickle Cell Journey
I thank The Almighty God that. I don't have sickle cell disease because having the trait has been more than i can stand over the years. When i was a young girl i was hospitalized off & on do to Crisis. I had to take shots daily during my stay for weeks at a time. When in my 20's i had criss so bad i
I thank The Almighty God that. I don't have sickle cell disease because having the trait has been more than i can stand over the years. When i was a young girl i was hospitalized off & on do to Crisis. I had to take shots daily during my stay for weeks at a time. When in my 20's i had criss so bad i
Tone124
in
Sickle Cell Society
8 years ago
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Follicular Lymphoma Patient Survey
If you have follicular lymphoma and have been treated with obinituzumab (Gazyva) you can help by completing our survey. Lymphoma Canada is preparing a submission for the panCanadian Oncology Drug Review (pCODR) for: Obinituzumab in combination with chemotherapy, followed by obinutuzumab maintenance
If you have follicular lymphoma and have been treated with obinituzumab (Gazyva) you can help by completing our survey. Lymphoma Canada is preparing a submission for the panCanadian Oncology Drug Review (pCODR) for: Obinituzumab in combination with chemotherapy, followed by obinutuzumab maintenance
LCAdmin
in
Non Hodgkin's Lymphoma Friends
8 years ago
Follicular Lymphoma Patient Survey
If you have follicular lymphoma and have been treated with obinituzumab (Gazyva) you can help by completing our survey. Lymphoma Canada is preparing a submission for the panCanadian Oncology Drug Review (pCODR) for: Obinituzumab in combination with chemotherapy, followed by obinutuzumab maintenance
If you have follicular lymphoma and have been treated with obinituzumab (Gazyva) you can help by completing our survey. Lymphoma Canada is preparing a submission for the panCanadian Oncology Drug Review (pCODR) for: Obinituzumab in combination with chemotherapy, followed by obinutuzumab maintenance
LCAdmin
Lymphoma Canada
in
Lymphoma Canada
8 years ago
Dr doesn't believe positive parietal cell antibody bloodwork?
Hey guys it's me again! So we all know now I have very low ferritin and am on twice weekly b12 shots. Feeling alive finally! BUT, my stomach issues and not absorbing a lot of other vitamins well sent me to the gastroenterologist. He saw my blood work from my naturopath. I told him naturopath diagnosed
Hey guys it's me again! So we all know now I have very low ferritin and am on twice weekly b12 shots. Feeling alive finally! BUT, my stomach issues and not absorbing a lot of other vitamins well sent me to the gastroenterologist. He saw my blood work from my naturopath. I told him naturopath diagnosed
Ladyawkward
in
Pernicious Anaemia Society
8 years ago
Hospital Boomerang
Well back in the nation health all inclusive holiday camp. This weeks good news is my husbands stem cell transplant seems to be doing well. He's out of kings and enjoying home life, so I seem to have taken up residency in his place. Last few weeks was a tad rough admitted to hospital with shingles, but
Well back in the nation health all inclusive holiday camp. This weeks good news is my husbands stem cell transplant seems to be doing well. He's out of kings and enjoying home life, so I seem to have taken up residency in his place. Last few weeks was a tad rough admitted to hospital with shingles, but
knoxie
in
My Ovacome
8 years ago
Low Ferritin
In April of this year my ferritin reading was 45 and am experiencing hair loss. Started taking solgar gentle iron everyday since April and my ferritin reading is now 5! I was aiming to raise to at least 80 for hair regrowth not for it to go lower! Does anyone have an idea why after taking iron everyday
In April of this year my ferritin reading was 45 and am experiencing hair loss. Started taking solgar gentle iron everyday since April and my ferritin reading is now 5! I was aiming to raise to at least 80 for hair regrowth not for it to go lower! Does anyone have an idea why after taking iron everyday
Debbstar
in
Thyroid UK
8 years ago
Vitamin B complex
I am currently in the middle of writing a letter to my gp regarding the withdrawal of my treatment due to high serum b12 !!!!!!! This is in another post. In the meantime I am supplementing with 2x 5000 Swansons Methylcobalamine daily, I think others have said that to make the best of the b12 you should
I am currently in the middle of writing a letter to my gp regarding the withdrawal of my treatment due to high serum b12 !!!!!!! This is in another post. In the meantime I am supplementing with 2x 5000 Swansons Methylcobalamine daily, I think others have said that to make the best of the b12 you should
Kenbowns
in
Pernicious Anaemia Society
8 years ago
Venetoclax or bone marrow transplant?
My son has CLL with 11Q deletion. he could have a haplo transplant with his brother as a half full match donor but given his pneumonia has not subsided he is now looking more towards Venetoclax. The transplant has been postponed non stop because of fever from pneumonia. Feedback will be appreciated.
My son has CLL with 11Q deletion. he could have a haplo transplant with his brother as a half full match donor but given his pneumonia has not subsided he is now looking more towards Venetoclax. The transplant has been postponed non stop because of fever from pneumonia. Feedback will be appreciated.
karenmarie
in
CLL Support
8 years ago
Don't know what to do
Hi all need some advice my 15 year old daughter is now attending a hospital school she has not been in full time education for 1half years now she's full time loves it there head has got her on 4 week trail everything was going great until last Tuesday since then couldn't attend going through a bad flare
Hi all need some advice my 15 year old daughter is now attending a hospital school she has not been in full time education for 1half years now she's full time loves it there head has got her on 4 week trail everything was going great until last Tuesday since then couldn't attend going through a bad flare
Hollie121
in
Fibromyalgia Action UK
8 years ago
Introduction
Hi everyone, my name is Hildegard and I would like to introduce myself. I love to crochet and knit, and I had follicular Non Hodgkins Lymphoma stage 4 since 2004. I did 22 Radiation treatments after surgery to take out my salivary gland out. Then I went to almost 5 years and in 09 it came back it was
Hi everyone, my name is Hildegard and I would like to introduce myself. I love to crochet and knit, and I had follicular Non Hodgkins Lymphoma stage 4 since 2004. I did 22 Radiation treatments after surgery to take out my salivary gland out. Then I went to almost 5 years and in 09 it came back it was
hildegard1921
in
Non Hodgkin's Lymphoma Friends
8 years ago
Cancelled Op
I had a date for my total ankle replacement for the 7th October, on the 3rd I received a call saying that it had been cancelled due to the parts not being available (I have been waiting for this operation since February this year and have has 2 pre-assements) I am wondering if anybody has had a similar
I had a date for my total ankle replacement for the 7th October, on the 3rd I received a call saying that it had been cancelled due to the parts not being available (I have been waiting for this operation since February this year and have has 2 pre-assements) I am wondering if anybody has had a similar
Boddingtons1
in
Pain Concern
8 years ago
Aggressive Follicular Lymphoma Now In NIH CAR-T Clinical Trial
In 2011 my 64 year old (at that time) wife was diagnosed with follicular lymphoma. She relapsed within 4 months of R-CHOP (6 cycles) and within 2 months of bendamustine/rituximab/velcade (6 cycles). This is when her oncologist said she had an aggressive form of follicular lymphoma. Next she was in a
In 2011 my 64 year old (at that time) wife was diagnosed with follicular lymphoma. She relapsed within 4 months of R-CHOP (6 cycles) and within 2 months of bendamustine/rituximab/velcade (6 cycles). This is when her oncologist said she had an aggressive form of follicular lymphoma. Next she was in a
wmay13241
in
Non Hodgkin's Lymphoma Friends
8 years ago
New to group, but old to DLBCL NHL
Hi, my name is Felicia. I was diagnosed at 24 yrs ago when I was 28 with Stage 1b DLBCL NHL. I had a football size encapsulated tumor in my chest cavity. I had 6 months of PROMACE CYTOBOM, (they don't even use that regiment anymore) & 4 wks of radiation. I was fine for 23 yrs. In Feb 2015, I found
Hi, my name is Felicia. I was diagnosed at 24 yrs ago when I was 28 with Stage 1b DLBCL NHL. I had a football size encapsulated tumor in my chest cavity. I had 6 months of PROMACE CYTOBOM, (they don't even use that regiment anymore) & 4 wks of radiation. I was fine for 23 yrs. In Feb 2015, I found
fwhip14
in
Non Hodgkin's Lymphoma Friends
8 years ago
World Lymphoma Awareness Day
Today is World Lymphoma Awareness Day: Every 3 minutes someone is diagnosed with a Blood Cancer in the USA.
Today is World Lymphoma Awareness Day: Every 3 minutes someone is diagnosed with a Blood Cancer in the USA.
bkoffman
CLL CURE Hero
in
CLL Support
8 years ago
Going to oncologist
Hey, everyone. I am seeing an oncologist Friday because I think I may have lymphoma? And it pangs me to even mention that. :/ basically, a few months ago, I started feeling very sick and very fatigued. Around the same time some red patches appeared on my left arm and left shoulder, which looked like
Hey, everyone. I am seeing an oncologist Friday because I think I may have lymphoma? And it pangs me to even mention that. :/ basically, a few months ago, I started feeling very sick and very fatigued. Around the same time some red patches appeared on my left arm and left shoulder, which looked like
Michhy
in
Lymphoma Canada
8 years ago
Gastrin test
Hi everyone, I posted on here a few weeks ago talking about some of my lab results and what they could possibly entail. Some possibilities were atrophic gastritis and pernicious anemia. I definitely have been diagnosed with barrett's esophagus at the young age of 30. The reason why atrophic gastritis
Hi everyone, I posted on here a few weeks ago talking about some of my lab results and what they could possibly entail. Some possibilities were atrophic gastritis and pernicious anemia. I definitely have been diagnosed with barrett's esophagus at the young age of 30. The reason why atrophic gastritis
yogamom1
in
Pernicious Anaemia Society
8 years ago
My cancer experience
Cerous uterine cancer surgery February 2016. Chemo/radiation completed the end of June 2016. Clear of cancer as of September 2016.
Cerous uterine cancer surgery February 2016. Chemo/radiation completed the end of June 2016. Clear of cancer as of September 2016.
GrandmaG
in
Pain Concern
8 years ago
watch & wait - immunizations....how long to treatment ?
Hello, I was dx in Jan this year and am still on W & W. My ALC in July was at 9.5, WBC.. 16 down from 19 at dx.... ANC..5.7 HGB...15...PLT .... 201 RBC .... 4.76 all seem to be stable for now. I want to stay healthy especially with my 3 kids still in school, lots of germs coming into my home. What
Hello, I was dx in Jan this year and am still on W & W. My ALC in July was at 9.5, WBC.. 16 down from 19 at dx.... ANC..5.7 HGB...15...PLT .... 201 RBC .... 4.76 all seem to be stable for now. I want to stay healthy especially with my 3 kids still in school, lots of germs coming into my home. What
garrick66
in
CLL Support
8 years ago
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