Confused about Lymphoma

I was in a car accident coming up to 3 months ago, a few days later I woke up and my vision was blurry. I went to the opticians and then the hospital who told me my eyes were absolutely fine but my vision was drastically deteriating due to abnormalities in the brain. There was no sign of trauma so the car accident was dismissed. I was then told my vision couldn't be measure because I was considered "blind". I was admitted to hospital for 2 and a half weeks, I had two lumber punctures in which the cells could not be properly tested on due to being sent to the testing labs too late, blood tests that came back clear and I was clear of diseases and infections. Small lumps on my brain have been detected but they have gotten smaller and are now less than 1mm big. My body scans are absolutely fine too. I was then put on steroids (prednisolone) for 2 months. My vision has completely improved and I now have 20/20 vision. Although the radiologist still seems to suspect Lymphoma to the brain the doctors are unsure because I have no other symptoms. I do not feel unwell or sick, there are no lumps, I don't feel tired or weak and I still have an appetite. The doctors are unsure and are going to see how I respond once I come off the steroids all together. Any idea at all how likely I am to have Lymphoma? Has anybody had anything similar to what is happening? Could this just be inflammation of the brain? I'm so scared and it's torture not being given any advice or reassurance

11 Replies

  • Hello Hannah , I well know how worrying it can be when there is uncertainty about ones health. I'm so sorry to hear that this has happened to you and hope that you will soon get good news from your doctors. I have to say that it sounds as though you are in good, careful hands so as you are feeling well and your vision is back to perfect then try to relax and enjoy the good health you have been given. What are good, careful doctor to consider all the aspects of your health, so just trust him/her .

    Wishing you all the very best . Jenni

  • Thank you Jenni :) I'm coming off the steroids in 3 weeks and then I'm having another MRI at the end of August! I've been frantically looking up everything to do with Lymphoma online and I've just been hoping my eyesight remains once I come off the steroids! As long as my eyesight doesn't get bad again and my scans get better then I can stop worrying about it :)

  • Lymphoma and Lymphoedema are two completely different conditions. Maybe you could have a look and see if there is a Health Unlocked forum on Lymphoma?

  • I've had a go at looking but I can't seem to find anything on lymphoma to the brain :/ the radiologist has told me that my survival rate even with chemo is looking to be only 5 years but I don't even know if I definitely have it or not.... it's so stressful not being given any proper information to go off

  • I found some info.on> brain tumours. I hope this may help you find what you are looking for. Lymphoma does start in the lymph glands but is not the same as lymphoedema, which is swelling from the lymph glands not working correctly. I do hope you get the help you need to understand what is happening.

  • That's awesome, thank you Lindalou!! I'll read up about it on the link you've sent :)

  • Hello Hannah, Here is another online forum that may help you:

    Maggie's Community | Home

    You can find support, help, information and most other aspects of a cancer including benefits.

    I wish you all the very best.


  • Sorry, omitted the word diagnosis after cancer.

  • Thank you Wendy, I'll have a look at it now 😊

  • Try googling it explains pretty well.

    Also, over the years I have heard about selinium. Just recently have been hearing about it again. Might be of some help. Just a thought.

  • Thank you Snaomi, I've just read up about selenium! I'll mention it to the doctors when I next see them :)

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