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Nutrient absorption- coffee, grains and alcohol
I have from time to time tried various food combinations - but a few months back tried cutting out coffee grains and alcohol at the same time and felt much better after a week and dropped some weight. I have over the past week picked this up again and with similar immediate results. It has left me
I have from time to time tried various food combinations - but a few months back tried cutting out coffee grains and alcohol at the same time and felt much better after a week and dropped some weight. I have over the past week picked this up again and with similar immediate results. It has left me
Danielj1
in
Thyroid UK
2 years ago
still decompensated after 5 months any hope?
my partner diagnosed with decompensated cirrhosis on 22.12.21. Stopped drinking that day, 5 months later eating healthy high protein low salt, doing everything he has been asked. At the start sodium was dangerously low so he couldn't take water tablets - now his sodium is back within normal levels whilst
my partner diagnosed with decompensated cirrhosis on 22.12.21. Stopped drinking that day, 5 months later eating healthy high protein low salt, doing everything he has been asked. At the start sodium was dangerously low so he couldn't take water tablets - now his sodium is back within normal levels whilst
Rshc
in
British Liver Trust
2 years ago
Baffled
I have pulled back from level 4 cirrhosis with ascites and jaundice as well as two bad bleeds and was doing well. I then developed a pregnant stomach again ( I'm 60) drumlike, tight, uncomfortable so I assumed ascites and resumed spironolactone. No effect. Had a US scan on Monday- no fluid found! Has
I have pulled back from level 4 cirrhosis with ascites and jaundice as well as two bad bleeds and was doing well. I then developed a pregnant stomach again ( I'm 60) drumlike, tight, uncomfortable so I assumed ascites and resumed spironolactone. No effect. Had a US scan on Monday- no fluid found! Has
theoldboiler
in
British Liver Trust
2 years ago
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Stem Cell Transplant-update
Well, I have been below the radar lately but it’s time to update you all. I was diagnosed moth PMF in April 2020 and declined quite quickly. I have CALR with ASXL1 mutation. I went through rapidly increasing dose of Peg INF but moved over to Ruxolitinib when my platelet count dropped. The rux helped
Well, I have been below the radar lately but it’s time to update you all. I was diagnosed moth PMF in April 2020 and declined quite quickly. I have CALR with ASXL1 mutation. I went through rapidly increasing dose of Peg INF but moved over to Ruxolitinib when my platelet count dropped. The rux helped
ConniesDad
in
MPN Voice
2 years ago
PBC diagnosis? AMA 125,1
Hi, I am 55 year old. In 2008 I had a self resolved Hep C, and the virus has never been present since, I had two tests in 2008 and one now, no virus, this takes chronic Hep C off the table. I have my blood tests yearly (except 2019, 2020), everything was normal. In November 2021 my ALT and AST were
Hi, I am 55 year old. In 2008 I had a self resolved Hep C, and the virus has never been present since, I had two tests in 2008 and one now, no virus, this takes chronic Hep C off the table. I have my blood tests yearly (except 2019, 2020), everything was normal. In November 2021 my ALT and AST were
Cat1966
in
PBC Foundation
2 years ago
New blood work advice please
Hello everyone, Hope you are all keeping well. So I was diagnosed with Graves in April of this year after symptoms of high heart rate/palpitations, nervousness and heat intolerance. I was placed onto 20mg Carbimazole and Propanolol. My blood work is in the photos, first bloods were on diagnoses 14/
Hello everyone, Hope you are all keeping well. So I was diagnosed with Graves in April of this year after symptoms of high heart rate/palpitations, nervousness and heat intolerance. I was placed onto 20mg Carbimazole and Propanolol. My blood work is in the photos, first bloods were on diagnoses 14/
Pjd94
in
Thyroid UK
2 years ago
Worried about alcohol damage
Hi, I was diagnosed in 2018 with fatty liver via ultrasound and raised enzymes. At the time I was drinking quite a bit, I did try to cut down a lot but probably could have done alot better. Fast forward to this year and I go to the doctors for stomach pains, I have the usual blood tests and she books
Hi, I was diagnosed in 2018 with fatty liver via ultrasound and raised enzymes. At the time I was drinking quite a bit, I did try to cut down a lot but probably could have done alot better. Fast forward to this year and I go to the doctors for stomach pains, I have the usual blood tests and she books
Hayleypop
in
British Liver Trust
2 years ago
Cirrhotic pbc
Hi all, My mother was diagnosed 30 years ago with Autoimmune Hepatits. She was 22 years on immunosuppressive treatment which she decided to discontinue after a talk with her doctor. Two years ago her liver enzymes were abnormal especially ALP and GGT (272, 332) weak ASMA positive and mildly abnormal
Hi all, My mother was diagnosed 30 years ago with Autoimmune Hepatits. She was 22 years on immunosuppressive treatment which she decided to discontinue after a talk with her doctor. Two years ago her liver enzymes were abnormal especially ALP and GGT (272, 332) weak ASMA positive and mildly abnormal
Shon1234
in
PBC Foundation
2 years ago
Liver cancer metastasis to my lungs incurable
Hello I have had the devastating news that there is no cure for my cancer. I am 31 and haven’t yet achieved anything that I wanted too, I am heartbroken and completely devastated. I no this is a huge long shot but does anyone know of any clinical trials going on in anywhere in the world that maybe be
Hello I have had the devastating news that there is no cure for my cancer. I am 31 and haven’t yet achieved anything that I wanted too, I am heartbroken and completely devastated. I no this is a huge long shot but does anyone know of any clinical trials going on in anywhere in the world that maybe be
Valentina_22
in
Blue Faery Liver Cancer
2 years ago
A bit of good news
Morning. We'll after a few weeks of coming to terms with Stage 4 Fibrosis (compensated) at last a bit of good news as far as my T2 Diabetes is concerned. I have lost a total of 32 lbs in weight and my reading is now 39!! It was 114 when I was initially diagnosed 2 years ago. I am due another FibroScan
Morning. We'll after a few weeks of coming to terms with Stage 4 Fibrosis (compensated) at last a bit of good news as far as my T2 Diabetes is concerned. I have lost a total of 32 lbs in weight and my reading is now 39!! It was 114 when I was initially diagnosed 2 years ago. I am due another FibroScan
Robert1220
in
British Liver Trust
2 years ago
Cancer Health Seeking Black or Latino HCC Patient Story
From Bob Barnett, Editor-in-Chief at Cancer Health -- please contact him directly if you're interested in sharing your story. I'm writing to ask your help in finding a Black or Latino man with liver cancer who we can profile or work with to write his story in an essay. I'd like to highlight some of
From Bob Barnett, Editor-in-Chief at Cancer Health -- please contact him directly if you're interested in sharing your story. I'm writing to ask your help in finding a Black or Latino man with liver cancer who we can profile or work with to write his story in an essay. I'd like to highlight some of
AndreaWilson_Founder
Caregiver
in
Blue Faery Liver Cancer
2 years ago
Transplant assessment
His only option
liver
transplant
, so we have the assment booked for Feb 22/23rd. He doesn't know whether he wants it , whether he is fit enough to have it. He gets very fatigued. Slight HE some days. Don't know really what I'm asking but how is the assessment? For those that have been there.
His only option
liver
transplant
, so we have the assment booked for Feb 22/23rd. He doesn't know whether he wants it , whether he is fit enough to have it. He gets very fatigued. Slight HE some days. Don't know really what I'm asking but how is the assessment? For those that have been there.
Arms-1
in
British Liver Trust
2 years ago
Microneedle skin treatment for kidney transplant patient
Hello... My Husband is kidney transplant patient for 2 years. He has some acnes (maybe it because of methyl) and leave scars on his face. I'm thinking to go to Dermatologist for Microneedle. Is anyone experience the same treatment?.
Hello... My Husband is kidney transplant patient for 2 years. He has some acnes (maybe it because of methyl) and leave scars on his face. I'm thinking to go to Dermatologist for Microneedle. Is anyone experience the same treatment?.
Dheadome
in
Kidney Transplant
2 years ago
MF high risk Mutations
This has been covered in some form before. But I came across this report that summarizes misc info from Cornell in a nice clean manner. See link, it's easy reading. A specific takeaway is with the high risk (HMR) mutations in yellow here they lean toward SCT (stem cell transplant) if possible rather
This has been covered in some form before. But I came across this report that summarizes misc info from Cornell in a nice clean manner. See link, it's easy reading. A specific takeaway is with the high risk (HMR) mutations in yellow here they lean toward SCT (stem cell transplant) if possible rather
EPguy
in
MPN Voice
2 years ago
LDH Lactate Dehydrogenase Off The Charts - Why?
I completed my 12 months Obinutuzumab/Venclexta treatment regimen March 1st. I go tomorrow (Friday, May 27, 2022) for my first doctor visit since ending treatment. I feel great. No problems that I know of....BUT. Yesterday I went to the lab to have blood drawn and tests run in preparation of my
I completed my 12 months Obinutuzumab/Venclexta treatment regimen March 1st. I go tomorrow (Friday, May 27, 2022) for my first doctor visit since ending treatment. I feel great. No problems that I know of....BUT. Yesterday I went to the lab to have blood drawn and tests run in preparation of my
DanBro1
in
CLL Support
2 years ago
Fibroscan results
I wanted to share my recent scan results to spur on anyone with severe fibrosis/early cirrhosis. From a diagnosis of NAFLD F3-4 in November 2020 following an MRi showing bridging fibrosis and fibroscan score of 11.6 kpa, my fibroscan score yesterday was 5.6kpa F0-F1. After my first ultrasound scan
I wanted to share my recent scan results to spur on anyone with severe fibrosis/early cirrhosis. From a diagnosis of NAFLD F3-4 in November 2020 following an MRi showing bridging fibrosis and fibroscan score of 11.6 kpa, my fibroscan score yesterday was 5.6kpa F0-F1. After my first ultrasound scan
Muse12
in
British Liver Trust
2 years ago
Transplant Lethargy
Hi everyone! This is my first question and I'm so excited I found this forum of other kidney transplant recipients like myself. I was hoping you could help me: I am post transplant 19 years. My biggest issue is energy. Some days are good, some days are okay, and some other days like today, I am very
Hi everyone! This is my first question and I'm so excited I found this forum of other kidney transplant recipients like myself. I was hoping you could help me: I am post transplant 19 years. My biggest issue is energy. Some days are good, some days are okay, and some other days like today, I am very
ksoccer45
in
Kidney Disease
2 years ago
Lost a jewel from my Crown
Last night I got news that the kidney transplant center I was planning on using, if I was approved, has voluntarily put their program on hold pending a review of a couple of their cases by UNOS. I was shocked and it left me feeling a little unsettled. Questions like why are they being reviewed? When
Last night I got news that the kidney transplant center I was planning on using, if I was approved, has voluntarily put their program on hold pending a review of a couple of their cases by UNOS. I was shocked and it left me feeling a little unsettled. Questions like why are they being reviewed? When
HipHopQueen
in
Kidney Dialysis
2 years ago
Jaundice
Just wondering if jaundice can happen slowly over time, as it builds up. Often hear stories of folks suddenly waking up yellow with an acute attack, but my husband is waiting transplant and although his bilirubin remains relatively stable, it is obviously persistently out of range. He had a bout of jaundice
Just wondering if jaundice can happen slowly over time, as it builds up. Often hear stories of folks suddenly waking up yellow with an acute attack, but my husband is waiting transplant and although his bilirubin remains relatively stable, it is obviously persistently out of range. He had a bout of jaundice
Ewife
in
British Liver Trust
2 years ago
Fibroscan request 4 years after transplant
Good Morning My husband had a
liver
transplant
in 2017 due to NASH cirrhosis. He recently had a diagnosis of asbestosis and emphysema. He is a type 2 diabetic and this seems to be causing him problems and is out of control.
Good Morning My husband had a
liver
transplant
in 2017 due to NASH cirrhosis. He recently had a diagnosis of asbestosis and emphysema. He is a type 2 diabetic and this seems to be causing him problems and is out of control.
Kimlescam
in
British Liver Trust
3 years ago
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