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Letters of Hope: docuseries on trials and triumphs of transplantation
Hi everyone, I wanted to bring awareness to a wonderful docuseries featuring Valen Keefer, who is thriving after receiving a kidney
transplant
as a teenager and years later a
liver
transplant
. Maybe someone has already posted but totally worth seeing again. Very inspirational and relatable.
Hi everyone, I wanted to bring awareness to a wonderful docuseries featuring Valen Keefer, who is thriving after receiving a kidney
transplant
as a teenager and years later a
liver
transplant
. Maybe someone has already posted but totally worth seeing again. Very inspirational and relatable.
Kidney2014
in
Kidney Transplant
2 years ago
First timer. Anyone taking Mychophenolate
Hello all. Have been getting the benefit reading all the posts from all you lovely fellow sufferers but have been reluctant for no real reason to posts my own. So here goes. Is anyone taking or any experience of Mychophenolate as a steroid sparing medication for GCA. I've been prescribed it as I need
Hello all. Have been getting the benefit reading all the posts from all you lovely fellow sufferers but have been reluctant for no real reason to posts my own. So here goes. Is anyone taking or any experience of Mychophenolate as a steroid sparing medication for GCA. I've been prescribed it as I need
Puffin3
in
PMRGCAuk
1 year ago
Transplant delays and oxygen referrals
First things first, huge apologies for not getting back to those that left a comment on my last post which was now more than 2 months ago. It's safe to say that a lot has happened since then so hold on to your hats! After getting over the disappointment of a third transplant call not working out and
First things first, huge apologies for not getting back to those that left a comment on my last post which was now more than 2 months ago. It's safe to say that a lot has happened since then so hold on to your hats! After getting over the disappointment of a third transplant call not working out and
dodgylungrunner
British Lung Foundation
in
Lung Conditions Community Forum
1 year ago
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Ambroxol: Experimental treatment for PD
Does anyone know anything about the clinical trials going on in the UK with Ambroxol as a treatment for PD (a repurposed cough medicine)? The preliminary results look good. I understand that results have been released but I can't find It. Please reply if you have info. Thanks
Does anyone know anything about the clinical trials going on in the UK with Ambroxol as a treatment for PD (a repurposed cough medicine)? The preliminary results look good. I understand that results have been released but I can't find It. Please reply if you have info. Thanks
Badmouth
in
Cure Parkinson's
1 year ago
thank you
I would like to thank all of you for your comments and replying to my post, it is such a reassurance to chat with others and their experiences , I had only 1 tumour measuring 3 and a half centimetres , which since the 1 TACE treatment has shrunk on each occasion I have had the 2 scans , I also went
I would like to thank all of you for your comments and replying to my post, it is such a reassurance to chat with others and their experiences , I had only 1 tumour measuring 3 and a half centimetres , which since the 1 TACE treatment has shrunk on each occasion I have had the 2 scans , I also went
Willow1950
in
British Liver Trust
1 year ago
Abnormal liver results
Hi I’ve had raised ALT, AST and GGT for circa 15 years now. My ALT has been up and down between 55 and 90, the AST around the mid 40s and the GGT between 90 and 200. I am 56, overweight, but with a muscly physique due to several years of resistant training. I have drank alcohol all my life and feel
Hi I’ve had raised ALT, AST and GGT for circa 15 years now. My ALT has been up and down between 55 and 90, the AST around the mid 40s and the GGT between 90 and 200. I am 56, overweight, but with a muscly physique due to several years of resistant training. I have drank alcohol all my life and feel
Clown12
in
British Liver Trust
1 year ago
liver levels
hi everybody I was just wondering if anyone else has high levels other then the alp? I’ve just had my bloods done my levels r, AST 77, ALP 512, BIL 13, GGT 248 I’ve been on urso for 1 year now and theses level r worring me, don’t no if anyone else has had these kind of numbers many thanks Lena
hi everybody I was just wondering if anyone else has high levels other then the alp? I’ve just had my bloods done my levels r, AST 77, ALP 512, BIL 13, GGT 248 I’ve been on urso for 1 year now and theses level r worring me, don’t no if anyone else has had these kind of numbers many thanks Lena
Lena2011
in
PBC Foundation
1 year ago
TIPS Procedure
I had a TIPS procedure done three weeks ago after ruptured varacies during a banding session. I was just wondering what others experience has been with TIPS. “Transjugular intrahepatic portosystemic shunt (TIPS) is a procedure that involves inserting a stent (tube) to connect the portal veins to adjacent
I had a TIPS procedure done three weeks ago after ruptured varacies during a banding session. I was just wondering what others experience has been with TIPS. “Transjugular intrahepatic portosystemic shunt (TIPS) is a procedure that involves inserting a stent (tube) to connect the portal veins to adjacent
BearWood2
in
British Liver Trust
1 year ago
Follow up Endoscopy for Cirrhosis
My husband has his first follow up endoscopy next week after having Decompensated Cirrhosis almost 2 years ago (was meant to be sooner but had to chase up). He had 2 varices which they put bands on initially (one burst after food poisoning, they were surprised they didn’t find more). He is really anxious
My husband has his first follow up endoscopy next week after having Decompensated Cirrhosis almost 2 years ago (was meant to be sooner but had to chase up). He had 2 varices which they put bands on initially (one burst after food poisoning, they were surprised they didn’t find more). He is really anxious
Squirrel77
in
British Liver Trust
1 year ago
Update on my Cirrhosis
Good morning all. Just a quick update on my cirrhosis diagnosis caused by alcohol, smoking and obesity. I'm 18 months Alcohol and Cigarettes free now and lost nearly 3 stone through stopping drinking alcohol, smoking, eating healthy and getting plenty of exercise. I feel a lot healthier now than I have
Good morning all. Just a quick update on my cirrhosis diagnosis caused by alcohol, smoking and obesity. I'm 18 months Alcohol and Cigarettes free now and lost nearly 3 stone through stopping drinking alcohol, smoking, eating healthy and getting plenty of exercise. I feel a lot healthier now than I have
Nip1
in
British Liver Trust
1 year ago
What is the Kpa score on a Fibroscan that indicates cirrhosis?
I recently had a Fibroscan and had a score of 9 which has freaked me out a bit, so I’ve tried to cut back on drinking and eat healthily. I’ve seen my GP for a follow up and he didn’t seem too concerned, I thought I was close to cirrhosis so am pretty scared, as I thought the Kpa for cirrhosis was 10
I recently had a Fibroscan and had a score of 9 which has freaked me out a bit, so I’ve tried to cut back on drinking and eat healthily. I’ve seen my GP for a follow up and he didn’t seem too concerned, I thought I was close to cirrhosis so am pretty scared, as I thought the Kpa for cirrhosis was 10
Hogeyzz
in
British Liver Trust
1 year ago
Supplements for arthritis and rivaoxaban
Hi all My husband has paroxysmal AF and a pacemaker takes digoxin and Rivaoxaban. He has slight arthritis in both knees(too much playing hockey in his younger days!) and not bad enough to take painkillers all the time. Bothers him the most after sitting for a while and then moving again. Before his
Hi all My husband has paroxysmal AF and a pacemaker takes digoxin and Rivaoxaban. He has slight arthritis in both knees(too much playing hockey in his younger days!) and not bad enough to take painkillers all the time. Bothers him the most after sitting for a while and then moving again. Before his
Janau
in
Atrial Fibrillation Support
1 year ago
Official Statistics Liver disease profiles, July 2023 update - published 4 July 2023
For those of you who may be interested, the latest liver disease profiles for England were released this morning at 9:30 am, by the Office for Health Improvement & Disparities. It will come as no surprise to find that liver disease has increased exponentially. These latest set of figures incorporate
For those of you who may be interested, the latest liver disease profiles for England were released this morning at 9:30 am, by the Office for Health Improvement & Disparities. It will come as no surprise to find that liver disease has increased exponentially. These latest set of figures incorporate
Richard-Allen
in
British Liver Trust
1 year ago
Mental health and cirrhosis
Me and my partner have together for a year now. Started as friends, knew from the word go,he had cirrhosis. But it didn't change anything, still wanted to form a relationship with him. He had a call from a liver nurse today. She was very blunt and matter of fact. She triggered him again. She talked about
Me and my partner have together for a year now. Started as friends, knew from the word go,he had cirrhosis. But it didn't change anything, still wanted to form a relationship with him. He had a call from a liver nurse today. She was very blunt and matter of fact. She triggered him again. She talked about
lifebegins53
in
British Liver Trust
1 year ago
cirrhosis or not??
I was asked to take part in a Fatty Liver clinical research study and had to go through a number of pre tests to establish I was suitable for the study. After many blood tests/fibro scans etc I had a Liver Biopsy. Unfortunately, this showed I had Cirrhosis of the Liver and I was unable to go forward
I was asked to take part in a Fatty Liver clinical research study and had to go through a number of pre tests to establish I was suitable for the study. After many blood tests/fibro scans etc I had a Liver Biopsy. Unfortunately, this showed I had Cirrhosis of the Liver and I was unable to go forward
Plecos
in
British Liver Trust
1 year ago
NorthLad
Recently every night my hands become incredibly itchy to the point of distraction. I have liver cirrhosis, is this normal? Many thanks
Recently every night my hands become incredibly itchy to the point of distraction. I have liver cirrhosis, is this normal? Many thanks
NorthLad
in
British Liver Trust
1 year ago
Private health with PBC
Hi there - I have a very specific question related to anyone who has PBC, has private health insurance and may have developed a new diagnosis later down the line eg. Liver cancer. How was your experience with private health dealing with the cancer and PBC? Did it mean treatment for that cancer was
Hi there - I have a very specific question related to anyone who has PBC, has private health insurance and may have developed a new diagnosis later down the line eg. Liver cancer. How was your experience with private health dealing with the cancer and PBC? Did it mean treatment for that cancer was
FarahS
in
PBC Foundation
1 year ago
weird place for a MS hug
Hello MS family, I pray that all are doing as well as they could. Its spring time. I know hot weather does not do the body good. In my case winter nor summer does my body good because I am affected by both hot and cold. Well my weird question is does anyone have their MS hugs in other places other
Hello MS family, I pray that all are doing as well as they could. Its spring time. I know hot weather does not do the body good. In my case winter nor summer does my body good because I am affected by both hot and cold. Well my weird question is does anyone have their MS hugs in other places other
LissaH
in
My MSAA Community
1 year ago
Fine blood tests and ultrasound elastography after heavy alcohol abuse - am I safe then?
I suffered alcohol abuse for 3 years, and now I am a light drinker. I had normal blood tests, ultrasound and elastography 1.5 years ago. Am I safe as long as I drink in moderation (0-2 beers a week), or should I check my liver with elastography again? I assumed that I was safe since my results were
I suffered alcohol abuse for 3 years, and now I am a light drinker. I had normal blood tests, ultrasound and elastography 1.5 years ago. Am I safe as long as I drink in moderation (0-2 beers a week), or should I check my liver with elastography again? I assumed that I was safe since my results were
Thomas4213
in
British Liver Trust
1 year ago
Fibrocscan results
Hi all. Thought I’d give an update after my previous few posts. Fibroscan results were good, 4.9 KPA - which I’m amazed at after my drinking history. Was told by the specialist to ignore my slightly elevated AST and to not bother keep testing it. Most likely muscle damage from the very physical job
Hi all. Thought I’d give an update after my previous few posts. Fibroscan results were good, 4.9 KPA - which I’m amazed at after my drinking history. Was told by the specialist to ignore my slightly elevated AST and to not bother keep testing it. Most likely muscle damage from the very physical job
Nixxysarge1
in
British Liver Trust
1 year ago
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