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Some 'tips' for new/already diagnosed members
If at all possible, see a knowledgable hepatologist Only use trusted and reputable sources for information Don’t google unless the article is current and from a reputable source such as The American Liver Foundation, Canadian PBC Society,The PBC Foundation, LivingWithPBC, Cleveland and Mayo Clinics
If at all possible, see a knowledgable hepatologist Only use trusted and reputable sources for information Don’t google unless the article is current and from a reputable source such as The American Liver Foundation, Canadian PBC Society,The PBC Foundation, LivingWithPBC, Cleveland and Mayo Clinics
DonnaBoll
Administrator
in
PBC Foundation
17 days ago
Pain After Paracentesis
My partner had his ascites drained last week. He has had 2 previous drains but this time he has experienced a lot of pain afterwards. It’s sometimes quite acute - and gets worse when he eats. Then he feels 100% better - only for the pain to start again. Has anyone else had this experience? Any advice
My partner had his ascites drained last week. He has had 2 previous drains but this time he has experienced a lot of pain afterwards. It’s sometimes quite acute - and gets worse when he eats. Then he feels 100% better - only for the pain to start again. Has anyone else had this experience? Any advice
Ladypinkdoor
in
British Liver Trust
18 days ago
Amino acid urine test finds taurine “wasting”, elevated beta alanine and anserine - anyone else?
hi. Input much appreciated on a mystery . First background: I have had elevated ALT, AST, and GGT for decades along with poor health and some little recognized chronic conditions. I would like to know if anyone else with liver disease has or has heard of the following odd metabolic derangement. I
hi. Input much appreciated on a mystery . First background: I have had elevated ALT, AST, and GGT for decades along with poor health and some little recognized chronic conditions. I would like to know if anyone else with liver disease has or has heard of the following odd metabolic derangement. I
SkinNBones
in
British Liver Trust
18 days ago
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Using Travel Insurance
Has anyone here ever needed to use their Emergency Travel Medical insurance for a hospital stay related to their cirrhosis?Hubby wants to travel but he doesn’t go more than 6 months without ending up in hospital. Just spent 10 days due to sepsis. The week before he was 100% normal. I also worry about
Has anyone here ever needed to use their Emergency Travel Medical insurance for a hospital stay related to their cirrhosis?Hubby wants to travel but he doesn’t go more than 6 months without ending up in hospital. Just spent 10 days due to sepsis. The week before he was 100% normal. I also worry about
MississaugaLiver
in
British Liver Trust
19 days ago
Liver cancer
finally got to talk to a very knowledgeable liver specialist having been trying to get some answers for months. He understood why I wanted to know and given some idea how long I can expect too live. He went into a lot of detail fully explaining all the scenarios, which is exactly what my wife and I wanted
finally got to talk to a very knowledgeable liver specialist having been trying to get some answers for months. He understood why I wanted to know and given some idea how long I can expect too live. He went into a lot of detail fully explaining all the scenarios, which is exactly what my wife and I wanted
oap74
in
British Liver Trust
20 days ago
Yet another question about cirrhosis.
I'm so sorry to bother everyone again. I promise this will be my last post for quite some time [hopefully]. I'm taking some advice from a couple of lovely members from this forum who have advised me to try and not worry so much over every detail of my condition, and live each day to its fullest. Just
I'm so sorry to bother everyone again. I promise this will be my last post for quite some time [hopefully]. I'm taking some advice from a couple of lovely members from this forum who have advised me to try and not worry so much over every detail of my condition, and live each day to its fullest. Just
puddy68
in
British Liver Trust
21 days ago
Questions about Cirrhosis Prognosis
Hi Everyone. I have yet another question[s] [I'm sorry!] I just read a post from 6 years ago that gave me a bit of a fright, and I'm wondering if anyone has any thoughts or advice on this? The post stated that cirrhosis patients can do "remarkably well provided they can keep clean, & early stage cirrhosis
Hi Everyone. I have yet another question[s] [I'm sorry!] I just read a post from 6 years ago that gave me a bit of a fright, and I'm wondering if anyone has any thoughts or advice on this? The post stated that cirrhosis patients can do "remarkably well provided they can keep clean, & early stage cirrhosis
puddy68
in
British Liver Trust
21 days ago
Liver Biopsy Soon.
Hey everyone, I have a Liver Biopsy next week, as my blood tests have shown that my body is attacking my liver as it thinks it's "Foreign". I'm going under general for it. Does anyone know why my body is attacking my liver? Thanks,
Hey everyone, I have a Liver Biopsy next week, as my blood tests have shown that my body is attacking my liver as it thinks it's "Foreign". I'm going under general for it. Does anyone know why my body is attacking my liver? Thanks,
Lmm4
in
British Liver Trust
22 days ago
potential DILI - advice?
hi everyone, I’m 29F, at the end of April I was hospitalised for e-coli, given anti biotics and PPI’s through my IV line for 3 days, then continued on oral anti biotics with PPI’s for 5 days My symptoms continued and my ALT/AST are at 952/370 and continuing to rise still today, I feel awful, nauseous
hi everyone, I’m 29F, at the end of April I was hospitalised for e-coli, given anti biotics and PPI’s through my IV line for 3 days, then continued on oral anti biotics with PPI’s for 5 days My symptoms continued and my ALT/AST are at 952/370 and continuing to rise still today, I feel awful, nauseous
eljd
in
British Liver Trust
22 days ago
Just a few more questions about Cirrhosis
Hello, it's me [again]. Only one more day until I go for my endoscopy as they picked up varices on my cat scan. May [or most definitely will, according to my gastroenterologist] have to band them. This whole procedure has got me thinking again, and I inevitably then end up with more questions [sorry]
Hello, it's me [again]. Only one more day until I go for my endoscopy as they picked up varices on my cat scan. May [or most definitely will, according to my gastroenterologist] have to band them. This whole procedure has got me thinking again, and I inevitably then end up with more questions [sorry]
puddy68
in
British Liver Trust
22 days ago
Exercise
Hi all, I'm due for repeat liver enzyme tests next week for slightly elevated GGT and ALT, I've stopped drinking since Feb ( apart from a beer last weekend) and I've started weight training at the gym. I'm starting to lose weight but I've read weight training can cause elevated liver enzymes and to not
Hi all, I'm due for repeat liver enzyme tests next week for slightly elevated GGT and ALT, I've stopped drinking since Feb ( apart from a beer last weekend) and I've started weight training at the gym. I'm starting to lose weight but I've read weight training can cause elevated liver enzymes and to not
DiamondSparkles
in
British Liver Trust
22 days ago
Tuesday's 'Tip'
I've decided to incorporate some of Dr. Jones's wisdom into our Tuesday's 'Tips' These are all from his book [u][i]The Definitive Guide for Patients Who Have Primary Biliary Cholangitis.[/i][/u] This an amazing source of information on PBC from a world leading expert. I strongly encourage everyone
I've decided to incorporate some of Dr. Jones's wisdom into our Tuesday's 'Tips' These are all from his book [u][i]The Definitive Guide for Patients Who Have Primary Biliary Cholangitis.[/i][/u] This an amazing source of information on PBC from a world leading expert. I strongly encourage everyone
DonnaBoll
Administrator
in
PBC Foundation
23 days ago
itching
l got decompensated
liver
waiting on
transplant
, does any one a rash on them its so itchy on my stomach legs arms my legs swelled up and cant stop itching them what cream should i try if any one has the same thing
l got decompensated
liver
waiting on
transplant
, does any one a rash on them its so itchy on my stomach legs arms my legs swelled up and cant stop itching them what cream should i try if any one has the same thing
lonmallin50
in
British Liver Trust
1 year ago
Do you have cirrhosis (or care for someone who does) and want to help prioritise what research is done in the UK?
The British Liver Trust is working with UK CLIF Network and supported by the James Lind Alliance on a project called the Liver Cirrhosis James Lind Alliance Priority Setting Partnership (JLA PSP). The group includes patients, carers, and health professionals with expertise in liver cirrhosis.
Why
The British Liver Trust is working with UK CLIF Network and supported by the James Lind Alliance on a project called the Liver Cirrhosis James Lind Alliance Priority Setting Partnership (JLA PSP). The group includes patients, carers, and health professionals with expertise in liver cirrhosis.
Why
BritishLiverTrust1
Partner
in
British Liver Trust
24 days ago
My PBC is getting worse. ascites causing me SOB, confusion, falls. skin is so itchy despite phototherapy. My symptoms are of late stages.
Can anyone help to elevate some symptoms. It's so effecting my life.
Can anyone help to elevate some symptoms. It's so effecting my life.
Oakleypup
in
British Liver Trust
24 days ago
Uncertainty of living with Cirrhosis
Hi Everyone. I'm so sorry to bother you all again, but I've had a very down day. I just thought I'd post a reply I sent to one of the lovely members of this group, with the hope that maybe someone could share with me and the rest of this lovely group how they cope with this condition. I wrote to him
Hi Everyone. I'm so sorry to bother you all again, but I've had a very down day. I just thought I'd post a reply I sent to one of the lovely members of this group, with the hope that maybe someone could share with me and the rest of this lovely group how they cope with this condition. I wrote to him
puddy68
in
British Liver Trust
24 days ago
AST to ALT ratio has become greater than 1 after decades of elevated levels
My ALT and AST have been elevated for decades. For second time in a row now, my AST has becomevhigher than ALT ; they are currently in 60ish range. A very nice article i read on the DiRitiis ratio from around 2013 says my new current ratio of 1.1 suggests fibrosis and ir bad prognosis to cirrhosis
My ALT and AST have been elevated for decades. For second time in a row now, my AST has becomevhigher than ALT ; they are currently in 60ish range. A very nice article i read on the DiRitiis ratio from around 2013 says my new current ratio of 1.1 suggests fibrosis and ir bad prognosis to cirrhosis
SkinNBones
in
British Liver Trust
26 days ago
Cirrhosis and very scared - please help!
Hi. I'm so glad I stumbled on this site and I'm hoping that someone could be kind enough to reach out to me? I'm so very, very scared, and it's all my own fault. I have suffered from an anxiety disorder for 15 - 20 years and used wine to cope....and lots of it. I was diagnosed with compensated cirrhosis
Hi. I'm so glad I stumbled on this site and I'm hoping that someone could be kind enough to reach out to me? I'm so very, very scared, and it's all my own fault. I have suffered from an anxiety disorder for 15 - 20 years and used wine to cope....and lots of it. I was diagnosed with compensated cirrhosis
puddy68
in
Liver4Life
26 days ago
New fatty liver diagnosis
Hi All, today I had a fibro scan which revealed that my liver has no scarring with a score of 3.9kpa which was good news, however, the cap score was 307 which was worrying. I gave up alcohol 6 months ago following an attack of acute pancreatitis and being hospitalised for 4 days, this event was enough
Hi All, today I had a fibro scan which revealed that my liver has no scarring with a score of 3.9kpa which was good news, however, the cap score was 307 which was worrying. I gave up alcohol 6 months ago following an attack of acute pancreatitis and being hospitalised for 4 days, this event was enough
WalterFred
in
British Liver Trust
27 days ago
Really good news
I just wanted to share my story in case it helps others. In December last year I had an ultrasound scan and the results were probable cirrhosis, portal vein hypertension and varices. There were also "suspicious lesions". Fast Forward to a biopsy I had last month (following over six months of abstinence
I just wanted to share my story in case it helps others. In December last year I had an ultrasound scan and the results were probable cirrhosis, portal vein hypertension and varices. There were also "suspicious lesions". Fast Forward to a biopsy I had last month (following over six months of abstinence
Ruthless247
in
British Liver Trust
28 days ago
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