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What is BIG DATA? Demystifying the use of patient health data in research - FREE online Event
Date and time: Tue, 5 Dec 2023 6pm-7.30pm
How does clinical research use our data? Is it important? Is it necessary? And how safe is it? We'll be exploring these questions - and many more - in a discussion about a new research study which is developing ways to understand fibrosis. Fibrosis
Date and time: Tue, 5 Dec 2023 6pm-7.30pm
How does clinical research use our data? Is it important? Is it necessary? And how safe is it? We'll be exploring these questions - and many more - in a discussion about a new research study which is developing ways to understand fibrosis. Fibrosis
BritishLiverTrust1
Partner
in
British Liver Trust
7 months ago
Carvedilol and Urso bowl changes
I’ve been on cavedilol medication since May 2023 and Urso since 2022, up until a few weeks ago I’ve suffered a lot of dioreah which started when at the same time when when the Dr prescribed me ferris sulphate for low iron. I know this has a lot of gastric issue so stopped that a week ago. I still have
I’ve been on cavedilol medication since May 2023 and Urso since 2022, up until a few weeks ago I’ve suffered a lot of dioreah which started when at the same time when when the Dr prescribed me ferris sulphate for low iron. I know this has a lot of gastric issue so stopped that a week ago. I still have
Dexter786
in
British Liver Trust
7 months ago
Medical breakthrough
Hi everyone just wanted to share this video about a possible breaththrough about an 8 year old girl. Who after a kidney transplant doesn't have to take an immunosuppressant drugs after reviewing a special type of kidney. https://youtu.be/OWbdArmDJOI?si=tD0l1yNFz20kav3I 🌹
Hi everyone just wanted to share this video about a possible breaththrough about an 8 year old girl. Who after a kidney transplant doesn't have to take an immunosuppressant drugs after reviewing a special type of kidney. https://youtu.be/OWbdArmDJOI?si=tD0l1yNFz20kav3I 🌹
bbeba103
in
Kidney Disease
9 months ago
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varices grade 2
My consultant physician did a surveillance Gastroscopy which showed 2 varices grade 2, as I was taking Carvedilol twice daily he has decided no further action is required. Having had a burst varice in the past which put me in hospital for a week. I am confused to why he’s decided not to band them surely
My consultant physician did a surveillance Gastroscopy which showed 2 varices grade 2, as I was taking Carvedilol twice daily he has decided no further action is required. Having had a burst varice in the past which put me in hospital for a week. I am confused to why he’s decided not to band them surely
oap74
in
British Liver Trust
7 months ago
LAST CALL: In-person Liverpool workshop tomorrow for those living with advanced liver disease (and carers/relatives)
The British Liver Trust are working with UK CLIF, a dynamic new network of clinicians, patients, carers/relatives and researchers coming together over our shared interest to improve research and clinical outcomes for people with chronic liver failure. There is an afternoon workshop in Liverpool tomorrow
The British Liver Trust are working with UK CLIF, a dynamic new network of clinicians, patients, carers/relatives and researchers coming together over our shared interest to improve research and clinical outcomes for people with chronic liver failure. There is an afternoon workshop in Liverpool tomorrow
BritishLiverTrust1
Partner
in
British Liver Trust
7 months ago
Living with alcohol related cirrhosis- I know it varies but whats "normal"?
I was hospitalised with decompensated liver failure in July this year. Diagnosis is cirrhosis,portal hypertension and hypertensive gastropathy. My liver biochemistry was very deranged in July (Bilirubin 400 which explains the jaundice, itching,fatigue and confusion I was experiencing),the ascites and
I was hospitalised with decompensated liver failure in July this year. Diagnosis is cirrhosis,portal hypertension and hypertensive gastropathy. My liver biochemistry was very deranged in July (Bilirubin 400 which explains the jaundice, itching,fatigue and confusion I was experiencing),the ascites and
BoHo73
in
British Liver Trust
7 months ago
GFR levels post transplant
Can anyone tell me what the logic would be if having a
liver
transplant
only to result in stage 3b
liver
disease within 2 yrs. what sense does that make. It’s a genuine question and one that I’m truly shocked asking.
Can anyone tell me what the logic would be if having a
liver
transplant
only to result in stage 3b
liver
disease within 2 yrs. what sense does that make. It’s a genuine question and one that I’m truly shocked asking.
Braveheart65
in
British Liver Trust
1 year ago
Results ?
Hi all you wonderful people , diagnosed with cirrhosis back in April , and ended up back in hospital for the whole of August with a bile duct infection , moving on now to November , bloods taken , no results given , figure wise only that , bloods are stable and improving , feeling 100% better , eating
Hi all you wonderful people , diagnosed with cirrhosis back in April , and ended up back in hospital for the whole of August with a bile duct infection , moving on now to November , bloods taken , no results given , figure wise only that , bloods are stable and improving , feeling 100% better , eating
wp69
in
British Liver Trust
7 months ago
Finally got FibroScan
Some of you may remember I was diagnosed with NASH Cirrhosis on a CT scan a few months ago. I then had a FibroTest which showed F3 fibrosis. After months of waiting I finally had the FibroScan done last week and results are kpa 11.9 which is considered cirrhosis 😞 in NASH patients. I didn’t get a CAP
Some of you may remember I was diagnosed with NASH Cirrhosis on a CT scan a few months ago. I then had a FibroTest which showed F3 fibrosis. After months of waiting I finally had the FibroScan done last week and results are kpa 11.9 which is considered cirrhosis 😞 in NASH patients. I didn’t get a CAP
FlippinOut
in
British Liver Trust
7 months ago
Fibroscan update
Hello. I had a fibroscan at a BLT roadshow 6 months ago which scared me as it was 11.7kpa and cap 218. I'm a 45yo female. I was sent for an ARFI ultrasound after this by my GP, which scored me as being at the lower end of F2 fibrosis ( 1.25m/s) with mild to moderate fatty infiltration. The ultrasound
Hello. I had a fibroscan at a BLT roadshow 6 months ago which scared me as it was 11.7kpa and cap 218. I'm a 45yo female. I was sent for an ARFI ultrasound after this by my GP, which scored me as being at the lower end of F2 fibrosis ( 1.25m/s) with mild to moderate fatty infiltration. The ultrasound
Dontworrydarling
in
British Liver Trust
7 months ago
Posterior subcapsular cataracts surgery
I am 2 years post kidney transplant due to PKD. I went to a routine eye exam yesterday and after a retinal scan was told I need to have cataract surgery, sooner rather than later, as this type of cataract progresses quickly. Anyone have this issue? Any pre/post eye surgery precautions related to
I am 2 years post kidney transplant due to PKD. I went to a routine eye exam yesterday and after a retinal scan was told I need to have cataract surgery, sooner rather than later, as this type of cataract progresses quickly. Anyone have this issue? Any pre/post eye surgery precautions related to
Oceansideup
in
Kidney Transplant
9 months ago
UTI/AF
Since having a kidney transplant I am bothered with UTI's which quickly clears up after taking antibiotics. I also have a PAF episode more or less within a day or two of this. Has anyone else noticed having AF when also having an infection? My potassium and magnesium levels are lower than normal when
Since having a kidney transplant I am bothered with UTI's which quickly clears up after taking antibiotics. I also have a PAF episode more or less within a day or two of this. Has anyone else noticed having AF when also having an infection? My potassium and magnesium levels are lower than normal when
Mismarswe
in
AF Association
9 months ago
Prothrombin time
Is 11.3 seconds prothrombin time normal partial thromboplastin 22.3 seconds are they in normal range
Is 11.3 seconds prothrombin time normal partial thromboplastin 22.3 seconds are they in normal range
Sheliabee
in
British Liver Trust
7 months ago
Body Reform programme
Hi Good morning to you all, if you have followed my posts you will know something of my history. Diagnosed with cirrhosis/ borderline cirrhosis, kpa 10.8. Undiagnosed last march with kpa 8.8. Signed off to my gp for a 3 year re check with ELF test. BMI 36, tried everything, including NHS social prescribing
Hi Good morning to you all, if you have followed my posts you will know something of my history. Diagnosed with cirrhosis/ borderline cirrhosis, kpa 10.8. Undiagnosed last march with kpa 8.8. Signed off to my gp for a 3 year re check with ELF test. BMI 36, tried everything, including NHS social prescribing
Iro1
in
British Liver Trust
7 months ago
Ascites and varices
Hi this is my first time posting My dad is 76 been diagnosed with cirrhosis he has had 5 veins banded as they have bled He has just come out of hospital after 3 weeks with aki and sepsis They don't want to really tell me if he is going to be ok as he can be or if he's end stage as the doc says they
Hi this is my first time posting My dad is 76 been diagnosed with cirrhosis he has had 5 veins banded as they have bled He has just come out of hospital after 3 weeks with aki and sepsis They don't want to really tell me if he is going to be ok as he can be or if he's end stage as the doc says they
IQ1966
in
British Liver Trust
7 months ago
Alcohol home detox
hi everyone my daughter is an alcoholic and has many health issues related to her drinking. She is waiting to do a home detox which is being arranged through turning point. (She doesn’t want to go to a clinic) She was previously given a date for this but was told by the doctor at turning point that
hi everyone my daughter is an alcoholic and has many health issues related to her drinking. She is waiting to do a home detox which is being arranged through turning point. (She doesn’t want to go to a clinic) She was previously given a date for this but was told by the doctor at turning point that
Bellabinx
in
British Liver Trust
7 months ago
Diabetes cirrhosis and HCC
Hi All. I need an honest opinion. i have posted on here a few times regarding my partner. He has compensated Cirrhosis and hcc 2cm tumor and awaitng results of biopsy to establish which treatment he will have. He has now developed diabetes and have read that this can affect mortality greatly. Does
Hi All. I need an honest opinion. i have posted on here a few times regarding my partner. He has compensated Cirrhosis and hcc 2cm tumor and awaitng results of biopsy to establish which treatment he will have. He has now developed diabetes and have read that this can affect mortality greatly. Does
pussycat66
in
British Liver Trust
7 months ago
high alp. Very worried
hello. I posted before but I need to clarify a few points. I had blood test recently which came back Alp 177 and Alt 50. Everything else ok. I do not currently have a diagnosis of liver disease…..well not yet! I am not on any medication. Over the years I have drunk too much white wine but never
hello. I posted before but I need to clarify a few points. I had blood test recently which came back Alp 177 and Alt 50. Everything else ok. I do not currently have a diagnosis of liver disease…..well not yet! I am not on any medication. Over the years I have drunk too much white wine but never
Watersk
in
British Liver Trust
7 months ago
Why so grim....
My question is to the British liver trust. Do you know why the hospital consultants say to you maybe have 3 years to live after a stomach acities drain and decompressed cirrosis. yet many people here are saying they are living a good life. İt's cruel to give that information and then share it with your
My question is to the British liver trust. Do you know why the hospital consultants say to you maybe have 3 years to live after a stomach acities drain and decompressed cirrosis. yet many people here are saying they are living a good life. İt's cruel to give that information and then share it with your
Tp807
in
British Liver Trust
7 months ago
Liver Palms
Hi everyone. I have been diagnosed with fatty liver and have the red "Liver palms" I have been told this is a warning sign for a damaged liver. I have been abstaining for 2 weeks now.Can anyone tell me roughly how long this will last or does it only go away when my liver is back to normal? Thanks in
Hi everyone. I have been diagnosed with fatty liver and have the red "Liver palms" I have been told this is a warning sign for a damaged liver. I have been abstaining for 2 weeks now.Can anyone tell me roughly how long this will last or does it only go away when my liver is back to normal? Thanks in
Betsy5
in
British Liver Trust
7 months ago
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