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Confusing news from oncologist
Hi all, looking for some insight or direction based off of any experiences or similar ones. My dad started chemo in October with a PSA of 126. After 2 rounds of chemo, his PSA rose to 153, we saw some increase in his bone metastasis as according to the scans (posted about this previously). My dad
Hi all, looking for some insight or direction based off of any experiences or similar ones. My dad started chemo in October with a PSA of 126. After 2 rounds of chemo, his PSA rose to 153, we saw some increase in his bone metastasis as according to the scans (posted about this previously). My dad
StayingSTRNG
in
Advanced Prostate Cancer
6 months ago
SBRT #4
Update on yesterday's SBRT #4. The machine that is treating me (Varian Edge) takes two revolutions to administer the fraction. They line you up with lasers and images before, track the fiducials during the rotation (and the machine automatically holds the beam if you and/or your prostate move out of
Update on yesterday's SBRT #4. The machine that is treating me (Varian Edge) takes two revolutions to administer the fraction. They line you up with lasers and images before, track the fiducials during the rotation (and the machine automatically holds the beam if you and/or your prostate move out of
ToolBeltZia
in
Prostate Cancer Network
6 months ago
Polyneuropathy.
I treat my polyneuropathy with B6 and B12. GracePV shared their experience with B6, B12 nd B1. This inspired me to revisit my self treatment of my polyneuropathy. I came across information about Benfotiamine which is similar to Thiamine Hydrochloride and Thiamine Nitrate. There are indications
I treat my polyneuropathy with B6 and B12. GracePV shared their experience with B6, B12 nd B1. This inspired me to revisit my self treatment of my polyneuropathy. I came across information about Benfotiamine which is similar to Thiamine Hydrochloride and Thiamine Nitrate. There are indications
WIZARD6787
in
Pernicious Anaemia Society
2 months ago
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GP disagrees with diagnosis of osteoporosis
I had a Dexa scan 2 weeks ago and the lady who did the scan told me I had osteoporosis and gave me a leaflet about it and an information sheet about Alendronic acid. She said GP would contact me when he got the results to start me on AA. Last week I got a text from GP saying “your bone thickness is
I had a Dexa scan 2 weeks ago and the lady who did the scan told me I had osteoporosis and gave me a leaflet about it and an information sheet about Alendronic acid. She said GP would contact me when he got the results to start me on AA. Last week I got a text from GP saying “your bone thickness is
Mfaepink1973
in
PMRGCAuk
8 months ago
"Gut Dysbiosis in Irritable Bowel Syndrome: A Narrative Review on Correlation with Disease Subtypes and Novel Therapeutic Implications"
Research. Source: https://www.mdpi.com/2076-2607/11/10/2369
Abstract
"Irritable bowel syndrome (IBS) is a prevalent functional gastrointestinal disorder characterized by chronic abdominal pain and altered bowel habits. It can be subclassified in different subtypes according to the main clinical
Research. Source: https://www.mdpi.com/2076-2607/11/10/2369
Abstract
"Irritable bowel syndrome (IBS) is a prevalent functional gastrointestinal disorder characterized by chronic abdominal pain and altered bowel habits. It can be subclassified in different subtypes according to the main clinical
Meleber
in
IBS Network
2 months ago
scabies won´t go away, help
Hello, have anybody scabies won´t go away? I have it for 2 years now and it is horrobil. I try everything (all chemicals / medicine, all natural things with vaseline and sulfur and with all ethereal oils, with enzyme, with borax, CDL, bleech and so on outside , mixed it in all ways. and inside with
Hello, have anybody scabies won´t go away? I have it for 2 years now and it is horrobil. I try everything (all chemicals / medicine, all natural things with vaseline and sulfur and with all ethereal oils, with enzyme, with borax, CDL, bleech and so on outside , mixed it in all ways. and inside with
Massio
in
BASHH
2 months ago
Vitamin D dropped again
Hi everyone I had my Vitamin tested in January and I was deficient. January 2024: Vitamin D deficient (Vitamin D: 27.4 ng/ml (Low) ….(30-100) I decided to sit outside instead of supplement (weather has been very mild) I just got my results for April 2024 and Im worse off… April 2024: Vitamin
Hi everyone I had my Vitamin tested in January and I was deficient. January 2024: Vitamin D deficient (Vitamin D: 27.4 ng/ml (Low) ….(30-100) I decided to sit outside instead of supplement (weather has been very mild) I just got my results for April 2024 and Im worse off… April 2024: Vitamin
Batty1
in
Thyroid UK
2 months ago
Betaine HCL
Good day Friends. I am considering trying Betaine, I have Autoimmune Gastritis. Have been having what I think is gas pain, it can be in left chest, upper right quadrant, right chest area, it moves around. Sometimes sits just before lower chest area. Sometimes its s stabbing pain in chest/abdomen
Good day Friends. I am considering trying Betaine, I have Autoimmune Gastritis. Have been having what I think is gas pain, it can be in left chest, upper right quadrant, right chest area, it moves around. Sometimes sits just before lower chest area. Sometimes its s stabbing pain in chest/abdomen
Canadian77
in
Pernicious Anaemia Society
2 months ago
PA/stomach pain
Hi all, I’m so grateful for all of your support as I’ve started down this road. Got diagnosed with PA/AIG in the fall via an endoscopy. I am on B12 injections. My stomach pain has gotten steadily worse instead of better even though I am on a very restrictive diet. Is there any reason for me to believe
Hi all, I’m so grateful for all of your support as I’ve started down this road. Got diagnosed with PA/AIG in the fall via an endoscopy. I am on B12 injections. My stomach pain has gotten steadily worse instead of better even though I am on a very restrictive diet. Is there any reason for me to believe
Lhood08
in
Pernicious Anaemia Society
2 months ago
B12 deficiency: a hidden trigger of inflammation?
This was posted on the Pernicious Anaemia Society forum - but I thought it might be of interest to the many here who have inflammation. [i]News Release 17-Oct-2023[/i] [i]
B12 deficiency: a hidden trigger of inflammation?
[/i] [i]Peer-Reviewed Publication[/i] [i]Society of Chemical Industry[
This was posted on the Pernicious Anaemia Society forum - but I thought it might be of interest to the many here who have inflammation. [i]News Release 17-Oct-2023[/i] [i]
B12 deficiency: a hidden trigger of inflammation?
[/i] [i]Peer-Reviewed Publication[/i] [i]Society of Chemical Industry[
helvella
Thyroid UK
in
Thyroid UK
2 months ago
Other blood results
I now have more results Serum folate 14.3 (3.1-17.5) Ferritin 138 (13-150) Iron 14 (5-28) B12 280 (200-940) Since they are in the range ‘everything is normal’! The coeliac one was clear so I can now try gluten free for 3 months to see if it makes any changes. But I am still tired, muscle aches
I now have more results Serum folate 14.3 (3.1-17.5) Ferritin 138 (13-150) Iron 14 (5-28) B12 280 (200-940) Since they are in the range ‘everything is normal’! The coeliac one was clear so I can now try gluten free for 3 months to see if it makes any changes. But I am still tired, muscle aches
Purple450
in
Thyroid UK
2 months ago
A plea from your brother
Click here to securely donate in any currency: https://malecare.org/donate Click here to securely donate in any currency:A Plea from Your Brother My prostate cancer diagnosis introduced me to Malecare - with the commanding encouragement of my urologist. My experiences validated the organization's remarkable
Click here to securely donate in any currency: https://malecare.org/donate Click here to securely donate in any currency:A Plea from Your Brother My prostate cancer diagnosis introduced me to Malecare - with the commanding encouragement of my urologist. My experiences validated the organization's remarkable
Darryl
Partner
in
Prostate Cancer Network
6 months ago
A plea from your brother
Click here to securely donate in any currency: https://malecare.org/donate A Plea from Your Brother My prostate cancer diagnosis introduced me to Malecare - with the commanding encouragement of my urologist. My experiences validated the organization's remarkable efforts in supporting men like me. I'm
Click here to securely donate in any currency: https://malecare.org/donate A Plea from Your Brother My prostate cancer diagnosis introduced me to Malecare - with the commanding encouragement of my urologist. My experiences validated the organization's remarkable efforts in supporting men like me. I'm
Darryl
Partner
in
Advanced Prostate Cancer
6 months ago
B12 injections stopped by gp after 5 years treatment on nhs
I was diagnosed with chronic b12 deficiency years ago - my GP started giving me injections every 3 months and my nurse told me that it was for life. I’ve always eaten meat my whole life - so my deficiency was not caused by diet. They have stated that my deficiency is due to malabsorption, but my intrinsic
I was diagnosed with chronic b12 deficiency years ago - my GP started giving me injections every 3 months and my nurse told me that it was for life. I’ve always eaten meat my whole life - so my deficiency was not caused by diet. They have stated that my deficiency is due to malabsorption, but my intrinsic
LaraPA
in
Pernicious Anaemia Society
2 months ago
Blood in Urine
Hi fellow fighters Had blood in my urine the last 10 days. Hoped it was a UTI but a course of antibiotics has failed. I had a bladder neck incision last June to help urinary flow. The urologist saw a suspicious patch and a biopsy confirmed it my prostate cancer has spread to my bladder. I’m hoping
Hi fellow fighters Had blood in my urine the last 10 days. Hoped it was a UTI but a course of antibiotics has failed. I had a bladder neck incision last June to help urinary flow. The urologist saw a suspicious patch and a biopsy confirmed it my prostate cancer has spread to my bladder. I’m hoping
Tonyliv
in
Advanced Prostate Cancer
6 months ago
New Challenge!
Hi, I haven’t been on here for a while as was diagnosed with stage 2 breast cancer following a mammogram in late September. I underwent surgery for a mastectomy with a reconstruction on 15 th December and now starting my recovery! So going to be tricky managing my PMR symptoms as well as deal with this
Hi, I haven’t been on here for a while as was diagnosed with stage 2 breast cancer following a mammogram in late September. I underwent surgery for a mastectomy with a reconstruction on 15 th December and now starting my recovery! So going to be tricky managing my PMR symptoms as well as deal with this
GwenTheHen16
in
PMRGCAuk
6 months ago
Nagalase count
My nagalase count is declining. 1.55 -1.37 - 1.12 today. The Clioquinol +zinc +ivermicetin is still working on the way to zero. PSA is steady at 32 Nagalase is an enzyme that cancer cells produce to protect themselves from the immune system.
My nagalase count is declining. 1.55 -1.37 - 1.12 today. The Clioquinol +zinc +ivermicetin is still working on the way to zero. PSA is steady at 32 Nagalase is an enzyme that cancer cells produce to protect themselves from the immune system.
agnut
in
Fight Prostate Cancer
2 months ago
My SCT journey continues
Hi all, not posted for a while but I am now at day+33 and finally starting to feel a bit normal again. I had very bad mucositis following sct and then problems with fluid retention due to all the IVs, mainly tpn as the ng feeding tube didn't stay in. Anyway looks like I'm going home on Friday so that's
Hi all, not posted for a while but I am now at day+33 and finally starting to feel a bit normal again. I had very bad mucositis following sct and then problems with fluid retention due to all the IVs, mainly tpn as the ng feeding tube didn't stay in. Anyway looks like I'm going home on Friday so that's
Flyingsteamer
in
MPN Voice
2 months ago
TSAT low but Ferritin fine/maybe high
Hi everyone, I do appreciate reading all of your posts and am sorry for how much suffering is connected to RLS. It's very encouraging to read about a number of people finding solutions to their RLS. I am seeing improvement but have some questions that I hope you can help me with: RLS has been a
Hi everyone, I do appreciate reading all of your posts and am sorry for how much suffering is connected to RLS. It's very encouraging to read about a number of people finding solutions to their RLS. I am seeing improvement but have some questions that I hope you can help me with: RLS has been a
b1interest
in
Restless Legs Syndrome
2 months ago
Pain after infusion
Hello I had zoledronic acid infusion on the 2nd of August and around 3 or 4 weeks after I started getting more pain and pain I already had got worse and still have it, I rung ros to ask of it could be the infusion but because it started a few weeks after the infusion they didn't think so but just seems
Hello I had zoledronic acid infusion on the 2nd of August and around 3 or 4 weeks after I started getting more pain and pain I already had got worse and still have it, I rung ros to ask of it could be the infusion but because it started a few weeks after the infusion they didn't think so but just seems
Slotmachine33
in
Bone Health and Osteoporosis UK
8 months ago
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