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super high gastrin level
hi there - I just got diagnosed with pernicious anemia, autoimmune gastritis, and Barrett’s esophagus 3 months ago. My gastrin in sept was 200, in Dec it was 1000, and now in March it is 2500. It’s escalated so quickly and my doctor just ordered a scan for neuroendocrine tumors. I’m freaking out —
hi there - I just got diagnosed with pernicious anemia, autoimmune gastritis, and Barrett’s esophagus 3 months ago. My gastrin in sept was 200, in Dec it was 1000, and now in March it is 2500. It’s escalated so quickly and my doctor just ordered a scan for neuroendocrine tumors. I’m freaking out —
Lhood08
in
Pernicious Anaemia Society
5 months ago
New Malecare AI Assisted PCa Search
For users of the $20 per month ChatGPT account Malecare is the world's first patient advocacy organization to develop and publish GPT's in Open AI's Chat GPT (app) Marketplace! Indeed, we have five apps published! Here they are: Clinical Trial Navigator -- https://chat.openai.com/g/g-rl6cvjdon-clinical-trial-navigator
For users of the $20 per month ChatGPT account Malecare is the world's first patient advocacy organization to develop and publish GPT's in Open AI's Chat GPT (app) Marketplace! Indeed, we have five apps published! Here they are: Clinical Trial Navigator -- https://chat.openai.com/g/g-rl6cvjdon-clinical-trial-navigator
dmt1121
in
Advanced Prostate Cancer
7 months ago
Actinic Keratosis
Good morning from the US of A, Yesterday I received notification from a scalp biopsy I had done last week that the sore on the top of my head is Actinic Keratosis. In researching it I found it is due to ultra violet ray exposure and it is pre cancerous. I mentioned to the Dermatologist that I have been
Good morning from the US of A, Yesterday I received notification from a scalp biopsy I had done last week that the sore on the top of my head is Actinic Keratosis. In researching it I found it is due to ultra violet ray exposure and it is pre cancerous. I mentioned to the Dermatologist that I have been
mbr8076
in
MPN Voice
5 months ago
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nephrectomy
hi I’m just after a bit of advice I had my right kidney removed 4 weeks ago it was removed robotically and took over 7 hours due to the size of a non cancerous tumour. I had 4 small incisions and one large one lower down which is quite big! My tummy is still very swollen and sore. Is this normal? I
hi I’m just after a bit of advice I had my right kidney removed 4 weeks ago it was removed robotically and took over 7 hours due to the size of a non cancerous tumour. I had 4 small incisions and one large one lower down which is quite big! My tummy is still very swollen and sore. Is this normal? I
higham23
in
MPN Voice
7 months ago
Short-term vs Long-Term ADT for High Risk Men
Here's a review of a recent presentation at ASCO 2023 by Artera.ai regarding the use of Artificial Intelligence analysis of biopsy slides to predict which high-risk men do or don't benefit from short-term ADT vs long-term ADT. Their findings are summarized here: [i]"Based on these results, it appears
Here's a review of a recent presentation at ASCO 2023 by Artera.ai regarding the use of Artificial Intelligence analysis of biopsy slides to predict which high-risk men do or don't benefit from short-term ADT vs long-term ADT. Their findings are summarized here: [i]"Based on these results, it appears
janebob99
in
Prostate Cancer Network
7 months ago
Getting tested after taking any supplements...
Hi there, I found this information after worrying that I have lost my mind due to GP responses, on top of all of my very B12 like symptoms, Inc. Neurological. How I felt was gradual at first and more like fatigue and gastic upsets, intermittent mild tingling, over the last few years, but last year my
Hi there, I found this information after worrying that I have lost my mind due to GP responses, on top of all of my very B12 like symptoms, Inc. Neurological. How I felt was gradual at first and more like fatigue and gastic upsets, intermittent mild tingling, over the last few years, but last year my
Suffering_sunny
in
Pernicious Anaemia Society
5 months ago
vitamin deficiencies
I had most of my sigmoid removed because of diverticulitis five years ago. My question is my surgeon said that it should not affect my vitamin or mineral intake because the sigmoid doesn’t involve that. Got on finding that it most certainly does I get a B12 injection because I’m a vegetarian so that
I had most of my sigmoid removed because of diverticulitis five years ago. My question is my surgeon said that it should not affect my vitamin or mineral intake because the sigmoid doesn’t involve that. Got on finding that it most certainly does I get a B12 injection because I’m a vegetarian so that
Gardeningbuff
in
Bowel Disease Support
5 months ago
First blood test after starting Peg 17/12/2023
Hi, Blood test from 28/12/2023 Platelets down to 427 (previous 580, 560, 504). Elevated Potassium 5.4 and ALT 96. I guess Peg has elevated ALT?? My next FU is March 14th. I’m really hoping I don’t have to increase Peg which is currently 45 weekly.
Hi, Blood test from 28/12/2023 Platelets down to 427 (previous 580, 560, 504). Elevated Potassium 5.4 and ALT 96. I guess Peg has elevated ALT?? My next FU is March 14th. I’m really hoping I don’t have to increase Peg which is currently 45 weekly.
Carol0925
in
MPN Voice
7 months ago
Mutations
I am on Orserdu (elacestrant) for a ESR1 mutation and feeling great but my CA27-29 tumor marker numbers continue to rise. Prior to this medication I was on Capecitabine for a PIC3 mutation and prior to that Piqray. Does any one know what meds work to target both mutations simultaneously?
I am on Orserdu (elacestrant) for a ESR1 mutation and feeling great but my CA27-29 tumor marker numbers continue to rise. Prior to this medication I was on Capecitabine for a PIC3 mutation and prior to that Piqray. Does any one know what meds work to target both mutations simultaneously?
Healthplus1
in
SHARE Metastatic Breast Cancer
7 months ago
Ovarian cancer advice
Diagnosed 2 years ago chemo every 3 weeks for 5 months rest good for 18 months iincureablle stage 4 serious had op blockage removed part bowel husband had heart attack passed that very hard still greaving come back on ovary and spleen part bowel had another 4 sessins chemo lost hair again they
Diagnosed 2 years ago chemo every 3 weeks for 5 months rest good for 18 months iincureablle stage 4 serious had op blockage removed part bowel husband had heart attack passed that very hard still greaving come back on ovary and spleen part bowel had another 4 sessins chemo lost hair again they
PaumicB123
in
My Ovacome
7 months ago
new model for bone marrow behavior is a hope for finding bone metastasis remedies!
”What results were found from your investigation? It did mimic the effects that we see in the clinical scenario. It has been exciting. The other nice thing about this model is it doesn't have to only be utilized for bone sarcomas and creates the microenvironment from which a bone sarcoma might arise
”What results were found from your investigation? It did mimic the effects that we see in the clinical scenario. It has been exciting. The other nice thing about this model is it doesn't have to only be utilized for bone sarcomas and creates the microenvironment from which a bone sarcoma might arise
Maxone73
in
Advanced Prostate Cancer
7 months ago
Low B12 levels
it’s not an area I know much about with a B12 level of 433 (187-833) would I qualify for B12 injections?
it’s not an area I know much about with a B12 level of 433 (187-833) would I qualify for B12 injections?
Bollieforme
in
Thyroid UK
5 months ago
Repeat Lutetium/ Pluvicto treatment
Hello all, I am just curious if anyone has experience doing additional lutetium treatments. I did three lutetium treatments from September 2021 to January 2022. My Denver oncologist is concerned about bone marrow toxicity , but he does not have enough experience with this treatment to say for sure.
Hello all, I am just curious if anyone has experience doing additional lutetium treatments. I did three lutetium treatments from September 2021 to January 2022. My Denver oncologist is concerned about bone marrow toxicity , but he does not have enough experience with this treatment to say for sure.
Eugmn
in
Advanced Prostate Cancer
6 months ago
Newly diagnosed Stage 4
hello I’m new here I’m very happy to be there. I read a lot of stories about people with Metastase breast cancer. Thank you so much you give me a lot of hope. Thanks again I’m 33, Diagnosed in 2022 stage 3 DIC, 5/19 axillary lymph node involved, ER+, HER -. I did 5months chemo, double mastectomy,
hello I’m new here I’m very happy to be there. I read a lot of stories about people with Metastase breast cancer. Thank you so much you give me a lot of hope. Thanks again I’m 33, Diagnosed in 2022 stage 3 DIC, 5/19 axillary lymph node involved, ER+, HER -. I did 5months chemo, double mastectomy,
life2990
in
SHARE Metastatic Breast Cancer
7 months ago
still confused about my iron results
I’ve now redone my iron panel with medichecks and have similar results to last time. I can’t work out why my ferritin continues to drop. And what I can do about it as I know I need higher ferritin levels for optimum thyroid hormone function. …………………………… Ferritin……….Iron……….. Trans. Sat………..TIBC……….
I’ve now redone my iron panel with medichecks and have similar results to last time. I can’t work out why my ferritin continues to drop. And what I can do about it as I know I need higher ferritin levels for optimum thyroid hormone function. …………………………… Ferritin……….Iron……….. Trans. Sat………..TIBC……….
Mazes
in
Thyroid UK
5 months ago
Exciting Announcement
Malecare is the world's first patient advocacy organization to develop and publish GPT's in Open AI's Chat GPT (app) Marketplace! Indeed, we have five apps published! Here they are: Clinical Trial Navigator -- https://chat.openai.com/g/g-rl6cvjdon-clinical-trial-navigator Cancer Copilot -- https
Malecare is the world's first patient advocacy organization to develop and publish GPT's in Open AI's Chat GPT (app) Marketplace! Indeed, we have five apps published! Here they are: Clinical Trial Navigator -- https://chat.openai.com/g/g-rl6cvjdon-clinical-trial-navigator Cancer Copilot -- https
Darryl
Partner
in
Prostate Cancer Network
7 months ago
Exciting Announcement
Malecare is the world's first patient advocacy organization to develop and publish GPT's in Open AI's Chat GPT (app) Marketplace! Indeed, we have five apps published! Here they are: Clinical Trial Navigator -- https://chat.openai.com/g/g-rl6cvjdon-clinical-trial-navigator Cancer Copilot -- https
Malecare is the world's first patient advocacy organization to develop and publish GPT's in Open AI's Chat GPT (app) Marketplace! Indeed, we have five apps published! Here they are: Clinical Trial Navigator -- https://chat.openai.com/g/g-rl6cvjdon-clinical-trial-navigator Cancer Copilot -- https
Darryl
Partner
in
Advanced Prostate Cancer
7 months ago
which steroids and what dosage.
Don’t know if the steroid Dexamethosone would be appropriate for brain cancer but your doctor should know. It is given to me every 21 days at Docetaxel chemo infusion for PCa and absolutely eliminates pains. Can last for 12-18 hours. Ask your doc about it. Mike Seattle
Don’t know if the steroid Dexamethosone would be appropriate for brain cancer but your doctor should know. It is given to me every 21 days at Docetaxel chemo infusion for PCa and absolutely eliminates pains. Can last for 12-18 hours. Ask your doc about it. Mike Seattle
Leader4077
in
Advanced Prostate Cancer
7 months ago
Confusing CT scan results
My PSA has been rising slowly after prostate removal two years ago. Was at zero months after and slowly rising at .02,.03. .05, .06. .09 and then .13. My doctor ordered CT and bone scans. Bone scan came back clear and then CT scan showed a few things in bones and a nonspecific mass outside the liver
My PSA has been rising slowly after prostate removal two years ago. Was at zero months after and slowly rising at .02,.03. .05, .06. .09 and then .13. My doctor ordered CT and bone scans. Bone scan came back clear and then CT scan showed a few things in bones and a nonspecific mass outside the liver
Jens99
in
Advanced Prostate Cancer
7 months ago
T4 and integrin receptors
I've come across integrin receptors mentioned in a few papers recently where t4 seems to have some activity (generally its assumed t4 is not an active hormone), so was interested to read the following paper. This is yet another good reason for t3/t4 combination treatment. "Preliminary clinical evidence
I've come across integrin receptors mentioned in a few papers recently where t4 seems to have some activity (generally its assumed t4 is not an active hormone), so was interested to read the following paper. This is yet another good reason for t3/t4 combination treatment. "Preliminary clinical evidence
Forestgarden
in
Thyroid UK
7 months ago
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