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Age and timing for Triplet therapy?
I am age 81, active and neither fit nor frail, radiated in 2021 without hormone therapy. Radiated again in 2023 for a pelvic node. In December the PSA rose to 3.78 and a PSMA-PET scan showed cancer growing in prostate, shrinking in pelvic node, and spread to one abdominal node. I started ADT with
I am age 81, active and neither fit nor frail, radiated in 2021 without hormone therapy. Radiated again in 2023 for a pelvic node. In December the PSA rose to 3.78 and a PSMA-PET scan showed cancer growing in prostate, shrinking in pelvic node, and spread to one abdominal node. I started ADT with
vintage42
in
Advanced Prostate Cancer
6 months ago
diarrhoea and constipation
I’ve had ibs since in my thirties now 69.I had a flare up Friday ,terrible pains but had job to go to loo.The next day my stools were lose,and I began to feel better yesterday had a job to go again.even though I fell like I want to go today,can’t .I go most days .Pains have come back,which is relieved
I’ve had ibs since in my thirties now 69.I had a flare up Friday ,terrible pains but had job to go to loo.The next day my stools were lose,and I began to feel better yesterday had a job to go again.even though I fell like I want to go today,can’t .I go most days .Pains have come back,which is relieved
mousey1
in
IBS Network
3 months ago
Iron Panel Results
I've just received the results for my blood test today. TSH: 3.46 T4: 11.5 (7.86 - 14.41) Serum Iron: 14.7 umol/L (8.8-27) Serum Transferrin: 2.9 g/L (2.2 -4) Percentage Iron Saturation: 22% Serum TIBC: 65 umol/L (45 - 70) RBC: 4.89 (3.8 - 5.8) From my research online, it seems my iron saturation
I've just received the results for my blood test today. TSH: 3.46 T4: 11.5 (7.86 - 14.41) Serum Iron: 14.7 umol/L (8.8-27) Serum Transferrin: 2.9 g/L (2.2 -4) Percentage Iron Saturation: 22% Serum TIBC: 65 umol/L (45 - 70) RBC: 4.89 (3.8 - 5.8) From my research online, it seems my iron saturation
katyy94x
in
Thyroid UK
3 months ago
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Active B12 test results
Hi I had been unwell for sometime and wasn't sure what it was. I was very anxious and had terrible tummy trouble & hideous indegestion. Dr order Bloods and they all came back normal except Magnesium and potassium and I think Folate? for which i took a course of meds. The Potassium and Folate seemed
Hi I had been unwell for sometime and wasn't sure what it was. I was very anxious and had terrible tummy trouble & hideous indegestion. Dr order Bloods and they all came back normal except Magnesium and potassium and I think Folate? for which i took a course of meds. The Potassium and Folate seemed
Doeyditdot
in
Pernicious Anaemia Society
3 months ago
Just need some advice on self injecting.
Just need to come up with a safe plan for what to do about my B12 injections. After several years of symptoms like chronic fatigue, brain fog, dizziness, pins and needles, sore lips, dry skin, breathlessness etc I was finally diagnosed with a B12 deficiency in 2011. My B12 level was 154. By this
Just need to come up with a safe plan for what to do about my B12 injections. After several years of symptoms like chronic fatigue, brain fog, dizziness, pins and needles, sore lips, dry skin, breathlessness etc I was finally diagnosed with a B12 deficiency in 2011. My B12 level was 154. By this
Hayley31
in
Pernicious Anaemia Society
3 months ago
Lactose free Levo
Good morning,I'm wondering if anyone has experience of switching to lactose free Levothyroxene and it helping with fatigue specifically? I have always been somewhat dairy/cows milk intolerant. I get all the usual symptoms but over the past few years have discovered what I can manage (butter, hard cheese
Good morning,I'm wondering if anyone has experience of switching to lactose free Levothyroxene and it helping with fatigue specifically? I have always been somewhat dairy/cows milk intolerant. I get all the usual symptoms but over the past few years have discovered what I can manage (butter, hard cheese
Dahliasanddaisies
in
Thyroid UK
3 months ago
Mr Geoff Lloyd
Diagnosed in 2010 with advanced PC. Prostatectomy in 2011 followed by the "all clear". PSA refused to disappear and so RT followed. PSA still present and PC nodules found in my lung in 2021. I then had a 6 session course of chemotherapy and have been on Abiaterone and Demoxosone drugs ever since.Nodules
Diagnosed in 2010 with advanced PC. Prostatectomy in 2011 followed by the "all clear". PSA refused to disappear and so RT followed. PSA still present and PC nodules found in my lung in 2021. I then had a 6 session course of chemotherapy and have been on Abiaterone and Demoxosone drugs ever since.Nodules
Churchman123
in
Advanced Prostate Cancer
6 months ago
My decision on Radiotherapy -v- Prostatectomy
I hope this story might be useful to others. I'm based in the UK and had a PSA of 12.7 from a test in June 2023. That led to an MRI in August with a PI-RADS of 5 with irregularity on the front of the prostate. I eventually had a biopsy at the end of September after 3 cancellations (this was through the
I hope this story might be useful to others. I'm based in the UK and had a PSA of 12.7 from a test in June 2023. That led to an MRI in August with a PI-RADS of 5 with irregularity on the front of the prostate. I eventually had a biopsy at the end of September after 3 cancellations (this was through the
MarkS
in
Prostate Cancer Network
6 months ago
lobular
hi ladies. Well after 6 years on faslodex and ibrance they found cancer in my stomach lining and ascites. Is anyone dealing with this I am so nervous and scared. They want to put me in a new drug. Thanks so much. Marianne
hi ladies. Well after 6 years on faslodex and ibrance they found cancer in my stomach lining and ascites. Is anyone dealing with this I am so nervous and scared. They want to put me in a new drug. Thanks so much. Marianne
marianne88
in
SHARE Metastatic Breast Cancer
6 months ago
Cirrhosis & Diverticular disease
I was recently diagnosed with Diverticular disease and Cirrhosis of the liver, after having a Scan and colonoscopy. I was referred to the Gastroenterlogy department at the hospital for triaging and consultation with regard to the cirrhosis, but it looks as if both of those will take months to happen.
I was recently diagnosed with Diverticular disease and Cirrhosis of the liver, after having a Scan and colonoscopy. I was referred to the Gastroenterlogy department at the hospital for triaging and consultation with regard to the cirrhosis, but it looks as if both of those will take months to happen.
onefiveone
in
British Liver Trust
3 months ago
Do the NHS test for active b12 aswell a total b12?
I wonder because my sister was diagnosed with pernicious anemia years ago but now they say her b12 levels are really high normal.
I wonder because my sister was diagnosed with pernicious anemia years ago but now they say her b12 levels are really high normal.
Cesca-K
in
Pernicious Anaemia Society
3 months ago
colonoscopy 💩
I’m due to have a colonoscopy on the 16th which I am not looking forward to as when I had a sigmoidoscopy years ago I was in considerable pain when they used the air. I believe my bowel prep is going to be Picolax any tips on getting it down? I get bad reflux and nausea so praying it’s not going to make
I’m due to have a colonoscopy on the 16th which I am not looking forward to as when I had a sigmoidoscopy years ago I was in considerable pain when they used the air. I believe my bowel prep is going to be Picolax any tips on getting it down? I get bad reflux and nausea so praying it’s not going to make
BasilG
in
IBS Network
3 months ago
PSA Risen in Last 6 months
Have been on here a week ago, explaining that my husband (who was diagnosed 10years ago) has now been diagnosed with Gastroporesis, so not eating much due to constant nausea and vomiting. We are due to see his Urologist in 2 weeks time, so had the dreaded PSA blood test. It had been almost undetectable
Have been on here a week ago, explaining that my husband (who was diagnosed 10years ago) has now been diagnosed with Gastroporesis, so not eating much due to constant nausea and vomiting. We are due to see his Urologist in 2 weeks time, so had the dreaded PSA blood test. It had been almost undetectable
Hidden
in
Advanced Prostate Cancer
6 months ago
ET: Changing from HU to Jakafi or an Interferon treatment
Hello everyone, I'd be really grateful for any guidance / advice on the following: ET / JAK2 were diagnosed 10 years ago following a stroke (fortunately without serious consequences) and I was put on HU plus Aspirin. Amazingly I had no side-effects (apart from a 'rash' on my lower legs after about
Hello everyone, I'd be really grateful for any guidance / advice on the following: ET / JAK2 were diagnosed 10 years ago following a stroke (fortunately without serious consequences) and I was put on HU plus Aspirin. Amazingly I had no side-effects (apart from a 'rash' on my lower legs after about
Bodensee
in
MPN Voice
6 months ago
Cholestyramine
My husband has had explosive diarrhea since mid February. After blood tests, stool samples, colonoscopy, and more stool samples, they are not able to determine what is causing the diarrhea. The doctor has prescribed Cholestyramine. Has anyone had experience with this medication and did it help?
My husband has had explosive diarrhea since mid February. After blood tests, stool samples, colonoscopy, and more stool samples, they are not able to determine what is causing the diarrhea. The doctor has prescribed Cholestyramine. Has anyone had experience with this medication and did it help?
lowraind
in
IBS Network
3 months ago
does having endo mean I am at high risk for ovarian cancer?
hi! I an 26 and I have recently been diagnosed with moderate endometriosis. I am having a hard time coming to terms with it all and I consulted dr Google. I came across studies that show endo is a precursor to ovarian cancer and increases risk. I already have health anxiety however now I have gotten
hi! I an 26 and I have recently been diagnosed with moderate endometriosis. I am having a hard time coming to terms with it all and I consulted dr Google. I came across studies that show endo is a precursor to ovarian cancer and increases risk. I already have health anxiety however now I have gotten
JS1001
in
Endometriosis UK
6 months ago
delayed reconstruction
I had a subdural haemorrhage in may 2023 removing most of the right side of my scull even encroached my forehead that’s some 10 months ago now. I was supposed to receive reconstructive surgery and have titanium implant to protect the sensitive area where my skin is my only protection to my brain. That
I had a subdural haemorrhage in may 2023 removing most of the right side of my scull even encroached my forehead that’s some 10 months ago now. I was supposed to receive reconstructive surgery and have titanium implant to protect the sensitive area where my skin is my only protection to my brain. That
Jodieb73
in
Headway
6 months ago
Genetic Testing?
Does anyone have an experience to share about getting genetic testing done on your biopsy samples? I'm interested in three tests: (1) a DECIPHER test, (2) a full gene sequencing of tumor DNA and RNA (e.g., at Claris Labs), and (3) the Artera AI analysis of digitized pathology slides. Also, if anyone
Does anyone have an experience to share about getting genetic testing done on your biopsy samples? I'm interested in three tests: (1) a DECIPHER test, (2) a full gene sequencing of tumor DNA and RNA (e.g., at Claris Labs), and (3) the Artera AI analysis of digitized pathology slides. Also, if anyone
janebob99
in
Prostate Cancer Network
6 months ago
Stomach pain common with IBS?
Is stomach pain common with IBS?If so, where do you feel the pain? I feel pain right in the center pit of my stomach... sometimes gnawing sensation, sometimes a cramping sensation Do you feel it there in the center pit of your stomach too?
Is stomach pain common with IBS?If so, where do you feel the pain? I feel pain right in the center pit of my stomach... sometimes gnawing sensation, sometimes a cramping sensation Do you feel it there in the center pit of your stomach too?
Catsandsunsets
in
IBS Network
3 months ago
low serum iron. Normal ferritin
been getting very tired lately. ET (MPL) on pegysus 45ug every 2 weeks. Mentioned fatigue to haematologist and he suggested reducing peg further to 3 weekly. Got the above results after we got home. Also raised CRP but I do have a cold . raised neutrophils and wbc. Haem thought this was good as mounting
been getting very tired lately. ET (MPL) on pegysus 45ug every 2 weeks. Mentioned fatigue to haematologist and he suggested reducing peg further to 3 weekly. Got the above results after we got home. Also raised CRP but I do have a cold . raised neutrophils and wbc. Haem thought this was good as mounting
Sprat19
in
MPN Voice
3 months ago
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