Looking for a possible explanation. Diagnosed Oct 2021. HG serous carcinoma stage 3c peritoneal/ovarian. I am on 4th line chemo carbo/gem ( I have found this the most challenging so far). Debulking was in March 2022 and I recovered extremely well. Since then I had some abdominal cramping just before I was taken off Niraparib. However since I have been on the carbo /gem increasingly I am getting pain across my ‘bikini line’ - a bit like period pain. Has anybody experienced this or have any ideas? Is it just my body or could it to do with the carbo/gem?
In the big scheme of things I have been lucky so far so don’t want to complain as the CA125 is coming down again and if all goes well I will be on watch and wait for a while. Katy 🙏
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NewtonEmma1900
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Dear Emma l had my chemo carbo/taxol in 2019 it was tough going at times. But all l can say is try and stick with if you can. Ihas aches and pains everywhere my back was terrible at times. But it was all worth it so far lve had a apart from a couple of blimps along the wayMy ca 125 raised a couple of times my diagnosis is exactly the same as yours l had my de bulking op in Oct 2017 ld already had a hysterectomy 30 years before unfortunately they didnt take my ovaries out if lm honest l never asked anything those days. Im very different these days and Emma were same age. I got dignosed with brain tumour in 2007 l had to have 3 brain operations and they couldnt take it out it so put a proggramable
Valve in my head really made a difference although lm still clumsy nothing new l always have been. I use a stick to keep me balanced luckily lve never drank because l walk like lve had a few to drink and l havent ld never make bthe catwalk. But thank god l.manage to live an almost normal life thank god and although lm waiting for surgery yet again had surgery in Oct in But unfortunately its not worked l have a tear in.my stomach which my small bowel is coming through so managing my bowel situation isn't easy my stomach had
So many ops that my stomach wall isn't stable. But lm sure eventually it will be sorted
Last thing l need is a blocked bowel think l've
got enough problems slthough all that said l enjoy life lve been so very lucky really but lm always positive l.keep pro active if necessary l get 2nd opinions l never Google and always
Try to have things to look forward too. My motto is keep buying the frocks & booking the flights and get the best treatments l can staying positive enjoying life. Yes chemo tough but l been NED ever since so worth it.
Keep strong if you can you'll soon feel better and stronger love ❤️ & hugs Sheilaf xxx
After my surgery they stitched me up really tight. My colon got moved but nothing showed up bad on scans , I was in pain from constipation. I don't know if this is an issue but I take stuff to help with it. 💜 Liz
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