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Weaning off Pramipexole
Tomorrow night will be #14 and last pramipexole for me since i started weaning off last October. For me it's been one challenge after another. Not knowing what to expect each night. Some nights have been nothing short of torture. Currently I'm on 300 mg of Lyrica once a night with a backup of Oxycodone
Tomorrow night will be #14 and last pramipexole for me since i started weaning off last October. For me it's been one challenge after another. Not knowing what to expect each night. Some nights have been nothing short of torture. Currently I'm on 300 mg of Lyrica once a night with a backup of Oxycodone
Tennwalker1
in
Restless Legs Syndrome
6 years ago
Restless Legs moving up the body
I experience a strange feeling in my legs, but if I lay still it moves up my legs into my stomach and then around my chest. That makes me feel panicky and I resort to getting up. My Neurologist who diagnosed me with RLS and Parkinson's disease had prescribed Pramipexole ER. The insurance company does
I experience a strange feeling in my legs, but if I lay still it moves up my legs into my stomach and then around my chest. That makes me feel panicky and I resort to getting up. My Neurologist who diagnosed me with RLS and Parkinson's disease had prescribed Pramipexole ER. The insurance company does
horseart
in
Restless Legs Syndrome
6 years ago
Any advice please
I have been taking Pramipexole for a few months now with little or no relief. Previous to this I was taking Pergolide which worked perfectly for many years however now it is unavailable so I'm having to try alternatives. On top of this I've had a knee replacement and when the restless legs start
I have been taking Pramipexole for a few months now with little or no relief. Previous to this I was taking Pergolide which worked perfectly for many years however now it is unavailable so I'm having to try alternatives. On top of this I've had a knee replacement and when the restless legs start
Kazspro
in
Restless Legs Syndrome
6 years ago
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Shingles vaccination advice please
Can anyone tell me if it is safe for me to be around friends and family who have had the live shingles vaccination?Ann
Can anyone tell me if it is safe for me to be around friends and family who have had the live shingles vaccination?Ann
annmcgowan
in
CLL Support
6 years ago
More evidence of thyroid illness and Lyme Disease connection
It would be ridiculous to state that thyroid illness is always caused by Lyme Disease and/or other chronic infections, but the evidence mounts continuously that there is often a link. All of the patients I've met who are being treated for Lyme and other chronic infections need thyroid replacement to
It would be ridiculous to state that thyroid illness is always caused by Lyme Disease and/or other chronic infections, but the evidence mounts continuously that there is often a link. All of the patients I've met who are being treated for Lyme and other chronic infections need thyroid replacement to
janeb15
in
Thyroid UK
6 years ago
Tknr
Hi anybody know why u have to attend a physio therapy class before knee replacement surgery thank you 😊
Hi anybody know why u have to attend a physio therapy class before knee replacement surgery thank you 😊
Deejojo
in
NRAS
6 years ago
Methadone treatment or not?
I have been on Ropinerole 2 yrs along with 120 mg daily ms contin ( morphine) and it is not working anymore. Back to square one. I told my family doc I am suicidal ( to get his attention) and it did. We talked at length about another plan of attack and from what I have read suggested getting rid
I have been on Ropinerole 2 yrs along with 120 mg daily ms contin ( morphine) and it is not working anymore. Back to square one. I told my family doc I am suicidal ( to get his attention) and it did. We talked at length about another plan of attack and from what I have read suggested getting rid
Merster
in
Restless Legs Syndrome
6 years ago
Problem after cellulitis
I had cellulitis on my ankle about 5 months ago. I was prescribed antibiotics, which seemed to solve the problem. Since then, the spot where the cellulitis was has indented and is very flakey and a little sore to the touch. Should I be concerned about this?
I had cellulitis on my ankle about 5 months ago. I was prescribed antibiotics, which seemed to solve the problem. Since then, the spot where the cellulitis was has indented and is very flakey and a little sore to the touch. Should I be concerned about this?
Suzyscenes
in
LSN
6 years ago
Blood results! Please help!
Can someone have a look at these please? I would really appreciate it xxx I’ve been so unwell for a long time now. I’m 41 and struggling everyday w drops in sugar levels, POTs, shaky, pale skin, recurring infections, chronic pain, thin hair, no energy, feeling of passing out, Lyme disease. Anyways recent
Can someone have a look at these please? I would really appreciate it xxx I’ve been so unwell for a long time now. I’m 41 and struggling everyday w drops in sugar levels, POTs, shaky, pale skin, recurring infections, chronic pain, thin hair, no energy, feeling of passing out, Lyme disease. Anyways recent
Emmafrank41
in
Thyroid UK
6 years ago
Shingles through December
Happy New year to every one. Well my remission that l was so thrilled about has collapsed. Look what happened to me at beginning of December. Right soded shingles. Has kicked off pmr like beginning. Rheumatologist on Friday. Now they want to keep me off steroids due to cataract and shingles. So watch
Happy New year to every one. Well my remission that l was so thrilled about has collapsed. Look what happened to me at beginning of December. Right soded shingles. Has kicked off pmr like beginning. Rheumatologist on Friday. Now they want to keep me off steroids due to cataract and shingles. So watch
cmj33g
in
PMRGCAuk
6 years ago
WiFi finally..
Hi all you wonderful people... It took me two days to finally get my phone to let me have a hot spot to get WiFi. So today I feel wore out ... normally two half days at radio shack would be fun but not when my phone doesn’t work. ANYWAY!! I have a new person my own FNP. She is very open to anything
Hi all you wonderful people... It took me two days to finally get my phone to let me have a hot spot to get WiFi. So today I feel wore out ... normally two half days at radio shack would be fun but not when my phone doesn’t work. ANYWAY!! I have a new person my own FNP. She is very open to anything
Hidden
in
PMRGCAuk
6 years ago
Meningitis
My mum is at risk of meningitis and I’m afraid that if she doesn’t recover I will have to look after her and my severely autistic brother by myself. On Saturdays I have to go to my part time job and am still in school. Does ANYONE have ANY reassurance??
My mum is at risk of meningitis and I’m afraid that if she doesn’t recover I will have to look after her and my severely autistic brother by myself. On Saturdays I have to go to my part time job and am still in school. Does ANYONE have ANY reassurance??
Violet012
in
Meningitis Now
6 years ago
Decision made re shingles jab
Hi again. After reading all your helpful comments and having thought about it for days, I have just cancelled my shingles jab. On balance this is not the time to introduce further risks. Thanks everyone.
Hi again. After reading all your helpful comments and having thought about it for days, I have just cancelled my shingles jab. On balance this is not the time to introduce further risks. Thanks everyone.
Oxford8
in
PMRGCAuk
6 years ago
Anyone have experience of opiate side effects please?
I have been taking Targinact (10mg oxycodone/5mg naloxone) for four nights. I believe it is having some positive impact on calming my leg movements and is certainly helping with pain. However, instead of making me drowsy it makes me very alert, it takes hours to get to sleep and when I do I have vivid
I have been taking Targinact (10mg oxycodone/5mg naloxone) for four nights. I believe it is having some positive impact on calming my leg movements and is certainly helping with pain. However, instead of making me drowsy it makes me very alert, it takes hours to get to sleep and when I do I have vivid
Hidden
in
Restless Legs Syndrome
6 years ago
The common cold and nasal sores! Does it make them worse
When I’m sick all hell let’s loose, my body doesn’t seem to cope too well. Then there’s these nasal sores 😔 my nose is extremely painful right now, and I’m just wondering if the common cold increase nasal sores or if these sores are something else! I currently have swelling on the outside bit of the
When I’m sick all hell let’s loose, my body doesn’t seem to cope too well. Then there’s these nasal sores 😔 my nose is extremely painful right now, and I’m just wondering if the common cold increase nasal sores or if these sores are something else! I currently have swelling on the outside bit of the
Lisalou19
in
LUPUS UK
6 years ago
I don't know if I have brain damage or what is wrong with me!
So in 2014 for some reason I started having problems with reading, I remember I tried to read some books and I didn't understand anything, then I started having problems reading subtitles and understanding movies and TV shows, after that I started having problems with just the act of reading, not only
So in 2014 for some reason I started having problems with reading, I remember I tried to read some books and I didn't understand anything, then I started having problems reading subtitles and understanding movies and TV shows, after that I started having problems with just the act of reading, not only
ihatebraininjuries
in
Headway
6 years ago
Second EEG test tomorrow
Hi everyone I hope you all managed to cope during this festive season. Not an easy time for many different reasons. Tomorrow morning I am heading into London for another EEG test. Not what I expected to be doing on new year's eve but 11am is early in the day at least. I guess I just wanted to share it
Hi everyone I hope you all managed to cope during this festive season. Not an easy time for many different reasons. Tomorrow morning I am heading into London for another EEG test. Not what I expected to be doing on new year's eve but 11am is early in the day at least. I guess I just wanted to share it
Ro_76
in
Headway
6 years ago
Lyrica
Hi I have been on Lyrica for many years not really sure how many as it gives me a foggy brain and I have lost a lot of memories. I have Refractory RLS. Well they put it under the umbrella of RLS. I have my pain 24/7 They did not know what else to call what I have. Restless legs the brain tells the legs
Hi I have been on Lyrica for many years not really sure how many as it gives me a foggy brain and I have lost a lot of memories. I have Refractory RLS. Well they put it under the umbrella of RLS. I have my pain 24/7 They did not know what else to call what I have. Restless legs the brain tells the legs
Hidden
in
Restless Legs Syndrome
6 years ago
Not sure if its epilepsy
I was diagnosed with type 2 diabetes 2 years ago and I was diagnosed with epilepsy 6 months ago I had four seizures over 2 to 3 weeks MRI and cat scan were clear and I haven't got the eeg results so my daughter done a lot of research and thinks my seizures may be diabetic and now I am totally confused
I was diagnosed with type 2 diabetes 2 years ago and I was diagnosed with epilepsy 6 months ago I had four seizures over 2 to 3 weeks MRI and cat scan were clear and I haven't got the eeg results so my daughter done a lot of research and thinks my seizures may be diabetic and now I am totally confused
Sandly1
in
Epilepsy Action
6 years ago
Can augmentation be avoided on DA's?
I have been successfully rotating opiates for a couple of years. However,they are now causing insomnia and I feel that I need to stop taking them for a prolonged period to "reset" my brain.So I need an alternative. I can't take Gabapentin. I am aware from the horror stories on here of the dangers of
I have been successfully rotating opiates for a couple of years. However,they are now causing insomnia and I feel that I need to stop taking them for a prolonged period to "reset" my brain.So I need an alternative. I can't take Gabapentin. I am aware from the horror stories on here of the dangers of
Jumpey
in
Restless Legs Syndrome
6 years ago
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