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Dianne shares her Lyme Disease and LDNOn the LDN Radio Show 18th Mach 2020
YouTube: https://youtu.be/cV-poFBJYaI
YouTube: https://youtu.be/cV-poFBJYaI
liveurlife
Volunteer
in
LDN Research Trust
4 years ago
EMAIL from Professor Richard P Allen John Hopkins
Dear Mrs Howard I was sad hearing about your travails getting treatment for RLS. Yes buprenorphine is one of the opioids used for refractory RLS with reasonably good results. It tends to get used after methadone is tried, but it is very effective in many patients. We have long term experience
Dear Mrs Howard I was sad hearing about your travails getting treatment for RLS. Yes buprenorphine is one of the opioids used for refractory RLS with reasonably good results. It tends to get used after methadone is tried, but it is very effective in many patients. We have long term experience
Shumbah
in
Restless Legs Syndrome
4 years ago
Post Encephalitis advice please
Was diagnosed treated and discharged from hospital with Hsv-1 Encephalitis 4 years ago knowing little of the illness, since then i have been trying to get back to a "normal" life but find its always one step forward two steps back and my gp keeps diagnosing me with depression/stress. Recently i lost
Was diagnosed treated and discharged from hospital with Hsv-1 Encephalitis 4 years ago knowing little of the illness, since then i have been trying to get back to a "normal" life but find its always one step forward two steps back and my gp keeps diagnosing me with depression/stress. Recently i lost
Mgray13
in
Headway
4 years ago
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l-Lysine
I have been diagnosed with shingles and recommended to take L-Lysine 500 mgs on an empty stomach. Will I still have to leave it an hour after I take my Levothyroxine before I take the L-Lysine? It was ask recommend to me to during apple cider vinegar on an empty stomach so I thought I’d take the L-Lysine
I have been diagnosed with shingles and recommended to take L-Lysine 500 mgs on an empty stomach. Will I still have to leave it an hour after I take my Levothyroxine before I take the L-Lysine? It was ask recommend to me to during apple cider vinegar on an empty stomach so I thought I’d take the L-Lysine
Citta
in
Thyroid UK
4 years ago
Food allergies
Due to having IBS and food allergies I can’t eat onion in any form, Mayo , olive oil. Most of recipes use onion any idea what alternative ingredient I can use.
Due to having IBS and food allergies I can’t eat onion in any form, Mayo , olive oil. Most of recipes use onion any idea what alternative ingredient I can use.
Patchwork1943
2020 February
in
Weight Loss Support
4 years ago
Very itchy rash all over body - help please!
Reaching out for help for my daughter. She has a very itchy rash all over her body- including soles of feet and palms of hands! What can she do for relief? She is taking antihistamine.
Reaching out for help for my daughter. She has a very itchy rash all over her body- including soles of feet and palms of hands! What can she do for relief? She is taking antihistamine.
Moomin8
in
NRAS
4 years ago
Caffeine or not ?
Hi everyone.. I'm experiencing another "bout" or "attack" of rls... So not sleeping due to being woken up most nights with restless legs.. So now lack of sleep to add to everything.. I usually take an extra iron tablet and extra magnesium one and magnesium gel on both legs... Eventually going back to
Hi everyone.. I'm experiencing another "bout" or "attack" of rls... So not sleeping due to being woken up most nights with restless legs.. So now lack of sleep to add to everything.. I usually take an extra iron tablet and extra magnesium one and magnesium gel on both legs... Eventually going back to
janland
in
Restless Legs Syndrome
4 years ago
Aluminium in Hydroxocobalamin?
Hello all, I have a sky high aluminium level, and worry if my B12 Hydroxocobalamin injections contribute to this. I buy from Germany, Hevert 1 mg ampuls. It doesn't say in the ingrediens lidt, but does anyone know if there could be a hidden aluminium salt despite this? Thanks!
Hello all, I have a sky high aluminium level, and worry if my B12 Hydroxocobalamin injections contribute to this. I buy from Germany, Hevert 1 mg ampuls. It doesn't say in the ingrediens lidt, but does anyone know if there could be a hidden aluminium salt despite this? Thanks!
indywindy
in
Pernicious Anaemia Society
4 years ago
More advice would be wonderful
A while back I posted on here about my journey coming off Neupro patches and transferring to a Gabapentin and had some truly great advice. I am now taking 900mg, split into 300 at around 5 o’clock and 600 around 8 o’clock. It occasionally helps and I do believe that the restless legs are not quite
A while back I posted on here about my journey coming off Neupro patches and transferring to a Gabapentin and had some truly great advice. I am now taking 900mg, split into 300 at around 5 o’clock and 600 around 8 o’clock. It occasionally helps and I do believe that the restless legs are not quite
Mulberry100
in
Restless Legs Syndrome
4 years ago
VITAMIN SCARE
Lately I have been very listless and fatigued, (no I don't have that). A friend of mine suggested I try multivitamins. They have been sitting in my medicine box for a week now, I'm just too frightened to take anything new. (You know what it's like). So should I be afraid or should I just dive in.
Lately I have been very listless and fatigued, (no I don't have that). A friend of mine suggested I try multivitamins. They have been sitting in my medicine box for a week now, I'm just too frightened to take anything new. (You know what it's like). So should I be afraid or should I just dive in.
BENGAL1000
in
Restless Legs Syndrome
4 years ago
Stopping Ropinirole
The neurosurgeon I saw in Liverpool has recommend I stop taking Ropinirole, as although it helped RLS a lot at first, I find that now I can only get a few hours sleep on it and the RLS returns quite early during the day (augmentation?). So I have to reduce from 2 to 1 mg per night for a week, then stop
The neurosurgeon I saw in Liverpool has recommend I stop taking Ropinirole, as although it helped RLS a lot at first, I find that now I can only get a few hours sleep on it and the RLS returns quite early during the day (augmentation?). So I have to reduce from 2 to 1 mg per night for a week, then stop
sudokufan
in
Restless Legs Syndrome
4 years ago
Tramadol
Been on two tramadol a day for around two months now and now with the biological meds working well I thought i would finish the course and come off them , my doc told me that two a day would not be addictive, well I don’t know if I’m addictive to them but I didn’t sleep a wink last night I was so restless
Been on two tramadol a day for around two months now and now with the biological meds working well I thought i would finish the course and come off them , my doc told me that two a day would not be addictive, well I don’t know if I’m addictive to them but I didn’t sleep a wink last night I was so restless
Buckybri
in
NRAS
4 years ago
Could anyone please advice me as to whether it is o.k for Hashimoto's people to take hydrocortisone tablets for a mouth ulcer ?
Hello friends, I have a small (sort of) ulcer in my mouth, just under my lip, and it's been there for a few weeks now. It came on after a strong bite into my lip.... It isn't uncomfortable or painful, but when I showed it to my doctor, he made no comment, just produced the tablets, which apparently
Hello friends, I have a small (sort of) ulcer in my mouth, just under my lip, and it's been there for a few weeks now. It came on after a strong bite into my lip.... It isn't uncomfortable or painful, but when I showed it to my doctor, he made no comment, just produced the tablets, which apparently
C70rol
in
Thyroid UK
4 years ago
MIRAPEXIN PROLONGED RELEASE
Has anyone heard of this? I had a telephone consultation with my Neurologist who prescribed it, because I am not happy with the Gabapentin I am taking. Combined use of 2x600 mg of Gabapentin, 2 co-dydramol and 0.5 mg of Clonazipam each night is still giving me insomnia and restless legs. I was so proud
Has anyone heard of this? I had a telephone consultation with my Neurologist who prescribed it, because I am not happy with the Gabapentin I am taking. Combined use of 2x600 mg of Gabapentin, 2 co-dydramol and 0.5 mg of Clonazipam each night is still giving me insomnia and restless legs. I was so proud
Felicity21
in
Restless Legs Syndrome
4 years ago
STILL NEED HELP
I'm wondering if I have DAWS( dopamine agonist withdrawal syndrome ) I started my tapering from requip the first of Feb. and finished the end of the month. Now I find I'm having terrifying dreams. heavy sweating. roaring in my head, lots more physical discomforts . Has anyone experienced this and if
I'm wondering if I have DAWS( dopamine agonist withdrawal syndrome ) I started my tapering from requip the first of Feb. and finished the end of the month. Now I find I'm having terrifying dreams. heavy sweating. roaring in my head, lots more physical discomforts . Has anyone experienced this and if
sweetiepye
in
Restless Legs Syndrome
4 years ago
mouth ulcers
Hi I am on number three of carbo/caylex and the mouth ulcers are driving me mad it is difficult to eat , and talking is nigh on impossible, i already tried all ulcer creams and gels from pharmacy and mouthwash from oncologist but not had much effect .. Any suggestions would be welcome. thanks Meg x
Hi I am on number three of carbo/caylex and the mouth ulcers are driving me mad it is difficult to eat , and talking is nigh on impossible, i already tried all ulcer creams and gels from pharmacy and mouthwash from oncologist but not had much effect .. Any suggestions would be welcome. thanks Meg x
megb246
in
My Ovacome
4 years ago
Concerned
Do we know if coronavirus is a problem for us that have Lymphoedema with cellulitis ?
Do we know if coronavirus is a problem for us that have Lymphoedema with cellulitis ?
Royston123
in
LSN
4 years ago
RESTLESS LEGS SYNDROME & CANNABIS OIL
I’ve suffered with severe RLS for many years and decided to try Cannabis Oil as a topical lotion for the first time but it appeared to be making them even worse. Has anyone else experienced a bad result too. I’m quite disappointed because I’ve read so much about how Cannabis Oil helps sufferers. Any
I’ve suffered with severe RLS for many years and decided to try Cannabis Oil as a topical lotion for the first time but it appeared to be making them even worse. Has anyone else experienced a bad result too. I’m quite disappointed because I’ve read so much about how Cannabis Oil helps sufferers. Any
Hidden
in
Restless Legs Syndrome
4 years ago
Serum aluminum accumulation with Cyano B12 Injections
Cyanocobalamin injections and aluminum as a preservative - anyone finding they are accumulating aluminum in their blood? What are drawbacks of MethylCobalamin with Benzyl Alcohol preservative, or HydroxoCobalamin with MethylParaben and PropylParaben as preservatives?
Cyanocobalamin injections and aluminum as a preservative - anyone finding they are accumulating aluminum in their blood? What are drawbacks of MethylCobalamin with Benzyl Alcohol preservative, or HydroxoCobalamin with MethylParaben and PropylParaben as preservatives?
DFord
in
Pernicious Anaemia Society
4 years ago
Viral meningitis multiple times
I just went through my 4th time getting Viral Meningitis. I’m curious if anyone else has had this multiple times.
I just went through my 4th time getting Viral Meningitis. I’m curious if anyone else has had this multiple times.
Subarugirl
in
Meningitis Now
4 years ago
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