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Thank you
I have had RLS for 20 years - it is a scourge. I am consistently shocked at how cavalier the medical community is about it. Not to mention ignorant. I have resorted now to CBD/THC gummies to sleep but I live in California so that is an option. I also use Hylanda homeopathic remedy which does seem to
I have had RLS for 20 years - it is a scourge. I am consistently shocked at how cavalier the medical community is about it. Not to mention ignorant. I have resorted now to CBD/THC gummies to sleep but I live in California so that is an option. I also use Hylanda homeopathic remedy which does seem to
Maddiehb
in
Restless Legs Syndrome
4 years ago
burning legs/feeling extremely cold?
my legs currently feel like they’re burning/are freezing, i also have pins and needles. is this a part of RLS? also, would oxycodone help restlessness? or did it only help you guys with sleep/pain? respond ASAP please! i just want to take something to help this. percocet specifically, it’s Oxycodone/
my legs currently feel like they’re burning/are freezing, i also have pins and needles. is this a part of RLS? also, would oxycodone help restlessness? or did it only help you guys with sleep/pain? respond ASAP please! i just want to take something to help this. percocet specifically, it’s Oxycodone/
mmjxc
in
Restless Legs Syndrome
4 years ago
Restless legs are worse from a foot massager
Why are my restless legs worse after using a foot massager? I got this massager to ease my restless legs. Instead, it’s worse.
Why are my restless legs worse after using a foot massager? I got this massager to ease my restless legs. Instead, it’s worse.
Madnaz
in
Restless Legs Syndrome
4 years ago
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THE NIGHTMARES HAVE BEEN THE WORST eek eek
I finished my withdrawal from Ropinirole the last week in Feb. 2020 . In March I felt pretty well until the nightmares started . They were horrific . I was afraid to be alone in broad daylight and going to bed was hellish.. At the time I was taking suboxone and gabapentin for RLS and having trouble
I finished my withdrawal from Ropinirole the last week in Feb. 2020 . In March I felt pretty well until the nightmares started . They were horrific . I was afraid to be alone in broad daylight and going to bed was hellish.. At the time I was taking suboxone and gabapentin for RLS and having trouble
sweetiepye
in
Restless Legs Syndrome
4 years ago
Pregabalin and ropinirole
Would like to know if anyone has any advice for me.....been on 2mg ropinirole along with 300mg pregabalin for about 2 years. I was able to see Dr Winkleman at Mass General 2 years ago when I was on 6 mg. of ropinirole . Never totally got off of it . I also experienced augmentation when on the 6mg....
Would like to know if anyone has any advice for me.....been on 2mg ropinirole along with 300mg pregabalin for about 2 years. I was able to see Dr Winkleman at Mass General 2 years ago when I was on 6 mg. of ropinirole . Never totally got off of it . I also experienced augmentation when on the 6mg....
tweedy66
in
Restless Legs Syndrome
4 years ago
Update on weighted blanket and Trazodone
Hi all!! I still like my weighted blanket but actually it's not as good as I thought at the beginning. A few days after I began using it, my legs started to bother me again although not as bad as before.😪 I was hoping the problem would disappear as long as I used the blanket. Oh well..😯 At that time
Hi all!! I still like my weighted blanket but actually it's not as good as I thought at the beginning. A few days after I began using it, my legs started to bother me again although not as bad as before.😪 I was hoping the problem would disappear as long as I used the blanket. Oh well..😯 At that time
Micafe
in
Restless Legs Syndrome
4 years ago
Leaving Ropinirole for Buprenorphine - Do I needed to ease off R first?
Hello, Quick question. If I am able to have my doctor prescribe Buprenorphine will I need to slowly come off Ropinirole while taking Buprenorphine or can I just stop Ropinirole? I see the doctor first week of January and think I could start reducing Ropinirole now but would rather not do it over the
Hello, Quick question. If I am able to have my doctor prescribe Buprenorphine will I need to slowly come off Ropinirole while taking Buprenorphine or can I just stop Ropinirole? I see the doctor first week of January and think I could start reducing Ropinirole now but would rather not do it over the
B534967
in
Restless Legs Syndrome
4 years ago
Dad won’t wake up after cardiac arrest
Hi, I’m looking for some hope with anoxia brain injury patients. My father is 59 years old and had a cardia arrest for 4 min on October 16. Details on how we got to that day. On October 14 he had his 4th ischemic stroke within one year. On October 15 he had Carotid artery surgery in his neck to open
Hi, I’m looking for some hope with anoxia brain injury patients. My father is 59 years old and had a cardia arrest for 4 min on October 16. Details on how we got to that day. On October 14 he had his 4th ischemic stroke within one year. On October 15 he had Carotid artery surgery in his neck to open
Lusine30
in
ICUsteps
4 years ago
Tomorrow
Well wish me luck as I'm seeing a neurologist or under study tomorrow again. Last time they told me to go on ropinerole but I refused as I'd weaned off prami. So I'm armed I've written my rls story which is sad reading and I've saved some of the links u provided onto my main screen on my phone and printed
Well wish me luck as I'm seeing a neurologist or under study tomorrow again. Last time they told me to go on ropinerole but I refused as I'd weaned off prami. So I'm armed I've written my rls story which is sad reading and I've saved some of the links u provided onto my main screen on my phone and printed
Netball-50
in
Restless Legs Syndrome
4 years ago
NEBA EEG Testing - useful or scammy?
We are in the process of getting psychoeducational and neuropsych testing for our child whom we suspect has some learning differences and/or ADHD. The clinician we are considering wants to do NEBA /EEG testing - sounds like a way to make a lot of money to me. Any experience?
We are in the process of getting psychoeducational and neuropsych testing for our child whom we suspect has some learning differences and/or ADHD. The clinician we are considering wants to do NEBA /EEG testing - sounds like a way to make a lot of money to me. Any experience?
Hidden
in
CHADD's ADHD Parents Together
4 years ago
Hashimotos- question
Hi everyone! As I was only 25 when I was diagnosed with hypothyroidism I was just wondering if there is anyone on here of similar age when they were diagnosed? I’ve noticed it seems quite uncommon... I am wondering whether my sickness as a child has contributed to this. Had tonsillitis for many years
Hi everyone! As I was only 25 when I was diagnosed with hypothyroidism I was just wondering if there is anyone on here of similar age when they were diagnosed? I’ve noticed it seems quite uncommon... I am wondering whether my sickness as a child has contributed to this. Had tonsillitis for many years
Bubble214
in
Thyroid UK
4 years ago
Has anyone had pain in their leg(s)?
As my restless legs got worse, I started having pain in the front of my legs. I sleep on my stomach and the pain although mild keeps me from going back to sleep, although occasionally it is mild enough I can. I would also have it lying on my back. After awhile I started having the pain when I was up
As my restless legs got worse, I started having pain in the front of my legs. I sleep on my stomach and the pain although mild keeps me from going back to sleep, although occasionally it is mild enough I can. I would also have it lying on my back. After awhile I started having the pain when I was up
SueJohnson
in
Restless Legs Syndrome
4 years ago
Article from John-Hopkins regaurding the effects of opiates on RLS
No question, I just wanted to post some of an article regaurding the effects of opiates on RLS (the full text can be found on John Hopkins university website. Dr. Willis (as in Willis-Ekbomb disease / RLS) in his description of this disease in 1685 also reported on the benefits of opiates for treating
No question, I just wanted to post some of an article regaurding the effects of opiates on RLS (the full text can be found on John Hopkins university website. Dr. Willis (as in Willis-Ekbomb disease / RLS) in his description of this disease in 1685 also reported on the benefits of opiates for treating
Stdorn
in
Restless Legs Syndrome
4 years ago
Restless legs
Hi all! Restless legs are the bain of my life! Don't think I've had a good sleep for years.my doctor gave me Pramipexole a parkinson drug for the problem. I have fibromyalgia and fatty liver. Does anyone have pain in left side under the rib?
Hi all! Restless legs are the bain of my life! Don't think I've had a good sleep for years.my doctor gave me Pramipexole a parkinson drug for the problem. I have fibromyalgia and fatty liver. Does anyone have pain in left side under the rib?
Drhook
in
Restless Legs Syndrome
4 years ago
Might work for you too!
I've had five nights now without RLS. Quit taking Sertraline and with MDs' okay I'm taking .25 mg of Alprazolam each evening. I also started twice daily on 28 mg of Iron supplement and 500 mg of Magnesium. RLS Symptoms are just about totally gone...Just a slight twinge once in a while, easy to ignore
I've had five nights now without RLS. Quit taking Sertraline and with MDs' okay I'm taking .25 mg of Alprazolam each evening. I also started twice daily on 28 mg of Iron supplement and 500 mg of Magnesium. RLS Symptoms are just about totally gone...Just a slight twinge once in a while, easy to ignore
9642birss
in
Restless Legs Syndrome
4 years ago
Can you do intense exercise with RLS?
Hi, I’m wondering if anyone in this forum has looked into the relationship between high levels of exercise (e.g. running, mountaineering and cycling) and the intensity of RLS, or has any experience they’d like to share? I have RLS which can vary from Mild to Severe (using the Restless Legs Syndrome Rating
Hi, I’m wondering if anyone in this forum has looked into the relationship between high levels of exercise (e.g. running, mountaineering and cycling) and the intensity of RLS, or has any experience they’d like to share? I have RLS which can vary from Mild to Severe (using the Restless Legs Syndrome Rating
Munroist
in
Restless Legs Syndrome
4 years ago
Ropinirole dependency
I've just been diagnosed with RLS and have been advised to start taking ropinirole. Will I then become dependent on it for the rest of my life? Can you ever stop taking ropinirole once you start?
I've just been diagnosed with RLS and have been advised to start taking ropinirole. Will I then become dependent on it for the rest of my life? Can you ever stop taking ropinirole once you start?
Hidden
in
Restless Legs Syndrome
4 years ago
Cracked nails
I would like to thank the person or persons who suggested to use Hard As Nails to help nails from cracking when using Imbruvica/Ibrutinib. I started using it and it is helping . I also found out that Vitry nail care for nail repair is also good but more expensive.
I would like to thank the person or persons who suggested to use Hard As Nails to help nails from cracking when using Imbruvica/Ibrutinib. I started using it and it is helping . I also found out that Vitry nail care for nail repair is also good but more expensive.
Kmegood
in
CLL Support
4 years ago
RLS
Hi everyone, I’ve been suffering for severe RSL for 5 years now, I have uncontrollable leg twitches, have been to the GP multiple times about it as it usually takes be 1-3 hours to get to sleep because of my leg feels like it’s getting electrocuted! I just don’t know what to do now, I’ve tried herbal
Hi everyone, I’ve been suffering for severe RSL for 5 years now, I have uncontrollable leg twitches, have been to the GP multiple times about it as it usually takes be 1-3 hours to get to sleep because of my leg feels like it’s getting electrocuted! I just don’t know what to do now, I’ve tried herbal
Tilzz
in
Restless Legs Syndrome
4 years ago
Shingles Vaccination
I have PV for 8 years and taking Hydroxycarbimine 1 G, asprin. I have just turned 70 and am eligible for the shingles vaccine. As this a live virus is it safe? Thanks
I have PV for 8 years and taking Hydroxycarbimine 1 G, asprin. I have just turned 70 and am eligible for the shingles vaccine. As this a live virus is it safe? Thanks
Ashburnmam
in
MPN Voice
4 years ago
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