Tomorrow

[Netball-50]

Well wish me luck as I'm seeing a neurologist or under study tomorrow again. Last time they told me to go on ropinerole but I refused as I'd weaned off prami. So I'm armed I've written my rls story which is sad reading and I've saved some of the links u provided onto my main screen on my phone and printed off about buprenophine from the BNF book from work, so I'm going to ask for a sleep clinic and some kind of opiate codeine isn't doing it for me lately it used to do but not now. I'm still on gabapentin x4 300mg 2 at 6pm and 2 bedtime. See what happens I was so upset after my last visit. Wish me luck xxx

[Kaarina Administrator]

Wishing you the very best of luck for tomorrow, Netball. 😀 Knowledge is power! Do let us know how you got on. 😀👍💪💪

[rls-insomniac in reply to Kaarina]

Good luck for tomorrow and don't forget that they are not permitted to force you to take any meds you don't feel comfortable with. I believe that they are also obliged to provide you with an alternative treatment. Let us know how you get on. 🤞😊

[Joolsg]

Good luck. Remember it’s all about ‘shared decision making’ now so the neurologist has to listen to what you have to say. It’s all ‘evidence based’ & they can’t refute the opioid studies or the success of Buprenorphine & Temgesic that we are seeing on this site. If they can’t be bothered to do trials on these meds- we have to be the guinea pigs.

Sending positive vibes your way.

[LotteM]

Good luck. Bring someone close with you, if you can. And stay calm, if you can. And try not to hope for a good result, just go and do your utmost in standing your ground. I found it helped saying that I am an individual, not an average person from a study (that mainly uses 'naive' patients).

[birdman74]

Netball-50 - so sorry to hear of your problems. Yes, I take Codeine twice a day. I take 45mg at 5,00pm and then 60mg at about 10.30 to 11.00pm. I find this regime to be of help but of course, not a cure for RLS. I also wear a. Neupro Patch which contains Rotigotine and these are a great help to me - most of the time. Best of luck.