Hashimotos- question: Hi everyone! As I was only... - Thyroid UK

Thyroid UK

137,936 members161,765 posts

Hashimotos- question

Bubble214 profile image
6 Replies

Hi everyone!

As I was only 25 when I was diagnosed with hypothyroidism I was just wondering if there is anyone on here of similar age when they were diagnosed? I’ve noticed it seems quite uncommon... I am wondering whether my sickness as a child has contributed to this. Had tonsillitis for many years until they took them out when I was 19 and recently had tonsillitis without the tonsils didn’t know this was a thing! I also get cold sores and the months before I was diagnosed I had them a lot, I am wondering if there could be a link and my immune system just went into overdrive?

Also I am in two minds about taking anti depressants doctor has prescribed me, I always hear bad things about being addicted and am worried about it, has anyone on here taken them and has it helped and did you come off them okay?

I have been signed off for two weeks and doctor has signed me off for another week to give me some time away from work and to just rest.

Thank you!

Written by
Bubble214 profile image
Bubble214
To view profiles and participate in discussions please or .
Read more about...
6 Replies

I certainly had hashis when I was 25, took another decade of fighting to receive my diagnosis. A lot of us here are the same!

Hashis in your 20's isn't unusual but it seems a diagnosis in your 20's is!

I am a firm believer in taking antidepressants if you need them but depression can be a symptom of being under-medicated. (For what it's worth, I've taken then and had zero problems coming off them.)

Do you have any recent test results you can share?

Bubble214 profile image
Bubble214 in reply to

Oh really, i think there needs to be more awareness of this I feel you get brushed under the carpet as such. I think I feel this way because of being under medicated and also just had enough of feeling like this. All my friends are going out ( well pre Covid) and I would just rather sit at home in pjs and go to bed.. I feel I am missing out on my 20s and like at work I should be well on my way with my career however feel just stuck because of my memory and concentration issues. Thank you for your advice.

Not yet, have requested from dr.

in reply to Bubble214

If it helps, you're certainly not alone in feeling that way. I had to go part time when I was 26 because I couldn't cope with working full time, alongside studying for exams. I spent so much time wondering why I couldn't do it.

Around the same time I had a burn out, resulting in depression, sleeping 12+ hours a day, I was crying all the time, I was anxious all the time, I had zero energy and could keep my one bedroom flat clean or tidy. I had my family and my Dr telling me it was anxiety and depression so I believed them. But actually all that did was gaslight me, I then spent the next 8 years believing it was a mental health issue, even though it didn't feel quite right as an explanation. "There MUST be something wrong in my brain because everyone says so". I've had a few of these 'episodes' now and it always happened when I pushed myself too hard and I think I just burned through whatever T3 I had.

They were all just about a foot too high; the problem was in my neck.

But it's so disappointing and frustrating to just watch your life disappearing before you.

Are you gluten-free?

shaws profile image
shawsAdministrator

I am not medically qualified but if you are hypothyroid I would have a Full Thyroid Function Test and I certainly wouldn't take antidepressants (yet) until you get the results. GP wont do all of the following but ask him anyway. If he refuses you can get a 'home' blood test and there are several labs that do them.

thyroiduk.org/getting-a-dia...

Blood draw should be at the earliest possible, fasting (you can drink water) and make sure you are well-hydrated a couple of days before so that blood draw is easier.

If you were taking thyroid hormone replacements, you'd miss this dose and take after test.

The labs can also make an arrangement to draw blood if you don't think you can do so yourself.

You need:

TSH, T4, T3, Free T4, Free T3 and antibodies.

Post your results on a new post for comments.

Doctors are apt to give us 'extra' prescriptions for 'symptoms' rather than a proper dose of thyroid hormones.

The 'frees' are the most important I think as it tells what is circulating in the blood.

thyroiduk.org/getting-a-dia...

SeasideSusie profile image
SeasideSusieRemembering

Bubble214

My hypothyroid symptoms started when I was 25 but it took 2 years of constantly going to the doctors before he even thought to do a thyroid test (this was back in 1973) and found out I was hypothyroid. I don't have Hashi's.

As depression is a symptom of hypothyroidism, I'd be reluctant to take them, I'd be wanting optimal thyroid levels first.

What are your current results for

TSH

FT4

FT3

Vit D

B12

Folate

Ferritin

If you know you have Hashi's then retesting antibodies isn't necessary.

SlowDragon profile image
SlowDragonAdministrator

My Hashimoto’s likely started at puberty. Eventually diagnosed at 33.

Always suspected tonsillectomy caused issues And/or endless rounds of antibiotics wiping out gut bacteria

healthunlocked.com/thyroidu...

Do you always get same brand of levothyroxine at each prescription

Which brand?

Strongly recommend you get FULL Thyroid and vitamin testing 8-10 weeks after latest dose increase in levothyroxine

Trying strictly gluten free diet often helps or is essential with Hashimoto’s

For full Thyroid evaluation you need TSH, FT4 and FT3 plus both TPO and TG thyroid antibodies tested. Also EXTREMELY important to test vitamin D, folate, ferritin and B12

Low vitamin levels are extremely common, especially if you have autoimmune thyroid disease (Hashimoto's) diagnosed by raised Thyroid antibodies

Recommended on here that all thyroid blood tests should ideally be done as early as possible in morning and before eating or drinking anything other than water .

Last dose of Levothyroxine 24 hours prior to blood test. (taking delayed dose immediately after blood draw).

This gives highest TSH, lowest FT4 and most consistent results. (Patient to patient tip)

Is this how you do your tests?

Private tests are available as NHS currently rarely tests Ft3 or thyroid antibodies or all relevant vitamins

List of private testing options

thyroiduk.org/getting-a-dia...

Medichecks Thyroid plus vitamins including folate (private blood draw required)

medichecks.com/products/thy...

Thriva Thyroid plus antibodies and vitamins By DIY fingerpick test

thriva.co/tests/thyroid-test

Thriva also offer just vitamin testing

Blue Horizon Thyroid Premium Gold includes antibodies, cortisol and vitamins by DIY fingerprick test

bluehorizonbloodtests.co.uk...

If you can get GP to test vitamins and antibodies then cheapest option for just TSH, FT4 and FT3

£29 (via NHS private service ) and 10% off if go on thyroid uk for code

thyroiduk.org/getting-a-dia...

monitormyhealth.org.uk/thyr...

Come back with new post once you get results

You may also like...

Hashimoto and Addisons - question about Hashimoto

Hi, I have has Hashimoto since 1983, when I was 13. In 2015 I became very ill and misdiagnosed by...

Newly diagnosed - Hashimoto's question

ask for some specific advice. I was diagnosed as hypothyroid five weeks ago, after a couple of...

Question about hashimoto's

Just wondering if there's anyone on here that has hashimoto's but thyoid hormones not high enough...

Hashimoto remission questions

hashi and hypo just wanted to ask is there anyone on this forum who has got rid of high t anti-tpo...

reposting-Hashimoto's question.

flare up due to the stress which is confusing things? Had cortisol levels tested and they're fine...