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help with rls meds
Hi. Been awhile since I posted but hoping for advice. My husband has rls in all limbs he is taking gabapentin 2 100mg a night and still taking 1 1mg ropinirole. I understand he is most likely augmenting so hopefully he will decide to wean off. He goes to neurologist tomorrow and I want to find
Hi. Been awhile since I posted but hoping for advice. My husband has rls in all limbs he is taking gabapentin 2 100mg a night and still taking 1 1mg ropinirole. I understand he is most likely augmenting so hopefully he will decide to wean off. He goes to neurologist tomorrow and I want to find
Mustanggirlgirl
in
Restless Legs Syndrome
3 years ago
Seeking Holistic Remedies and Root Causes of RLS
Over the past few years, I've developed RLS and at the same time also tested positive for toxic metals like lead, mercury, aluminum and several others. Have also learned that this is an epidemic problem as these toxic metals have no biological benefit and yet are found in tap water, food, air, cosmetics
Over the past few years, I've developed RLS and at the same time also tested positive for toxic metals like lead, mercury, aluminum and several others. Have also learned that this is an epidemic problem as these toxic metals have no biological benefit and yet are found in tap water, food, air, cosmetics
JWBe
in
Restless Legs Syndrome
3 years ago
Morning everybody. I am looking for a quality CBD oil Any experiences please š
I am soon to be starting Temgesic for my restless limbs. Can anyone recommend a good quality CBD oil to help with any restlessness I may experience crossing over from my current Oxycodone med? I recognise that I may not need it, but just in case. Also the pain doctor recommended that I occasionally
I am soon to be starting Temgesic for my restless limbs. Can anyone recommend a good quality CBD oil to help with any restlessness I may experience crossing over from my current Oxycodone med? I recognise that I may not need it, but just in case. Also the pain doctor recommended that I occasionally
smilingjane
in
Restless Legs Syndrome
3 years ago
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Ropinirole side effects
I have RLS in legs and nervous tension in arms, insomnia, I have been prescribed ropinirole and taking for nearly 2 years. has anyone side effects?
I have RLS in legs and nervous tension in arms, insomnia, I have been prescribed ropinirole and taking for nearly 2 years. has anyone side effects?
Cailen
in
Restless Legs Syndrome
3 years ago
Advice on seizure types
I have just had a 24hour EEG and been told I have multiple seizures on it but am waiting the report. I suspect I might be having partial aware seizures, but dont know yet, where I am aware they have happened as they only last a few seconds. I am wondering if anyone else has experience of this and how
I have just had a 24hour EEG and been told I have multiple seizures on it but am waiting the report. I suspect I might be having partial aware seizures, but dont know yet, where I am aware they have happened as they only last a few seconds. I am wondering if anyone else has experience of this and how
Angie140720
in
Epilepsy Action
3 years ago
meningitis vaccine ca125
Good Afternoon Ladies - I just wanted to check in if anyone has had the meningitis vaccine and then had an increase in their CA125.
Good Afternoon Ladies - I just wanted to check in if anyone has had the meningitis vaccine and then had an increase in their CA125.
Lind58
in
My Ovacome
3 years ago
The one Restless Limb that may have saved me years of trouble.
Back in the day when I was first starting medications to treat my RLS the doctor started with Mirapex and then Requip. At the the lowest dose of each there was quite a reaction. I can "firmly" say that I could not tolerate these medications because they caused painful priapism. Not a very common reaction
Back in the day when I was first starting medications to treat my RLS the doctor started with Mirapex and then Requip. At the the lowest dose of each there was quite a reaction. I can "firmly" say that I could not tolerate these medications because they caused painful priapism. Not a very common reaction
ziggypiggy
in
Restless Legs Syndrome
3 years ago
At my wits end
I am from NZ and have been desperate with my RLS also for months, sometimes not getting to sleep till 4.30am!! I finally went back to my Dr saying something had to be done as I couldnāt carry on with no sleep. Iāve been on 1-2 Madopar for years but it just isnāt working now. As well as Madopar, I
I am from NZ and have been desperate with my RLS also for months, sometimes not getting to sleep till 4.30am!! I finally went back to my Dr saying something had to be done as I couldnāt carry on with no sleep. Iāve been on 1-2 Madopar for years but it just isnāt working now. As well as Madopar, I
Dunedinite
in
Restless Legs Syndrome
3 years ago
Constant Calves twitching for 9 years - anyone else have this?
I never connected the restless legs and constant calves twitching with the zoloft I started 9 1/2 years ago. I had been on impramine and dispramine for 20 years before the switch. I did not have any leg problems on them. Anyone else have constant movement in their calves?
I never connected the restless legs and constant calves twitching with the zoloft I started 9 1/2 years ago. I had been on impramine and dispramine for 20 years before the switch. I did not have any leg problems on them. Anyone else have constant movement in their calves?
Basilanna
in
Restless Legs Syndrome
3 years ago
2 nights with no restless legs
After suffering with severe RLS for the last 6 years (I'm 22) I have finally been referred to a neurologist! He was fantastic š He has started me on Gabapentin 300mg at night. second night in and NO restless legs. He is also wanting to do an MRI to see if there is anything that could explain my rls
After suffering with severe RLS for the last 6 years (I'm 22) I have finally been referred to a neurologist! He was fantastic š He has started me on Gabapentin 300mg at night. second night in and NO restless legs. He is also wanting to do an MRI to see if there is anything that could explain my rls
Jade1998
in
Restless Legs Syndrome
3 years ago
My experience with medically prescribed vaping for RLS
I have had RLS since my 20's and I am now 72. I have avoided taking dopamine agonists and other RLS medications for fear of augmentation. My chosen path is an anti-inflammatory diet, supplements, healthy lifestyle and so far I do manage to live a reasonable life. In the past 2 years I have embraced
I have had RLS since my 20's and I am now 72. I have avoided taking dopamine agonists and other RLS medications for fear of augmentation. My chosen path is an anti-inflammatory diet, supplements, healthy lifestyle and so far I do manage to live a reasonable life. In the past 2 years I have embraced
Goldy700
in
Restless Legs Syndrome
3 years ago
AZ second jab - preparation
Hi all, Im waiting on my second AZ jab. It should be soon. I had my fiirst jab on a Sat, had a flare on the Sunday, felt like I never had a pain in my life on the Monday and was back to 'normal' on the Monday, stiff/sore in the mornings!! I never took anything beforehand like paracetamol or aspirin
Hi all, Im waiting on my second AZ jab. It should be soon. I had my fiirst jab on a Sat, had a flare on the Sunday, felt like I never had a pain in my life on the Monday and was back to 'normal' on the Monday, stiff/sore in the mornings!! I never took anything beforehand like paracetamol or aspirin
lkcreedon
in
PMRGCAuk
3 years ago
Is it safe to have Shingles jab?
Hi everyone, have now been off Pred for six months after having Pmr for nearly seven years. I have been offered a shingles jab, but am reluctant to have it in case my immune system is still low, or it causes pmr to rear it's ugly head again Could I have advice please. Thank you, Jenny x
Hi everyone, have now been off Pred for six months after having Pmr for nearly seven years. I have been offered a shingles jab, but am reluctant to have it in case my immune system is still low, or it causes pmr to rear it's ugly head again Could I have advice please. Thank you, Jenny x
Attic
in
PMRGCAuk
3 years ago
How my restless legs have resolved
Hi everyone. I'll try and be add brief as I can. Hisory: diabetic , sleep apnea (history of smoking heroin ) Basically when i was smoking heroin I would sleep like a baby but back in the day when I was using I would also cease use of heroin easily too. But that is when I would suffer quiet severely
Hi everyone. I'll try and be add brief as I can. Hisory: diabetic , sleep apnea (history of smoking heroin ) Basically when i was smoking heroin I would sleep like a baby but back in the day when I was using I would also cease use of heroin easily too. But that is when I would suffer quiet severely
biggurs
in
Restless Legs Syndrome
3 years ago
Supplements to help with DAWS
Has anyone had success with supplements to help repair dopamine damage from DAWS? These are supplements I found from research. Not entirely sure which are most appropriate. Dopa Maxx: https://www.integrativepsychiatry.net/shop/ip-formulas/dopa-maxx-dopamine-supplement/ L-Theanine: https://www.amazon.com
Has anyone had success with supplements to help repair dopamine damage from DAWS? These are supplements I found from research. Not entirely sure which are most appropriate. Dopa Maxx: https://www.integrativepsychiatry.net/shop/ip-formulas/dopa-maxx-dopamine-supplement/ L-Theanine: https://www.amazon.com
Discopage
in
Restless Legs Syndrome
3 years ago
Weening off oxycodone targinact
Iam trying to wean off oxycodone targinact20mg twice a day iam now taking 10 g at night and 5mg in the morning but have awfull withdraw symptons and very depressed as the medi ation was not lasting the 12hrs my rls has come back awful,and having no sleep feeling as if life n ot worth living should
Iam trying to wean off oxycodone targinact20mg twice a day iam now taking 10 g at night and 5mg in the morning but have awfull withdraw symptons and very depressed as the medi ation was not lasting the 12hrs my rls has come back awful,and having no sleep feeling as if life n ot worth living should
Hidden
in
Restless Legs Syndrome
3 years ago
Blood clotting disorder
Hi I also have a blood clotting disorder . Mine is called factor v Leiden for which I take 75 mg aspirin per day . Apparently itās hereditary which dr argued at first that it wasnāt . Anyways after urging my daughter to get blood test sure enough she has it too .
Hi I also have a blood clotting disorder . Mine is called factor v Leiden for which I take 75 mg aspirin per day . Apparently itās hereditary which dr argued at first that it wasnāt . Anyways after urging my daughter to get blood test sure enough she has it too .
Looby60
in
PMRGCAuk
3 years ago
Life after Ropinirole.
Hello. I've had RLS my whole life. 30 years ago I was put on prozac for depression. My RLS got a bit worse but it wasn't a huge problem until I started hormone replacement. My symptoms became chronic and I started taking Ropinirole without any knowledge of the horrors of this drug. Three years ago, after
Hello. I've had RLS my whole life. 30 years ago I was put on prozac for depression. My RLS got a bit worse but it wasn't a huge problem until I started hormone replacement. My symptoms became chronic and I started taking Ropinirole without any knowledge of the horrors of this drug. Three years ago, after
Birdland
in
Restless Legs Syndrome
3 years ago
Trying to manage, and afraid
I've posted a few times before on the forum re RLS. I 'manage' my RLS with one 0.18mg Pramipexole tablet in the evening which at least allows me to be symptom-free by bedtime and I know I will sleep a good 5 hours. I do suffer RLS during the course of the day though, and although I know I could ask
I've posted a few times before on the forum re RLS. I 'manage' my RLS with one 0.18mg Pramipexole tablet in the evening which at least allows me to be symptom-free by bedtime and I know I will sleep a good 5 hours. I do suffer RLS during the course of the day though, and although I know I could ask
Sueloops
in
Restless Legs Syndrome
3 years ago
Dopamine Agonist Official Withdrawal Advice (from Dr Earley??)
Just found this "detox" advice on a RLS Facebook page I was looking through. It's the first time I've ever seen a formal sheet explaining what will happen during DA withdrawal. It certainly reflects what I went through. It might be useful for anyone going through it, or thinking of doing so. It would
Just found this "detox" advice on a RLS Facebook page I was looking through. It's the first time I've ever seen a formal sheet explaining what will happen during DA withdrawal. It certainly reflects what I went through. It might be useful for anyone going through it, or thinking of doing so. It would
Joolsg
in
Restless Legs Syndrome
3 years ago
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