Ropinirole side effects: I have RLS in... - Restless Legs Syn...

Restless Legs Syndrome

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Ropinirole side effects

Cailen profile image
9 Replies

I have RLS in legs and nervous tension in arms, insomnia, I have been prescribed ropinirole and taking for nearly 2 years.

has anyone side effects?

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Cailen profile image
Cailen
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9 Replies
Madlegs1 profile image
Madlegs1

Please check out " augmentation" .There is probably a pinned post somewhere on this page, or use the search icon.

Good luck.

Joolsg profile image
Joolsg

Thousands and thousands suffer Augmentation on Ropinirole so, as Madlegs advises, read the pinned post so you know what to look out for. Also Impulse Control Disorder ( over eating, compulsive spending/ gambling, hypersexuality). Any doctor prescribing Ropinirole should clearly point out these risks.Before prescribing any meds, doctors should first have arranged a full panel ood test as many cases can be completely resolved by raising brain iron levels. Seru ferritin above 100 can also prevent/delay Augmentation.

Which country are you in? If UK, have a look at the NICE and NHS guidelines on RLS.

Maureen133 profile image
Maureen133

I take 4 a day,10oc,2oc6oc,10oc.i take 2 tramadol x2 at 10oc and 10oc.It helps a lot.

Shaft1952 profile image
Shaft1952

Hi Cailen it is a good few years since I had ropinerole, so can't totally remember the side effects. The best place to look for side effects of RLS drugs are. It has a page with all medication prescribed & side effects rls-uk.org, you will also find lots of other information on rls. Hope this helps. Shakey52

Michaelblue profile image
Michaelblue

I have had RLS since the age of 18 I am now 90. Nothing has helped including Ropinerol and increased dosage. Earlier this year it got so bad I had no sleep day and night I was prescribed Quinine and then Pre gablin both caused increased problems and I started falling and was in dreadful pain . My partner (a retired nurse) finally got a GP to listen to her and stopped the quinine and pre gablin and started taking Amitriptyline 10mg . I now feel so much better I sleep well so my legs are still. I still have times when I cannot control the RLS but at least most nights I can sleep.

Joolsg profile image
Joolsg in reply to Michaelblue

You're clearly in the 1% category for whom Amitriptyline doesn't worsen RLS. It made mine 2000% worse.Thank goodness your partner is looking out for you. Quinine is not used for RLS and can cause heart issues. Your GP clearly isn't knowledgeable.

Good to hear you're sleeping better.

ziggypiggy profile image
ziggypiggy in reply to Joolsg

RLS is weird that way. It would be interesting if we had a poll where everyone listed the one medication that was the worst for RLS?

Mattly profile image
Mattly

People have mentioned augmentation. I've been on ropinirole for 4 years and have avoided it, possibly - though can't be certain - by following a simple regime: 1) Don't increase the dose (Still on 0.5mg per day) and 2) Take breaks from your Ropinirole now and again - a few days - to give your body some time away from it. You may struggle through those days, but its worth it to avoid augmentation.

In terms of side effects, if I've been on it continually for a while I can feel light headed and drowsy, and at its most extreme I get almost narcolepsy style moments where I drop off suddenly during the day, though fortunately not when I'm mentally engaged such as when driving or cooking.

dklohrey profile image
dklohrey

Besides the eventual onslaught of augmentation (I was lucky. Was able to take ropinirole for over 20 years, though I did end up taking 3mg at the end of its effectiveness.), the only side effect I was aware of was impulse eating. Once I went off of it, I lost about 40 pounds over a three month period.

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