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Pramipexole supplies
Festive greetings to fellow sufferers…… I have been having difficulties in getting my Pramipexole prescription lately. Pharmacy2U say their suppliers have said that they are out of stock of this drug and I now find many local pharmacies are too! I have been using Lloyds Princess Risborough just recently
Festive greetings to fellow sufferers…… I have been having difficulties in getting my Pramipexole prescription lately. Pharmacy2U say their suppliers have said that they are out of stock of this drug and I now find many local pharmacies are too! I have been using Lloyds Princess Risborough just recently
Johnnycomelately99
in
Restless Legs Syndrome
2 years ago
PBC and AIH - other autoimmune issues.
Does anyone here have issues with tremors and sudden body jerks from head to toe? I have gotten so bad that I have pending MRI and EEG scheduled. I'm very worried.
Does anyone here have issues with tremors and sudden body jerks from head to toe? I have gotten so bad that I have pending MRI and EEG scheduled. I'm very worried.
Frostingfun
in
PBCers Organization
2 years ago
Targin and pregabalin
for the last three years I use Targin10/5 mg and 75mg pregabalin it works for 75% at the moment But the 25% what is left is very bad when in full blow nothing helps any more and life is not worth living. My question is would medicinal cannabis at that time help ?
for the last three years I use Targin10/5 mg and 75mg pregabalin it works for 75% at the moment But the 25% what is left is very bad when in full blow nothing helps any more and life is not worth living. My question is would medicinal cannabis at that time help ?
Aetje
in
Restless Legs Syndrome
2 years ago
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FND seizures
Hi, my daughter started to have seizures in September out of the blue, she’s 14 soon to be 15. She went to a&e who said bloods and ecg heart trace was all good and sent us in our way - being discharged during a seizure was the biggest let down yet! We were scared and unsupported. We had a neurologist
Hi, my daughter started to have seizures in September out of the blue, she’s 14 soon to be 15. She went to a&e who said bloods and ecg heart trace was all good and sent us in our way - being discharged during a seizure was the biggest let down yet! We were scared and unsupported. We had a neurologist
Alba-1
in
Functional Neurological Disorder - FND Hope
2 years ago
Shingles vaccine to have or not to have
My rheumie has recommended that I have the shingles jab. and informed the vaccination centre. A lady from there phoned me regarding this and I said I would prefer the non-live vaccine as opposed to the live one. She said that I could not choose as the nurse would decide after seeing me. I was diagnosed
My rheumie has recommended that I have the shingles jab. and informed the vaccination centre. A lady from there phoned me regarding this and I said I would prefer the non-live vaccine as opposed to the live one. She said that I could not choose as the nurse would decide after seeing me. I was diagnosed
PatB1948
in
PMRGCAuk
2 years ago
I may have Lyme but I ain't no Lemon!
Hello all Follow up to my original post from six months ago! I was diagnosed with PMR back in March of this year. Despite pred my symptoms were still apparent and was referred to a rheumatologist in September. He thought it wasn't PMR but really didn't know what it was! However a blood test was
Hello all Follow up to my original post from six months ago! I was diagnosed with PMR back in March of this year. Despite pred my symptoms were still apparent and was referred to a rheumatologist in September. He thought it wasn't PMR but really didn't know what it was! However a blood test was
hib61
in
PMRGCAuk
2 years ago
Frustration with Pregabalin
My appointment with Prof. Walker at Queen Square for RLS is not until February next year, so moving to opioids is not an option until then. In the meantime, since around July (after having been on Ropinirole for 15 years), I moved to taking 300mg Pregabalin of an evening ... which I then have to top
My appointment with Prof. Walker at Queen Square for RLS is not until February next year, so moving to opioids is not an option until then. In the meantime, since around July (after having been on Ropinirole for 15 years), I moved to taking 300mg Pregabalin of an evening ... which I then have to top
67Waterman
in
Restless Legs Syndrome
2 years ago
Lamotrigine and side effects
my 14 yr old has been diagnosed with epilepsy. Started on Lamotrigine 25 my in September, and suggested to go up gradually. She developed blurre vision on and off, blocked nose and runny nose , poor sleep since starting and I am reluctant to up the dose. She remains on same dose. Blurred vision has slightly
my 14 yr old has been diagnosed with epilepsy. Started on Lamotrigine 25 my in September, and suggested to go up gradually. She developed blurre vision on and off, blocked nose and runny nose , poor sleep since starting and I am reluctant to up the dose. She remains on same dose. Blurred vision has slightly
Upsydaisy2005
in
Epilepsy Action
2 years ago
NEURO LIFE NOW SURVEY UK
To raise awareness of the lack of medical training and the poor treatment of RLS in the UK, it would be very helpful if all UK RLS patients would complete this survey by Neuro Life Now. It's run by the Brain and Spine Foundation and they receive funding for research and treatment. Share it on other platforms
To raise awareness of the lack of medical training and the poor treatment of RLS in the UK, it would be very helpful if all UK RLS patients would complete this survey by Neuro Life Now. It's run by the Brain and Spine Foundation and they receive funding for research and treatment. Share it on other platforms
Joolsg
in
Restless Legs Syndrome
2 years ago
Lumbar injection after shingles CLL
Hi everyone, I had shingles six months ago, leaving me with nerve problems in my left leg. I have received an appointment for a lumbar puncture which has left me a bit worried, is this because they think something is going on with the CLL in my spine? I can't ask the specialist as I have no follow-up
Hi everyone, I had shingles six months ago, leaving me with nerve problems in my left leg. I have received an appointment for a lumbar puncture which has left me a bit worried, is this because they think something is going on with the CLL in my spine? I can't ask the specialist as I have no follow-up
TOMMOHOODIE
in
CLL Support
2 years ago
Peaceful legs
I have found peaceful legs taking 4 Madopar 100mg tablets spaced out during the day for Parkinsons and 2 Gabapentin 100mg tablets and 2 Tramadol 50mg tablets 1 hour before bed and found that I have no restless legs during the day and a peaceful night finger crossed and everything else hope this
I have found peaceful legs taking 4 Madopar 100mg tablets spaced out during the day for Parkinsons and 2 Gabapentin 100mg tablets and 2 Tramadol 50mg tablets 1 hour before bed and found that I have no restless legs during the day and a peaceful night finger crossed and everything else hope this
auldreekie18
in
Restless Legs Syndrome
2 years ago
History of Epileptic Seizure
I am 60 years old male from India. I had my first onset of seizure in my youth days ( 35 years ago). Though it was not clear from EEG but I was put on Dilantin 200 mg. It was controlled for 3 years and then started again from 1990. Eptoin was started in place of Dilantin for 250mg. But the episodes
I am 60 years old male from India. I had my first onset of seizure in my youth days ( 35 years ago). Though it was not clear from EEG but I was put on Dilantin 200 mg. It was controlled for 3 years and then started again from 1990. Eptoin was started in place of Dilantin for 250mg. But the episodes
das1234
in
Epilepsy Action
2 years ago
Day 14 without Ropinirole, does it ever get better?
Hi all, Thought I'd leave a bit of an update here for others to see who are going through this. Day 1: The first night and the following day were not as bad as I expected, the RLS was maybe 5 out of 10, plenty enough to stop me from sleeping but it didn't spread to my arms and chest like it had been
Hi all, Thought I'd leave a bit of an update here for others to see who are going through this. Day 1: The first night and the following day were not as bad as I expected, the RLS was maybe 5 out of 10, plenty enough to stop me from sleeping but it didn't spread to my arms and chest like it had been
Hazuki
in
Restless Legs Syndrome
2 years ago
Weight gain on methadone?
I finally found a doctor in Sarasota who prescribes methadone. The plan is to stop Tramadol and switch to methadone. Will I gain weight - does it slow metabolism? I've been reading that some people have problems and I tend to gain weight easily. Anyone have experience? Thanks for your comments.
I finally found a doctor in Sarasota who prescribes methadone. The plan is to stop Tramadol and switch to methadone. Will I gain weight - does it slow metabolism? I've been reading that some people have problems and I tend to gain weight easily. Anyone have experience? Thanks for your comments.
Hidden
in
Restless Legs Syndrome
2 years ago
Help from those taking Methadone
I need a shoulder replacement and is scheduled soon. I have been taking methadone to control my RLS. When I told my surgeon that I was taking methadone, he told me that he could not manage my pain. He said that anything that he gave me wouldn’t control my pain. He suggested to ask my neurologist or go
I need a shoulder replacement and is scheduled soon. I have been taking methadone to control my RLS. When I told my surgeon that I was taking methadone, he told me that he could not manage my pain. He said that anything that he gave me wouldn’t control my pain. He suggested to ask my neurologist or go
Merny5
in
Restless Legs Syndrome
2 years ago
HRT and RLS
Hello everyone, Just wanted some advice please. I have been able to reduce my dosage of Ropinirole to 1.5mg with the unexpected help of HRT. I would like to reduce further and although I need to up the HRT dose, which may help. I am considering trying Magnesium. Any advice would as always be gratefully
Hello everyone, Just wanted some advice please. I have been able to reduce my dosage of Ropinirole to 1.5mg with the unexpected help of HRT. I would like to reduce further and although I need to up the HRT dose, which may help. I am considering trying Magnesium. Any advice would as always be gratefully
21years
in
Restless Legs Syndrome
2 years ago
RSL and clonazepam
For me the ONLY thing that has worked is Clonazepam 2mg at night. Sometimes I have to take a second one during the night if the RLS is back. This has worked for me for years but I certainly worry about the addictive nature of benzodiazepines. But I’m not giving it up. I’m 73 now and I will take it for
For me the ONLY thing that has worked is Clonazepam 2mg at night. Sometimes I have to take a second one during the night if the RLS is back. This has worked for me for years but I certainly worry about the addictive nature of benzodiazepines. But I’m not giving it up. I’m 73 now and I will take it for
Hidden
in
Restless Legs Syndrome
2 years ago
Antidepressant recommendations
Well, my anxiety and depression just keep getting worse. Nearly unbearable now.What types of antidepressants have any of you had experience/success with during the transition off of the DAs? I have not been able to conclusively blame my symptoms on either the lack of dopamine or the soboxone. For those
Well, my anxiety and depression just keep getting worse. Nearly unbearable now.What types of antidepressants have any of you had experience/success with during the transition off of the DAs? I have not been able to conclusively blame my symptoms on either the lack of dopamine or the soboxone. For those
climber54
in
Restless Legs Syndrome
2 years ago
Ashwaganda?
I just saw someone posting on another site that Ashwaganda has really helped their RLS. Does anyone have any thoughts on this please? I currently take Tramadol but only when desperate as I don't really want to be dependent on any drug if I can avoid it. However I have had to appreciate that I am taking
I just saw someone posting on another site that Ashwaganda has really helped their RLS. Does anyone have any thoughts on this please? I currently take Tramadol but only when desperate as I don't really want to be dependent on any drug if I can avoid it. However I have had to appreciate that I am taking
Seaview20
in
Restless Legs Syndrome
2 years ago
Do you want you doctor to prescribe an opioid instead of DA ?John Hopkins statistics on both.
This may help you when requesting an opioid verses the doctor wishing to prescribe DA https://www.hopkinsmedicine.org/neurology_neurosurgery/centers_clinics/restless-legs-syndrome/what-is-rls/treatment.html I am typing this information direct from John hopkins treatment article. An estimated 85%
This may help you when requesting an opioid verses the doctor wishing to prescribe DA https://www.hopkinsmedicine.org/neurology_neurosurgery/centers_clinics/restless-legs-syndrome/what-is-rls/treatment.html I am typing this information direct from John hopkins treatment article. An estimated 85%
Shumbah
in
Restless Legs Syndrome
2 years ago
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