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Update on rls
Hello everyone, just an update to let you know how I have been getting on since coming off the dopamine agonist. It's around 3 months now since I took my last tiny piece of pramipexole, after a pretty rough time of crawling legs, arms, shoulder shivers, I'm finally getting better!!! While coming off
Hello everyone, just an update to let you know how I have been getting on since coming off the dopamine agonist. It's around 3 months now since I took my last tiny piece of pramipexole, after a pretty rough time of crawling legs, arms, shoulder shivers, I'm finally getting better!!! While coming off
Loopylegs
in
Restless Legs Syndrome
9 months ago
gabapentin side effects
I’ve been on gabaoentin approximately 16 weeks, I’m on 2 tablets 3 times a day, my restless legs are much better and am able to get some sleep. Unfortunately I cannot cope with the bad side effects, I have rung the doctor and am still waiting for a reply, I want to reduce the amount of tablets to see
I’ve been on gabaoentin approximately 16 weeks, I’m on 2 tablets 3 times a day, my restless legs are much better and am able to get some sleep. Unfortunately I cannot cope with the bad side effects, I have rung the doctor and am still waiting for a reply, I want to reduce the amount of tablets to see
Hublot
in
Restless Legs Syndrome
9 months ago
Shingles vaccine
Just seen the BBC news health website. Shingles vaccines being offered to over 65’s ( was 70) and, even better, to vulnerable immune suppressed people over 55 from September 2023.
Just seen the BBC news health website. Shingles vaccines being offered to over 65’s ( was 70) and, even better, to vulnerable immune suppressed people over 55 from September 2023.
Amnesiac3637
in
NRAS
1 year ago
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Follow up from my post about cellulitis
Sorry should have said that I am on 10 mg of Pred.
Sorry should have said that I am on 10 mg of Pred.
Dobermanlover
in
PMRGCAuk
1 year ago
CELLULITIS
Has anyone had cellulitis? I have had it for just over a week and have just completed a 7 day course of Flucloxacillin. I did not see a doctor - just had to post a photo of my leg, so haven't had the opportunity of discussing it with him. From the web it sounds quite serious, but don't like taking
Has anyone had cellulitis? I have had it for just over a week and have just completed a 7 day course of Flucloxacillin. I did not see a doctor - just had to post a photo of my leg, so haven't had the opportunity of discussing it with him. From the web it sounds quite serious, but don't like taking
Dobermanlover
in
PMRGCAuk
1 year ago
ibuprofen & Pramipexole
Nearly 3am and wondering why the Pramipexole is not working. Have just discovered that Ibuprofen renders Pramipexole ineffective and I took a couple of Ibuprofen as a pain killer. Will I ever get to sleep? Does the Ibuprofen wear off.? If/when it does, will the the pramipexole kick in or do I have to
Nearly 3am and wondering why the Pramipexole is not working. Have just discovered that Ibuprofen renders Pramipexole ineffective and I took a couple of Ibuprofen as a pain killer. Will I ever get to sleep? Does the Ibuprofen wear off.? If/when it does, will the the pramipexole kick in or do I have to
Millersman
in
Restless Legs Syndrome
9 months ago
Torturous world of RLS
I have no words, I have been to see 2 pain specialists, 2 neurologists for ongoing nerve damage pain, back pain and restless leg pain and symptoms..e.g continual torturing tugging, electric prod like pain and jerking of whole limb. I discovered when I had my last spinal operation that the Buprenorphine
I have no words, I have been to see 2 pain specialists, 2 neurologists for ongoing nerve damage pain, back pain and restless leg pain and symptoms..e.g continual torturing tugging, electric prod like pain and jerking of whole limb. I discovered when I had my last spinal operation that the Buprenorphine
Hidden
in
Restless Legs Syndrome
9 months ago
RLS medication side effects
Good Morning. I've suffered with restless legs for the best part of 50 years without wanting to boar anyone press-ups used to be my go to cure. But as I've got older they no longer work. I've been on Gabapentin for three or more years, initially it worked fine, I take a 100mg at noon a 300mg early evening
Good Morning. I've suffered with restless legs for the best part of 50 years without wanting to boar anyone press-ups used to be my go to cure. But as I've got older they no longer work. I've been on Gabapentin for three or more years, initially it worked fine, I take a 100mg at noon a 300mg early evening
whitney2044
in
Restless Legs Syndrome
9 months ago
Ropinirole should be banned.
I suffer from severe RLS. It started around 2010, once or twice a week. Within the past two years it has gotten worse. Now it is every night and sometimes starts when I am just sitting in the early evening. The first medication I was prescribed was Ropinirole. It reduced the symptoms for about three
I suffer from severe RLS. It started around 2010, once or twice a week. Within the past two years it has gotten worse. Now it is every night and sometimes starts when I am just sitting in the early evening. The first medication I was prescribed was Ropinirole. It reduced the symptoms for about three
DCM556
in
Restless Legs Syndrome
9 months ago
Jaw and Shoulder Pain
Did anyone have jaw and/or shoulder pain that was eventually relieved once they found their sweetspot? I am 24 days on 100mcg T4 and 5mcg T3. I have the jaw and shoulder pain, plus still very tired. I think the brain fog is somewhat better. It is hard to sort out brain fog and fatigue at times. I can
Did anyone have jaw and/or shoulder pain that was eventually relieved once they found their sweetspot? I am 24 days on 100mcg T4 and 5mcg T3. I have the jaw and shoulder pain, plus still very tired. I think the brain fog is somewhat better. It is hard to sort out brain fog and fatigue at times. I can
HeartWoman
in
Thyroid UK
1 year ago
Rls living hell
Hi I've been suffering from rls badly for around 5 years and have been very low and depressed because of this condition, I mainly suffer very bad at night with the crawling feeling and the constant need to move my limbs, thus started in my legs but now has moved to my arms. I just pray for something
Hi I've been suffering from rls badly for around 5 years and have been very low and depressed because of this condition, I mainly suffer very bad at night with the crawling feeling and the constant need to move my limbs, thus started in my legs but now has moved to my arms. I just pray for something
Rangers52
in
Restless Legs Syndrome
9 months ago
*MCAS
We are currently in the middle of an important fundraising campaign to kickstart the production of a documentary. We are contacting businesses and individuals who share our passion for helping people with MCAS. Your donation, no matter how big or small, can make a meaningful impact and will be put to
We are currently in the middle of an important fundraising campaign to kickstart the production of a documentary. We are contacting businesses and individuals who share our passion for helping people with MCAS. Your donation, no matter how big or small, can make a meaningful impact and will be put to
Shewulf
Administrator
in
LDN Research Trust
1 year ago
Restless legs
Morning hun. Iv had it for around 20 years iv always managed okBut Last Tuesday it started really bad and its day and night. Drs have given me some tablets for Parkinson they ste Not working. I'm just in the lounge walking all night 1-3 ,hour sleep a night Went to hospital Saturday they done bloods
Morning hun. Iv had it for around 20 years iv always managed okBut Last Tuesday it started really bad and its day and night. Drs have given me some tablets for Parkinson they ste Not working. I'm just in the lounge walking all night 1-3 ,hour sleep a night Went to hospital Saturday they done bloods
Frenhies
in
Restless Legs Syndrome
9 months ago
Antihistamine creams
Hi everyone, I have been blessed to be totally free of RLS using my current meds for over 9 months now ,not so much as a twinge .However last night my RLS was horrendous up and down pacing for hours (we all know the drill).I couldn't think of any reason for it but around 4 o'clock it came to me I had
Hi everyone, I have been blessed to be totally free of RLS using my current meds for over 9 months now ,not so much as a twinge .However last night my RLS was horrendous up and down pacing for hours (we all know the drill).I couldn't think of any reason for it but around 4 o'clock it came to me I had
Pippins2
in
Restless Legs Syndrome
10 months ago
relieved?
I got a message from the doctor today saying my EEG was normal. I should feel relieved but I don’t. I’m happy nothing is wrong but it leaves me without any answers. What are these episodes that I have? Will they eventually get worse? What’s causing them? I didn’t think these tests would prove anything
I got a message from the doctor today saying my EEG was normal. I should feel relieved but I don’t. I’m happy nothing is wrong but it leaves me without any answers. What are these episodes that I have? Will they eventually get worse? What’s causing them? I didn’t think these tests would prove anything
CLB1125
in
Anxiety and Depression Support
11 months ago
Home video Ambulatory Electroencephalogram
Since my follow up with Neurologist with possible FND diagnosis, I have received an appointment to attend for a 24/48 hour HVA EEG. I’m interested to know who else may have had this procedure and what to expect. What are they investigating /eliminating ? Any positive and /or negatives to report are
Since my follow up with Neurologist with possible FND diagnosis, I have received an appointment to attend for a 24/48 hour HVA EEG. I’m interested to know who else may have had this procedure and what to expect. What are they investigating /eliminating ? Any positive and /or negatives to report are
Maynan17
in
FND Action
11 months ago
THC Gummies
THC gummies worked for the first couple of times but, last time I took it I was super paranoid and definitely not sleeping. It’s not for me . To date, I’m taking one Pramipexole and one 12.5 ambien day night and sleep 4-5 hours and experience mild to no symptoms the following day. So far so good
THC gummies worked for the first couple of times but, last time I took it I was super paranoid and definitely not sleeping. It’s not for me . To date, I’m taking one Pramipexole and one 12.5 ambien day night and sleep 4-5 hours and experience mild to no symptoms the following day. So far so good
tuckerdog109
in
Restless Legs Syndrome
10 months ago
Success with clonidine as a supplementary medication
Sharing some recent success. I have taken pregabalin 300mg for a number of years but have also supplemented it with a very small dose of clonazepam (between 0.125 and 0.5m) I started weaning off clonazepam approx 3 months ago because it's not desirable to take benzodiazepines long term (i'm weaning
Sharing some recent success. I have taken pregabalin 300mg for a number of years but have also supplemented it with a very small dose of clonazepam (between 0.125 and 0.5m) I started weaning off clonazepam approx 3 months ago because it's not desirable to take benzodiazepines long term (i'm weaning
Hidden
in
Restless Legs Syndrome
10 months ago
THC/CBD/CBN
Has anyone used THC,CBD,CBN for restless leg or insomnia. I am just starting to try in hopes to either get off of the drugs I am on for RLS/Insomnia which are low dose pregabalin and klonopin. Just curious about peoples experience and whether there are any benefits.
Has anyone used THC,CBD,CBN for restless leg or insomnia. I am just starting to try in hopes to either get off of the drugs I am on for RLS/Insomnia which are low dose pregabalin and klonopin. Just curious about peoples experience and whether there are any benefits.
Thyroid2468
in
Restless Legs Syndrome
10 months ago
Doctors now talking Buprenorphine
https://www.medscape.com/viewarticle/994959?ecd=wnl_infocu1_broad_broad_persoexpansion-both_20230916_etid5859143&uac=370159DG&impID=5859143 I so hope this link works regarding Dr Beckers use of Buprenorphine for chronic pain. Remember when you are trying to get Bup or medical CBD or THC the word is
https://www.medscape.com/viewarticle/994959?ecd=wnl_infocu1_broad_broad_persoexpansion-both_20230916_etid5859143&uac=370159DG&impID=5859143 I so hope this link works regarding Dr Beckers use of Buprenorphine for chronic pain. Remember when you are trying to get Bup or medical CBD or THC the word is
Shumbah
in
Restless Legs Syndrome
10 months ago
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