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Augmentation- Report via Yellow Card Scheme
The MHRA is encouraging people to report adverse side effects via the Yellow Card Scheme. If you have suffered drug induced worsening on Ropinirole, Pramipexole or the Neupro patch, please report to help raise awareness among medical professionals. https://content.govdelivery.com/accounts/UKMHRA/bulletins
The MHRA is encouraging people to report adverse side effects via the Yellow Card Scheme. If you have suffered drug induced worsening on Ropinirole, Pramipexole or the Neupro patch, please report to help raise awareness among medical professionals. https://content.govdelivery.com/accounts/UKMHRA/bulletins
Joolsg
in
Restless Legs Syndrome
8 months ago
Shingles Vaccine
I have RA and am currently taking hydroxychloroquin, methotrexate and amgevita. I’m trying to work out whether at age 61 with a compromised immune system, I will qualify for the new shingrix (shingles non-live) vaccine on the NHS? Does anyone know?
I have RA and am currently taking hydroxychloroquin, methotrexate and amgevita. I’m trying to work out whether at age 61 with a compromised immune system, I will qualify for the new shingrix (shingles non-live) vaccine on the NHS? Does anyone know?
CagneysMum
in
NRAS
11 months ago
Psilocybin
Dear friends: I recently read a post by someone who had a resolution of RLS after medically supervised use of psilocybin. After taking Mirapex, Gabapentin, OxyContin, Methadone, and Horizant, I am desperate for alternatives. The poster lives in CA as do I. I am unable to locate the post via searching
Dear friends: I recently read a post by someone who had a resolution of RLS after medically supervised use of psilocybin. After taking Mirapex, Gabapentin, OxyContin, Methadone, and Horizant, I am desperate for alternatives. The poster lives in CA as do I. I am unable to locate the post via searching
JustVisiting23
in
Restless Legs Syndrome
8 months ago
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Side Effects - Ropinirole & Pramipexole
Hi all, I found that the generic Ropinirole gave me nausea but the commercial ReQuip didn't, now ReQuip is being manufactured under license for GSK and the "commercial" ReQuip is giving me nausea. I have thus switched to Pramipexole and I am currently 3 days into GLEPARK generic version, it is giving
Hi all, I found that the generic Ropinirole gave me nausea but the commercial ReQuip didn't, now ReQuip is being manufactured under license for GSK and the "commercial" ReQuip is giving me nausea. I have thus switched to Pramipexole and I am currently 3 days into GLEPARK generic version, it is giving
PaddyMac1
in
Restless Legs Syndrome
8 months ago
Newbie
Please forgive me if I am totally wrong as I have had zero sleep for two nights now. I was put on Pramipexole (i think that is what it is called) but when I needed to increase the dose to four a night I was unable to sleep due to insomnia, so two days ago I started taking Ropinirole which feels like
Please forgive me if I am totally wrong as I have had zero sleep for two nights now. I was put on Pramipexole (i think that is what it is called) but when I needed to increase the dose to four a night I was unable to sleep due to insomnia, so two days ago I started taking Ropinirole which feels like
Gardeninglover8
in
Restless Legs Syndrome
8 months ago
Pramipexole RLS symptoms worse
Just started taking Pramipexole for RLS for the first night. Wow, didn’t know the symptoms would become totally overwhelming all over body too.is this normal, does it settle down? I have Fibromyalgia, which means I also take Duloxetine for the pain and am medication sensitive, but never thought it would
Just started taking Pramipexole for RLS for the first night. Wow, didn’t know the symptoms would become totally overwhelming all over body too.is this normal, does it settle down? I have Fibromyalgia, which means I also take Duloxetine for the pain and am medication sensitive, but never thought it would
Fra3021
in
Restless Legs Syndrome
8 months ago
Shingles Vaccine
Shingles Vaccine From September 2023 you will be eligible for vaccine from age 65. Advertised on TV yesterday Rose
Shingles Vaccine From September 2023 you will be eligible for vaccine from age 65. Advertised on TV yesterday Rose
Rose54
in
PMRGCAuk
11 months ago
Buprenorphine / Gloucestershire or nearish
Does anyone living in Gloucestershire Uk know of a Dr / Neurologist that is happy to prescribe Buprenorphine for Ropinirole withdrawal ? My Gp wont . Neurologist in Bath will but has ignored last 5 emails and found a neurologist in Wales who also wont . Grateful for any suggestions . Thanks in advance
Does anyone living in Gloucestershire Uk know of a Dr / Neurologist that is happy to prescribe Buprenorphine for Ropinirole withdrawal ? My Gp wont . Neurologist in Bath will but has ignored last 5 emails and found a neurologist in Wales who also wont . Grateful for any suggestions . Thanks in advance
Huntingleroy
in
Restless Legs Syndrome
8 months ago
RLS returned after taking Duloxetine
Had RLS for many years, associated with Fibromyalgia. Having taken Amitriptylene, Nortriptyline , Pregabalin for my Fibro, my RLS has been under control. Recently started taking Duloxetine to help my Fibro and my RLS has returned with a vengeance. I get very little sleep, as soon as my head hits pillow
Had RLS for many years, associated with Fibromyalgia. Having taken Amitriptylene, Nortriptyline , Pregabalin for my Fibro, my RLS has been under control. Recently started taking Duloxetine to help my Fibro and my RLS has returned with a vengeance. I get very little sleep, as soon as my head hits pillow
Fra3021
in
Restless Legs Syndrome
8 months ago
switching meds
I have really bad RLS. I took pramiprexole and had every side effect. I went through augmentation and went through horrible withdrawal. I did try gabapentin when I was on the DAs and felt super doped up in the morning. I ended up stopping taking it. After I got of the DAs I tried without meds hoping
I have really bad RLS. I took pramiprexole and had every side effect. I went through augmentation and went through horrible withdrawal. I did try gabapentin when I was on the DAs and felt super doped up in the morning. I ended up stopping taking it. After I got of the DAs I tried without meds hoping
senders
in
Restless Legs Syndrome
9 months ago
40 years of RLS
I started with RLS about 40 years ago. Over the past 15 years, it has been diagnosed as severe.I have tried all of the dopamine drugs, none worked except for pramipexol, I have augmented and spent the past year still trying to get off this. I am under a sleep specialist and on 50mg of oxycodone per
I started with RLS about 40 years ago. Over the past 15 years, it has been diagnosed as severe.I have tried all of the dopamine drugs, none worked except for pramipexol, I have augmented and spent the past year still trying to get off this. I am under a sleep specialist and on 50mg of oxycodone per
Trish8433
in
Restless Legs Syndrome
9 months ago
Webinar: Charles Bonnet Syndrome
Dr Jasleen K Jolly, from the Vision and Eye Research Institute at Anglia Ruskin University, joins us tonight for our next My Macular and Me webinar to discuss her latest research on Charles Bonnet syndrome. The research has been split into two studies, the first uses an MRI to observe the activity levels
Dr Jasleen K Jolly, from the Vision and Eye Research Institute at Anglia Ruskin University, joins us tonight for our next My Macular and Me webinar to discuss her latest research on Charles Bonnet syndrome. The research has been split into two studies, the first uses an MRI to observe the activity levels
Carol_MacularSociety
Partner
in
Macular Society
11 months ago
New research: Aripiprazole, a Novel Option in the Management of Restless Legs Syndrome (2023)
A new paper reporting a small case series of 4 patients who got relief from low dose aripiprazole (abilify ) after augmentation that was resistant to other treatment. https://pubmed.ncbi.nlm.nih.gov/37818170/ Does anyone have any experience with aripiprazole? I took it long ago, before I was even
A new paper reporting a small case series of 4 patients who got relief from low dose aripiprazole (abilify ) after augmentation that was resistant to other treatment. https://pubmed.ncbi.nlm.nih.gov/37818170/ Does anyone have any experience with aripiprazole? I took it long ago, before I was even
Avart
in
Restless Legs Syndrome
9 months ago
Thoughts please
I hope this post is not too long but it's hard to fully explain. I have had severe RLS for 30 years - it started during pregnancy but unfortunately never left and has only worsened over the years. I feel like I have been on every drug with minimal help. I take 0.5 which I went through augmentation
I hope this post is not too long but it's hard to fully explain. I have had severe RLS for 30 years - it started during pregnancy but unfortunately never left and has only worsened over the years. I feel like I have been on every drug with minimal help. I take 0.5 which I went through augmentation
AnnMB
in
Restless Legs Syndrome
11 months ago
Generalised and focal epilepsy
Hi, so i was recently diagnosed with epilepsy and my EEG showed generalised epilepsy however all of my symptoms point towards focal epilepsy. I was wondering if this meant anything? i’ve only ever had petit mal sezuires. is this common?
Hi, so i was recently diagnosed with epilepsy and my EEG showed generalised epilepsy however all of my symptoms point towards focal epilepsy. I was wondering if this meant anything? i’ve only ever had petit mal sezuires. is this common?
lilymt3
in
Epilepsy Action
11 months ago
coming off Pramipexole
my doctor has ordered me the amount of Pramipexole he wants me to take to stop completely Pramipexole. Right now .75 mg of Pramipexole at night, with Gabapentin 300 mg. He wants me to cut out a 1/3 of my Pramipexole weekly over 3 weeks and said he may would increase the Gabapentin as needed which will
my doctor has ordered me the amount of Pramipexole he wants me to take to stop completely Pramipexole. Right now .75 mg of Pramipexole at night, with Gabapentin 300 mg. He wants me to cut out a 1/3 of my Pramipexole weekly over 3 weeks and said he may would increase the Gabapentin as needed which will
Moretravel1
in
Restless Legs Syndrome
9 months ago
Supplements to reduce glutamate
I was inspired by Widebody's comments on taurine and glycine to look into supplements that reduce glutamate. I found the following on an autism website that I cannot vouch for, but here is the list: (those of us taking gabapentin, pregabalin, horizont are taking medicine that is reducing brain glutamate
I was inspired by Widebody's comments on taurine and glycine to look into supplements that reduce glutamate. I found the following on an autism website that I cannot vouch for, but here is the list: (those of us taking gabapentin, pregabalin, horizont are taking medicine that is reducing brain glutamate
wantokporo
in
Restless Legs Syndrome
9 months ago
Restless legs medication
I have had restless legs for many years and was taking mirtazapine but it is no longer working. I have tried pramipexole but have had awful headaches. I’m now having awful insomnia which combined with RL means I am getting 2-3 hours sleep each night. What medications have you used that have helped
I have had restless legs for many years and was taking mirtazapine but it is no longer working. I have tried pramipexole but have had awful headaches. I’m now having awful insomnia which combined with RL means I am getting 2-3 hours sleep each night. What medications have you used that have helped
Lin58
in
Restless Legs Syndrome
9 months ago
Ropinirole to Pregabalin
Good Morning RLS team! :) I'm new to this group - very thankful to have found it and the fantastic information that's here. Hurrah for you! Last October I started taking Ropinirole for RLS but have decided I don't want to stay on it any further - I've augmented on that and I have edema in my arms
Good Morning RLS team! :) I'm new to this group - very thankful to have found it and the fantastic information that's here. Hurrah for you! Last October I started taking Ropinirole for RLS but have decided I don't want to stay on it any further - I've augmented on that and I have edema in my arms
missrees
in
Restless Legs Syndrome
9 months ago
Update on rls
Hello everyone, just an update to let you know how I have been getting on since coming off the dopamine agonist. It's around 3 months now since I took my last tiny piece of pramipexole, after a pretty rough time of crawling legs, arms, shoulder shivers, I'm finally getting better!!! While coming off
Hello everyone, just an update to let you know how I have been getting on since coming off the dopamine agonist. It's around 3 months now since I took my last tiny piece of pramipexole, after a pretty rough time of crawling legs, arms, shoulder shivers, I'm finally getting better!!! While coming off
Loopylegs
in
Restless Legs Syndrome
9 months ago
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