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Kidney transplant
I had a kidney transplant nearly 3 years ago. I would like to treat my hair to a wash-in dye, the type that washes after about 6 weeks but I'm not sure this will be OK due to the anti rejection drugs I'm taking. Any advise would be welcome
I had a kidney transplant nearly 3 years ago. I would like to treat my hair to a wash-in dye, the type that washes after about 6 weeks but I'm not sure this will be OK due to the anti rejection drugs I'm taking. Any advise would be welcome
Runquik123
in
Kidney Disease
2 months ago
Post Kidney transplant
My husband had kidney transplant about 3 months ago. Wanted to reach out to you if you had an excessive urination , frequency , urgency and incontinence up to this time. It seems like he urinates most at night I would say what he had drunk during the day ..
My husband had kidney transplant about 3 months ago. Wanted to reach out to you if you had an excessive urination , frequency , urgency and incontinence up to this time. It seems like he urinates most at night I would say what he had drunk during the day ..
Sinigang
in
Kidney Transplant
2 months ago
hematology oncology appointment tomorrow-stressed
Good evening, Tomorrow is my 15 month kidney transplant anniversary (transplant Nov 16. 2022). My battle with CMV appears to be resolved. My CMV data consistently tests “not detected” now and has for the past 3 months. This has been a major battle. I was CMV- pre transplant but the donor kidney was
Good evening, Tomorrow is my 15 month kidney transplant anniversary (transplant Nov 16. 2022). My battle with CMV appears to be resolved. My CMV data consistently tests “not detected” now and has for the past 3 months. This has been a major battle. I was CMV- pre transplant but the donor kidney was
Jayhawker
in
Kidney Transplant
3 months ago
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Confused again 😕
How do you know if your intrinsic factor antibody blood test is good or bad?
How do you know if your intrinsic factor antibody blood test is good or bad?
Popcorn12345
in
Pernicious Anaemia Society
3 months ago
Prolia
I have just received an email from my GP who has arranged for a F2F appointment to see me beginning January to discuss me starting to take Prolia. My last Dexascan in 2021 did show that I have osteoporosis, and I did take Alendronic Acid for the first two years of having Polymyalgia. Since then I have
I have just received an email from my GP who has arranged for a F2F appointment to see me beginning January to discuss me starting to take Prolia. My last Dexascan in 2021 did show that I have osteoporosis, and I did take Alendronic Acid for the first two years of having Polymyalgia. Since then I have
Purplegloss
in
PMRGCAuk
4 months ago
What category of Intermediate Risk Am I?
I am trying to make a decision regarding HT with RT. I am 78. I have CKD 3b, and a solitary kidney. I am 6.5 years in remission from UTUC kidney cancer. A number of papers indicate that HT could be detrimental to my kidney. Those with FIR PCa could avoid HT with little risk. The following is defined
I am trying to make a decision regarding HT with RT. I am 78. I have CKD 3b, and a solitary kidney. I am 6.5 years in remission from UTUC kidney cancer. A number of papers indicate that HT could be detrimental to my kidney. Those with FIR PCa could avoid HT with little risk. The following is defined
Nordman
in
Advanced Prostate Cancer
3 months ago
Phosphorous questions
I have been on home hemo now for almost four months. My phosphorous has steadily increased. I never had issues with Phos until dialysis. They have put me on Sevelamer binder, which totally cemented me up, when I took two a day. I mean in pain constipation. I backed off to one a day, when they wanted
I have been on home hemo now for almost four months. My phosphorous has steadily increased. I never had issues with Phos until dialysis. They have put me on Sevelamer binder, which totally cemented me up, when I took two a day. I mean in pain constipation. I backed off to one a day, when they wanted
Bassetmommer
in
Kidney Dialysis
3 months ago
Hi everyone and Happy New Year
my name is Jill and it’s been along while since I’ve posted anything. I was diagnosed in 1999. Aged 39. Despite being very unwell for months and being ‘fobbed ’ off by my Gp. By the time I was diagnosed I had Saddle Nose deformity. Like alot of you even as a nurse I was very scared and felt alone
my name is Jill and it’s been along while since I’ve posted anything. I was diagnosed in 1999. Aged 39. Despite being very unwell for months and being ‘fobbed ’ off by my Gp. By the time I was diagnosed I had Saddle Nose deformity. Like alot of you even as a nurse I was very scared and felt alone
Essex-jill
in
Vasculitis UK
4 months ago
Retacrit Shots
I’m posting this in hopes it may help other MPN sufferers. In early December, 2023, I saw my longstanding oncologist of 20 years. My labs showed 7.2 hemoglobin I was weak and tired. He sent me to a hematologist at Emory Hospital in Atlanta. The new doctor tested me for my EPO level. Mine barely registered
I’m posting this in hopes it may help other MPN sufferers. In early December, 2023, I saw my longstanding oncologist of 20 years. My labs showed 7.2 hemoglobin I was weak and tired. He sent me to a hematologist at Emory Hospital in Atlanta. The new doctor tested me for my EPO level. Mine barely registered
Bippers
in
MPN Voice
3 months ago
kidney blood test questions
I just had a routine blood test. I won’t be able to see the doctor for answers until Friday and I’m worried and scared. My eGFR numbers dropped from 95 to 44 in one year. My Creatinine numbers are high and my cholesterol numbers also shot way up. I have no symptoms. Has anyone else had such a change
I just had a routine blood test. I won’t be able to see the doctor for answers until Friday and I’m worried and scared. My eGFR numbers dropped from 95 to 44 in one year. My Creatinine numbers are high and my cholesterol numbers also shot way up. I have no symptoms. Has anyone else had such a change
Firemoon
in
Early CKD Support
3 months ago
Imperial College Help please
Hi, further to my last post - thank you all so much - my GP and Renal Consultant are in agreement that I see a rheumatologist as well as continuing to see my renal Consultant. A few people and Vasculitis UK recommended Imperial College as I believe they have a Vasculitis Centre there? I think I've had
Hi, further to my last post - thank you all so much - my GP and Renal Consultant are in agreement that I see a rheumatologist as well as continuing to see my renal Consultant. A few people and Vasculitis UK recommended Imperial College as I believe they have a Vasculitis Centre there? I think I've had
Daisyboodle
in
Vasculitis UK
3 months ago
cranberry powder?
Has anyone used cranberry powder rather than tablets for uti prevention? I’ve had the all clear for mum to take it but she will struggle with the big tabs so looking for a powder equivalent. I may also go down the D mannose route but as that can cause diarrhoea am holding off…….diarrhoea led to a nasty
Has anyone used cranberry powder rather than tablets for uti prevention? I’ve had the all clear for mum to take it but she will struggle with the big tabs so looking for a powder equivalent. I may also go down the D mannose route but as that can cause diarrhoea am holding off…….diarrhoea led to a nasty
RT18
in
PMRGCAuk
3 months ago
Fenofibrates
Someone asked if Dr. Jones' book mentioned the use of fenofibrates.... yes, it does in several places. This might be a good book to have if you are considering using them. He is the leading expert on PBC. Hope it helps... The subject is discussed in the chapter for 'Treatment of PBC'. Many have been
Someone asked if Dr. Jones' book mentioned the use of fenofibrates.... yes, it does in several places. This might be a good book to have if you are considering using them. He is the leading expert on PBC. Hope it helps... The subject is discussed in the chapter for 'Treatment of PBC'. Many have been
DonnaBoll
Administrator
in
PBC Foundation
3 months ago
Gods beautiful creations
Last week I was able to ski with a bunch of my grandkids and all my pics were of them. Some days I felt ill but it was so worth it Today I went snowshoeing in a snow storm. What a peaceful serene setting on those snow covered paths nestled in the pines. Even the village where the trail system begins
Last week I was able to ski with a bunch of my grandkids and all my pics were of them. Some days I felt ill but it was so worth it Today I went snowshoeing in a snow storm. What a peaceful serene setting on those snow covered paths nestled in the pines. Even the village where the trail system begins
skipro
in
CLL Support
3 months ago
Prednisone and kidneys
I was diagnosed with PMR in July 2023 and have been on prednisone ever since, although I have tapered down from 15 mg a day to 13 mg, and will be tapering further down to 12 in the next week or so. My last bloodwork showed higher than normal creatinine levels (104), and a glomerular filtration rate of
I was diagnosed with PMR in July 2023 and have been on prednisone ever since, although I have tapered down from 15 mg a day to 13 mg, and will be tapering further down to 12 in the next week or so. My last bloodwork showed higher than normal creatinine levels (104), and a glomerular filtration rate of
Charlotteab
in
PMRGCAuk
3 months ago
KIDNEY EQUITY FOR ALL
In honor of Black History Month we'd like to highlight KIDNEY EQUITY FOR ALL. This is a patient-focused, community-minded movement dedicated to ensuring that ALL kidney patients have access to high-quality, patient-centered kidney care from the moment of diagnosis to transplantation. To learn more about
In honor of Black History Month we'd like to highlight KIDNEY EQUITY FOR ALL. This is a patient-focused, community-minded movement dedicated to ensuring that ALL kidney patients have access to high-quality, patient-centered kidney care from the moment of diagnosis to transplantation. To learn more about
JackieJ_NKF
Partner
in
Kidney Dialysis
3 months ago
PSA to have stabilized after skyrocketing. What does this mean?
With PSA rising very rapidly four months ago after finishing Eclipse Trial, I had SBRT done immediately followed by Provenge. PSA on the day of SBRT was 2.0. It’s my understanding that Provenge will not affect PSA testing so it’s hard to determine progress. Obviously, there is still cancer still there
With PSA rising very rapidly four months ago after finishing Eclipse Trial, I had SBRT done immediately followed by Provenge. PSA on the day of SBRT was 2.0. It’s my understanding that Provenge will not affect PSA testing so it’s hard to determine progress. Obviously, there is still cancer still there
SViking
in
Advanced Prostate Cancer
3 months ago
Add Nubeqa to Orgovyx?
Age 81. I had prostate radiation in 2021, and pelvic node radiation in 2023. PSA was 3.78 in Dec 2023. PSMA PET then showed cancer growing in prostate, shrinking in pelvic node, but spread to an abdominal node. I have started ADT with Orgovyx (relugolix) and want to add an ARI. The urologist wants
Age 81. I had prostate radiation in 2021, and pelvic node radiation in 2023. PSA was 3.78 in Dec 2023. PSMA PET then showed cancer growing in prostate, shrinking in pelvic node, but spread to an abdominal node. I have started ADT with Orgovyx (relugolix) and want to add an ARI. The urologist wants
vintage42
in
Advanced Prostate Cancer
3 months ago
Constipation relief for me
Been struggling with ongoing constipation for decades, due to slow ?motility? .Found this product which has been a life saver and really works for me. Super Cleanse by Nature's Secret | Herbal and Probiotic Support, 100 Tablets It contains Cascara Sagrada stimulat which maybe habit forming, so the
Been struggling with ongoing constipation for decades, due to slow ?motility? .Found this product which has been a life saver and really works for me. Super Cleanse by Nature's Secret | Herbal and Probiotic Support, 100 Tablets It contains Cascara Sagrada stimulat which maybe habit forming, so the
ewebhook
in
Cure Parkinson's
3 months ago
Trimethoprim - ET
I have unfortunately developed a urinary tract infection. I am penicillin-sensitive and have been prescribed trimethoprim as a seven day course. I have been reading up on it and see that it should not be prescribed for patients with "blood dyscrasias" because of some interaction with folate. Does
I have unfortunately developed a urinary tract infection. I am penicillin-sensitive and have been prescribed trimethoprim as a seven day course. I have been reading up on it and see that it should not be prescribed for patients with "blood dyscrasias" because of some interaction with folate. Does
Jelbea
in
MPN Voice
3 months ago
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