hi, anyone got any idea as to what their GFR level, or creatinine or urea levels in blood were 2 years onwards post Tx.
I was shocked today to find my GFR is 32 and until now no one has ever uttered chronic liver disease Stage 3b. That can’t just happen over night and GFR results hasn’t been listed in any of my clinic letters to date.
I’m on 6mg twice a day of TAC which can’t be helping as the lowest my potassium has been is 5.7 but usually I get recalled as it’s 6.6+.
Can anyone tell me what the logic would be if having a liver transplant only to result in stage 3b liver disease within 2 yrs. what sense does that make. It’s a genuine question and one that I’m truly shocked asking. I’ve never felt more scared since the transplant journey started than I do right now.
the irony is I wouldn’t even know this as consultant sent my consultation letter to GP only. I phoned and asked for a copy of it as I usually get it but consultant I saw wasn’t my usual one and doesn’t issue letters to patients following consultations.
I’m sure as hell going to struggle to get my head round this, as it stands with all the complications post transplant, the additional major surgeries, multiple stents, cholangitis, pancreatitis, bile duct reconstruction/rerouting and partial vowel removal, why would you put yourself or be advised to put yourself through that to end up in such a short space of time at Stage 3b liver disease. I thought the meld score was based on likelihood of being alive in 5 years with/without tx.
Anyone else is same situation?
what would happen if lowered the TAC meds to try and alleviate pressure on kidney? Could I cut it from 3mg twice a day to 1 twice a day??