PKD Charity for Autosomal Dominant PKD | HealthUnlocked

PKD Charity for Autosomal Dominant PKD

991 members242 posts

Follow up question on test

Hello everyone. Hope everyone is well. I have a follow up question. I had a kidn...

HAPPY NEW YEAR EVERYONE!!!

Its been a while since I've been on here, since I have been taking Jynarque I ha...

Need information please

Hello I’m new to all this. I’m 54 yo man. No known family members have pkd. In A...

New to PKD

I was diagnosed with PKD in August 2020 following a CT scan after suffering week...

Gout pain

Hi Everyone Totally new on this page. I was just wondering if anyone stuffers ...

Hyperinflated lungs and PKD

Hey guys hope everyone is safe,now just a question about hyperinflated lungs do ...

feeling useless

hello to every body .Feeling awful the last few months .as i have not being able...

Drop in kidney function

Hello I have PKD and I’m 60 I was diagnosed at 16 but in general great healthy t...

BPH + PKD Effect on Creatinine

Can BPH lead to elevated creatinine in PKD patients? If so, is a procedure to ...

Creatinine Spike After Exercise

My blood test showed a spike in creatinine one hour after I played tennis. Anyo...

New Kidney

Just recovering from getting new Kidney, at second call-in. Was EGFR 7 so was ...

Running and PKD

Is running bad for us? I have read that vigorous exercise can cause creatinine t...

Advice for mums with children that have ADPKD

Hi All, I’ve been a member here for a year, and not written anything, Not sure ...

It’s Been A While

Hello my warriors, its been a while since I’ve been on here, My Jynarque journey...

Living on a narrowboat

I am likely to start on dialysis some time this year and was going to opt for pe...

PKD diagnosis + aortic dissection

Hello, My partner (33) underwent emergency surgery following an aortic dissecti...

New here

Hi all, new here. Just wondering are you automatically referred to a specialist ...

Keto diet research

Hope every one is keeping safe and sane in this crazy time. Just wondering if an...

Foaming urine

Hi everyone, It’s been a while,hope you’re all keeping safe . Please does anyone...

Work question

I have pkd 25percent kidney function how do I get a isolation note for work my b...

To help pass the time

Hello everyone, I myself received the dreaded NHS text yesterday tho didn't rea...

ITS BEEN A WHILE

I haven't been here in a while, dealing with extreme fatigue, I was being tested...

Coronovirus and pkd

Hello, does anyone know if pkd puts us in the 'high risk' category of contractin...

New drug compound could tackle major life-limiting kidney disease - ADPKD

https://www.sciencedaily.com/releases/2019/06/190618103723.htm

Blood in urine

Hi everyone. Still new to all this. Just wondering if it is common to have whit...

I am Coming Along

I shared in my last post about me being extremely fatigued, I ended up in the Er...

Status Udate

In my last post I shared how I have not been feeling well, to date there has bee...

Back In The Bed

I have been feeling great for a while but that came to an end, I spent all of la...

Doctor Visit Today

I like so many of us chronically ill persons suffer with depression and anxiety,...

First Box Down

Today is i complete my first box of Jynarque, my last blood work and urine came ...
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About us

We are a community dedicated to supporting individuals and families affected by Autosomal Dominant Polycystic ...

Read more about PKD Charity for Autosomal Dominant PKD
0300 111 1234