PKD Charity for Autosomal Dominant PKD
The PKD Charity was established in December 2000 by patients, professionals and members of families affected by PKD. Our aims are to support patients...Read more
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Advice please anyone?
My lower abdomen has been getting very extended and my GP sent me for an ultrasound thinking I had an ovarian mass. Turned out to be my...
By Hidden3 Replies
I have ADPKD and have been on the TEMPO study since 2007 - anyone out there like me?
I don't know how much impact Tolvaptan has made on the size of my kidneys and cysts because I haven't seen the MRI scans since I started but...
My daughter was diagnosed with PKD at 7 years old, she has numerous cysts on her kidneys. Will she be severely effected in adulthood?
I am wondering if having numerous cysts at a young age means she will be severely effected. Her father had an aneurysm at 38 and is now...
Blood Pressure Medication
Hi, I have been taking Ramipril to control my blood pressure for a couple of years. However, at my annual check up at the GP, they have...
I am a 47 female with PKD and my kidneys are working at 35%. I struggle on a daily basis with tiredness, fatigued, headaches, etc.
I work part-time but I am struggling to work. I don't sleep properly, my legs hurt, I have nausea/sickness sometimes, I struggle with...
Has anyone had renal cyst decortication on the NHS?
I have chronic pain due to ADPKD. One of my cysts is 16cm long. My local healthcare team have told me there isn't a surgical option but...
I have pkd lose 5% more them dialysis anyway my question is does any of your get back pain and shoulder pain mines killing me if i sit its
Not to bad im having trouble standing walking cant bend at all i do have arthrisis in back my kidneys r almost done got creatine in blood...
By HiddenBe the first to replyKidney pain
I was just wondering If you have kidney pain when do you feel it ? Mine are tender when I press the area of the kidney or when I sleep on my...
By Hidden3 RepliesHow often do you get colds?
For the last twenty years or so (ie about the time it has taken for PKD to develop enough to be diagnosed) I notice that I hardly ever get...
By HiddenBe the first to replyAre there PKD specialists in the US? I can't find them.
I'm unhappy w/ my nephrologist in US. I am told to follow CKD diet. Info I on PKD diet is very different. I'm worried she is leading me...
By Hidden6 Replies
I am 51 years old. I have been in renal failure for almost three years. I go to dialysis three tmes a week. I am still very active and work
Part time with handicapped people. I just wanted to let people know that being on dialysis is not a death sentence. I lead a very full life...
Hi All, Please could you take a look at this, it is i very important to a lot of people and could be the same for yourself. Thanks you :)
Please forward this on to as many people, places, websites, support groups, as possible. Anyone you think will be interested Thank you...
PKD and possible related pain
Hi, I am a 20 yr old female living with PKD. I found out I had the disease about 10 months ago due to a car accident which led to infected...
By Hidden5 Replies
