PKD Charity for Autosomal Dominant PKD | HealthUnlocked

Hello everyone. Hope everyone is well. I have a follow up question. I had a kidney gene panel done. More because one of my sons is starting a family it was...

Its been a while since I've been on here, since I have been taking Jynarque I have been feeling really good no pain and my kidney function is doing great!...

Hello I’m new to all this. I’m 54 yo man. No known family members have pkd. In August o 2019 I had a Ct scan that showed bi laterial parapelvic cysts and a 4...

I was diagnosed with PKD in August 2020 following a CT scan after suffering weeks of fevers & unbearable headaches. I had a severe infection in my right...

Hi Everyone Totally new on this page. I was just wondering if anyone stuffers with bad gout flare ups? I have a egfr of 13. It’s took a couple of years to...

Hey guys hope everyone is safe,now just a question about hyperinflated lungs do they have anything to do with my kidneys being very,very big or should I vory...

hello to every body .Feeling awful the last few months .as i have not being able to do my job properly. so annoying.One day i feel ok in the morning and then...

Hello I have PKD and I’m 60 I was diagnosed at 16 but in general great healthy though I have brain aneurysms aswell Today I have got my recent blood results...

Can BPH lead to elevated creatinine in PKD patients? If so, is a procedure to alleviate BPH recommended?

My blood test showed a spike in creatinine one hour after I played tennis. Anyone have a similar experience?

Just recovering from getting new Kidney, at second call-in. Was EGFR 7 so was very tired. Blood results improved dramatically and no pain from operation...

Is running bad for us? I have read that vigorous exercise can cause creatinine to spike which isnt good for damaged kidneys. I have started running since...

Hi All, I’ve been a member here for a year, and not written anything, Not sure why I just did want to accept it I guess. I would like to know if there are any...

Hello my warriors, its been a while since I’ve been on here, My Jynarque journey continues and i am doing well. I have i am now on a higher dose of the meds,...

I am likely to start on dialysis some time this year and was going to opt for peritoneal dialysis. Does anyone have any idea if this is viable on a narrowboat?...

Hello, My partner (33) underwent emergency surgery following an aortic dissection. The operation was very long and very complicated but, after 6 weeks in...

Hi all, new here. Just wondering are you automatically referred to a specialist after discovering you have PKD? GP gave me the diagnosis from CT scan results...

Hope every one is keeping safe and sane in this crazy time. Just wondering if anybody has come across the new theory about ketosis helping with Pkd?...

Hi everyone, It’s been a while,hope you’re all keeping safe . Please does anyone know what it means to start having foaming urine all of a sudden.I have pkd...

I have pkd 25percent kidney function how do I get a isolation note for work my boss is asking for one thanks

Hello everyone, I myself received the dreaded NHS text yesterday tho didn't really class my self a extremely vulnerable. So.... Now I have 12 weeks at home oh...

I haven't been here in a while, dealing with extreme fatigue, I was being tested for everything and reason. The last test I did was a sleep test which came...

Hello, does anyone know if pkd puts us in the 'high risk' category of contracting coronovirus at stage 1 of pkd. i just wanted to know for work purposes and if...

https://www.sciencedaily.com/releases/2019/06/190618103723.htm

Hi everyone. Still new to all this. Just wondering if it is common to have white blood cells and blood present in urine without bacteria? 🤔. Also is there...

I shared in my last post about me being extremely fatigued, I ended up in the Er this past Monday, they did the routine blood work did find anything out of the...

In my last post I shared how I have not been feeling well, to date there has been no change in my condition. Moving around is very difficult for me right...

I have been feeling great for a while but that came to an end, I spent all of last week in bed. I woke up feeling very fatigued i just couldn’t move around...

I like so many of us chronically ill persons suffer with depression and anxiety, I have been trying to deal with minds without meds but that is not working....

Today is i complete my first box of Jynarque, my last blood work and urine came back excellent! My Nephrologist is pleased and so am I. I should receive my...