PKD Charity for Autosomal Dominant PKD | HealthUnlocked

PKD Charity for Autosomal Dominant PKD

600 members • 124 posts

Just diagnosed

I have been just been diagnosed with PKD. I'm 46 yrs old with 2 kids, 19 and 11 yr old autistic son. My GFR turned up at 52 last month that's what sparked my...I have been just been diagnosed with PKD. I'm 46 yrs old with 2 kids, 19 and 11 ...

athenat•5 days ago

Toplahan

Is anyone on toplaphan. I have been advised to have this and I have concerns on its side effects. Can anyone help. Is anyone on toplaphan. I have been advised to have this and I have concerns on ...

Polyanthem•23 days ago

USE OF NSAID MEDS IN PKD

HI there. I’m now 23 and have been diagnosed with PKD since being 14 years old. Currently at eGGR 23 and as a result at stage 4 renal failure. I take Oramorph...HI there. I’m now 23 and have been diagnosed with PKD since being 14 years old. ...

terrysinclair311294•a month ago

I'm old but I'm new to this site......

Well, not that old, I just turned 50 and was diagnosed with PKD/PLD at 21. It ran in the family so it wasn't a shock. At 47 I found out my eGFR had dropped...Well, not that old, I just turned 50 and was diagnosed with PKD/PLD at 21. It r...

MrsKoch•2 months ago

Are these pains normal?

Hi, my 11 year old has early onset PKD. She has been complaining of backache and lower abdominal pain for a few days. No sign of her feeling unwell though. Is...Hi, my 11 year old has early onset PKD. She has been complaining of backache and...

tob39•2 months ago

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