PKD Charity for Autosomal Dominant PKD | HealthUnlocked

PKD Charity for Autosomal Dominant PKD

855 members • 207 posts

First Box Down

Today is i complete my first box of Jynarque, my last blood work and urine came back excellent! My Nephrologist is pleased and so am I. I should receive my...Today is i complete my first box of Jynarque, my last blood work and urine came ...

PaigeyPaigeForLife•a month ago

I'ᗰ Oᑎ ᒍYᑎᗩᖇᑫᑌE 👏🏽👏🏽👏🏽👏🏽

ITᔕ ᗷEEᑎ ᗩ ᗯᕼIᒪE ᔕIᑎᑕE I'ᐯE ᑭOᔕTEᗪ ᗩᑎYTᕼIᑎG, I ᕼᗩᐯE ᗷEEᑎ ᗪEᗩᒪIᑎG ᗯITᕼ ᗪEᑭᖇEᔕᔕIOᑎ ᗩᑎᗪ ᗩᑎ᙭IETY ᗯITᕼOᑌT ᗰEᗪIᑕᗩTIOᑎ, ᖴEEᒪIᑎG ᗷETTEᖇ ᑎOᗯ ᗷᑌT ITᔕ ᔕTIᒪᒪ ᗩ ᔕTᖇᑌGGᒪE....ITᔕ ᗷEEᑎ ᗩ ᗯᕼIᒪE ᔕIᑎᑕE I'ᐯE ᑭOᔕTEᗪ ᗩᑎYTᕼIᑎG, I ᕼᗩᐯE ᗷEEᑎ ᗪEᗩᒪIᑎG ᗯITᕼ ᗪEᑭᖇEᔕᔕIOᑎ...

PaigeyPaigeForLife•a month ago

Tolvaptan and PLD

Hi My nephrologist is consider starting me on Tolvaptan. Has anyone heard of the the medication damaging the liver as I also have PLD as a lot of PKD patients...Hi My nephrologist is consider starting me on Tolvaptan. Has anyone heard of the...

tillymint16•a month ago

Status Udate

In my last post I shared how I have not been feeling well, to date there has been no change in my condition. Moving around is very difficult for me right...In my last post I shared how I have not been feeling well, to date there has bee...

PaigeyPaigeForLife•11 hours ago

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Back In The Bed

I have been feeling great for a while but that came to an end, I spent all of last week in bed. I woke up feeling very fatigued i just couldn’t move around...I have been feeling great for a while but that came to an end, I spent all of la...

PaigeyPaigeForLife•5 days ago