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Imperial College Help please
Hi, further to my last post - thank you all so much - my GP and Renal Consultant are in agreement that I see a rheumatologist as well as continuing to see my renal Consultant. A few people and Vasculitis UK recommended Imperial College as I believe they have a Vasculitis Centre there? I think I've had
Hi, further to my last post - thank you all so much - my GP and Renal Consultant are in agreement that I see a rheumatologist as well as continuing to see my renal Consultant. A few people and Vasculitis UK recommended Imperial College as I believe they have a Vasculitis Centre there? I think I've had
Daisyboodle
in
Vasculitis UK
6 months ago
Coroner: Vitamin D packs should outline ‘serious risks’ after overdose death
[/i] [i]But “despite treatment”, assistant coroner for Surrey Jonathan Stevens found that Mr Mitchener died ten days later on May 20 of “vitamin D toxicity” as well as congestive cardiac
failure
and acute on chronic
kidney
failure
, hypercalacaemia and ischaemic heart disease.
[/i] [i]But “despite treatment”, assistant coroner for Surrey Jonathan Stevens found that Mr Mitchener died ten days later on May 20 of “vitamin D toxicity” as well as congestive cardiac
failure
and acute on chronic
kidney
failure
, hypercalacaemia and ischaemic heart disease.
helvella
Thyroid UK
in
Thyroid UK
6 months ago
cranberry powder?
Has anyone used cranberry powder rather than tablets for uti prevention? I’ve had the all clear for mum to take it but she will struggle with the big tabs so looking for a powder equivalent. I may also go down the D mannose route but as that can cause diarrhoea am holding off…….diarrhoea led to a nasty
Has anyone used cranberry powder rather than tablets for uti prevention? I’ve had the all clear for mum to take it but she will struggle with the big tabs so looking for a powder equivalent. I may also go down the D mannose route but as that can cause diarrhoea am holding off…….diarrhoea led to a nasty
RT18
in
PMRGCAuk
6 months ago
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trying to get a diagnoses
Hello, I was wondering if anyone can offer any advice or support. For years now Iv been having body pains being exhausted to the point I would fall asleep sat up. Not being able to do normal day to day things some days. . I got diagnosed with vit d deficiency I’m on tablets everyday for this for
Hello, I was wondering if anyone can offer any advice or support. For years now Iv been having body pains being exhausted to the point I would fall asleep sat up. Not being able to do normal day to day things some days. . I got diagnosed with vit d deficiency I’m on tablets everyday for this for
Rubydax
in
LUPUS UK
1 month ago
induced coma - how long can it take for a loved one to come around?
She is currently on a ventilator, dialysis due to complete
kidney
failure
caused by the sepsis, so many wires everywhere and machines. We are all worried sick and its breaking my heart to see her like that.
She is currently on a ventilator, dialysis due to complete
kidney
failure
caused by the sepsis, so many wires everywhere and machines. We are all worried sick and its breaking my heart to see her like that.
tkelum
in
ICUsteps
1 year ago
Fenofibrates
Someone asked if Dr. Jones' book mentioned the use of fenofibrates.... yes, it does in several places. This might be a good book to have if you are considering using them. He is the leading expert on PBC. Hope it helps... The subject is discussed in the chapter for 'Treatment of PBC'. Many have been
Someone asked if Dr. Jones' book mentioned the use of fenofibrates.... yes, it does in several places. This might be a good book to have if you are considering using them. He is the leading expert on PBC. Hope it helps... The subject is discussed in the chapter for 'Treatment of PBC'. Many have been
DonnaBoll
Administrator
in
PBC Foundation
6 months ago
Gods beautiful creations
Last week I was able to ski with a bunch of my grandkids and all my pics were of them. Some days I felt ill but it was so worth it Today I went snowshoeing in a snow storm. What a peaceful serene setting on those snow covered paths nestled in the pines. Even the village where the trail system begins
Last week I was able to ski with a bunch of my grandkids and all my pics were of them. Some days I felt ill but it was so worth it Today I went snowshoeing in a snow storm. What a peaceful serene setting on those snow covered paths nestled in the pines. Even the village where the trail system begins
skipro
in
CLL Support
6 months ago
Prednisone and kidneys
I was diagnosed with PMR in July 2023 and have been on prednisone ever since, although I have tapered down from 15 mg a day to 13 mg, and will be tapering further down to 12 in the next week or so. My last bloodwork showed higher than normal creatinine levels (104), and a glomerular filtration rate of
I was diagnosed with PMR in July 2023 and have been on prednisone ever since, although I have tapered down from 15 mg a day to 13 mg, and will be tapering further down to 12 in the next week or so. My last bloodwork showed higher than normal creatinine levels (104), and a glomerular filtration rate of
Charlotteab
in
PMRGCAuk
6 months ago
Kidney disease scare
Hi. Got a renal function test done a week ago. Blood and urine. All the results came out fine except for low calcium, 1.91mmol/l. Does this indicate kidney disease?Creatinine is within normal range Urea is within normal range Urinalysis is good. No blood or protein. But calcium is 1.91mmol/l. Should
Hi. Got a renal function test done a week ago. Blood and urine. All the results came out fine except for low calcium, 1.91mmol/l. Does this indicate kidney disease?Creatinine is within normal range Urea is within normal range Urinalysis is good. No blood or protein. But calcium is 1.91mmol/l. Should
SurvivorA
in
Kidney Disease
2 months ago
living in constant fear/ hypochondria.
I literally have self diagnosed me with all sorts of cancer, diabetes, unwanted pregnancies, heart issues, pancreatitis,
kidney
failure
, PCOS and the list goes on….
I literally have self diagnosed me with all sorts of cancer, diabetes, unwanted pregnancies, heart issues, pancreatitis,
kidney
failure
, PCOS and the list goes on….
MandyBueno
in
Anxiety and Depression Support
2 months ago
Thorocentecis
Hi guys....a recent CT scan showed some pleural effusion but nothing else...no nodes, growths or nodules, and a blood test showed no heart failure.I have to have the fluid removed on Monday and I'm bricking it already. I don't make a very good patient; former nurse; and I'm a wuss when it comes to pain
Hi guys....a recent CT scan showed some pleural effusion but nothing else...no nodes, growths or nodules, and a blood test showed no heart failure.I have to have the fluid removed on Monday and I'm bricking it already. I don't make a very good patient; former nurse; and I'm a wuss when it comes to pain
sue32
in
Lung Conditions Community Forum
10 months ago
KIDNEY EQUITY FOR ALL
In honor of Black History Month we'd like to highlight KIDNEY EQUITY FOR ALL. This is a patient-focused, community-minded movement dedicated to ensuring that ALL kidney patients have access to high-quality, patient-centered kidney care from the moment of diagnosis to transplantation. To learn more about
In honor of Black History Month we'd like to highlight KIDNEY EQUITY FOR ALL. This is a patient-focused, community-minded movement dedicated to ensuring that ALL kidney patients have access to high-quality, patient-centered kidney care from the moment of diagnosis to transplantation. To learn more about
JackieJ_NKF
Partner
in
Kidney Dialysis
7 months ago
PSA to have stabilized after skyrocketing. What does this mean?
With PSA rising very rapidly four months ago after finishing Eclipse Trial, I had SBRT done immediately followed by Provenge. PSA on the day of SBRT was 2.0. It’s my understanding that Provenge will not affect PSA testing so it’s hard to determine progress. Obviously, there is still cancer still there
With PSA rising very rapidly four months ago after finishing Eclipse Trial, I had SBRT done immediately followed by Provenge. PSA on the day of SBRT was 2.0. It’s my understanding that Provenge will not affect PSA testing so it’s hard to determine progress. Obviously, there is still cancer still there
SViking
in
Advanced Prostate Cancer
7 months ago
Add Nubeqa to Orgovyx?
Age 81. I had prostate radiation in 2021, and pelvic node radiation in 2023. PSA was 3.78 in Dec 2023. PSMA PET then showed cancer growing in prostate, shrinking in pelvic node, but spread to an abdominal node. I have started ADT with Orgovyx (relugolix) and want to add an ARI. The urologist wants
Age 81. I had prostate radiation in 2021, and pelvic node radiation in 2023. PSA was 3.78 in Dec 2023. PSMA PET then showed cancer growing in prostate, shrinking in pelvic node, but spread to an abdominal node. I have started ADT with Orgovyx (relugolix) and want to add an ARI. The urologist wants
vintage42
in
Advanced Prostate Cancer
7 months ago
Constipation relief for me
Been struggling with ongoing constipation for decades, due to slow ?motility? .Found this product which has been a life saver and really works for me. Super Cleanse by Nature's Secret | Herbal and Probiotic Support, 100 Tablets It contains Cascara Sagrada stimulat which maybe habit forming, so the
Been struggling with ongoing constipation for decades, due to slow ?motility? .Found this product which has been a life saver and really works for me. Super Cleanse by Nature's Secret | Herbal and Probiotic Support, 100 Tablets It contains Cascara Sagrada stimulat which maybe habit forming, so the
ewebhook
in
Cure Parkinson's
7 months ago
Trimethoprim - ET
I have unfortunately developed a urinary tract infection. I am penicillin-sensitive and have been prescribed trimethoprim as a seven day course. I have been reading up on it and see that it should not be prescribed for patients with "blood dyscrasias" because of some interaction with folate. Does
I have unfortunately developed a urinary tract infection. I am penicillin-sensitive and have been prescribed trimethoprim as a seven day course. I have been reading up on it and see that it should not be prescribed for patients with "blood dyscrasias" because of some interaction with folate. Does
Jelbea
in
MPN Voice
7 months ago
Provenge (only) - impact on overall survival
I just got insurance approval for Provenge...out of pocket is really high so now I'm doing a cost benefit analysis in my mind. I've seen many different articles showing that Provenge ALONE only extends overall survival by 4-15 months. Does that sound correct? Tall_Allen mentioned adding xofigio for
I just got insurance approval for Provenge...out of pocket is really high so now I'm doing a cost benefit analysis in my mind. I've seen many different articles showing that Provenge ALONE only extends overall survival by 4-15 months. Does that sound correct? Tall_Allen mentioned adding xofigio for
Gl448
in
Advanced Prostate Cancer
7 months ago
To poop or not to poop, that is the question
I am about to embark on taking a phosphorous binder. I will be taking Sevelamer or Renvela at 800mg, one tablet with meals. I only eat two meals a day. WHAT can I do to prevent constipation. I already have an issue with it because of Ozempic and being on dialysis. I had to stop eating oatmeal every day
I am about to embark on taking a phosphorous binder. I will be taking Sevelamer or Renvela at 800mg, one tablet with meals. I only eat two meals a day. WHAT can I do to prevent constipation. I already have an issue with it because of Ozempic and being on dialysis. I had to stop eating oatmeal every day
Bassetmommer
in
Kidney Dialysis
7 months ago
Kidney biopsy confirms active GPA
Hi, Thought I'd update what has happened since my last post. I have seen my rheumatologist twice now, given pred and was put forward for rituximab. Due to the blood and protein in my pee I was referred to renal and had a kidney biopsy on Wednesday of this week. It has been confirmed that my vasculitis
Hi, Thought I'd update what has happened since my last post. I have seen my rheumatologist twice now, given pred and was put forward for rituximab. Due to the blood and protein in my pee I was referred to renal and had a kidney biopsy on Wednesday of this week. It has been confirmed that my vasculitis
lollypocket
in
Vasculitis UK
7 months ago
If you get sick...cold, flu, Covid...what did you do?
I'm just over 9 months kidney transplant from a living donor. I've felt great but I do worry, since it is cold and flu season, about getting sick. Probably my biggest worry at this point. I try to wear masks when I am out and take all precautions. I just wondered though if I should get sick what are
I'm just over 9 months kidney transplant from a living donor. I've felt great but I do worry, since it is cold and flu season, about getting sick. Probably my biggest worry at this point. I try to wear masks when I am out and take all precautions. I just wondered though if I should get sick what are
Tankjsl
in
Kidney Transplant
7 months ago
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