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Choosing your own in-center doctor?
Hello, everyone! My mom has been at her new dialysis center for about three months, and the doctor and NP assigned to her are pretty terrible. We noticed that a former patient had their own nephrologist who came to the center to go over lab results and handle any dialysis-related issues. That patient
Hello, everyone! My mom has been at her new dialysis center for about three months, and the doctor and NP assigned to her are pretty terrible. We noticed that a former patient had their own nephrologist who came to the center to go over lab results and handle any dialysis-related issues. That patient
Learning_as_we_go
in
Kidney Dialysis
7 months ago
D Mannose
Hello everyone Just wondered if anyone here has used D Mannose tablets to manage recurrent urinary tract infections and if so with what success? I’ve had this problem for a few years now and the Urologist suggested daily low dose antibiotics which I want to avoid. Despite trying all of the self
Hello everyone Just wondered if anyone here has used D Mannose tablets to manage recurrent urinary tract infections and if so with what success? I’ve had this problem for a few years now and the Urologist suggested daily low dose antibiotics which I want to avoid. Despite trying all of the self
RosaD
in
LUPUS UK
7 months ago
Vasculitis Specialist Advice/Direction Please
Hi,I was diagnosed with IGA Vasculitis mid -December. This was diagnosed after a hospital stay and kidney biopsy. Upon reflection I think I have had this for some time and am trying to piece everything together. Have started a 6 month treatment course in a bid to get it to remission stage at which point
Hi,I was diagnosed with IGA Vasculitis mid -December. This was diagnosed after a hospital stay and kidney biopsy. Upon reflection I think I have had this for some time and am trying to piece everything together. Have started a 6 month treatment course in a bid to get it to remission stage at which point
Daisyboodle
in
Vasculitis UK
7 months ago
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Support Group for Dialysis Patients Thursday night 6pm EST
This is YaMarie from Virtual Dialysis Support Center sending you an invitation to our Support Group Meeting on Thursday at 6pm. This time, we are featuring Dr. Olaf Kroneman, who will answer any kidney questions you might have. He is a board-certified nephrologist, and we will also have random drawings
This is YaMarie from Virtual Dialysis Support Center sending you an invitation to our Support Group Meeting on Thursday at 6pm. This time, we are featuring Dr. Olaf Kroneman, who will answer any kidney questions you might have. He is a board-certified nephrologist, and we will also have random drawings
Bassetmommer
in
Kidney Dialysis
7 months ago
Can a dialysis patient use protein power?
My protein level is low even with the Pro-Stat the kidney center gives to me, Is it ok to use whey protein powder? i mean in it the potassium is 160 mg per serving, Cholesterol is 55mg. I'm a dialysis person.I'm thinking cutting the per serving to half so to decrease the potassium.
My protein level is low even with the Pro-Stat the kidney center gives to me, Is it ok to use whey protein powder? i mean in it the potassium is 160 mg per serving, Cholesterol is 55mg. I'm a dialysis person.I'm thinking cutting the per serving to half so to decrease the potassium.
mingmiley
in
Kidney Dialysis
7 months ago
Hemorrhagic vasculitis treatment
Hi My son 10 years, has been diagnosed Hemorrhagic vasculitis. We are searching for professionals for vasculitis treatment. Could you please advice any clinic and specialists who can help. We are outside the UK, but can come and spend needed time in UK for treatment.
Hi My son 10 years, has been diagnosed Hemorrhagic vasculitis. We are searching for professionals for vasculitis treatment. Could you please advice any clinic and specialists who can help. We are outside the UK, but can come and spend needed time in UK for treatment.
Egorka
in
Vasculitis UK
7 months ago
IBS and kidney Stones
Hi,Firstly , I posted similar about 1 year or so ago. I was prescribed potassium citrate mixture in order to prevent further kidney stones , however, the side effects are stomach pains and even more diarrhoea issues . In fact , if I took this med in the quantity prescribed I would for ever need to
Hi,Firstly , I posted similar about 1 year or so ago. I was prescribed potassium citrate mixture in order to prevent further kidney stones , however, the side effects are stomach pains and even more diarrhoea issues . In fact , if I took this med in the quantity prescribed I would for ever need to
Will1234
in
IBS Network
7 months ago
Creatine
I am on Ursofalk and very well fortunately. I take Bezafibrate for itch (life saver). I have embark on a fitness journey of Crossfit and after 12 months wish to improve even more. I am advised by my coach to take Creatine and that this is natural and improves performance and muscle recovery. Anyone
I am on Ursofalk and very well fortunately. I take Bezafibrate for itch (life saver). I have embark on a fitness journey of Crossfit and after 12 months wish to improve even more. I am advised by my coach to take Creatine and that this is natural and improves performance and muscle recovery. Anyone
amt50
in
PBC Foundation
7 months ago
FDA alert re: denosumab
This was issued specifically re: Prolia, with no mention of Xgeva. However patients should be alerted, and of course don't change your medications without first speaking to your doctor about this. https://www.fda.gov/drugs/drug-safety-and-availability/fda-adds-boxed-warning-increased-risk-severe-hypocalcemia-patients-advanced-chronic-kidney-disease
This was issued specifically re: Prolia, with no mention of Xgeva. However patients should be alerted, and of course don't change your medications without first speaking to your doctor about this. https://www.fda.gov/drugs/drug-safety-and-availability/fda-adds-boxed-warning-increased-risk-severe-hypocalcemia-patients-advanced-chronic-kidney-disease
dentaltwin
in
Advanced Prostate Cancer
7 months ago
Right phrenic nerve paralysis
Path from RP showed extensive perineural involvement. No other risk factors for phrenic nerve paralysis. Haven't talked to MO yet, but sure concerned it's tumor invasion. PSA still <0.04.
Path from RP showed extensive perineural involvement. No other risk factors for phrenic nerve paralysis. Haven't talked to MO yet, but sure concerned it's tumor invasion. PSA still <0.04.
rfgh20
in
Advanced Prostate Cancer
7 months ago
Turning Hurdles into Hope: How one Hospital Overcomes Kidney Transplant Obstacles
Learn how Houston Methodist is breaking barriers in kidney transplants with education, living kidney donations, and preemptive transplants. Let's spread awareness by reading and sharing this article. https://www.kidney.org/newsletter/turning-hurdles-hope-how-one-hospital-overcomes-kidney-transplant-obstacles
Learn how Houston Methodist is breaking barriers in kidney transplants with education, living kidney donations, and preemptive transplants. Let's spread awareness by reading and sharing this article. https://www.kidney.org/newsletter/turning-hurdles-hope-how-one-hospital-overcomes-kidney-transplant-obstacles
JackieJ_NKF
Partner
in
Kidney Donation
7 months ago
Turning Hurdles into Hope: How one Hospital Overcomes Kidney Transplant Obstacles
Learn how Houston Methodist is breaking barriers in kidney transplants with education, living kidney donations, and preemptive transplants. Let's spread awareness by reading and sharing this article. https://www.kidney.org/newsletter/turning-hurdles-hope-how-one-hospital-overcomes-kidney-transplant-obstacles
Learn how Houston Methodist is breaking barriers in kidney transplants with education, living kidney donations, and preemptive transplants. Let's spread awareness by reading and sharing this article. https://www.kidney.org/newsletter/turning-hurdles-hope-how-one-hospital-overcomes-kidney-transplant-obstacles
JackieJ_NKF
Partner
in
Kidney Transplant
7 months ago
Luteolin, ellagic acid and punicic acid and prostate cancer metastasis
Ok here we go again, excuse me if this was already gone over. I know Pomegranate has stated benefits, but in combo with these other supps may increase the benefits according to this study done on patients and our favored friends, the mice- lol. For me if it can't harm and may help then why not.
Ok here we go again, excuse me if this was already gone over. I know Pomegranate has stated benefits, but in combo with these other supps may increase the benefits according to this study done on patients and our favored friends, the mice- lol. For me if it can't harm and may help then why not.
85745
in
Advanced Prostate Cancer
7 months ago
nausea and vomiting
my husband has been on dialysis for just over 12 months now but suffers with severe nausea and vomiting. He is unable to keep food down or even attempt to eat some days . Is this a normal side effect of dialysis please and if so is there any treatment. We went to our GP but he was useless and unable
my husband has been on dialysis for just over 12 months now but suffers with severe nausea and vomiting. He is unable to keep food down or even attempt to eat some days . Is this a normal side effect of dialysis please and if so is there any treatment. We went to our GP but he was useless and unable
Matilda6146
in
Early CKD Support
7 months ago
Overdosing bisoprolol- can anyone offer advice?
I don’t know whether it is where I live ( the NW) but I really struggle to get appropriate treatment. Anyway I picked up my meds on Saturday. Opened them in the car and noticed my bisoprolol was suddenly in 5 mg tablets not 2.5 mg. I went back into the pharmacy to be told that I have been on 5 mg tablets
I don’t know whether it is where I live ( the NW) but I really struggle to get appropriate treatment. Anyway I picked up my meds on Saturday. Opened them in the car and noticed my bisoprolol was suddenly in 5 mg tablets not 2.5 mg. I went back into the pharmacy to be told that I have been on 5 mg tablets
Rhiannonimity1
in
AF Association
10 months ago
Increased Creatinine -
I have a kidney transplant since 2009. I have had 4 ablations on my heart for afib since 2019. It has affected my creatinine adversely at times. I just changed from Flecanide to Propafenone for afib, & we are hoping this will lower my creatinine, which has slowly been increasing since starting the Flecanide
I have a kidney transplant since 2009. I have had 4 ablations on my heart for afib since 2019. It has affected my creatinine adversely at times. I just changed from Flecanide to Propafenone for afib, & we are hoping this will lower my creatinine, which has slowly been increasing since starting the Flecanide
Tashikat
in
Kidney Transplant
7 months ago
Any Data or MO Advice Regarding Dutasteride / Finasteride At Very Early Biochemical Recurrence?
Does anyone know of any studies or MO advice they've gotten regarding use of Dutasteride or Finasteride at very early signs of Biochemical Reccurrence (uPSA in the 0.03 - 0.1 range) prior to Salvage Radiotherapy? It's obviously going to slow PSA doubling time and thereby probably lengthen the time
Does anyone know of any studies or MO advice they've gotten regarding use of Dutasteride or Finasteride at very early signs of Biochemical Reccurrence (uPSA in the 0.03 - 0.1 range) prior to Salvage Radiotherapy? It's obviously going to slow PSA doubling time and thereby probably lengthen the time
jazj
in
Advanced Prostate Cancer
7 months ago
Prolia
I have just received an email from my GP who has arranged for a F2F appointment to see me beginning January to discuss me starting to take Prolia. My last Dexascan in 2021 did show that I have osteoporosis, and I did take Alendronic Acid for the first two years of having Polymyalgia. Since then I have
I have just received an email from my GP who has arranged for a F2F appointment to see me beginning January to discuss me starting to take Prolia. My last Dexascan in 2021 did show that I have osteoporosis, and I did take Alendronic Acid for the first two years of having Polymyalgia. Since then I have
Purplegloss
in
PMRGCAuk
8 months ago
iga vasculitis
hello my name is Marc I have been diagnosed with iga vasculitis. I’ve been struggling for twelve months trying not to let this beat me do you legs improve or get worse as you get older
hello my name is Marc I have been diagnosed with iga vasculitis. I’ve been struggling for twelve months trying not to let this beat me do you legs improve or get worse as you get older
Frosty_nights89
in
Vasculitis UK
7 months ago
Vasculitis Awarenes Month
May is vasculitis awareness month. Microscopic Polyangiitis (MPA) is inflammation of the small and sometimes medium sized blood vessels. It usually affects the renal function and/or lungs. Get a glimpse of Gemma's journey with MPA vasculitis. If you would like to donate to Vasculitis UK, please
May is vasculitis awareness month. Microscopic Polyangiitis (MPA) is inflammation of the small and sometimes medium sized blood vessels. It usually affects the renal function and/or lungs. Get a glimpse of Gemma's journey with MPA vasculitis. If you would like to donate to Vasculitis UK, please
zoe69
Vasculitis UK
in
Vasculitis UK
4 months ago
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