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phosphorous ?
I have been diagnosed stage 2 CKD : potassium and sodium fine, but phosphorous raised, so my GP sent me for a liver scan , which the radiographer said he could see nothing on it to be worried about, but I am wondering why my doctor sent me for a liver scan and not a kidney one ? I haven't been
I have been diagnosed stage 2 CKD : potassium and sodium fine, but phosphorous raised, so my GP sent me for a liver scan , which the radiographer said he could see nothing on it to be worried about, but I am wondering why my doctor sent me for a liver scan and not a kidney one ? I haven't been
barneyfrances
in
Early CKD Support
4 years ago
Possible Ovarian cancer.
Hi I’m 30 years old. For serval years I’ve had excruciating pelvic pain to the right and various trips to a&e to be given pain relief and sent on my way. Whilst I was carrying my baby the doctor noticed something on my right ovary, I was regularly scanned they first thought it was a cyst but over time
Hi I’m 30 years old. For serval years I’ve had excruciating pelvic pain to the right and various trips to a&e to be given pain relief and sent on my way. Whilst I was carrying my baby the doctor noticed something on my right ovary, I was regularly scanned they first thought it was a cyst but over time
PB22
in
My Ovacome
4 years ago
Help , feeling really anxious and worried
Hi my brother has been on a ventilator for 5 days with covid, he is currently on 100% oxygen, he has type 1 diabetes and has a kidney transplant, feel like my world has fallen apart and helpless as I can’t be there with him,. Would appreciate any words of encouragement. Thankyou
Hi my brother has been on a ventilator for 5 days with covid, he is currently on 100% oxygen, he has type 1 diabetes and has a kidney transplant, feel like my world has fallen apart and helpless as I can’t be there with him,. Would appreciate any words of encouragement. Thankyou
Hidden
in
ICUsteps
4 years ago
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Imbruvica Good News
Diagnosed with B-PLL (CLL) around Feb 2020...just before Co-Vid. Was on W+W until Dec 2020. WBC went from initial 99K to 357 K and hematologist said it's time to start medication. On Imbruvica 420mg @ 1X day for 2 months now. WBC went from 339K in Jan 2021 to 220K in Feb 2021. No side effects other
Diagnosed with B-PLL (CLL) around Feb 2020...just before Co-Vid. Was on W+W until Dec 2020. WBC went from initial 99K to 357 K and hematologist said it's time to start medication. On Imbruvica 420mg @ 1X day for 2 months now. WBC went from 339K in Jan 2021 to 220K in Feb 2021. No side effects other
Phyllis731
in
CLL Support
4 years ago
Valentine's Day!
National Donate Life! I was 49 when I got my GIFT OF LIFE - my kidney transplant! It was 1999 , 21+ years ago. I had strep throat as a child and would up in kidney failure some 30 years later. I have friends that complain about their wrinkles and their grey hair and I thank GOD for every wrinkle
National Donate Life! I was 49 when I got my GIFT OF LIFE - my kidney transplant! It was 1999 , 21+ years ago. I had strep throat as a child and would up in kidney failure some 30 years later. I have friends that complain about their wrinkles and their grey hair and I thank GOD for every wrinkle
WYOAnne
NKF Ambassador
in
Kidney Transplant
4 years ago
Bilateral Salpingo-Oophorectomy
Hi, just wondering if any of you lovely ladies have had a Bilateral Salpingo-Oophorectomy? I’ve got endo, had cysts removed laparoscopically in 2012, all fine after that until recently when I’ve started to experience quite bad pain. An ultrasound has revealed a large cyst on one of my ovaries. Consultant
Hi, just wondering if any of you lovely ladies have had a Bilateral Salpingo-Oophorectomy? I’ve got endo, had cysts removed laparoscopically in 2012, all fine after that until recently when I’ve started to experience quite bad pain. An ultrasound has revealed a large cyst on one of my ovaries. Consultant
Sassy123455
in
Endometriosis UK
4 years ago
Creatinine
So my creatinine has jumped up and GFR dropped like 40 points. So I took two blood tests, kidney is not in rejection. I haven’t gotten the results of the second test but it’s to see if the transplant kidney is producing it’s own antibodies. I have had some serious UTI’s which I’m sure is one of the
So my creatinine has jumped up and GFR dropped like 40 points. So I took two blood tests, kidney is not in rejection. I haven’t gotten the results of the second test but it’s to see if the transplant kidney is producing it’s own antibodies. I have had some serious UTI’s which I’m sure is one of the
Dara3351
in
Kidney Transplant Patient Support
4 years ago
Dialysis
Hi I would like to introduce myself I am a 45 yr old woman who’s been diagnosed with lupus in 2009 . I have been told only today my kidney function as dropped to 9 % so I will have to go on dialysis till I get a transplant. And I was wondering if anyone else is on home dialysis as that’s where my minds
Hi I would like to introduce myself I am a 45 yr old woman who’s been diagnosed with lupus in 2009 . I have been told only today my kidney function as dropped to 9 % so I will have to go on dialysis till I get a transplant. And I was wondering if anyone else is on home dialysis as that’s where my minds
Basilbonce
in
LUPUS UK
4 years ago
Kidney Transplant process
Hi all! I'm writing because my husband has been referred for a transplant. He is 54 years old and is in end stage and on home dialysis since December 8th 2020. I 'm very nervous with the transplant process, we haven't been contacted yet to go for evaluation but any advice and how the process works will
Hi all! I'm writing because my husband has been referred for a transplant. He is 54 years old and is in end stage and on home dialysis since December 8th 2020. I 'm very nervous with the transplant process, we haven't been contacted yet to go for evaluation but any advice and how the process works will
brynat2
in
Kidney Disease
4 years ago
Carefully look at your lab test results-all depends on the normal range for each lab.
Just in case others may experience what I just did I will give my most recent experience: (when we compare our test result numbers on here remember they may all be wildly different numbers but mean the same thing)": Due to my stage 3 egfr (caused by only one kidney) and renal metastatic cancer, I get
Just in case others may experience what I just did I will give my most recent experience: (when we compare our test result numbers on here remember they may all be wildly different numbers but mean the same thing)": Due to my stage 3 egfr (caused by only one kidney) and renal metastatic cancer, I get
RickHow
in
Early CKD Support
4 years ago
New Israeli drug cured 29 of 30 moderate/serious COVID cases in days — hospital
New Israeli drug cured 29 of 30 moderate/serious COVID cases in days — hospital Medicine developed at Ichilov moderates immune response, helps prevent deadly cytokine storm, researchers say; 29 of 30 phase 1 trial patients left hospital within 3-5 days A new coronavirus treatment being developed at Tel
New Israeli drug cured 29 of 30 moderate/serious COVID cases in days — hospital Medicine developed at Ichilov moderates immune response, helps prevent deadly cytokine storm, researchers say; 29 of 30 phase 1 trial patients left hospital within 3-5 days A new coronavirus treatment being developed at Tel
lupus-support1
Administrator
in
LUpus Patients Understanding and Support
4 years ago
COVID Stats...
Hi everyone! I had my quarterly Nephrology appointment today. I am a kidney transplant recipient from 1999 - ya, 21+ years ago. There were a lot of questions and discussions on this site about the COVID vaccine and should you get it or not. My nephrologist has a friend who is also a nephrologist
Hi everyone! I had my quarterly Nephrology appointment today. I am a kidney transplant recipient from 1999 - ya, 21+ years ago. There were a lot of questions and discussions on this site about the COVID vaccine and should you get it or not. My nephrologist has a friend who is also a nephrologist
WYOAnne
NKF Ambassador
in
Kidney Transplant
4 years ago
Rejection
I took blood tests to see what’s going on with my kidney. I was told a biopsy would be next to see what is causing the problem and treatment to follow! These UTI’s are brutal!
I took blood tests to see what’s going on with my kidney. I was told a biopsy would be next to see what is causing the problem and treatment to follow! These UTI’s are brutal!
Dara3351
in
Kidney Transplant Patient Support
4 years ago
Started Taxotere question
I started taxotere 2 weeks ago. I was wondering if anyone can answer a couple of questions. When I had SBRT the oncologist told me that the treatment may make the cancer angry and cause pain in those spots being treated. I was wondering if the same would hold true for the taxotere causing pain in the
I started taxotere 2 weeks ago. I was wondering if anyone can answer a couple of questions. When I had SBRT the oncologist told me that the treatment may make the cancer angry and cause pain in those spots being treated. I was wondering if the same would hold true for the taxotere causing pain in the
Scootman
in
Advanced Prostate Cancer
4 years ago
Vaccine, kidney transplant receiver and immunosuppresants
Hi everyone. I'm posting for my partner. He had a successful kidney transplant about 6 years ago. He takes immunosuppresants (Azathioprine) and has been offered a vaccine. Have anyone you post kidney transplantees that take immunosuppresants had the vaccine? If so, which one have you had? Were you
Hi everyone. I'm posting for my partner. He had a successful kidney transplant about 6 years ago. He takes immunosuppresants (Azathioprine) and has been offered a vaccine. Have anyone you post kidney transplantees that take immunosuppresants had the vaccine? If so, which one have you had? Were you
magSLE
in
Kidney Transplant
4 years ago
Out of the Loop
Hi All, thank you for your lovely messages and PMs. Yesterday was a very, very difficult day for me since I had my first Covid jab. An opportunity my husband didn't get by a matter of days / weeks. Had my son not been with me I would have driven away. The advantage of my hysteria meant I jumped the
Hi All, thank you for your lovely messages and PMs. Yesterday was a very, very difficult day for me since I had my first Covid jab. An opportunity my husband didn't get by a matter of days / weeks. Had my son not been with me I would have driven away. The advantage of my hysteria meant I jumped the
Marilyn1959
in
PMRGCAuk
4 years ago
Hemodialysis
Does hemodialysis get better eventually? I have been doing since 07/13/2020 and still have emotional and physical problems. I am so tired afterwards but can't rest and end up crying from frustration I guess. Still got to do 3 things to get on Transplant list supposedly, it changes every month. Thank
Does hemodialysis get better eventually? I have been doing since 07/13/2020 and still have emotional and physical problems. I am so tired afterwards but can't rest and end up crying from frustration I guess. Still got to do 3 things to get on Transplant list supposedly, it changes every month. Thank
SadMad
in
Kidney Dialysis
4 years ago
Contrast dye
Hi, I've been offered an MRI for my pituitary and brain (my 4th). I've been told that it's essential to have contrast dye for this but due to many health issues, am really worried about this. Last time I was mostly in bed for over a year with bad dysautonomia/palpitations etc, but that may be unrelated
Hi, I've been offered an MRI for my pituitary and brain (my 4th). I've been told that it's essential to have contrast dye for this but due to many health issues, am really worried about this. Last time I was mostly in bed for over a year with bad dysautonomia/palpitations etc, but that may be unrelated
Thenightowl
in
Thyroid UK
4 years ago
Only water fasting after renal transplantation. How long is safe?
Has anybody done only water fasting for over 24 hours after kidney transplant? I had done 7-8 days of only water fasting prior to KT and now have been doing IF of 20/4. I’m also a vegan of 16 years. Is long period of fasting on water safe for renal transplant recipients on immunosuppressive meds? Thx
Has anybody done only water fasting for over 24 hours after kidney transplant? I had done 7-8 days of only water fasting prior to KT and now have been doing IF of 20/4. I’m also a vegan of 16 years. Is long period of fasting on water safe for renal transplant recipients on immunosuppressive meds? Thx
SLP2005
in
Kidney Transplant Patient Support
4 years ago
Calcium supplement
Hi y’all. Has anyone found a good calcium supplement you could recommend? The one the doc prescribed includes soybean oil which can promote inflammation due to high omega 6!!!!!!!!! Keep well xx
Hi y’all. Has anyone found a good calcium supplement you could recommend? The one the doc prescribed includes soybean oil which can promote inflammation due to high omega 6!!!!!!!!! Keep well xx
Nicobeak
in
PMRGCAuk
4 years ago
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