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Confused and not sure next step
Hi, I've had middle back pain and right side under rib pain, occasional itching and bitter taste for over three years, had gallbladder removed and all symptoms remain, ct, mri and ultrasound, liver function all clear. Any ideas
Hi, I've had middle back pain and right side under rib pain, occasional itching and bitter taste for over three years, had gallbladder removed and all symptoms remain, ct, mri and ultrasound, liver function all clear. Any ideas
PaulD1978
in
British Liver Trust
4 years ago
Low Parathyroid hormone
Hi guys Just a little question to throw out there: I tested positive to intrinsic factor antibody 3 months ago now doing cyano shots monthly and has helped heaps with neuro symptoms. I recently was tested and came back with low parathyroid hormone 8 range 10-65 and need to go back to dr for consult
Hi guys Just a little question to throw out there: I tested positive to intrinsic factor antibody 3 months ago now doing cyano shots monthly and has helped heaps with neuro symptoms. I recently was tested and came back with low parathyroid hormone 8 range 10-65 and need to go back to dr for consult
Bloominflower
in
Pernicious Anaemia Society
4 years ago
Denied for being underweight ?
Hello , has anyone been denied a kidney transplant because they were underweight ? Thanks!
Hello , has anyone been denied a kidney transplant because they were underweight ? Thanks!
Megan024
in
Kidney Transplant
4 years ago
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Prostap period hell!
I'm crying as I write this, i have severe endometriosis and i had my first prostap a few weeks ago and omg this period im having is absolutely awful! Just like my other periods, im just so fed up and drained from being in pain or something wrong with my body all the time! I was really hoping the prostab
I'm crying as I write this, i have severe endometriosis and i had my first prostap a few weeks ago and omg this period im having is absolutely awful! Just like my other periods, im just so fed up and drained from being in pain or something wrong with my body all the time! I was really hoping the prostab
Em1210
in
Endometriosis UK
4 years ago
Encouragement and a question
Hi. I've been waiting at home whilst my husband recovers from Covid. The history is: 5 weeks fully sedated ICU; tracheostomy fitted; 3 weeks to fully wake up; 2 weeks with MRSA; transfer to Renal unit for 3 weeks. Weakness on right side - no grip in hand and sore shoulder. Kidneys not working well
Hi. I've been waiting at home whilst my husband recovers from Covid. The history is: 5 weeks fully sedated ICU; tracheostomy fitted; 3 weeks to fully wake up; 2 weeks with MRSA; transfer to Renal unit for 3 weeks. Weakness on right side - no grip in hand and sore shoulder. Kidneys not working well
Mumptie
in
ICUsteps
4 years ago
Secondary pneumonia- post covid/ventilator
Hi everyone, My dad is off the vent and off sedation. He is breathing on his own but still in the hospital. However, today they said his breathing was a bit laboured. They also said his white blood count was low. They are suspecting secondary bacterial pneumonia. They have already started treating it
Hi everyone, My dad is off the vent and off sedation. He is breathing on his own but still in the hospital. However, today they said his breathing was a bit laboured. They also said his white blood count was low. They are suspecting secondary bacterial pneumonia. They have already started treating it
Ren2985
in
ICUsteps
4 years ago
Kidney Transplant and Covid Prison
I was actually feeling more like my true self and confident that I was recovering nicely from the transplant surgery, then the covid hit and I have been a prisoner in my own house. The only social activity I have is going for labs and doctor appointments. I miss all the things I used to do: going
I was actually feeling more like my true self and confident that I was recovering nicely from the transplant surgery, then the covid hit and I have been a prisoner in my own house. The only social activity I have is going for labs and doctor appointments. I miss all the things I used to do: going
Ynnep
in
Kidney Transplant
4 years ago
Good protein for CKD?
I was stage 3. Now stage 2. Have reduced gfr by almost eliminating protein. I am looking to put protein back in diet. Which are the easiest proteins for kidneys to handle. ( besides egg whites and tofu) ??
I was stage 3. Now stage 2. Have reduced gfr by almost eliminating protein. I am looking to put protein back in diet. Which are the easiest proteins for kidneys to handle. ( besides egg whites and tofu) ??
Orbachruth
in
Early CKD Support
4 years ago
Vaccines for kidney transplant patients
Has anyone with a kidney transplant had the vaccine yet?
Has anyone with a kidney transplant had the vaccine yet?
JEanes55
in
Kidney Transplant
4 years ago
How much internal radiation can a guy take?
I have bone mets in both femures and Ischium. I have read about Radium 223 as well as Lu-177 and AC-225 and variations. Can I start taking these radio pharma drugs with abandon without worrying about accumulated radiation? Should I plunge into the genre asap or wait for the best and safest to be
I have bone mets in both femures and Ischium. I have read about Radium 223 as well as Lu-177 and AC-225 and variations. Can I start taking these radio pharma drugs with abandon without worrying about accumulated radiation? Should I plunge into the genre asap or wait for the best and safest to be
baltha
in
Advanced Prostate Cancer
4 years ago
COVID 19 POSITIVE
I am a kidney transplant patient and I have tested positive for COVID-19. I am sick for more than a week with fever, headache and body pain. At night I get high fever and body pain. They told me to keep checking my oxygen and if its low then go hospital. I was told to quarantine for 20 days as I
I am a kidney transplant patient and I have tested positive for COVID-19. I am sick for more than a week with fever, headache and body pain. At night I get high fever and body pain. They told me to keep checking my oxygen and if its low then go hospital. I was told to quarantine for 20 days as I
Tahmed251
in
Kidney Transplant
4 years ago
Off topic
This is my little old lady pug baby fourteen and a half yrs young 👶 she isn’t well we been back the vet kidney stone again we had them 2 years ago lucky they broke down with a urinuary royal canine diet antibiotics some strong pain relief , she had a near miss on the stairs going up to bed 🛌
This is my little old lady pug baby fourteen and a half yrs young 👶 she isn’t well we been back the vet kidney stone again we had them 2 years ago lucky they broke down with a urinuary royal canine diet antibiotics some strong pain relief , she had a near miss on the stairs going up to bed 🛌
Vonnie10
in
NRAS
4 years ago
Finding Support
Hello everyone~ I'm new in the Raleigh, NC area and looking for someone to take the journey with me through the kidney transplant process. I don't know where I can go to reach out to find folks who can volunteer to go down this path. I cannot begin the transplant program without having a supportive partner
Hello everyone~ I'm new in the Raleigh, NC area and looking for someone to take the journey with me through the kidney transplant process. I don't know where I can go to reach out to find folks who can volunteer to go down this path. I cannot begin the transplant program without having a supportive partner
WhQQpie
in
Kidney Transplant
4 years ago
Is there a difference between Collapsing Glomerulopathy and C3?
My son, 17, was just diagnosed with collapsing Glomerulopathy after having had a kidney transplant in June of 2020. My doctor told me there is no known cases of it happening in pediatric patients and my son is the youngest she knows of to ever have it. She explained to me that it usually happens either
My son, 17, was just diagnosed with collapsing Glomerulopathy after having had a kidney transplant in June of 2020. My doctor told me there is no known cases of it happening in pediatric patients and my son is the youngest she knows of to ever have it. She explained to me that it usually happens either
Shieldmaiden
in
C3 Glomerulopathy
4 years ago
17 Year old with unknown kidney disease given transplant in June now has Collapsing Glomerulopathy
Hello, After finding out my son had an unknown kidney disease and stage 4 failure in late September of 2018 we worked fast to try to find him a donor. Luckily we were able to find a donor and he had his transplant in June of 2020. He had one rejection episode just days after we came come from the hospital
Hello, After finding out my son had an unknown kidney disease and stage 4 failure in late September of 2018 we worked fast to try to find him a donor. Luckily we were able to find a donor and he had his transplant in June of 2020. He had one rejection episode just days after we came come from the hospital
Shieldmaiden
in
C3 Glomerulopathy
4 years ago
Should I be concerned?
I'm an 83 year old woman. I know that the GFR decreases with age, so maybe I'm within the normal range. In Oct last year, my Creatinine was 1.20 mg/dl and my GFR was 43. In Dec last year, the findings were Creatinine 1.08 mg/dl and the GFR was 48. My doctor says that shows CKD, but that at this point
I'm an 83 year old woman. I know that the GFR decreases with age, so maybe I'm within the normal range. In Oct last year, my Creatinine was 1.20 mg/dl and my GFR was 43. In Dec last year, the findings were Creatinine 1.08 mg/dl and the GFR was 48. My doctor says that shows CKD, but that at this point
zoey_s
in
Early CKD Support
4 years ago
Long wait time for referral
I recently had an ultrasound which showed a few cysts on my right ovary, one of which was haemorrhagic and they're suspecting endometriosis. I currently have the coil inserted, and am on yasmin also to try and reduce pain. Struggling massively with pain, taking tramadol daily and using hot water bottles
I recently had an ultrasound which showed a few cysts on my right ovary, one of which was haemorrhagic and they're suspecting endometriosis. I currently have the coil inserted, and am on yasmin also to try and reduce pain. Struggling massively with pain, taking tramadol daily and using hot water bottles
Aeco
in
Endometriosis UK
4 years ago
Epo for Renal Anaemia
Anyone had any experience of taking Epo for anaemia? My renal nurse wants me to have it but when she first mentioned it she said it carried a risk of stroke. Tried iron infusions but not effective. I have high blood pressure and a family history of strokes, naturally worried . On the other hand
Anyone had any experience of taking Epo for anaemia? My renal nurse wants me to have it but when she first mentioned it she said it carried a risk of stroke. Tried iron infusions but not effective. I have high blood pressure and a family history of strokes, naturally worried . On the other hand
mmwsmall
in
Early CKD Support
4 years ago
Hemodialysis Side Effects
90days into Hemodialysis 3 times a week, 3h 15 mins duration. 1. Head ace starts 15 mins after treatments, which last hours, sometimes days. 2. Within 30 mins into headache it changes to an Ocular Migraine. 3. Dizziness starts within the hour. 4. Extreme fatigue starts around 3 hours after, which
90days into Hemodialysis 3 times a week, 3h 15 mins duration. 1. Head ace starts 15 mins after treatments, which last hours, sometimes days. 2. Within 30 mins into headache it changes to an Ocular Migraine. 3. Dizziness starts within the hour. 4. Extreme fatigue starts around 3 hours after, which
AlanKx5
in
Kidney Dialysis
4 years ago
A curiosity with questions
Good evening everyone, I know how difficult it can be to conduct research for fibromailgia, I have read so many abstracts on the Pub Med website but I wanted to ask you if you are aware of studies such as: 1) measuring an enzyme or antibody responsible for a specific biological process that leads to
Good evening everyone, I know how difficult it can be to conduct research for fibromailgia, I have read so many abstracts on the Pub Med website but I wanted to ask you if you are aware of studies such as: 1) measuring an enzyme or antibody responsible for a specific biological process that leads to
TabataRossa
in
Fibromyalgia Action UK
4 years ago
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