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Juvenile idiopathic arthritis
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Not happy!!!
Hello everyone I have arthritis in many of my joints… my left wrist being the worst. I have been told for nearly 5 years that I do not have arthritis and that the pain I am suffering with is due to my fibromyalgia!! I wasn’t convinced. I asked for a second opinion (this hasn’t been a quick procedure
Hello everyone I have arthritis in many of my joints… my left wrist being the worst. I have been told for nearly 5 years that I do not have arthritis and that the pain I am suffering with is due to my fibromyalgia!! I wasn’t convinced. I asked for a second opinion (this hasn’t been a quick procedure
Dazakella2010
in
Arthritis Action
2 years ago
Which Artritis
😔one of my fingers really swelled up after painting a long fence it was so sore. Then a year later it started in the joint in the top of my thumb near my wrist. UK doctor said arthritis and test was negative for RA. Went abroad just before lockdown and doctor said RA without the R factor? He
😔one of my fingers really swelled up after painting a long fence it was so sore. Then a year later it started in the joint in the top of my thumb near my wrist. UK doctor said arthritis and test was negative for RA. Went abroad just before lockdown and doctor said RA without the R factor? He
SunnyWorld
in
Arthritis Action
2 years ago
PMR becomes RA
I suffered from polymyalgia for two years and with no improvement and continuing high inflammation levels the diagnosis changed to rehumatoid arthritis. I wondered if anyone else had exeprienced this? The rheumatologist is now going through the process of trying to find the right treatment and am currently
I suffered from polymyalgia for two years and with no improvement and continuing high inflammation levels the diagnosis changed to rehumatoid arthritis. I wondered if anyone else had exeprienced this? The rheumatologist is now going through the process of trying to find the right treatment and am currently
jennyjournalist
in
PMRGCAuk
2 years ago
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Pain - where my pain comes from!
My initial visit to the GP was as a result of Pain, this was the first thing I noticed. From the moment I got out of bed in my mid 40's I could not stand on my feet, the nearest experience I had faced previously in my life was glandular fever in my teens. (I have spoken with other fibro individuals
My initial visit to the GP was as a result of Pain, this was the first thing I noticed. From the moment I got out of bed in my mid 40's I could not stand on my feet, the nearest experience I had faced previously in my life was glandular fever in my teens. (I have spoken with other fibro individuals
does-the-NHS-work
in
Fibromyalgia Action UK
2 years ago
Latent arthritis or PMR
I have had PMR for five years, with classic shoulder and hip symptoms, initially and during flares. Never been able to get lower than 8.5mg Pred until this year. Now down to 6mg. Always slow taper - max 0.5 per month. Over the last month or so I have had increasing arthritis in hands. It is quite
I have had PMR for five years, with classic shoulder and hip symptoms, initially and during flares. Never been able to get lower than 8.5mg Pred until this year. Now down to 6mg. Always slow taper - max 0.5 per month. Over the last month or so I have had increasing arthritis in hands. It is quite
dmart7
in
PMRGCAuk
2 years ago
Steroid injection in knee - worth it?
Hello. I have inflammatory arthritis and have had knee pain for a few years, and a baker's cyst in my left knee. Scans also showed osteoarthritis and some mild effusion a year ago. Sometimes the pain is quite bad, especially on stairs. Sometimes it's only aggravated by activity. Sometimes there's barely
Hello. I have inflammatory arthritis and have had knee pain for a few years, and a baker's cyst in my left knee. Scans also showed osteoarthritis and some mild effusion a year ago. Sometimes the pain is quite bad, especially on stairs. Sometimes it's only aggravated by activity. Sometimes there's barely
rmros
in
NRAS
2 years ago
F2F with rheumatologist
Had a f2f with rheumatologist last week . Really thorough appt. Gave me a steroid injection to get me through my dads funeral. Both agreed things continue to be very active . He said he wanted to go over my history and get back in touch after another blood test. Letter received this morning. New diagnosis
Had a f2f with rheumatologist last week . Really thorough appt. Gave me a steroid injection to get me through my dads funeral. Both agreed things continue to be very active . He said he wanted to go over my history and get back in touch after another blood test. Letter received this morning. New diagnosis
Hidden
in
NRAS
2 years ago
arthritis
is ankylosis spondilitis a form of rheumatoid arthritis . I never get a straight answer. can you have psoriatic arthritis as well as ankylosis spondilitis and sjorgens syndrome. If I ask the hospital helpline I just get told « it is just blanket term , they come inder one umbrella. « This is
is ankylosis spondilitis a form of rheumatoid arthritis . I never get a straight answer. can you have psoriatic arthritis as well as ankylosis spondilitis and sjorgens syndrome. If I ask the hospital helpline I just get told « it is just blanket term , they come inder one umbrella. « This is
Luludean
in
NRAS
2 years ago
just getting started
hi im ,new to this as suffering from arthritis and bipolar it's been a little tough mentally and physically fir me . I know there are people worse off then me and are suffering more but I'm here to learn and for the help . Thankyou for reading this and fir patience too.
hi im ,new to this as suffering from arthritis and bipolar it's been a little tough mentally and physically fir me . I know there are people worse off then me and are suffering more but I'm here to learn and for the help . Thankyou for reading this and fir patience too.
Leotheloin
in
Couch to 5K
2 years ago
Rheumatoid Tales
A wee trailer for my YouTube channel about my life living with rheumatoid arthritis. I also posted a video earlier today about my experience of medications that I have experienced (10 rheumatoid drugs). I urge all of you if your drugs aren’t working, don’t suffer in silence and make sure you tell your
A wee trailer for my YouTube channel about my life living with rheumatoid arthritis. I also posted a video earlier today about my experience of medications that I have experienced (10 rheumatoid drugs). I urge all of you if your drugs aren’t working, don’t suffer in silence and make sure you tell your
Knit12
in
NRAS
2 years ago
Motivate RA research study
The Motivate RA research study conducted by Liverpool John Moores University are currently looking for new participants. The study seeks to identify effective methods to help people with rheumatoid arthritis increase and maintain physical activity levels to benefit their physical and mental health. This
The Motivate RA research study conducted by Liverpool John Moores University are currently looking for new participants. The study seeks to identify effective methods to help people with rheumatoid arthritis increase and maintain physical activity levels to benefit their physical and mental health. This
Aribah-NRAS
NRAS
in
NRAS
2 years ago
Did you know our new JIA Digital Membership is only £1.41 a month?
For this amazing price you will be joining a fantastic community and receive all the up-to-date research and information on
juvenile
idiopathic
arthritis
. You can find out more here https://jia.org.uk/become-a-member/
For this amazing price you will be joining a fantastic community and receive all the up-to-date research and information on
juvenile
idiopathic
arthritis
. You can find out more here https://jia.org.uk/become-a-member/
Aribah-NRAS
in
JIA-at-NRAS
3 years ago
Off Tocilizumab after six months
I don't know where to start. My history will show I have GCA and PMR all diagnosed in 2019 after several misdiagnoses, and started treatment with Pred 15mg and then up to 25mg which helped the PMR and the GCA somewhat. I was then put on 20mg of Mexthetrate which did not agree with me. I change my
I don't know where to start. My history will show I have GCA and PMR all diagnosed in 2019 after several misdiagnoses, and started treatment with Pred 15mg and then up to 25mg which helped the PMR and the GCA somewhat. I was then put on 20mg of Mexthetrate which did not agree with me. I change my
redhouts
in
PMRGCAuk
2 years ago
RA Awareness Week (RAAW) begins on Monday - Test your friends and family on their RA knowledge
The theme of RAAW this year is to dispel the myths that surround living with Rheumatoid Arthritis (RA). The RA community, people living with RA, their families/carers and Healthcare professionals are only too aware of the misconceptions that other people can have around inflammatory arthritis, which
The theme of RAAW this year is to dispel the myths that surround living with Rheumatoid Arthritis (RA). The RA community, people living with RA, their families/carers and Healthcare professionals are only too aware of the misconceptions that other people can have around inflammatory arthritis, which
Eleanor-NRAS
NRAS
in
NRAS
2 years ago
I have chronic pain. Back pain for many years.Sciatica.Diagnosis 5yrs ago with sarcoidosis .Now have osteo arthritis of hip and knees.
Pain relief natural remedies as well as prescribed medication.
Pain relief natural remedies as well as prescribed medication.
Inquisitive2
in
Pain Concern
2 years ago
tocilizumab after relapse
Hi having felt unwell again and 8 weeks of steroids, reducing to zero I have had a positive ct pet scan again. Now back on steroids and a plan to commence lufludomine while consultant tries to get tocilizumab again. Has anyone had any luck with getting further scripts after relapse. Grateful for any
Hi having felt unwell again and 8 weeks of steroids, reducing to zero I have had a positive ct pet scan again. Now back on steroids and a plan to commence lufludomine while consultant tries to get tocilizumab again. Has anyone had any luck with getting further scripts after relapse. Grateful for any
Devoid
in
PMRGCAuk
2 years ago
osteoarthritis & knee splints question
Both my knees are in need of full replacement. I'm only in my early 50's and want to delay surgery as long as I can. The Orthopaedic Dr I saw yesterday agreed and will give me injections into the knees and also knee splints. Do any of you use splints for your knees? How do you find them? Can
Both my knees are in need of full replacement. I'm only in my early 50's and want to delay surgery as long as I can. The Orthopaedic Dr I saw yesterday agreed and will give me injections into the knees and also knee splints. Do any of you use splints for your knees? How do you find them? Can
Divasong
in
Arthritis Action
2 years ago
methotrexate and psoriasis
hi everyone, I suffer from psoriatic arthritis - have done since I was on my teens.. not 42. My arthritis has gone now for a long time but my psoriasis I have sudden flare ups. I take methotrexate injections at home for my arthritis which help my psoriasis as far as I know. For the past 5 weeks I’ve
hi everyone, I suffer from psoriatic arthritis - have done since I was on my teens.. not 42. My arthritis has gone now for a long time but my psoriasis I have sudden flare ups. I take methotrexate injections at home for my arthritis which help my psoriasis as far as I know. For the past 5 weeks I’ve
Junny123
in
MY SKIN
2 years ago
Morphine patches and steroid injections for stage 4 osteoarthritis?
I have been diagnosed with stage 4 osteoarthritis in my right hip. I have been in pain for many years but was previously misdiagnosed as the pain manifests itself in my right knee. More recently due to the way i am walking i have started to get severe pain in my lower back (left side) also. My condition
I have been diagnosed with stage 4 osteoarthritis in my right hip. I have been in pain for many years but was previously misdiagnosed as the pain manifests itself in my right knee. More recently due to the way i am walking i have started to get severe pain in my lower back (left side) also. My condition
Holmol3
in
Pain Concern
2 years ago
stiff little fingers
Hi Are stiff finger joints a hypo symptom or should I now be worrying about Rheumatoid Arthritis? There are many hypo symptoms that I didn't suffer until I started this medication journey - which I'm hoping will resolve as I optimise. I'm hoping stiff finger joints is one of them? Looking at old
Hi Are stiff finger joints a hypo symptom or should I now be worrying about Rheumatoid Arthritis? There are many hypo symptoms that I didn't suffer until I started this medication journey - which I'm hoping will resolve as I optimise. I'm hoping stiff finger joints is one of them? Looking at old
Pearlteapot
in
Thyroid UK
2 years ago
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