JIA-at-NRAS | HealthUnlocked

This week is JIA Awareness Week and we are raising awareness of what it is like to live with Juvenile Idiopathic Arthritis by sharing across our social media...

An amazing small local charity, CALM (Children Achieving Lifelong Movement), based in Bourton-on-the-Water, Gloucestershire, with which we have close links,...

Hi My son is struggling at school again, his ‘mates’ bully him they are all ASD but access mainstream secondary with support. Hes on week 7 of Benepali...

The National Confidential Enquiry into Patient Outcome and Death (NCEPOD) are currently undertaking a study to look at quality of care in children and young...

Wear Purple is our annual campaign dedicated to raising awareness and NRAS funds for the benefit of those living with JIA 💜. This year it will he held on...

Hi. I've been on HealthUnlocked for some time now and for some reason, my profile states I've not introduced myself. I've written a bio within my profile...

Hi, everyone! My 4 years old son was diagnosed with JIA in 2023. it’s a big change to our family. We’ve been through a lot of emotions. We have been doing a...

Hello, I have JIA since birth (got diagnosed at 6+ months). My one leg is shorter than other one and is making my hips, spine its unevenly ( i do have...

I attended Taplow hospital when I was diagnosed in 1974. I am wondering if anyone else here went there and how you are now. I was 13 years old at the time and...

Good morning everyone and Happy New Year! We are delighted to announce new opportunities for 2024 at JIA-at- NRAS to support the work we do for those...

Then now's the time! We are reaching out to you, our community in as many ways as possible to ask a series of anonymous questions. It will help us to better...

Recent headlines have highlighted concerns of a resurgence in measles cases across the UK and especially in London. We asked our paediatric medical advisor, Dr...

For our first ever NRAS Census we are reaching out to you, our community in as many ways as possible to ask a series of anonymous questions. It will help us to...

We are so proud to have been involved in this important project to examine the impact on mental health of children, young people and families living with a JIA...

Could you spare a few minutes to tell your JIA story and help researchers understand what is important to you? The Cluster Consortium are looking for...

Researchers at the University of Manchester are inviting parents and carers of a child diagnosed with JIA to share their experiences of the diagnosis by...

The government has released a bulletin offering secondary school pupils a free flu vaccine at school from 1st September. Please note the following: All...

Morning Everyone. Today is the first day of JIA Awareness week (Juvenile Idiopathic Arthritis).4 Please keep an eye out on social media for JIA Awareness...

Hello, I am a mum to a daughter who was diagnosed with Juvenile Idiopathic Arthritis last year at the age of 8. It has been a very difficult year but we are in...

Hi all, I was diagnosed at 13 in September 2002 with JIA which is now full blown Rheumatoid Arthritis. As a teen diagnosed with this was tough so happy to give...

Time to debunk myths about Juvenile Idiopathic Arthritis! 💪💥 Join us in #BustingJIAMyths and raising awareness about JIA. Let’s educate, support, and break...

This webinar is a collaborative project involving: JIA-at-NRAS, Versus Arthritis, CCAA , JAR, Lupus UK and SNAC. Last year, this group of UK rheumatology...

Join us in spreading awareness and #BustingJIAMyths this year during JIA Awareness Week from 3rd-7th July 2023! 💙💪 Help us to dispel the myths around...

The next in- person Your Rheum meeting is to be held on Saturday 17th June 2023 from 1- 4pm, in London. Your Rheum is a group for 11-24 year olds across...

Following advice from the Joint Committee on Vaccination and Immunisation (JCVI) on Covid-19 vaccinations of at-risk children aged 6 months to 4 years, the...

We want to hear your experiences of accessing support ARMA has launched the first ever national inquiry into inequalities in musculoskeletal* health. The...

Don't forget to register for the JIA Parents meeting on Monday 6th March @ 7pm. A safe space to share stories with people who get it. Click here to...

We'd love to know what you think about our online JIA Parents group. Whether you have or haven't attended any meetings, we would love to know your thoughts....

An amazing local charity based in Bourton-on-the-Water, has 8 places available for fully funded physical movement therapy sessions which they would like to...

This year the JIA Awareness Week is looking at the common misconceptions people have of JIA. I am wanting to know what are the most common comments you get...