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Juvenile idiopathic arthritis
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Upcoming appointment with Rheumy Consultant - people's experiences/advice appreciated
Hi all Firstly, just wanting to explain that my user name is a reference to the nickname of the football team I support - I'm not interested in knife crime or anything like that! I might change it actually to avoid any confusion or concerns! I've got another appointment with Rheumy Consultant next
Hi all Firstly, just wanting to explain that my user name is a reference to the nickname of the football team I support - I'm not interested in knife crime or anything like that! I might change it actually to avoid any confusion or concerns! I've got another appointment with Rheumy Consultant next
BladesLover
in
PMRGCAuk
29 days ago
Spirulina and Chlorella
Hi, i was diagnosed with Rheumatoid arthritis 5 years ago and I'm on methotrexate and hydroxycloroquine. I'm was hoping to start taking spirulina and chlorella as they have so many health benefits but I not sure of any drug interactions. I've tried Google but I'm getting conflicting advice, some say
Hi, i was diagnosed with Rheumatoid arthritis 5 years ago and I'm on methotrexate and hydroxycloroquine. I'm was hoping to start taking spirulina and chlorella as they have so many health benefits but I not sure of any drug interactions. I've tried Google but I'm getting conflicting advice, some say
Maple1981
in
NRAS
6 months ago
HRT Raises Rheumatoid Arthritis Risk …
I found this article last week about HRT and rheumatoid arthritis risk in my online magazine …. I know a lot of US use HRT and thought this article might be of interest. I don’t have the actual magazine its online subscription… sorry. This link might actually get you to this article! https://www.wddty.com
I found this article last week about HRT and rheumatoid arthritis risk in my online magazine …. I know a lot of US use HRT and thought this article might be of interest. I don’t have the actual magazine its online subscription… sorry. This link might actually get you to this article! https://www.wddty.com
Batty1
in
Thyroid UK
6 months ago
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Hello - I'm interested in other GCA experiences
Hi. First time I've posted. I was diagnosed with GCA in February 2024 following hospital admission. It took medics a while to work it out but, once they did and started me on Prednisolone, my symptoms quickly improved. I returned to work early April and things seemed to be going in the right direction
Hi. First time I've posted. I was diagnosed with GCA in February 2024 following hospital admission. It took medics a while to work it out but, once they did and started me on Prednisolone, my symptoms quickly improved. I returned to work early April and things seemed to be going in the right direction
BladesLover
in
PMRGCAuk
2 months ago
Advice
Hi! I have Srogrens, which lead to Rheumatoid Arthritis, which had resulted in ILD. on methotrexate but now in addition been offered Nintedanib. ANY advice please as the only thing I'm worried about is pooping myself😂! many thanks, elaine
Hi! I have Srogrens, which lead to Rheumatoid Arthritis, which had resulted in ILD. on methotrexate but now in addition been offered Nintedanib. ANY advice please as the only thing I'm worried about is pooping myself😂! many thanks, elaine
elainenorman
in
Lung Conditions Community Forum
6 months ago
Newbi
I'm 54 and have been trying to lose weight for a years. I take medication for depression and have arthritis which resulted in two joints replacements.Starting weight - 195 Last weeks weight - 198 Weight loss- 3 lbs Total loss- 5 lbs
I'm 54 and have been trying to lose weight for a years. I take medication for depression and have arthritis which resulted in two joints replacements.Starting weight - 195 Last weeks weight - 198 Weight loss- 3 lbs Total loss- 5 lbs
Jerry02
2023 December
in
Weight Loss Support
9 months ago
Over 50
I have been struggling withy weight for years. I started putting on weight when I started depression medication. Now I'm over 50 still battling obesity. Growing up I was very active,but that has decreased due arthritis and joint replacements. I'm starting a new year looking for support from others.
I have been struggling withy weight for years. I started putting on weight when I started depression medication. Now I'm over 50 still battling obesity. Growing up I was very active,but that has decreased due arthritis and joint replacements. I'm starting a new year looking for support from others.
Jerry02
2023 December
in
Weight Loss Support
9 months ago
Cholesterol readings
Hello medically-minded people Tryimg to decide whether to take statins or not. This is my latest cholesterol test readings. I knw that the total cholesterol level is high (as it tells me) but my diet is not bad (exercise level lowish though due to PMR) but are there any/enough mitigating factors? Due
Hello medically-minded people Tryimg to decide whether to take statins or not. This is my latest cholesterol test readings. I knw that the total cholesterol level is high (as it tells me) but my diet is not bad (exercise level lowish though due to PMR) but are there any/enough mitigating factors? Due
marionofnorwich
in
PMRGCAuk
2 months ago
Rheumatoid arthritis
Hi I'm on prednisone and leflunomide vid d and jyseleca I have come up with a high temp and a fever, please tell me can I take any pain killers my body is killing me
Hi I'm on prednisone and leflunomide vid d and jyseleca I have come up with a high temp and a fever, please tell me can I take any pain killers my body is killing me
Alisa123
in
NRAS
6 months ago
Septic Arthritis
Evening all, Has anyone experienced Septic Arthritis due to RA? What were your symptoms? I'm having the worst pain and swelling in my left knee that I've ever had. I had an emergency appt with Rheumatology this morning who drained fluid from my knee and sent off for testing as it was cloudy? They also
Evening all, Has anyone experienced Septic Arthritis due to RA? What were your symptoms? I'm having the worst pain and swelling in my left knee that I've ever had. I had an emergency appt with Rheumatology this morning who drained fluid from my knee and sent off for testing as it was cloudy? They also
Mummyto2x
in
NRAS
8 months ago
Hello
Hello :) My name is Jon and i am a 54 year old man living with Palindromic rheumatism and also now recently diagnosed with Rheumatoid Arthritis as well. I have started taking steroids and naproxen but still struggle in the mornings and wake up in the night with severe pain in my hands and ankle's.
Hello :) My name is Jon and i am a 54 year old man living with Palindromic rheumatism and also now recently diagnosed with Rheumatoid Arthritis as well. I have started taking steroids and naproxen but still struggle in the mornings and wake up in the night with severe pain in my hands and ankle's.
StOsyths1970
in
NRAS
6 months ago
Rib pain after breathing test
On 22nd I took respiratory test. Ribs in area of LUNG SURGERY in 2019 are very painful upon effort; front, side, and back. I'm taking tylenol and rubbing creams with little improvement. Any one experience this after test?
On 22nd I took respiratory test. Ribs in area of LUNG SURGERY in 2019 are very painful upon effort; front, side, and back. I'm taking tylenol and rubbing creams with little improvement. Any one experience this after test?
Lyubov
in
Lung Conditions Community Forum
6 months ago
rheumatoid arthritis
It’s been called arthritis but it’s not in joints but it’s a pain around my chest and back. X-ray and Ct scan have not reveal anything. GP says let’s try to control the pain first
It’s been called arthritis but it’s not in joints but it’s a pain around my chest and back. X-ray and Ct scan have not reveal anything. GP says let’s try to control the pain first
Bncc
in
PMRGCAuk
10 months ago
Osteoarthritis in feet ?
A quick question !!I have Osteoarthritis in my feet , worse is my right foot. This makes me limp constantly and use a walking aid all of the time. I have used a walking aid for around 4 months but realistically I could have , should used one wayyyy before that, but was embarrassed too. My Rheumatology
A quick question !!I have Osteoarthritis in my feet , worse is my right foot. This makes me limp constantly and use a walking aid all of the time. I have used a walking aid for around 4 months but realistically I could have , should used one wayyyy before that, but was embarrassed too. My Rheumatology
Frenchi88
in
Fibromyalgia Action UK
10 months ago
Life after Tocilizumab?
I've been off steroids since mid-May. Continuing to take methotrexate (15mg weekly) and Toxilizumab weekly. I seem to be doing well - bloods fine and health ok. I'm seeing rheumatologist next week and my concern is I'm guessing that I won't be eligible for further Tox after my current prescription runs
I've been off steroids since mid-May. Continuing to take methotrexate (15mg weekly) and Toxilizumab weekly. I seem to be doing well - bloods fine and health ok. I'm seeing rheumatologist next week and my concern is I'm guessing that I won't be eligible for further Tox after my current prescription runs
tweety_pie
in
PMRGCAuk
3 months ago
RA and lymphoedema
Hi, just wondering if anyone has secondary lymphoedema and rheumatoid arthritis and if so what RA medication you are on, I am waiting to find out what medication I can be prescribed as I am currently having a flare up, I have had RA for over 35 years and been on various medications but the last ones
Hi, just wondering if anyone has secondary lymphoedema and rheumatoid arthritis and if so what RA medication you are on, I am waiting to find out what medication I can be prescribed as I am currently having a flare up, I have had RA for over 35 years and been on various medications but the last ones
Keb22
in
NRAS
6 months ago
Tocilizumab
I am advised that a biosimilar to tocilizumab has been approved in the UK and will be available at a more economical price , enabling NICE to allow NHS prescriptions for GCA after the initial 12 months. My GP and Consultant keen to get me off Pred altogether ( currently on second attempt in 3 years)
I am advised that a biosimilar to tocilizumab has been approved in the UK and will be available at a more economical price , enabling NICE to allow NHS prescriptions for GCA after the initial 12 months. My GP and Consultant keen to get me off Pred altogether ( currently on second attempt in 3 years)
Niblick
in
PMRGCAuk
3 months ago
Pain and frustration 😟
Hello everyone, Having finally dropped from 5mg to 4.5mg I am now in my fourth week. I have no shoulder or arm pain and was beginning to feel like I’ve finally cracked the 5mg barrier(third time lucky). I’ve had PMR for 2years and 9 months. However, my legs feel in constant pain and I don’t feel
Hello everyone, Having finally dropped from 5mg to 4.5mg I am now in my fourth week. I have no shoulder or arm pain and was beginning to feel like I’ve finally cracked the 5mg barrier(third time lucky). I’ve had PMR for 2years and 9 months. However, my legs feel in constant pain and I don’t feel
Pangolin43
in
PMRGCAuk
10 months ago
Advice on back pain & pred dosing...
Morning, i joined this group a few months ago and find it so useful even though I don't have pmr. I do have tertiary adrenal insufficiency, ulcerative colitis, osteoarthritis and fibromyalgia and possibly pots. In the last 2 years after having covid twice I developed cushing symptom due to over replacement
Morning, i joined this group a few months ago and find it so useful even though I don't have pmr. I do have tertiary adrenal insufficiency, ulcerative colitis, osteoarthritis and fibromyalgia and possibly pots. In the last 2 years after having covid twice I developed cushing symptom due to over replacement
Ruthie64
in
PMRGCAuk
10 months ago
Colonoscopy
Just have a question. I was put on a 5 Day taper of 16mg of prednisolone. I took my first dose today along with a one time dose of diflucan. Will I be ok to have my colonoscopy tomorrow?
Just have a question. I was put on a 5 Day taper of 16mg of prednisolone. I took my first dose today along with a one time dose of diflucan. Will I be ok to have my colonoscopy tomorrow?
Babciboys
in
PMRGCAuk
3 months ago
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