Search
Search
About
Log in
Join
Experiences with
Juvenile idiopathic arthritis
Posts
Communities
4,856 public posts
Filter results
Amalgam fillings
Hi I’m just putting this question out there out of curiosity. I’ve not posted for a while so here goes… My cousin came to stay with me from Canada. He’s been concerned about my diagnosis for what I was originally told was rheumatoid arthritis. However they’re now calling it Undifferentiated inflammatory
Hi I’m just putting this question out there out of curiosity. I’ve not posted for a while so here goes… My cousin came to stay with me from Canada. He’s been concerned about my diagnosis for what I was originally told was rheumatoid arthritis. However they’re now calling it Undifferentiated inflammatory
Whereisthesun
in
NRAS
9 months ago
New To Group
Hello! My name is AR57 & I became a "Pensioner" this September just gone!! :) I have had Rheumatoid Arthritis since 2001 & I had been stable with it for a good few years until quite recently, but it has now started to give a few wobbles again!! :( It will be good to talk with others who may have similar
Hello! My name is AR57 & I became a "Pensioner" this September just gone!! :) I have had Rheumatoid Arthritis since 2001 & I had been stable with it for a good few years until quite recently, but it has now started to give a few wobbles again!! :( It will be good to talk with others who may have similar
Ghost87
in
NRAS
6 months ago
Vasculitus, a promising road ahead- let’s hope so!
https://www.thelancet.com/journals/lanrhe/article/PIIS2665-9913(24)00094-8/fulltext?dgcid=raven_jbs_aip_email ‘…Biologics have come to the forefront as glucocorticoid-sparing agents. After the seminal GiACTA trial, tocilizumab is now recommended as a first-line therapy for giant cell arteritis in combination
https://www.thelancet.com/journals/lanrhe/article/PIIS2665-9913(24)00094-8/fulltext?dgcid=raven_jbs_aip_email ‘…Biologics have come to the forefront as glucocorticoid-sparing agents. After the seminal GiACTA trial, tocilizumab is now recommended as a first-line therapy for giant cell arteritis in combination
Exflex
in
PMRGCAuk
1 month ago
Want to take advantage of all our features? Just log in!
Log in
or
Join
Question on PMR and Temporal Arteritis
Does anyone know: would an MRI show Temporal Arteritis or would a person need a biopsy to determine if Temporal Arteritis was present? Asking for a person newly diagnosed with PMR and in the ER dept was told she had Temporal Arteritis. Yesterday she went to the rheumatologist and was told she definitely
Does anyone know: would an MRI show Temporal Arteritis or would a person need a biopsy to determine if Temporal Arteritis was present? Asking for a person newly diagnosed with PMR and in the ER dept was told she had Temporal Arteritis. Yesterday she went to the rheumatologist and was told she definitely
Musiclady18
in
PMRGCAuk
1 month ago
Patients with higher apolipoprotein A-I levels at greater risk for giant cell arteritis
https://www.healio.com/news/rheumatology/20240315/patients-with-higher-apolipoprotein-ai-levels-at-greater-risk-for-giant-cell-arteritis
https://www.healio.com/news/rheumatology/20240315/patients-with-higher-apolipoprotein-ai-levels-at-greater-risk-for-giant-cell-arteritis
perceptual63
in
PMRGCAuk
2 months ago
Advice please
I am a healthy 65 year old with arthritis in my left hip. It is manageable but very painful and I have pains down my leg plus it disturbs my sleep. I have been told it has to be very severe to get any form of treatment. That is ridiculous- that I have to wait another 5 years or so - I can’t even get
I am a healthy 65 year old with arthritis in my left hip. It is manageable but very painful and I have pains down my leg plus it disturbs my sleep. I have been told it has to be very severe to get any form of treatment. That is ridiculous- that I have to wait another 5 years or so - I can’t even get
Wessy
in
Arthritis Action
9 months ago
Tapering
Just a quick question about tapering Prednisolone. I have had GCA since Aug 22. Have tapered down to 5mg but had the beginnings of a flare. My rheumatologist told me to go up to 7.5mg. The flare abated. I then got an infection/virus and on the advice of the rheumatology nurses increased to 10mg for a
Just a quick question about tapering Prednisolone. I have had GCA since Aug 22. Have tapered down to 5mg but had the beginnings of a flare. My rheumatologist told me to go up to 7.5mg. The flare abated. I then got an infection/virus and on the advice of the rheumatology nurses increased to 10mg for a
Noni71
in
PMRGCAuk
2 months ago
change to leflunomide
Hi can anyone give any advice on changing to this drug.. not keen on side effects I have Sle, on Warfarin now think rheumatoid arthritis!
Hi can anyone give any advice on changing to this drug.. not keen on side effects I have Sle, on Warfarin now think rheumatoid arthritis!
gco34
in
Vasculitis UK
9 months ago
Aortitis
I was diagnosed with non cranial Giant Cell Arteritis in September last year. So far I haven't managed to find anyone else with this condition because most people have the temporal version with the headaches.Mine is Aortitis which apparently is rare. I'd love to share experiences with someone else
I was diagnosed with non cranial Giant Cell Arteritis in September last year. So far I haven't managed to find anyone else with this condition because most people have the temporal version with the headaches.Mine is Aortitis which apparently is rare. I'd love to share experiences with someone else
Dance62
in
PMRGCAuk
2 months ago
Omega 3
Does anyone take Omega 3 supplements for Rheumatoid Arthritis if so do they help so many brands out there.
Does anyone take Omega 3 supplements for Rheumatoid Arthritis if so do they help so many brands out there.
welsh12
in
NRAS
6 months ago
Top tips on celebrating Diwali with Rheumatoid Arthritis
Join us in this heartfelt celebration of Diwali, the festival of lights🪔✨ Living with Rheumatoid Arthritis shouldn't mean you miss out on celebrating Diwali. Joti Reehal shares her personal experiences, tips, and inspiration to help you make the most of the festival while managing your Rheumatoid
Join us in this heartfelt celebration of Diwali, the festival of lights🪔✨ Living with Rheumatoid Arthritis shouldn't mean you miss out on celebrating Diwali. Joti Reehal shares her personal experiences, tips, and inspiration to help you make the most of the festival while managing your Rheumatoid
Aribah-NRAS
NRAS
in
NRAS
6 months ago
Rheumatologist Appointment
Well back from the hospital after seeing the rheumatologist after waiting all year to see him and he's said my PMR has gone into remission but unfortunately, I have now developed rheumatoid arthritis in both hands/wrists, hips and shoulders. ☹️
Well back from the hospital after seeing the rheumatologist after waiting all year to see him and he's said my PMR has gone into remission but unfortunately, I have now developed rheumatoid arthritis in both hands/wrists, hips and shoulders. ☹️
Alan7690
in
PMRGCAuk
9 months ago
Pips renewal
Hi just wondering when to expect my pips renewal form or phone call I have fibromyalgia osteoarthritis Depression and currently being treated for breast cancer. My pips runs out in June next year so want to be prepared. It's awful to be so reliant on this as well as the anxiety it causes which never
Hi just wondering when to expect my pips renewal form or phone call I have fibromyalgia osteoarthritis Depression and currently being treated for breast cancer. My pips runs out in June next year so want to be prepared. It's awful to be so reliant on this as well as the anxiety it causes which never
Mowgli2121
in
Fibromyalgia Action UK
9 months ago
Prednisolene
Good Morning . I was diagnosed with Rheumatoid Arthritis nearly three years ago . My private consultant started me on 15 mg of steroids for a month followed by a slow taper along with 15 mg methotrexate . I had a really good 18 months playing tennis and generally feeling really well with CRP around
Good Morning . I was diagnosed with Rheumatoid Arthritis nearly three years ago . My private consultant started me on 15 mg of steroids for a month followed by a slow taper along with 15 mg methotrexate . I had a really good 18 months playing tennis and generally feeling really well with CRP around
Portopetro
in
PMRGCAuk
6 months ago
GCA Osteoarthritis
I saw the rheumatologist today and he tells me all my organs are performing normally. He did see scoliosis in my back and osteoarthritis in my neck and lower back. He did not mention PMR so presume it’s off the table. My neuro opthamologist is treating my GCA with prednisone at 5mg/day. The rheumatologist
I saw the rheumatologist today and he tells me all my organs are performing normally. He did see scoliosis in my back and osteoarthritis in my neck and lower back. He did not mention PMR so presume it’s off the table. My neuro opthamologist is treating my GCA with prednisone at 5mg/day. The rheumatologist
Kittymom7
in
PMRGCAuk
10 months ago
Just joined
Hi everyone, just want to say hello and am pleased that I am now part of this online community. I've had Rheumatoid Arthritis for over 30 years now and it's good to be able to hear from others in the same situation .
Hi everyone, just want to say hello and am pleased that I am now part of this online community. I've had Rheumatoid Arthritis for over 30 years now and it's good to be able to hear from others in the same situation .
AcerGirl
in
NRAS
6 months ago
Recently Diagnosed PMR
Hi have recently been diagnosed with pmr after constantly being fobbed off by gp with pain killers like Gabapentin, amitryptaline, no investigations just pills, so i decided to see a Rheumatologist privately to find out exactly what is wrong with me, although i have some osteo arthritis, i could no
Hi have recently been diagnosed with pmr after constantly being fobbed off by gp with pain killers like Gabapentin, amitryptaline, no investigations just pills, so i decided to see a Rheumatologist privately to find out exactly what is wrong with me, although i have some osteo arthritis, i could no
dachshund23
in
PMRGCAuk
10 months ago
PIP Application form (Typing replies)
A little about me.I have been diagnosed with :- Lupus Rheumatoid Arthritis Fibromyalgia Underactive thyroid Hyperparathyrodism Carpal tunnel syndrome Osteoarthritis Depression Lower back spinal fusion Constant huge fatigue and brain fog I am planning on applying for PIP for the first time and
A little about me.I have been diagnosed with :- Lupus Rheumatoid Arthritis Fibromyalgia Underactive thyroid Hyperparathyrodism Carpal tunnel syndrome Osteoarthritis Depression Lower back spinal fusion Constant huge fatigue and brain fog I am planning on applying for PIP for the first time and
SLEepyhead123
in
NRAS
10 months ago
Pills not working
On 10 mcgMST, twice s day, Paracetamol 3 times a day,still in agony, blood tests showed it's not PMR, thinking of trying Canabol oil, Osteoarthritis in , neck, shoulders,knees ,and spreading, pills not working, Keith
On 10 mcgMST, twice s day, Paracetamol 3 times a day,still in agony, blood tests showed it's not PMR, thinking of trying Canabol oil, Osteoarthritis in , neck, shoulders,knees ,and spreading, pills not working, Keith
Amyltriptilene
in
Pain Concern
10 months ago
Relapse 3 years later?
Had PMR, treated sucessfully. Came off Pred completely October 2020. My ESR was 26 at that time and rheumatology ordered repeat bloods. Had the bloods. Never heard anything else so presumed I was cured. 3 years later last few months awful neck & shoulder pain, finger joints swelling, neck cracking
Had PMR, treated sucessfully. Came off Pred completely October 2020. My ESR was 26 at that time and rheumatology ordered repeat bloods. Had the bloods. Never heard anything else so presumed I was cured. 3 years later last few months awful neck & shoulder pain, finger joints swelling, neck cracking
Purplelamp
in
PMRGCAuk
10 months ago
1
...
10
11
12
...
100
Next page
10
20
30
40
50
60
70
80
90
100
Filter results
Clear filters
Posted in
All communities
NRAS
1882 results
PMRGCAuk
552 results
Arthritis Action
510 results
View top 10 communities
Sort by
Most Relevant
Newest