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Experiences with
Joint fusion
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Knuckle joint replacement
Hi , I am a hairstylist and need my mcp knuckle replaced. Has anyone ever had this done? How long before you can go back to work? Or can you? Any advice is appreciated. Aloha, Bonnie
Hi , I am a hairstylist and need my mcp knuckle replaced. Has anyone ever had this done? How long before you can go back to work? Or can you? Any advice is appreciated. Aloha, Bonnie
Hasselleb
in
NRAS
7 years ago
Running with hypermobility and unstable ankles
Hi everyone, I'm a newbie to couch to 5k. I started last week and completed W2R1 today. I'm loving it! I started running to help me try and beat post natal depression. I'm so proud to have started. So far it's having a brilliant impact on my mental health and I can really feel a difference already
Hi everyone, I'm a newbie to couch to 5k. I started last week and completed W2R1 today. I'm loving it! I started running to help me try and beat post natal depression. I'm so proud to have started. So far it's having a brilliant impact on my mental health and I can really feel a difference already
laura_starts_running
in
Couch to 5K
7 years ago
What to do?
I saw my Rheumy today. It seems she wants me to continue on Rituxan but also go back on MTX injections. I must admit I am torn. I delayed Rituxan for a month and it did not trigger a flare. My inflammation remains low but the pain and fatigue are still extreme. My range of motion is very limited. She
I saw my Rheumy today. It seems she wants me to continue on Rituxan but also go back on MTX injections. I must admit I am torn. I delayed Rituxan for a month and it did not trigger a flare. My inflammation remains low but the pain and fatigue are still extreme. My range of motion is very limited. She
Damaged
in
NRAS
7 years ago
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Hypermobility syndrome, fybromyalgia
hi, I'm just new here and was hoping for some advice, I have been suffering for years with joint and muscle pain (amongst other things) only to have first been diagnosed with fibromyalgia, they have now confirmed that some of the pain could be caused by hypermobility in my younger years and over stretching
hi, I'm just new here and was hoping for some advice, I have been suffering for years with joint and muscle pain (amongst other things) only to have first been diagnosed with fibromyalgia, they have now confirmed that some of the pain could be caused by hypermobility in my younger years and over stretching
audrey123
in
Ehlers-Danlos Support UK
7 years ago
I might have overdosed
Over the last two weeks I increased my Levo dose to 200mg from 175mg off my own bat. Although I felt no different on this dose I did start having very severe panic attacks ( I have a history of this and take paroxetine to assist with these and haven't had any for a year I think) My question is how shall
Over the last two weeks I increased my Levo dose to 200mg from 175mg off my own bat. Although I felt no different on this dose I did start having very severe panic attacks ( I have a history of this and take paroxetine to assist with these and haven't had any for a year I think) My question is how shall
Steni
in
Thyroid UK
7 years ago
Cerebellar Ataxia and eye problems
I have been diagnosed with CANVAS - cerebellar ataxia being part of it. I have lots of problems with my eyes - nystagmus, oscilllopsia, double vision and aching eye muscles. Not to mention the headaches. It feels like my eye muscles are constantly pulling in opposite directions. Is anyone on here having
I have been diagnosed with CANVAS - cerebellar ataxia being part of it. I have lots of problems with my eyes - nystagmus, oscilllopsia, double vision and aching eye muscles. Not to mention the headaches. It feels like my eye muscles are constantly pulling in opposite directions. Is anyone on here having
3chickens
in
Ataxia UK
7 years ago
Hypermobile joint syndrome and h-EDS
Hello, I've just been diagnosed with hypermobile joint sydrome. I've had significant health issues for about 11 years now but things got a lot worse over the past 6 months. I've had joint and muscle pains for more years than this but mostly self managed and saw an osteopath (which did help a bit)
Hello, I've just been diagnosed with hypermobile joint sydrome. I've had significant health issues for about 11 years now but things got a lot worse over the past 6 months. I've had joint and muscle pains for more years than this but mostly self managed and saw an osteopath (which did help a bit)
Kajarvie1985
in
Ehlers-Danlos Support UK
7 years ago
Pain in the leg
Just joined, first got restless leg in the Army where the cure was a run, then after 19 years things out of my control meant I left disabled with amongst other things a nervous system which was not what it was, I've had everything from restless legs to involuntary spasms that can throw me out of bed
Just joined, first got restless leg in the Army where the cure was a run, then after 19 years things out of my control meant I left disabled with amongst other things a nervous system which was not what it was, I've had everything from restless legs to involuntary spasms that can throw me out of bed
blue_is_the_colour
in
Restless Legs Syndrome
7 years ago
So surgery...
Unfortunately the subtler
joint
fusion
I received in August didn't fuse all the way and the infection I got in November and second surgery in December to remove the screws didn't help. I recently just got a steroid shot (again) and of course it didn't help a bit.
Unfortunately the subtler
joint
fusion
I received in August didn't fuse all the way and the infection I got in November and second surgery in December to remove the screws didn't help. I recently just got a steroid shot (again) and of course it didn't help a bit.
allard4life
in
NRAS
7 years ago
Hypermobile EDS & Endometrosis
Has anyone with hEDS been diagnosed with Endometriosis and if so, what treatment did you have and how did it affect you?
Has anyone with hEDS been diagnosed with Endometriosis and if so, what treatment did you have and how did it affect you?
piperpiper1
in
Ehlers-Danlos Support UK
7 years ago
EDS or HMS
Hi, In June 2015 I was diagnosed with mild joint hypermobility and bilateral pes planus ( flat feet ). Since then my condition has only got worse, at the time I was only in a large amount of pain and my joints wouldn't dislocate. my joints constantly dislocate, I suffer from chronic pain and fatiague
Hi, In June 2015 I was diagnosed with mild joint hypermobility and bilateral pes planus ( flat feet ). Since then my condition has only got worse, at the time I was only in a large amount of pain and my joints wouldn't dislocate. my joints constantly dislocate, I suffer from chronic pain and fatiague
life_as_me_2003
in
Ehlers-Danlos Support UK
7 years ago
RA Ankle Fusion
Hey all, So I've been dealing with RA for four years now, I'm currently 20, and I recently had a subtalor
joint
fusion
in my right ankle. Unfortunately my hardware in my ankle got infected and they took it out. We're unsure if there was a nonfusion.
Hey all, So I've been dealing with RA for four years now, I'm currently 20, and I recently had a subtalor
joint
fusion
in my right ankle. Unfortunately my hardware in my ankle got infected and they took it out. We're unsure if there was a nonfusion.
allard4life
in
NRAS
7 years ago
I am new to this forum
. I am a 78 years old Female and am recovering from a hip joint replacement operation in January and developed an infection straight away and had Antibiotics. Shortly afterwards got chest infection and more Antibiotics. Shortly after this I was diagnosed by my GP with PMR two weeks ago and taking a 5mg
. I am a 78 years old Female and am recovering from a hip joint replacement operation in January and developed an infection straight away and had Antibiotics. Shortly afterwards got chest infection and more Antibiotics. Shortly after this I was diagnosed by my GP with PMR two weeks ago and taking a 5mg
Hidden
in
PMRGCAuk
7 years ago
Paulinpain
Hi There, Thank you for letting me join this communting. I suffer with Low chronic back pain from an accident at work in 1992. I now live in Spain and have done so since 2005, Here i have had 5 operations, Two Triple level spinal fusions and Two more Procedures of RFA and Still suffer and take pain meds
Hi There, Thank you for letting me join this communting. I suffer with Low chronic back pain from an accident at work in 1992. I now live in Spain and have done so since 2005, Here i have had 5 operations, Two Triple level spinal fusions and Two more Procedures of RFA and Still suffer and take pain meds
Paulinpain
in
Pain Concern
7 years ago
Joint pain
In the past I was diagnosed with Rheumatoid Arthritis then told I had fibromyalgia when I switched rheumatologist. I quit going to doctors and taking meds (hydroxychloroquine, enbrel and mythelprednosolone) and started crossfit which did help until I needed spinal fusion (bounce house not crossfit) which
In the past I was diagnosed with Rheumatoid Arthritis then told I had fibromyalgia when I switched rheumatologist. I quit going to doctors and taking meds (hydroxychloroquine, enbrel and mythelprednosolone) and started crossfit which did help until I needed spinal fusion (bounce house not crossfit) which
Heidi-B
in
Hughes Syndrome APS Forum
7 years ago
Critical illness myopathy
Hi. I'm a mum of a 16 yr old who suffered post surgery complications after a spinal fusion. She ended up with an emergency tracheotomy and then the following week had some event. She has just been comfirmed by a muscle biopsy with critical illness myophady. aprohy of the fast twitch fibres.) They are
Hi. I'm a mum of a 16 yr old who suffered post surgery complications after a spinal fusion. She ended up with an emergency tracheotomy and then the following week had some event. She has just been comfirmed by a muscle biopsy with critical illness myophady. aprohy of the fast twitch fibres.) They are
Hanban14
in
ICUsteps
7 years ago
Pain now or pain later
I'm 30 years old. I had corrective surgery for scoliosis and acute lateral shift when I was 13. I was reasonably fine until about 2 years ago where I started having severe pain in my hip. After over a year of tests and checks it seems that the facet joints at the base of my spinal fusion are rubbing
I'm 30 years old. I had corrective surgery for scoliosis and acute lateral shift when I was 13. I was reasonably fine until about 2 years ago where I started having severe pain in my hip. After over a year of tests and checks it seems that the facet joints at the base of my spinal fusion are rubbing
Pepper86
in
Pain Concern
7 years ago
Need to lose 3 stone, under active thyroid and joint hypermobility syndrome
Hi, I'm new to this app but I'm determined to get myself sorted. I've been going to the gym for the last year, but on a very casual '10 mins on the treadmill then an hour in the spa' way, and having weighed myself today I'm horrified by how much the numbers have gone up! I need to lose 3 stone to be
Hi, I'm new to this app but I'm determined to get myself sorted. I've been going to the gym for the last year, but on a very casual '10 mins on the treadmill then an hour in the spa' way, and having weighed myself today I'm horrified by how much the numbers have gone up! I need to lose 3 stone to be
Hidden
in
Weight Loss Support
7 years ago
New to the group - Fed up
Hi; My 1st post. Im in my early 40's and got a diagnosis of Fibromyalgia early this year after having chronic pain in various parts of my body for just over 10 years. I was always very sporty and slim, and after getting a few injuries reduced my activity levels due to the high levels of pain. It started
Hi; My 1st post. Im in my early 40's and got a diagnosis of Fibromyalgia early this year after having chronic pain in various parts of my body for just over 10 years. I was always very sporty and slim, and after getting a few injuries reduced my activity levels due to the high levels of pain. It started
TaylorCat
in
Fibromyalgia Action UK
7 years ago
Tongue biting
Hello there, can anyone give me suggestions to stop my partner from biting his tongue. After nearly 5 weeks, he finally has a trachy, before that, he was biting on the tube that went down his throat, his tongue was stuck out a little because of the tube. I have been told it is a habit, but wondered what
Hello there, can anyone give me suggestions to stop my partner from biting his tongue. After nearly 5 weeks, he finally has a trachy, before that, he was biting on the tube that went down his throat, his tongue was stuck out a little because of the tube. I have been told it is a habit, but wondered what
sue-66
in
Headway
7 years ago
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