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Hypermobile joint syndrome and h-EDS
Hello, I've just been diagnosed with hypermobile joint sydrome. I've had significant health issues for about 11 years now but things got a lot worse over the past 6 months. I've had joint and muscle pains for more years than this but mostly self managed and saw an osteopath (which did help a bit)
Hello, I've just been diagnosed with hypermobile joint sydrome. I've had significant health issues for about 11 years now but things got a lot worse over the past 6 months. I've had joint and muscle pains for more years than this but mostly self managed and saw an osteopath (which did help a bit)
Kajarvie1985
in
Ehlers-Danlos Support UK
7 years ago
Pain in the leg
Just joined, first got restless leg in the Army where the cure was a run, then after 19 years things out of my control meant I left disabled with amongst other things a nervous system which was not what it was, I've had everything from restless legs to involuntary spasms that can throw me out of bed
Just joined, first got restless leg in the Army where the cure was a run, then after 19 years things out of my control meant I left disabled with amongst other things a nervous system which was not what it was, I've had everything from restless legs to involuntary spasms that can throw me out of bed
blue_is_the_colour
in
Restless Legs Syndrome
7 years ago
So surgery...
Unfortunately the subtler
joint
fusion
I received in August didn't fuse all the way and the infection I got in November and second surgery in December to remove the screws didn't help. I recently just got a steroid shot (again) and of course it didn't help a bit.
Unfortunately the subtler
joint
fusion
I received in August didn't fuse all the way and the infection I got in November and second surgery in December to remove the screws didn't help. I recently just got a steroid shot (again) and of course it didn't help a bit.
allard4life
in
NRAS
7 years ago
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Hypermobile EDS & Endometrosis
Has anyone with hEDS been diagnosed with Endometriosis and if so, what treatment did you have and how did it affect you?
Has anyone with hEDS been diagnosed with Endometriosis and if so, what treatment did you have and how did it affect you?
piperpiper1
in
Ehlers-Danlos Support UK
7 years ago
EDS or HMS
Hi, In June 2015 I was diagnosed with mild joint hypermobility and bilateral pes planus ( flat feet ). Since then my condition has only got worse, at the time I was only in a large amount of pain and my joints wouldn't dislocate. my joints constantly dislocate, I suffer from chronic pain and fatiague
Hi, In June 2015 I was diagnosed with mild joint hypermobility and bilateral pes planus ( flat feet ). Since then my condition has only got worse, at the time I was only in a large amount of pain and my joints wouldn't dislocate. my joints constantly dislocate, I suffer from chronic pain and fatiague
life_as_me_2003
in
Ehlers-Danlos Support UK
7 years ago
I am new to this forum
. I am a 78 years old Female and am recovering from a hip joint replacement operation in January and developed an infection straight away and had Antibiotics. Shortly afterwards got chest infection and more Antibiotics. Shortly after this I was diagnosed by my GP with PMR two weeks ago and taking a 5mg
. I am a 78 years old Female and am recovering from a hip joint replacement operation in January and developed an infection straight away and had Antibiotics. Shortly afterwards got chest infection and more Antibiotics. Shortly after this I was diagnosed by my GP with PMR two weeks ago and taking a 5mg
Hidden
in
PMRGCAuk
7 years ago
RA Ankle Fusion
Hey all, So I've been dealing with RA for four years now, I'm currently 20, and I recently had a subtalor
joint
fusion
in my right ankle. Unfortunately my hardware in my ankle got infected and they took it out. We're unsure if there was a nonfusion.
Hey all, So I've been dealing with RA for four years now, I'm currently 20, and I recently had a subtalor
joint
fusion
in my right ankle. Unfortunately my hardware in my ankle got infected and they took it out. We're unsure if there was a nonfusion.
allard4life
in
NRAS
7 years ago
Paulinpain
Hi There, Thank you for letting me join this communting. I suffer with Low chronic back pain from an accident at work in 1992. I now live in Spain and have done so since 2005, Here i have had 5 operations, Two Triple level spinal fusions and Two more Procedures of RFA and Still suffer and take pain meds
Hi There, Thank you for letting me join this communting. I suffer with Low chronic back pain from an accident at work in 1992. I now live in Spain and have done so since 2005, Here i have had 5 operations, Two Triple level spinal fusions and Two more Procedures of RFA and Still suffer and take pain meds
Paulinpain
in
Pain Concern
7 years ago
Joint pain
In the past I was diagnosed with Rheumatoid Arthritis then told I had fibromyalgia when I switched rheumatologist. I quit going to doctors and taking meds (hydroxychloroquine, enbrel and mythelprednosolone) and started crossfit which did help until I needed spinal fusion (bounce house not crossfit) which
In the past I was diagnosed with Rheumatoid Arthritis then told I had fibromyalgia when I switched rheumatologist. I quit going to doctors and taking meds (hydroxychloroquine, enbrel and mythelprednosolone) and started crossfit which did help until I needed spinal fusion (bounce house not crossfit) which
Heidi-B
in
Hughes Syndrome APS Forum
7 years ago
Critical illness myopathy
Hi. I'm a mum of a 16 yr old who suffered post surgery complications after a spinal fusion. She ended up with an emergency tracheotomy and then the following week had some event. She has just been comfirmed by a muscle biopsy with critical illness myophady. aprohy of the fast twitch fibres.) They are
Hi. I'm a mum of a 16 yr old who suffered post surgery complications after a spinal fusion. She ended up with an emergency tracheotomy and then the following week had some event. She has just been comfirmed by a muscle biopsy with critical illness myophady. aprohy of the fast twitch fibres.) They are
Hanban14
in
ICUsteps
7 years ago
Need to lose 3 stone, under active thyroid and joint hypermobility syndrome
Hi, I'm new to this app but I'm determined to get myself sorted. I've been going to the gym for the last year, but on a very casual '10 mins on the treadmill then an hour in the spa' way, and having weighed myself today I'm horrified by how much the numbers have gone up! I need to lose 3 stone to be
Hi, I'm new to this app but I'm determined to get myself sorted. I've been going to the gym for the last year, but on a very casual '10 mins on the treadmill then an hour in the spa' way, and having weighed myself today I'm horrified by how much the numbers have gone up! I need to lose 3 stone to be
Hidden
in
Weight Loss Support
7 years ago
Pain now or pain later
I'm 30 years old. I had corrective surgery for scoliosis and acute lateral shift when I was 13. I was reasonably fine until about 2 years ago where I started having severe pain in my hip. After over a year of tests and checks it seems that the facet joints at the base of my spinal fusion are rubbing
I'm 30 years old. I had corrective surgery for scoliosis and acute lateral shift when I was 13. I was reasonably fine until about 2 years ago where I started having severe pain in my hip. After over a year of tests and checks it seems that the facet joints at the base of my spinal fusion are rubbing
Pepper86
in
Pain Concern
7 years ago
New to the group - Fed up
Hi; My 1st post. Im in my early 40's and got a diagnosis of Fibromyalgia early this year after having chronic pain in various parts of my body for just over 10 years. I was always very sporty and slim, and after getting a few injuries reduced my activity levels due to the high levels of pain. It started
Hi; My 1st post. Im in my early 40's and got a diagnosis of Fibromyalgia early this year after having chronic pain in various parts of my body for just over 10 years. I was always very sporty and slim, and after getting a few injuries reduced my activity levels due to the high levels of pain. It started
TaylorCat
in
Fibromyalgia Action UK
7 years ago
Tongue biting
Hello there, can anyone give me suggestions to stop my partner from biting his tongue. After nearly 5 weeks, he finally has a trachy, before that, he was biting on the tube that went down his throat, his tongue was stuck out a little because of the tube. I have been told it is a habit, but wondered what
Hello there, can anyone give me suggestions to stop my partner from biting his tongue. After nearly 5 weeks, he finally has a trachy, before that, he was biting on the tube that went down his throat, his tongue was stuck out a little because of the tube. I have been told it is a habit, but wondered what
sue-66
in
Headway
7 years ago
Broken Back
I recently just broke my vertebrae and have to have a spinal fusion and I am so scared.. Does anyone have tips on how to prepare for surgery?
I recently just broke my vertebrae and have to have a spinal fusion and I am so scared.. Does anyone have tips on how to prepare for surgery?
Cayla_Smith
in
Sports Injury
7 years ago
My First Day
This is my first day on this diet or healthy eating plan. I have recently had a spinal fusion so at the moment I can do core strengthening exercises only. Five years ago I lost 4 stone on a drink and eat diet and was more on the too skinny chart. Now, having little exercise and eating more, I need
This is my first day on this diet or healthy eating plan. I have recently had a spinal fusion so at the moment I can do core strengthening exercises only. Five years ago I lost 4 stone on a drink and eat diet and was more on the too skinny chart. Now, having little exercise and eating more, I need
Diesse
in
Weight Loss Support
7 years ago
Double vision after tbi
Hey! I'm 22years old and I was involved in a car accident 2 months ago and suffered many injuries. The injury I am most concerned about is the Subarachnoid hemorrhage. I have been discharged from hospital (after being kept in for 10 days) but have had double vision since the accident. If I shut either
Hey! I'm 22years old and I was involved in a car accident 2 months ago and suffered many injuries. The injury I am most concerned about is the Subarachnoid hemorrhage. I have been discharged from hospital (after being kept in for 10 days) but have had double vision since the accident. If I shut either
lucyjenarog
in
Headway
7 years ago
Start Here: There Will Be a Quiz Later
Welcome to life without Glycols! If you’ve just discovered you have a sensitivity or allergy to polyethylene glycol or other glycol compounds, you’ll need to learn how to find it, how to avoid it, and what alternatives there are. This is a community where you can find resources and share your experience
Welcome to life without Glycols! If you’ve just discovered you have a sensitivity or allergy to polyethylene glycol or other glycol compounds, you’ll need to learn how to find it, how to avoid it, and what alternatives there are. This is a community where you can find resources and share your experience
linabella
Administrator
in
Allergic to Glycols
7 years ago
fibromyalgia and joint hypermobility
When I was 7 I was diagnosed with juvenile rheumatoid arthritis.. as I grew older it developed according to the specialist... when I turned 16 I was told it was fibromyalgia and joint hypermobility throughout my body. Unfortunately non of the medication helps my pain. I've tried swimming but found I
When I was 7 I was diagnosed with juvenile rheumatoid arthritis.. as I grew older it developed according to the specialist... when I turned 16 I was told it was fibromyalgia and joint hypermobility throughout my body. Unfortunately non of the medication helps my pain. I've tried swimming but found I
fluffyloz85
in
Fibromyalgia Action UK
7 years ago
Hypermobility
Hi all. Since receiving my daughter diagnosis of Hypermobility have researched the condition and it resembles my symptoms the doctor has now classed as "nerve problems in the lower back". Is one of the symptoms not being able to gain weight as this has been a problem for me since I was young and have
Hi all. Since receiving my daughter diagnosis of Hypermobility have researched the condition and it resembles my symptoms the doctor has now classed as "nerve problems in the lower back". Is one of the symptoms not being able to gain weight as this has been a problem for me since I was young and have
John-bacon
in
Ehlers-Danlos Support UK
7 years ago
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