Cerebellar Ataxia and eye problems

[3chickens]

I have been diagnosed with CANVAS - cerebellar ataxia being part of it. I have lots of problems with my eyes - nystagmus, oscilllopsia, double vision and aching eye muscles. Not to mention the headaches. It feels like my eye muscles are constantly pulling in opposite directions. Is anyone on here having any treatment for similar issues or can recommend anyone to advise me on how to manage the symptoms?

[ladyntramp]

Hi 3chickens, I have eye problems - aching eye muscles too. When I see my local doctor next I will ask about them. Worse in my left eye. My dad had a prism in the left lens of his glasses because of double vision - boy do I take after him.

[xray25]

Hi springlove i also have a gold weight in my eye have had ower lid uplift higher lid tuck eyebrow emlinement botox in my eye to try and losen muscle as only have up and down movement no side to side, have a really bad wobble in the other eye so cannot have prisms as eyes go differant ways have 2 lots of drops lacri-lube and vis-clear used to have to tape eye shut with micro-pore until gold weight, under 2 eye clinics at LRI

[brossi65]

The only eye issue I have is dry eye and Macular Degenation, which cause blindness when it become wet. I have the dry, but do have vision is of wavy lines and slowly loosing the clarity of sight. Did u have a retina doctor examine your eyes?

[3chickens]

I haven't seen an eye doctor. Or any other consultant for about 2 years. When they said there was no treatment for my Ataxia symptoms I've just got on with it. I get really anxious seeing doctors so it's easier to put up with everything.

[tedjohnson in reply to 3chickens]

Hi 3chickens

I have just seen your letter on eye problems. I too have canvas and my consultant told me there is no cure or treatment ug!! I must admit that this is so frustrating as I find that if I do any exercises I get very dizzy and sometimes feel sick. It's probably just a case of getting on with life and avoiding any falls

Good luck. Ted

[Jenrula1]

I can't help you but this comment has helped me. My eldest daughter has ataxia and a learning disability and has been showing me her eyes today and saying ' see where it's sore' but I can't see anything ... I suspect it's muscular and googled to see if that could be accurate and your comment came up. Thanks.

[Threeper in reply to Jenrula1]

A lot of comments here but I figured I would comment on your comment. Because that doesn't sound redundant. Basically wanted to say that that must be tough and and someone with degenerative Ataxia from traumatic brain injury in the military can kind of get the trying to explain something hurts without being able to really show anybody in a way that is tangible to them. Equally I know it's just as hard for my parents as it is for me, and I'm now 30. Hope things are going relatively well and she's managing okay.

[neta]

I have no pain but increasing vision problems .Even seeing this page is a challenge I went to an eye dr and he said I have dry eyes more importantly, low convergence, not sure what this is Ataxia is getting hard to ignore xxx N

[Hidden]

Hi ask you Neurologist for a Vagus Nerve Stimulator, I my self have Cerebellar Ataxia. It helps 80% I don't deal with me eye sight going dark like it use to, 150 attacks don't happen anymore.