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Experiences with
Intravenous immunoglobulin (IVIg)
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Acalabruitinib and Obinutuzumab
The Acalabrutinib is my 3rd BTK inhibitors I started with Ibrutinib and had many side effects including afib which lead to an ablation procedure Then LOXO 305 which caused me serious liver problems recently all my red counts went drastically low along with platelets and my IGG I immediately had
ivig
The Acalabrutinib is my 3rd BTK inhibitors I started with Ibrutinib and had many side effects including afib which lead to an ablation procedure Then LOXO 305 which caused me serious liver problems recently all my red counts went drastically low along with platelets and my IGG I immediately had
ivig
Porter01
in
CLL Support
2 years ago
Back to back ivig and Evusheld?
I was presented the opportunity to get Evusheld today because I receive
ivig
and qualify for emergency use. I set up an appointment for Tuesday but I have my 6 week
ivig
appointment the day before, on Monday.
I was presented the opportunity to get Evusheld today because I receive
ivig
and qualify for emergency use. I set up an appointment for Tuesday but I have my 6 week
ivig
appointment the day before, on Monday.
CoCoLuna11
in
CLL Support
2 years ago
IVIG versus prednisone
I know steroids are much cheaper, but I couldn't really get out why
IVIG
was better, even though it was the recommended treatment. My doc explained it was super expensive and that I could choose steroids and was kind of expecting me to say no to the
IVIG
due to cost.
I know steroids are much cheaper, but I couldn't really get out why
IVIG
was better, even though it was the recommended treatment. My doc explained it was super expensive and that I could choose steroids and was kind of expecting me to say no to the
IVIG
due to cost.
minnesota_girl
in
Fertility Network UK
2 years ago
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IVIG Infusion and Covid Vaccination spacing
I have on previous COVID vaccinations, left a few weeks to my next
IVIG
infusion. Unfortunately I have been called up for my Covid vaccination of the 6th Jan and have an
IVIG
infusion scheduled for the 8th Jan.
I have on previous COVID vaccinations, left a few weeks to my next
IVIG
infusion. Unfortunately I have been called up for my Covid vaccination of the 6th Jan and have an
IVIG
infusion scheduled for the 8th Jan.
RobertCLL
in
CLL Support
2 years ago
Venetoclax+Rituximab OR Acalabrutinib - What is the best choice?
IVIG
< 2 and fighting long term recurring sinus/throat infections. Bit of a complication in Aug 2021, when I had a MI Heart attack (and two stents fitted) and now have an echo result of 42 - all being controlled by a host of drugs.
IVIG
< 2 and fighting long term recurring sinus/throat infections. Bit of a complication in Aug 2021, when I had a MI Heart attack (and two stents fitted) and now have an echo result of 42 - all being controlled by a host of drugs.
Rich316
in
CLL Support
2 years ago
Venetoclax: The Final Stretch……Do You Have A Uric Acid Problem
I had a 5 course treatment of
IVIG
which got the Platelets up high enough, but it also triggered a very serious case of TLS.
I had a 5 course treatment of
IVIG
which got the Platelets up high enough, but it also triggered a very serious case of TLS.
KevinCLLITP
in
CLL Support
2 years ago
Possible Trigger - Scan Nightmare
Went to second clinic where I did all my previous IVF with a view of getting
IVIG
if I needed it . When she did the scan she said I was measuring measuring close to bang on at 6 weeks 5 days and a HB of 108.
Went to second clinic where I did all my previous IVF with a view of getting
IVIG
if I needed it . When she did the scan she said I was measuring measuring close to bang on at 6 weeks 5 days and a HB of 108.
letro112
in
Fertility Network UK
2 years ago
Covid Shot or No Covid Shot. That is the question!
I was put in the hospital and received platelet transfusion and
IVIG
treatments. A year later I now have Chronic ITP and am on 75 mg of Promacta. My platelet levels are in the normal range now. I was advised by my doctor not to get my second Covid 19 shot.
I was put in the hospital and received platelet transfusion and
IVIG
treatments. A year later I now have Chronic ITP and am on 75 mg of Promacta. My platelet levels are in the normal range now. I was advised by my doctor not to get my second Covid 19 shot.
hiltonhead
in
ITP Support Association
2 years ago
Does dexmethsone work quickly?
I had come off prednisone and had two doses of
IVIG
one month apart so now had 2 doses of
IVIG
2 days apart and taking 40mg dexmethsone has dex worked quickly for anyone?
I had come off prednisone and had two doses of
IVIG
one month apart so now had 2 doses of
IVIG
2 days apart and taking 40mg dexmethsone has dex worked quickly for anyone?
Loftyc
in
ITP Support Association
3 years ago
My Experience with ITP
I have also taken various immunosuppressants like
IVIG
, Rituximab and Prednisolone. This hair fall is completely normal, so don't worry. I found using soaking fenugreek seeds in water and spraying that water helps a lot. Try using Himalaya Anti Hair Fall Shampoo. It really helps.
I have also taken various immunosuppressants like
IVIG
, Rituximab and Prednisolone. This hair fall is completely normal, so don't worry. I found using soaking fenugreek seeds in water and spraying that water helps a lot. Try using Himalaya Anti Hair Fall Shampoo. It really helps.
boredbetty
in
ITP Support Association
2 years ago
Covid 19 Shot and ITP
My count dropped to 3,000 and was hospitalized for a week getting a platelet transfusion and
IVIG
treatments. After 8 months of treatment I am now considered to have Chronic ITP. All my blood work before my Covid 19 shot shows that my platelet counts were well within the normal range.
My count dropped to 3,000 and was hospitalized for a week getting a platelet transfusion and
IVIG
treatments. After 8 months of treatment I am now considered to have Chronic ITP. All my blood work before my Covid 19 shot shows that my platelet counts were well within the normal range.
hiltonhead
in
ITP Support Association
3 years ago
Back muscles and side of body muscles a mess
My oncologist who is a great diagnostician says we have to get me off the steroids and use something else...mention
IVIG
or something like that. I am 77 and can't take chemo type drugs again. Sorry so long but maybe someone will see something we have not thought of.
My oncologist who is a great diagnostician says we have to get me off the steroids and use something else...mention
IVIG
or something like that. I am 77 and can't take chemo type drugs again. Sorry so long but maybe someone will see something we have not thought of.
Microbe1943
in
PMRGCAuk
2 years ago
Five years of IVF: this is what I learnt
I tried
IVIG
- a very expensive drip for immunes. It didn’t work and ended in a chemical pregnancy. After so many failed cycles, I begged my doctor to put me on 25mg of steroids when their clinical policy during covid was to stop all steriods.
I tried
IVIG
- a very expensive drip for immunes. It didn’t work and ended in a chemical pregnancy. After so many failed cycles, I begged my doctor to put me on 25mg of steroids when their clinical policy during covid was to stop all steriods.
Seren0119
in
Fertility Network UK
2 years ago
Headaches
I was put in the hospital for a week and given a platelet transfusion and
IVIG
treatment. Since then I have been on prednison starting at 60 mg and have tapered down to 5mg. That is when my platelets dropped again to 20,000 and I am now considered having Chronic ITP.
I was put in the hospital for a week and given a platelet transfusion and
IVIG
treatment. Since then I have been on prednison starting at 60 mg and have tapered down to 5mg. That is when my platelets dropped again to 20,000 and I am now considered having Chronic ITP.
hiltonhead
in
ITP Support Association
3 years ago
Financial assistance for IVIG
Is there any financial assistance for
IVIG
treatment in USA?
Is there any financial assistance for
IVIG
treatment in USA?
pragnar
in
CLL Support
3 years ago
IVIG seems to have shared some antibodies from previous COVID patient
I have had three Moderna mRNA jabs ( last on 10/15/21) and have been getting
IVIG
for ITP (immune system gobbling up platelets) dx 7/21. I am also in the US LLS study, and as mono Venclexta patient, have been producing some level of antibodies, unlike those on Gazyva+Venclexta.
I have had three Moderna mRNA jabs ( last on 10/15/21) and have been getting
IVIG
for ITP (immune system gobbling up platelets) dx 7/21. I am also in the US LLS study, and as mono Venclexta patient, have been producing some level of antibodies, unlike those on Gazyva+Venclexta.
E-Lynn
in
CLL Support
3 years ago
CBC testing frequency with ITP?
My doctor only intervenes with a medicine (
IVIG
, Rituxan, etc) if I am having bad symptoms (bleeding or petechiae). Since I tell him when I am experiencing those symptoms I don't feel the need to check the numbers so frequently.
My doctor only intervenes with a medicine (
IVIG
, Rituxan, etc) if I am having bad symptoms (bleeding or petechiae). Since I tell him when I am experiencing those symptoms I don't feel the need to check the numbers so frequently.
bellumbus
in
ITP Support Association
2 years ago
IViG
Has anyone achieved remission on
IVIG
.? Also can I expect to feel better after these infusions?
Has anyone achieved remission on
IVIG
.? Also can I expect to feel better after these infusions?
Loftyc
in
ITP Support Association
3 years ago
Spike Protein AB Test - What color Vial
I attended the hospital today for my monthly
IVIG
infusion. Whilst there, I also have my regular blood draw. Included in the blood draw today was a Covid Spike Protein Antibody Test. It was not known to the nurses what color vial should be used.
I attended the hospital today for my monthly
IVIG
infusion. Whilst there, I also have my regular blood draw. Included in the blood draw today was a Covid Spike Protein Antibody Test. It was not known to the nurses what color vial should be used.
RobertCLL
in
CLL Support
3 years ago
IVIG infusion
When do patients get started on
IVIG
infusion please?
When do patients get started on
IVIG
infusion please?
Vocals
in
CLL Support
3 years ago
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